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  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    hi again longislandmom....I have signed on with Elisa Port. She is extremely articulate, clearly explains what you have and what your options are. did not rush through the appointment (although somewhat of a wait) pissed me off a bit but once she was with me it seems liked the outside world wasn't there; she was focused on me. Answered all my questions and then some. she sent me to her PS Carlin Vickery and her partner Keegan.  Here too, I went for consultation, she spent 2 full hours discussing the options of each procedure and then a half hour exam.  An incredible education.  Most important I felt very comfortable with both and sign on with them that very moment, as I think I said I switch doctors after numerous biopsys, genetic testing 4 other appts with first doc.....I checked them out with the president of the BCRF, someone at MD Anderson and two other sources through my connections all came back with "they are the best" "your in great hands" etc etc....Who are you seeing?  When?  Good luck. What helped me is that I actuall had a list of questions on my black berry and made sure that before I left all were answered.

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2012

    Garden City... much closer to the city than the Hamptons.... what a schlep.

  • longislandmom
    longislandmom Member Posts: 248
    edited April 2012

    RTNYC -- i am seeing Port this Wednesday and Heerdt this thursday.  I have heard they are both amazing and i feel lucky to have found them.  i had an appointment at Cornell, but ended up cancelling it today because they don't take my insurance and i figure one of the other two will be perfect.  i am so nervous that once i make my decision (assuming it is a BMX) i won't be able to get an appointment for surgery for a couple of months.  i just want to get it done as soon as possible. did you get a sense of that when you met with your docs?  how long a wait is it?  tx!

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2012

    LImom... I don't know your doctors, but I know my doctors reserve one day a week for active cancer patients, always fitting them in asap... I am sure your doctors have a similar protocol...

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    Longislandmom:  I actually just scheduled my date about a week ago, Port has a few open dates within the first few weeks of April but the PS couldn't do it, so it's not months away. it's about getting all the doctors in the same room at the same time if your doing immediate recon. my date is 4/23; I feel like it's so far away just wnat to get it done with already!  Anyway,  Let me know if you like her, good luck!  

  • longislandmom
    longislandmom Member Posts: 248
    edited April 2012

    Back from such an exhausting two days of doctor consultations that i can't even think about it for a day or so...appointments at both Sloan Kettering and Mt. Sinai Dubin Center.   bottom line-- it's still my choice.  both think lump/rad will work.  both understand reasons for doing UMX/DMX.  A choice doesn't make it easier.  I am flipped out about radiation and recurrance and am still leaning DMX.  Further stressing me out about RAD is that the DCIS is in my left breast and i am worried about my heart and the fact that i don't have a worldclass RAD facility near me.  So i am still leaning strongly DMX... Breast surgeons Dr. Port (sinai) and Dr. Heerdt (Sloan).  Plastic surgeons Keegan (Sinai)  Cordiero or Disa at Sloan.  I loved both Breast surgeons heerdt and Port.  Slightly prefer the overall hospital at sloan to Sinai.  and have a bunch of questions re the PS.  I would LOVE any thoughts on any of this!!!!

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2012

    I had a left sided cancer also... one of many reasons why I didn't want the radiation and having the MX meant I didn't need it.

    About recon .. it really depends what you are looking for. I chose to use my own tissue and not get implants, as I have friends who complain about their implants and steered me away from them.. In researching tissue transplants (DIEP and GAP flaps) I in the end left the NY area and travelled to New Orleans to the Center for Restorative Breast Surgery. I have a friend who did implants at Sloan and was not thrilled (felt there was a lot of waiting until her exchange surgery)... and have another friend who was about to have surgery at Sinai and chose to travel to NOLA. Its a lot of decisions but really comes down to what YOU want in the end... I found no matter what, it pays to take an extra week or two now to do your homework so you trust you have made the right decision. And know that you can always change your mind. I have another friend who was supposed to have a MX this past week, and at the last moment also chose to travel to NOLA, and is now having her MX and recon next week down there. This is your body and your choices, so do what feels right to YOU.

  • littlelady55
    littlelady55 Member Posts: 2
    edited March 2012

    Hi all,

    Just diagnosed, phone calls and phone calls, crying, emotions all over the place, have a 9yr old daughter, scared. Comedo-type necrosis and microcalcifications. Cribriform, Solid Patterns, some areas apocrine features identified.  DCIS .8cm and is present in multiple tissue cores from both tissue blocks.  What does all of this mean? Advised for lumpectomy scheduled tomorrow March 27.  Radiation 33 treatments.  Then what?  More scared after surfing thru internet.  I do not want to go thru radiation and do not want to have to think that I might get this back. I asked oncologist, fam dr., surgeon and oncology navigator about getting masectomy.  All said no, but I am having second thoughts.  Can anyone help me? Thanks.

  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    Dear littlelady55 ... Deep breath... you HAVE choices.  this IS your body...and don't let anyone tell you otherwise.  I don't know the particulars of your case-- and i'm not a doctor.  just a newly diagnosed  BC patient like you.  I was diagnosed with DCIS/LCIS-- very small in one breast.  Radiologist said Lump/RAD would be effective.  I visited two breast surgeons and both confirmed that Lump/RAD would be as effective (i.e. 99% recovery) as Mastectomy-- however, the recurrance rate with Lump/RAD is statistically higher.  SO....they advise that if i felt that psychologically i could not deal with the lifelong uncertainty of the higher recurrance rate, Mastectomy was a real and viable option.  justified or not, i was also freaked out about RAD since i have a left side BC.  So...after some anquishing, i have decided to have a bi-lateral -- as have several of my friends.  Some prefer Lump/RAD and that's the right choice for them.  the point is...there is a choice and you should not be pushed into anything.  You are going to be OK.  Peace

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2012

    I had 4 doctors tell me that all I needed was lumpectomy and rads, and yet after extensive conversations with them, in the end all said they understood and felt that for MY peace of mind, that perhaps MX, although not recommended, may be what I should do... and so I did... no regrets.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2012

    I, too, had left-side bc and was VERY happy that my rad.onc. let me have my rad.treatments in the prone position. Please ask about this!!! My onc. was trained at Sloan-Kettering. I am now 2+ years out and there has not been 1 day that I wish I had had a mx rather than lump+rads.

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