Too early for April 2012 mastectomy?

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  • elsbeth3017
    elsbeth3017 Member Posts: 10
    edited March 2012

    lisamarie68,
     
    My surgeon's nurse told me that everything she was telling me they would tell me again at the hospital before I left, so that may be why your doc is skipping it for you when you've just had surgery recently.   I'm glad they're saying it several times to me, though, 'coz I swear my memory is slip-sliding away . . .  I, too, was told I will report to Nuclear the day before.  They are going to put in a contrast dye so that they can find the lymph nodes the next day in surgery.  They said don't be surprised if I pee blue for a day or two . . . LOL
     
    hugs to my surgery sisters :-)) 
  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    I, too, was told I will report to Nuclear the day before but they just told me that they will do it in the morning of surgery for me becuase I'm scheduled for a Monday...surgery will start 2 hours later...

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    elsbeth .. wow see I have no clue that the nuclear med will make ya pee blue ... lol they also gave me this special soap that i had to use before surgery last time ..and everything else that i need to know I have been reading from other posts ... I am so grateful we have each other ..

    Hugs  

  • GmaNiki
    GmaNiki Member Posts: 42
    edited March 2012

    Well today was a shocker for me. First visit with the plactic surgeon fore reconstruction. Am doing immediate TRAM. When I went to the scheduler, I found my date had been moved up from April 16 to March 29. The BS said waiting till mid april was out of the question. Also, not able to get scheduled at my PPO hospital, so another hospital takes matching payments, and writes off the rest. Tried to get information  from my insurance company and they were less than helpful telling me the surgeon has not submitted any information to make sure this is medically necessary and it can take up nto 30n days to get this type of surgery approved. When I went to pieces on the CSR with the insurance company she said the board of review will need to see everything and when I asked why this was alll so hard, she said, it'snot if you do everything in the right order. Anyway by the time I talked to them the BS office was closed so I will not have anything to be sure about till Monday. I think I am having surgery Thursday and how can some medical board say it is not necessary when I have had all their approved tests to show it is cancer and the BS says it is agressive.  I just cant take this. I may spend the whole weekend out of my mind on anxiety medicine. First the shock of moving the date up so soon and now problems cuz the insurance does not want to pay it. I cant stop crying.

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Hi Ladies . . . OK . . . I downloaded this app for my iphone that does a "countdown" to special events . . . I'm 32 days, 11 hours, 28 minutes, and 2 seconds away . . . and I'm loosing my mind tonight . . . UG. I have the patience of a nat . . . and I don't know what to do some days!!!!!!!!

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Thank you for the thank you Elsbeth, I like being a hero by doing such an easy thing (no rushing into burning buildings for me!)

     l also like the surgery sisters moniker!  I feel like I am guiding this surgery prep myself, wiish I had a seminar like you will Vegan.  Let us know if you learn anything important.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited March 2012

    plymouth - you can edit your original post - go to the top of this page and there should be an edit link at the bottom of the post (along with the delete one). You can then edit your original post and put everyone's dates in there.

    I was part of the Oct. surgery group, then started the Dec. one (had UMX Dec. 15). Now I'm scheduled for Stage II of DIEP April 5. I started an April Surgery thread, but don't want to step on your toes here. It's quiet over there - must be a slow month for surgery.

    Wishing all of you the best - feel free to ask questions. If I can answer them I'll happily do so.

    -Judy

    (edited to correct omitted word)

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Thank u Cookie! Brilliant! No toes steped on, join us! Booobs coming off or going back on, what's the diff?

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Plymouthpeople . . . you're funny . . . you just me LOL . . . off or on . . . whatever!!! OMG. Thank you. I needed that this morning.

    I got up this morning and looked at my fully intact body in the mirror and started to cry. I just stood in my bedroom like a big looser with tears streaming down my face. F. I love my body. Like it is now!!!!! Oh yeah . . . there's a boat load of cancer in it . . . crap . . . so, take 'em off . . .

    Ug. need to let this go and have a better Saturday . . . suggestions welcome!!!!!!

    BTW. I will gladly share anything/everything I learn from my 1/2 day surgery prep course. It is on April 17th so it may too late for some . . . but I will be sure to post as soon after the 17th as I can to help any SS's (Surgery Sisters) that I can . . . .

  • Heidi207
    Heidi207 Member Posts: 31
    edited March 2012

    Well HELLO ladies!

    I'm a newbie so please bear with me. Just received my diagnosis of IDC on March 5th and one positive lympho node on March 22nd.Early stage, 1 lump, 1 CM.Am scheduled for surgery April 20th.

    This is moving along quickly .. though it feels SLOW .... soI guess I'm pretty lucky. Am reading and gathering all the info I can trying to make an educated decision, however, I find my mind has decided to take a break.Yikes! I realize this is to be expected, but how do you clear the fog so that you can make a rational decision?

    Docs are talking lumpectomy w/breast reduction, I'm leaning towards MX, even considering double cause I want this gone and do not want to dwell on it for the rest of my life.The "what-ifs" and endless possibilties are REALLY messing with my head right now. 

    Am single and live alone, but I have a great group of friends, co-workers, etc. who are supporting me through this. Am really glad to have found this site and am looking forward toeveryone's input and shared experiences.

  • Layla2525
    Layla2525 Member Posts: 827
    edited March 2012

    Sony22, thats exactly what my PS told me about the implants,that we could go the size I wanted. i thought finally I have some control. Cause I really had little choice to get surg with IDC,invasive I had to get surg and the breast had to go and I thought it wouldnt be symmetrical if I didnt get bmx and besides I did not wanna worry about it coming back on the other side. I worried a lot,too many tests,but they gave me something in my IV and put a warm blanket on me and the next thing I know I was in my room recovering and getting ready to go home the next day. i had surg 2/13/12 and its been about a month ago. I feel ok,I get tired from the Arimidex they put me on and the TE sometimes poke me. the fills are hard to take but mostly I am ok. Cant lift too much so spend all your extra anxiety energy,cleaning the house cuz you wont feel like it after surg and put everything on  low shelves cuz you cant be reaching high after surg and get a recliner if you can. I slept in the recliner for wks and just now getting into the bed. Nothing like taking a pain pill and curling up to sleep in the recliner..almost heaven!

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    Heidi54: I went through 3 biopsy's on the right and 2 on the left over 5 week period. My mind went crazy and I took a break (actually a week long business trip) which came at the perfect time to not have to deal with everything. Anyway during that time I decided to get second opinions which was the best thing I could have done. I met new doctors one which I hated the other two I loved who explained all my opitions clearly which allowed me to think it all through. I have DCIS on the right in one area two other area's extreme high risk, something non cancer on the left. I decided to do double mx so that I don't have the stress about the yearly mammo's, be biopsied left and right (literally) and bring my chances of any kind of cancer early or invasive down to a 1% risk. My choice to do both and not just lump w/radiation and then 5 yrs of tomox I constantly think, what am doing! What will it be like afterwards, tattoo's fake nipples OMG!  But I figure this breast cancer thing is an epidemic and so many of us have gone through this and live on with reconstructed boobs and are happy, right! I think to myself when I get down on it all and say, OK it could be worse I could have no options so I continue on...my date is 4/23 so I have 4 weeks which a long time away in the waiting game; sometimes I feel when I read all the posts the anxiety is building and I can't breath and sometimes it helps and helps a lot; so thank you to everyone!!!!! 

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    VeganGal:  this morning when I got up the sun was out I jumped out of bed and said to myhusband ok, get up we are going to the park and taking a walk (haven't done that in years)  I realized I needed to get moving since I have been sitting on my ass since January/February biopsy's not doing a thing except work and going out for drinks every now and then.  I walk felt great!!!! So my day started off ok today!  It would be great to hear about your 1/2 day pre op my date is after your's 4/23 so looking forward to reading it! thanks  have a great day today! (one day at a time)

  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    I am in the final throws of picking a surgical team for an April BMX.  I have April 23rd slotted as of right now.  It's so hard to get my head around., just two weeks after being diagnosed with DCIS and needing to make the decision between a lump/RAD and BMX.  I Finally have concluded this this is the right choice for me.  So, RTNYC, it looks like we may have the same date.   I am mostly trying to ease my anxiety by not thinking about surgery and instead focusing on feeling good in June, being healthy, and having a new pair of fake, but perky boobs. ugh! think i will need so good drugs to chill out as the date approaches. 

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    longislandmom:  I am finding that a good vodka or two or red wine, is helping already! (ambien to sleep when no drinks are involved) But am trying to focus on summer too but hard to think how I'll be on the beach by July! (I'm doing mx w/immediate diep)...anyway 4/23, glad to have you as a partner!!!  

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Hey Rtnyc . . . yeah, getting out and walking with the pooches was great . . . DH and the 3 "fur-kids" . . . helps a ton. I will be sure to post everything I learn at my pre-op . . . your BMX is April 23rd . . . so there is lots of time to share what I learn. My BMX is April 25th. Unbelievable eh? Crazy stuff.

    Longislandmom . . . hopefull since your date is the same at Rtnyc . . . the stuff I post will help you too Surgery Sister . . .

    We should all have a glass a wine this evening . . . it is Saturday night after all . . .

    Hugs.

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Hey Gals,

    I think I love you all!  I feel really angry today.  Worked until 2, came home kids (13 and 18) were a f----ing pia, so went for walk, like rtnyc, and felt a little better.

    Compelled to listen to aggressive music, right now Eminem (who I never even heard of before, I am a 51 year old nerd, so out of popular culture my friends accuse me of being Amish!), Not Afraid, the version with the f-bombs in it.  My new favorite word.

    "I'm not afraid to take a stand,  everybody come take my hand, we'll walk this road together, through the storm, whatever weather, cold or warm.  Just let you know that you're not alone.  Holla if you feel that you've been down the same road..."  Can that be our anthem?

    We are supposed to feel bad, this is a big deal.  I've been is denial since Nov when this all came down, now denial has broken down and I am anxious or angry a lot.  

    Thanks for the guidance Layla, glad you are healing.

    rtnyc, yes!  I think "what am I doing?" too.  I have the option of the watchful waiting, but I chose this, am I nuts.  or is it nuts to wait for the bomb to go off?  This really is a no win.  All choices valid and scary.

    Vegan, I am sorry you are grieving.  It is sad.  I think it is psychologically healthy though, you are really grappling with the loss.  That means it wont hit you so hard afterward.  The actual loss of the boobs still feels surreal to me, like I cant quite grasp it.  BTW, I am a friggin therapist.

    Heidi,  welcome.  It all seems to boil down to doing what feels the most right for you.  Hard decision.

    Welcome longislandmom, I'll put you on the list.  I am moving the list to the begining of the thread so I can use the edit technique Cookie taught me.

    Hugs

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Plymouthpeople . . . you're funny!!! Eminem eh? I've never heard it either . . . but I hear it's pretty raunchy . . . do what moves ya' girl . . .

    Yup. And the F-word is my favourite word these days too!!!! I've been a bloody trucker mouth . . . and I kinda like it . . .

    And, yes . . . I'd love to hold your hand . . . and the hands of all the Surgery Sisters as go though this F-ing hell and find something better (I hope) on the other side . . .

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Thanks Vegan!  I think a year from now we will all have moved on and this will be a distant memory.  The other side is what we need. Nothing verbally hits the spot like the old f-word!


  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    F-ing right we will . . . . !!!!!

  • ppeople
    ppeople Member Posts: 207
    edited March 2012
  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    the "f" word...or FUCK!!! for short.  has been a big part of my personal vocabulary this past week.  Not a very good example for my 7 and 10 year old.  but we had a big and much needed laugh the night i finally told them that mommy needed to have surgery.  i told them that they had found something in my breast that needed to come out and that i needed surgery.  to keep it light..i told them that when the Doctor told me the first thing i yelled was "FFF."  they were on the floor laughing, which lightened the moment.  Then they started yelling "FFF"...and i let them do it for about two minutes.  When i told them enough..my 7 year old son asked to do it one more time.  i said OK.  he yelled FFFFF loud.  and then i told him if i heard it again in the house he'd be punished..as usual.  lol. 

      I find it so incredible that all of us and so many others on this website are going through this.  it's just unbelievable.  And VeganGal/RTNYC -- i am on glass #2 of wine tonight.  RTNYC-- per the summer, all of my friends who have been through this swear that i will be back on my feet and feeling pretty good in a month...so let's both (and all of you other april sistas) focus on a happy day on the beach..feeling good and being healthy!  also went for a long walk today and told all of my friends and family that i love them but that i needed a cancer free day and that i'd talk to them tomorrow or monday.  I don't know about all of you, but my brain is just so tired from talking and thinking about this. 

    I saw a class at Sloan Kettering about meditation to relieve pre-surgery anxiety.  may try that.  and if it fails.  xanax!  wishing all of you peace and good dreams.  sorry we are all part of this crap...but happy to be in it with people who TRULY understand how i am feeling right now.    As i said to my mom today when she asked how i was...i said well, within the context of feeling totally shitty..i am feeling really good.

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    I love that, "in the context of feeling totally shitty...I am feeling really good" LOL!!

    I love when this board makes me laugh and smile.  

    I have been trying to meditate and exercise more than usual.  But truly, Xanax is much easier sometimes.

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Good Morning Surgery Sisters . . . .

    Loved your post Longislandmama . . . you gave me a great laugh this morning!!!!! You sound like a super cool Mom . . . yeah you:-) And . . . yup . . . DH and I watched a movie last night with a bottle of vino between us . . . all good . . . all necessary . . . .

    OK Chicks . . . I kinda need some advice . . . I see my GP tomorrow morning at 9:00am . . . she wants to put me on anti-depressants to get me through to surgery day, and beyond. I have been resisting . . . but she wants to chat with me about tomorrow morning. I really like her, and I don't feel like she's pushing me . . . she wants to just talk about options. I am up and down like a bloody yo-yo . . . some days I'm good, others not so much. I've never been on anti-depresants in the past . . . and I'm kinda confused . . . thoughts? advice? suggestions????? 

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    Vegangal:  I would think the question is anti depressants or anti anxiety? Same or not the same? And my opinion...nothing wrong with taking something to calm you down during a time of crisis and this is a time of crisis...

     longislandmom:  kids just love to say fuck when there young they think it's so cool!!!

    Everyone....went out last night with my old high school friends. One brought her friend along, she had mx w/tram flap reconstruction 10 year's ago and a touch up 3 years ago. She did the nipple reconstruction but not tattoo. so funny, she says want to see and pulls out her boob right at the bar!!!  Anyway, she's a few years older than I (I'm 51) married and wasn't wearing a bra. She looked great. Ok a little weird on the look but I guess it just depends on what you do right. I think that is the part of this whole thing that I'm stuck on I guess cause its so cosmetic in look and feel on the outside not the inside.  So my friend, tall, thin, and great bod throws out...so who's gonna see it anyway!  I'm like me, my husband, my lover someday (haha)....people see.  I guess afterwards it will take time to adjust and get used to the new look..

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Whose gonna see it!  What a friend!Wink Love the response, lover someday!

    Anti-depressants (like the SSRIs, zoloft, celexa, lexapro, etc) are used for both anxiety and depression.  The anti-anxiety drugs (xanax, valium, ativan) are used on an as needed basis for anxiety.  They are highly addictive and since one develops an increasing tolerance over time (like 2 alcohol) they become less useful with regular use.  Daily anxiety is better treated w an SSRI, episodic anxiety with anti-anxiety.  Only problem w SSRI is that you need to wean off of them rather than stop cold.

    Going to gym to stop thinking and start sweating.

  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    oh, and SSRIs take a couple to a few weeks to control anxiety, usually you take a benzo (anti-anxiety drug,like xanax) to tide you over until they kick in.

  • AmyH1971
    AmyH1971 Member Posts: 21
    edited March 2012

    I want to introduce myself, but all I can think right now is WOW.  I read this whole thread and I laughed and cried the whole way through.  What an amazing group of women you all are!  You are all so inspiring to laugh and cry and yell, but all the while support each other here through the surgeries and all of the other challenges you are facing at the same time. I hope you will allow me to join in!

    I don't have my date for surgery yet but it will be a double MX with Diep flap all at once.  I will hopefully hear within the next few days, so I really-REALLY hope it will be an April surgery!!   

    I feel like I still have so much to learn, even about my own diagnosis.  I am trying to learn all I can but also need time to get everything ready for the surgery and being out of commission.  I also want to spend time with my 2 little girls (about to turn 5 and 7) since I know that will be harder after surgery.  I am also extremely anxious about the wait.  

    Is anyone else having dizzy spells and nausea?  I am hoping it is from anxiety and not a sign of things spreading!  I am such a basket case right now and I am normally so calm.  Like all of you, I just want it to be over. 

    Backing up a step: I am 40 years old and was diagnosed after my first routine mammogram.  No family history.  This totally came out of left field for me on 3/8/12.

  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    photogamy -- YES...out of left field and plop in our face!  i, too, was diagnosed after a routine annual mammogram.  i don't have cystic breasts.  while i have been very good about my annual mammograms since turning 40 (i'm 47), i don't think much of them.  pop into the city for lunch and have a yearly mammo.  no sweat.  well....NOT this year.  So it seems like we were diagnosed a few days apart.  i, too, have young children (7 & 10) which is probably the single biggest reason (not the only reason) why i am going the BMX route.  This is am awfi; club to be part of-- but it is easier to be able to talk to people in the exact same place as you are.     Re: dizzy/nausea -- definitely your anxiety and not spreading.  i'm just getting my appetite back now after 2 weeks...and it's still not what it normally is.

    Re: discussions about anxiety drugs.  I'm thinking the short term, immediate relief ones like xanax or clonopen (sp?) may be good as the surgery gets closer.  for me-- i feel confident i am going to live a long and happy life after this is over (i better after this shit)...so that's not generating my anxiety.  but i'm incredibly anxious about the process of the surgery (ies) and can feel that growing daily as it becomes a reality.  i'm gonna talk to doc about scrip this week.   To all of you..just curious....who is getting DIEP vs Implants?

  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    also RTNYC-- on the look of reconstruction-- i have seen a bunch of really beautiful looking ones.  I, too, have had friends lift up their shirts for me and send me pictures via email of their new "girls".  My husband swears up and down that he really doesn't care.  we even try to laugh about it.  I'm a 34DDD, which doesn't make this easier.  After 2 kids, those 34DDD are not as----"perky"-- as they once were.  I told him he can help me pick the size of "his" new pair.  lol.    i think the not "feeling" and/or the feeling the TE and implants part is scaring me more than the how i'll look part.  PS said I'm not a good candidate for DIEP because i don't really have enough belly to make two new gals-- just one nice one!  ugh.  They should have told me that before i wasted the last 3 months on Jenny Craig.  lol.

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