March 2012 chemo

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  • brax
    brax Member Posts: 98
    edited March 2012

    Good luck onvacation and TC and everyone else getting treatment today.

  • KCB
    KCB Member Posts: 365
    edited March 2012

    Good luck munnibunni!!

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Hi Everyone

    There are so many new people and posts I can barely keep up!!

    Good luck to everyone starting treatment in the next couple of days.  Once the first one is underway and done you'll feel a little more at ease because you'll know what to expect.

    Muscles

    Wow a collapsed lung, good grief!! 

    Ladyfighter

    Happy the power port installation went well for you. You'll be glad of it, yeah it sticks out a bit but soon you'll forget it's even there AND it will save your veins.

    Galena

    I've been lucky that's all and the chemo I'm getting is pretty tolerable.  The MO said while it's not chemo lite its not all that dose dense.  I get fatigued and stuff but I'm certainly not complaining about that.  Lucky to be able to sleep for the most part anyway.  I have my nights but I did prior to being DX so that's nothing new.  Like most the suckiest part is being bald.    Don't know about anyone else but my hair kind of fell out like a balding man's would, from the front hairline backwards.  I still  have stubble though but mabey the next TX will take that out.  I figure it will likely grow in the same way too.

  • Amymomto5
    Amymomto5 Member Posts: 73
    edited March 2012

    Well, I ended up in the ER last night.  I had hives (more like welts) at 6:00.  The nurse from the medical exchange said 50 mg benadryl.  Took that, but by 10:00 it was back with a vengence! This time my oncologist called back, in less than 2 minutes.  She said go to the nearest ER and get a decadron shot, so that is what we did.  Moral of the story: no Bath and Body lotion!! I should've known better, but normally I am not sensitive to anything.  Other than that, day 10 from tx 1 and feel fine.

    Welcome to the new ladies!

    Katy, how is day 10 for you? Any better?

    Karri, day 4 for you, hope you don't feel as bad as I did day 4. Keep me posted please.

    Everyone else, hope your SE's are minimal! 

  • KCB
    KCB Member Posts: 365
    edited March 2012

    Amy: day 10, I'm headed to emerge myself. Pain in the gut that has gotten worse over the past 2-3 days, and temp hovering near the high point. Hope to get it sorted out quickly: daughter's bday tomorrow.

  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    Oh my Amy and Katy!! Amy was this after you texted? I was a mess last night. Everything hurt. Not like bone pain just pain everywhere. Ended up paging MO and she was all "yeah um take a pain pill". Still hurting various places and nauseous as hell. Even with Zofran. I also feel just out of it. Like people are talking and I hear them but I am not involved. Anyway, I'll try to get caught up more later. Katy keep us posted.

  • Love74
    Love74 Member Posts: 175
    edited March 2012

    Myleftboob - My hair fell out the same way!  My forehead kept getting bigger and bigger!  I still have a little stubble all over but its mostly gone now.  My scalp is getting red dots on it...maybe from the wig irritating it.  There is a girl on the 'Hair' thread that is putting olive oil on her scalp...I might try it.  I have been using vitamin E gel but definitely want to use the best potion out there!

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    Karri, I'm right with you on the achiness everywhere. I feel like I have the flu! Quite unpleasant. Hope we both get better soon.

    Good luck to everyone getting treatment today! 

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Love74

    I've been using organic coconut oil everywhere after my showe.  I just love it, my skin is softer than ever too so I rub some on my head.  My HD said my scalp was a little dry when he buzzed it.  Um, yeah everywhere is dry!  So I immediatley picked some up.  No red dots so far. 

    LOL, I hear you on the growing forehead.

  • Love74
    Love74 Member Posts: 175
    edited March 2012

    MLB - Where do you buy the organic coconut oil?

  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    Thanks for the coconut oil tip have some!

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Love

    Not sure where you live but I got mine at Bulk Barn, I've also seen it at regular grocery stores and for sure Whole Foods.  Try to look for expellor pressed which is similar to first cold pressed like olive oil.  It has no smell to speak of and sinks in quite nice, no greasy feeling.  I love it. PS good for the lady bits too! What I do is (on the recommendation of a poster here at BCO) is while you're showering leave the jar in the sink with hot water as its solid at room tempurature.  By the time your done some of it has liquified and ready to apply!  Oh yeah, you can use it as cooking oil too.   Although I might use a separate jar for that!

  • Love74
    Love74 Member Posts: 175
    edited March 2012

    MLB - Thanks!  I'm in Calgary...pretty sure we have a Bulk Barn now. 

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    More than welcome Love74.  Shouldn't cost your more than $10-11 bucks either for a jar.  Alot cheaper than expensive potions!  Hope things are warming up in Calgary.  Love Calgary and particularly Banff and Lake Louise!

  • Love74
    Love74 Member Posts: 175
    edited March 2012

    MLB - Nope - snowing today!!  And supposed to snow all week!  Not too cold tho...only -3 right now!!  Love Banff and Lake Louise too...rented a cabin near Lake Louise over Christmas...so beautiful and nice to get away from the city. 

  • KCB
    KCB Member Posts: 365
    edited March 2012

    Lying on a hospital stretcher in ER, waiting for results. They think possibly a urinary tract infection that may have spread to the kidney. Ok, sounds treatable right?? Just want to feel better!anyway it would explain why I've been feeling worse and not better, which would be a relief.

  • Amymomto5
    Amymomto5 Member Posts: 73
    edited March 2012

    Well, at noon symptoms returned (hive, itching).  Throat got tight also, was going to ER, but decided to see my primary doc (I am 90 miles from onc)  She gave me a decadron shot, and said to start the prednisone, also take 50mg benedryl every six hours, and a claritin also, which I had quit taking.  She thinks with a white count at 29 my body is just overreacting.  Hopefully that's all it is. The throat thing scared me - we are rural, 20 minutes to closest hospital, which isn't my choice unless I'm dying!

    Katy!! That's awful!  I am praying for you, hope they figure it out quick!

    Karri, I had the same thing day 4, like I'd been hit by  a truck.  Take the narcotics!!!!! They help.  And if you want to vent you can PM me, or go ahead and call.  I'll be here all afternoon.  Praying you get better soon! I was better by midnight the night of day 4.

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Katy

    Oh jeez, hope you're not there too long and they can get you an antibiotic to help the infection.

    Amymomto5

    I was just having an email chat with a friend that is 3 years out from BC.  She had an awful time with hives and welts until they figured out she was alergic to anyting with sulfa which I think she said can be an ingrediant in alot of pills as a binder.  Just thought I would mention it.

  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    I have a friend who swears by coconut oil as a moisturizer. I will have to check that out.



    May I add I am jealous of all of those cold temperatures! I can do without these 80 degree days with humidity we are already having.



    Awww Katy (((hugs)))) hopefully they can get you patched up and get you on the mend.



    Hope your night goes better tonight Amy! No more hives.



    I am starting to feel halfway human again.



    Who else here is doing chemo first? I sometimes feel so overwhelmed that I have to go through all these months of chemo and then am still going to be facing a huge surgery. :(

  • Amymomto5
    Amymomto5 Member Posts: 73
    edited March 2012

    Myleftboob - thanks, I will check into the sulfa thing. 

    Thanks Karri, hope your day continues to improve.  Aaahhhh pain pills, thank God for them! 

    Katy, keep us posted, girl! 

  • KCB
    KCB Member Posts: 365
    edited March 2012

    No UTI. now waiting for an ultrasound of the kidney. Most boring day ever. Been here 5.5 hrs.

  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited March 2012

    ktlb04- I am with whoever posted about the pain meds.  Just take them.  I had a day I felt like someone had worked me over with a baseball bat.  I finally gave in and took percocet (sp) and a muscle relaxer.  Still sucked but soooo much better than I was. Next time I plan on just staying with them.  Funny, my last Onc visit I said I would need some more percocet and my Onc said "how many do you want?" I realized we need to ask, speak up, and work to control our pain and se, the Dr is there to help but in all likelyhood has never been through this themselves. 

    katy and amy- my thoughts are with you.  I hope things get better soon!

    To all fellow marchers be strong and be well! We are almost to April!

  • lostinmo
    lostinmo Member Posts: 922
    edited March 2012

    kltbo4   I'm starting with chemo then surgery. Still not sure of the order but about 24 weeks all together.  This seems like alot more than most on here.

    Trying to wrap my mind around all this info, but not sure how much I can remember. Guess I need to start making a list of things to have on hand.  Especially since we live 30 miles from any store. 

    You ladies keep Marching on and I hope everyone has a better night and feels good in the future. I'm trying hard to get everyone straight on here but please don't get upset if I confuse you.  I've meet so many people the last few weeks and can't even remember which nurse works with which Dr when they call me. :)  

    I can do this right? 

  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    My MO is the same way. I mentioned that I only had 2 pills left from my BS after my latest rounds of infection clearing surgery and she immediately whipped out her prescription pad and wrote me an rX for more. I am just paranoid about drug interactions so I made DH call the medical exchange last night to make sure I wouldn't OD on Percocet and phenagran. I guess I never thought of chemo as being painful. And I am not sure how much of that was chemo pain and how much was Nuelasta. Not that it matters! Pain is pain.

  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    Lostinmo. Me too! 8 cycles 3 weeks apart and THEN surgery. So basically all summer. And yes we can do this! I had my doubts yesterday but 24 hrs makes a world of difference.

  • hopeful123
    hopeful123 Member Posts: 191
    edited March 2012

    Hello,

    I am now in the March 2012 club. I just found out that they will be starting my chemo next week March 27th. It will be every three weeks ACx4 followed by every week of Taxol X12 with Herceptin and Herceptin continued for a year. So I am on the bandwagon for the next six months.

  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    Good afternoon!  First treatment went fine, home trying to rest, can't really sleep, but tired.  Must be the steroids?  I feel like eating, so that is a good sign!  Go back in tomorrow at 8.30 for my shot then plan on heading to work.  No idea if I will make it all day or not, but will play it by ear!

    Hope the others that started today faired well! 

  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    Hi hopeful and welcome. A/Cx4 is what I am starting with too. Or rather started with this past Monday.



    Glad things went well Kim. Good luck with work tomorrow. :)

  • LTR227
    LTR227 Member Posts: 10
    edited March 2012

    I'm just home from my first chemo. I am slightly tired, picked up the kids from school, went to post office and bank, and now I need to lay down. Everything went fine at the hospital. I was so nervous about the infusion itself (which was a breeze), but as I read all of your posts I guess the side effects take a while before they kick in. I'm going to try to go back a few pages to see what some of you have been through.

    onvacation seems like we are on the same day? 

     I forgot to write my treatments are A/C (4) and T (4) "dose dense" every other week for triple negative.  

    Hugs to all!!! Laura 

  • FightingforA
    FightingforA Member Posts: 62
    edited March 2012

    Kltb04 and lostinmo~ I'm the same. 8 cycles, 3 weeks apart (A/Cx4, Taxoterex4) and then surgery. I figure that my surgery will be falling right around my daughter's 1st birthday. It seems like such a long road ahead sometimes!

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