Insurance companies should cover wigs

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Hi. I am starting this topic to see if any of you have also been denied coverage for a wig. I strongly feel that EVERY insurance company should cover the cost of at least one wig or provide some compensation. It's bad enough that we have to undergo chemo and all of the side effects especially losing our hair, but to know that the insurance company will not cover the cost or partial cost of a wig is outrageous. They make it sound that the wig is not a valuable or necessary part of our recovery. I think most women would agree that loosing our hair is one of the most devastating part of treatment. This is my second round with breast cancer. I was very fortunate with the first Diagnosis in 2005 with DCIS and opted for a mastectomy therefore did not require chemotherapy or radiation. Iin January of this year I was diagnosed with a new/ cancer recurrence stage one requiring chemotherapy and radiation. I can tell you that losing my hair was much more devastating than losing a breast. Does anyone else feel

this way? Let's all start to lobby for coverage of wigs.

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Comments

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2012

    Yes, I was denied coverage, and it didn't matter how the RX was written (e.g. cranial prothesis),  it just isn't a covered item with my otherwise excellent insurance which covered most of my tx 100%.

    Just FYI, The American Cancer Society offers free wigs in many areas.  Where I live, a large selection of donated wigs was brought to the Look Good Feel Better Class, and in some areas they give out a coupon that can be redeemed somewhere else for one.        Deanna

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited March 2012

    Yes...check at the hospital!  The first one was free and offered through ACS.  I never wore mine and I would like to know how to donate it to someone that would use it!!

  • Kicks
    Kicks Member Posts: 4,131
    edited March 2012

    I always thought that if a Dr wrote a script for a wiga. it was covered or at least partially covered within reason (not necessarily a European hair custom hand made one but a decent one).



    My CCI gave me a wig they had but it really wasn't me so I took it back and got a different one that I really liked but it wwas one they thought would never find the right person for it - have to agree - it's not for all. My VA PA also put in for a wig and VA got me a new wig.

  • otter
    otter Member Posts: 6,099
    edited March 2012

    I think I must be Deanna's twin.

    I also have excellent health insurance that has covered things even my breast surgeon questioned (like BRCA testing).  Reasonable premiums, reasonable co-pays and deductibles, quick to address problems when they arise. My med onco said I have "the Cadillac plan."

    But, a wig?  Nope.

    OTOH, Deanna is correct in urging you to check with your local chapter of the American Cancer Society.  I stopped there just as I was beginning chemo and had struck out at the wig shop.  Two ACS ladies took me up to their consultation room and let me try on wigs, breast forms, mastectomy bras... they were pulling things out of drawers and off closet shelves for about an hour.  They gave me a nice "TLC" wig, an Amoena breast form, and 2 or 3 beautiful, hand-made scarves. I ended up returning the wig and the breast form because they just didn't work for me after all; but I'll never forget the kindness and generosity of those women at a time when I really needed help.

    That's not to say our insurance shouldn't cover "cranial prostheses," of course.  I think there ought to be an allowance -- say, a certain amount credited toward the purchase of a wig that we like.

    It turned out that I never wore a wig.  I stuck with pretty scarves and "sassy" caps.  If I had it to do over again (I hope NOT), I probably would get a wig, though.  My sister-in-law found a beautiful synthetic wig that looked so much better than her usual hairstyle.  (Sounds mean of me to say that, but it's the truth. I almost gasped when I saw her in the wig.  Wow.  Just, wow.)

    Good luck with your campaign.  Personally, I'd rather our insurance covered the bandaging materials we need to wrap our arms for lymphadema.  The cost of short-stretch bandages can add up pretty quickly, and that can be a lifetime project.

    otter

  • Maja2213
    Maja2213 Member Posts: 28
    edited March 2012

    I feel extremely lucky.  My insurance pays up to $500 for a wig -- it was considered a prostheses. I did wear it but was glad to be done with it 7 months after my last chemo.

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2012

    Otter, I'll bet we have the same insurance.  I was a bit surprised when I called and found out that they didn't have any coverage for wigs.  But they are so customer-oriented when it comes to everything else they do, I decided I could live with this one exclusion.  But I was also fortunate that my DH knew I really wanted a $350 Raquel Welch wig I'd tried on, and he encouraged me to buy it inspite of no reimbursement and even though I had that cute (Jon Renau) freebee from the ACS. 

    As far as what to do when you're finished with them, I donated my freebee and a couple of other nice wigs & some breast protheses I later came across at estate sales back to the ACS.  Deanna

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    Another Californian whose health insurance would not cover wigs, no matter how the ex was written. And another recommendation for the ACS wig bank!

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    I guess I'm going to take a different tack. Insurance cannot cover everything. On the stage IV forum we are often deeply frustrated by the potentially lifesaving treatments that insurance wont cover because its an off label use. Typically insurance doesn't cover hearing aids, eye glasses, or other various prosthetic needs. My husband just had his knee replaced. Medicare used to but no longer covers walkers, canes, potty chairs, or shower chairs.



    I think it's wonderful that various organizations try to pick up that gap by providing free wigs, but in the realm of necessities it doesn't rank high on what I wish insurance could cover.

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited March 2012

    Aetna HMO insurance covered my wig in full.  They covered up to 500.00.  The wig I purchased (and never ended up wearing because I didn't like how it looked or felt in the end) cost 350.00. I think all insurance should cover this though. I also wish insurance would cover holistic types of doctors as well. I would love to go to one to get tips on living more healthy now but it is too expensive. Not for treatment, but as an accent to treatment. 

  • epgnyc
    epgnyc Member Posts: 101
    edited March 2012

    I have United HealthCare, which is offered nationwide, and they covered the full cost of my wig ($800+), which I wore for more than 7 months.  I work in a very formal office in the financial industry and scarves or hats wouldn't have been deemed appropriate.  My hair is now long enough that I can go without it.  Wow, am I glad my insurance covered this; I honestly thought most insurance policies did.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    That can be so frustrating. What our policies cover is typically a negotiation between an employer and the insurance plan. Some will choose the Cadillac plan while others won't go above a used Yugo. We can have the same insurance provider but our coverage can be markedly different.

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2012

    On the main breastcancer.org site there is information on wigs, which includes some tips on covering the cost of wigs. 
     
    We hope this helps! 
  • Lee64
    Lee64 Member Posts: 184
    edited March 2012

    I have BCBS insurance and they won't cover wigs either, even with a prescription from the oncologist for a "cranial prosthesis". I wasn't sure how long I would need to wear one so I bought one for $l40. It looked really great (most people couldn't tell it was a wig) but it only lasted about 3 mos. before it started looking ratty. I have bought 2 more since and, hopefully, my hair will start growing faster soon! It's been 10 mos. since I finished chemo!  I think I was more upset at Medicare not covering the cost of my compression sleeve; that really frosted me.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2012

    My insurance covers the wig, and then after a LE dx covered the therapy, but will not cover prescribed sleeves/gloves/guantlets. 

  • Wabbit
    Wabbit Member Posts: 1,592
    edited March 2012

    I had federal BCBS and they did not cover wigs either.  It really didn't upset me much that they did not and I was able to find one at a very reasonable cost. 

    I agree with Chickadee.  While we all naturally want everything that we might need or want to be covered doing that overall for all kinds of conditions would cause the cost of our insurance premiums to skyrocket ... perhaps way beyond the value of the specific items we ourselves might use.     

  • Buttons2
    Buttons2 Member Posts: 72
    edited March 2012

    I work for a health insurance company and we cover many wigs but not the emp policy's. I got a free one from american cancer society which looks nice & I ordered one from paula young.com it looks very nice too.

  • marilyn113
    marilyn113 Member Posts: 118
    edited March 2012

    I was reading about medical expenses that can be included in the medical deduction on your federal taxes, and wigs were listed.    You have to itemize and you can only deduct expenses which exceed 7.5% of your adjusted gross income and aren't covered by insurance.  But this might help some of you.

    http://turbotax.intuit.com/tax-tools/tax-tips/Tax-Planning-and-Checklists/Medical-Expenses-Checklist/INF12018.html

  • Ulightup
    Ulightup Member Posts: 57
    edited March 2012

    Thanks for all the replies.

    Yes , I am aware that ACS gives free wigs which I did utilize. There were different wigs available, but it wasn't the one that made me feel good about myself. It would have been nice if the insurance companies did cover this aspect of our care.

    It sounds like some of you did get coverage and that is awesome.One less thing to worry about.

    I have both a POS and HMO option, but they did not cover it.

    Sorry for those of you who developed lymph edema and did not get coverage for the sleeves and compression garments. I understand that some of you feel that if the insurance companies covered everything that the cost would go up. I think we are already paying enough to have this covered , both compression garments and wigs. This is a consequence of our diagnosis and we need these items as part of our treatment.

  • Lauriesh
    Lauriesh Member Posts: 692
    edited April 2012

    I agree with chickadee that while we all wish insurance would cover more, I think there are more important things than wigs.

     My ins denied coverage for  tykerb. It is possibly a life saving drug for me  and I had to fight to get it covered.

    there are a lot of stage 4 women who get denied coverage of drugs and I would like to see those covered before wigs.

    Laurie

  • Ulightup
    Ulightup Member Posts: 57
    edited April 2012

    Great point. That is definitely something that should be covered. I'm sorry you have to go through breast cancer and not have the drug that you need covered.

  • melly1462
    melly1462 Member Posts: 84
    edited April 2012

    I also have Federal BCBS but my policy does cover wigs.  Limited to $350 lifetime.  I chose instead to go to a costume store and bought a couple of cheapies.  I knew I wouldn't wear them much so didn't want to buy an expensive wig, covered or not.  I do think "cranial prothesis" should be a part of standard coverage.  Our emotional health is just as important as our physical.

    As to drug coverage, I will NEVER understand insurance denying coverage for a potentially life saving drug or procedure.  Back in late 1999 my sisters onc said she needed a bone marrow transplant, BCBS denied it, calling it "experimental".  We (her family) desperately tried to raise the money to pay for it ourselves.  She progressed and died 8 months later.  Would it have helped??  We will never know.

    So yes, I'd be willing to give up my wig coverage to have drug coverage expanded.

  • spitnspunk
    spitnspunk Member Posts: 138
    edited April 2012

    I am with CIGNA of GEORGIA and they would not cover my wig; my doctor did write a prescription as a cranial prost. but they would not cover it.

  • Ulightup
    Ulightup Member Posts: 57
    edited April 2012

    Thank you for all the feedback. I realize that we all have different issues with our insurance companies. I am glad that I was enlightened about the lack of coverage for certain drugs. I believe that is definitely more important than wigs.

    I also think that my emotional health and coping with all of changes with chemo just frustrated me when I realized the wig was not covered. The insurance company made it sound that it was not a medical necessity which I believe it is. Anyway I hope things will change for future women with regards to drug coverage, wigs and compression garments for lymphedema.

  • chenice
    chenice Member Posts: 2
    edited March 2013

    Absolutely agree 100% that insurance companies should cover the cost of a wig for those with hair loss due to cancer treatments, every one has a different experience dealing with hair loss, but the feelings we share are the same. Hair loss has an impact on your self-image and self esteem. Beautiful yet comfortable wigs for cancer patients can help boost confidence and regain some sense of normalcy. A wig is only one of the many helpful aids that makes the difference for people going through an often grueling and difficult time

  • Donna2012
    Donna2012 Member Posts: 201
    edited November 2013


    My insurance company has been excellent about covering the cost of all of my treatments. Specifically excluded though is a "cranium prosthesis". This is in writing that it is not a covered expense. I bought a wig for $400 & submitted the claim anyway. I received a denial. I wrote a letter of appeal - it took about 4 months but, they eventually overturned the denial & mailed me a check for $400! Don't give up!

  • ednamary
    ednamary Member Posts: 5
    edited May 2014

    I was told that the script from the oncologist should say cranial prostheses and that it is for your emotional well being. Mine was covered with that type of wording

  • jacee
    jacee Member Posts: 1,384
    edited June 2014

    Mine was covered through my cancer policy. A welcome benefit. As were bras and prosthesis.

  • jacee
    jacee Member Posts: 1,384
    edited June 2014

    Mine was covered through my cancer policy. A welcome benefit. As were bras and prosthesis.

  • Cherilauren
    Cherilauren Member Posts: 1
    edited July 2016

    I was diagnosed with stage 2 grade 3 HER2+ breast cancer this Feb. My physician sent a prescription in to Fl Blue for a cranial prosthesis (wig) as most of my long, very thick hair has fallen out. I'm a business professional, personal trainer, group exercise instructor, singer and model. This has beenn one of the hardest things I have ever gone through. I don't feel like myself, I don't look like me anymore and I've lost so much hair I don't even want to leave the house. All of the charities that are say they help with a wig, haven't gotten any calls saying they have one for me and now that my insurance has denied coverage it has caused me to feel so depressed I have a hard time eating, sleeping or doing any kind of exercise. I can't believe my insurance would deny a simple thing like a wig which would give me some of my dignity back, maybe even make me feel normal again. The company I work for has been completely unsupportive. It feels like the world has turned their back on me. Maybe someone else who has not been through this won't understand but if you have been through this know what it feels like to look in the mirror and not be able to recognize yourself or control your emotions.

  • katsie
    katsie Member Posts: 19
    edited October 2016

    I agree completely! I finally found a wig that I love by Sherri Shepherd, but she is discontinuing them because some have complained that a few of the hairs on the top stand up. Just cut them off. It's one or two hairs. I did not have to go to a hairdresser to have it "fixed" (Styled), like most all other wigs!!! People constantly comment that I have beautiful hair, and I'm over 60. It does look great, and it makes me feel human. I've posted to Sherri on FB to keep manufacturing her wigs,...practically begged her. No answer yet. I do think insurance should pay, because the hair loss is pursuant to the drugs to treat the cancer. They pay for my "chicken cutlets", and my bras, but not a wig. They don't realize how important it is for a person dealing with cancer treatments, needs to feel normal and look normal. I cannot stand the look in other people's eyes, when they see me without my wig or my scarf. I have to paint on eyebrows to sit on my back porch, and wear a scarf. I think most know, but they don't look at me the same way as when I have no eyebrows, or hair.

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