Hey My Her2 Sisters

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marejo
marejo Member Posts: 1,356
edited September 2015 in HER2+ (Positive) Breast Cancer

Hey my her2 sisters,

Just checking in to see where you all are on the journey.  Who of you have surpassed the 5 year mark.  Who of you after 5 years have recurred?

I will be 7 years out from diagnosis in June.  I was diagnosed on June 23.  I was stage 2B...Her2/+++ ....er/pr negative.   I can hardly believe this much time has passed.

Let me know how you are doing.

Love and God's Peace....

Mary Jo

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  • Ang7
    Ang7 Member Posts: 1,261
    edited March 2012

    Hey Mary Jo~

    I am also not close to what you are looking for but I will be 3 years out this summer.

    I also LOVE hearing that you are doing so well.

    Hugs.

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  • finn
    finn Member Posts: 3
    edited March 2012

    Morning Mary Jo

    I am closer in time to hillck and Ang7 but i just wanted to pop in and congratulate you and wish all the HER2 sisters a healthy and happy path !  i am so excited by your news Laughing

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited March 2012

    Mary Jo~ LOVE it!  Don't forget to change you signature. 

    I have heard of a very low number that recurred after 5 years. 

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  • mmm5
    mmm5 Member Posts: 1,470
    edited March 2012

    will hit 4 years next month

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited March 2012

    I really needed to see this today.  Thanks for posting...

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  • anonymice
    anonymice Member Posts: 532
    edited March 2012

    Excellent, Mary Jo!  I'm not who you're looking for either, just 18 months for me, but with the new targeted classes of drugs that are both out and coming out soon, which attack Her2+ cancers...you are going to have a whole lot of company, soon!

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  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited March 2012

    I will be four years from diagnosis in may :)  so far so good.

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  • lexi4
    lexi4 Member Posts: 1,074
    edited March 2012

    Hey MareJo!

    So good to see your post! I'll be 7 years out shortly behind you, in August. You were such a kind friend when I was diagnosed and always uplifting.  I  sure like reading positive stories like these!

    Hugs and Prayers,

    Lexi

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  • marejo
    marejo Member Posts: 1,356
    edited March 2012

    Hi Lexi...So good to "see" you too.  So happy you continue to do well also.

    God is good.

     Mary Jo

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  • Ossa
    Ossa Member Posts: 919
    edited March 2012

    So nice to see this tread.. I am coming up on one year of diagnosis.. NED Dec ,2011

    Very encouraging page, thank you

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  • lago
    lago Member Posts: 17,186
    edited March 2012
    Congratulations Maryejo!  I'm  1 year 6+ months and counting from Surgery.
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  • lkc
    lkc Member Posts: 1,203
    edited March 2012

    Hi MJ! So good to see you. I am alittle ahead of you and Lexi. Will be celebrating  7 years in May!!!

    Just got back form seeing my Onc and he confirmed the longer we are "out" the better.

    To all you realtively new ladies, hang in there, my prognosticators were awful @ Dx, even my doctors just shook their heads, and here I am living large and giving thanks every day. You will get there too!

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  • SolsticeAshore
    SolsticeAshore Member Posts: 4
    edited March 2012

    As a newbie, I'm thrilled to see all the good news posted here. So many of the other threads sound gram.

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  • RebzAmy
    RebzAmy Member Posts: 322
    edited March 2012

    Hi ladies

    My diagnosis was June 2007 so not doing too bad! Thanks for starting this thread MaryJo it's great for all us HER2+++ people Smile

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  • kfontaine
    kfontaine Member Posts: 118
    edited March 2012

    Amy,

    Read your bio and wow you are in inspiration! Diagnosed 01/12 started chemo 2/21-first treatment and had second 3/14. Scared to death. Get Herceptin every week!

    Kristen

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  • RebzAmy
    RebzAmy Member Posts: 322
    edited March 2012

    Hi Kirsten

    It's so hard when you are diagnosed to get your head around it and one thing that really helped me was hearing about people who had done well. That's all I wanted to hear and like you and the other ladies - I tried to find the positive posts relating to people who had a similar diagnosis to me and they helped tremendously - now I feel that if I can help just a little bit to make a difference then I will! Sending you all hugs and good wishes

    RebzAmy

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  • kim40
    kim40 Member Posts: 904
    edited March 2012

    It is wonderful to read Her2 ladies beyond 5 years.  I'm getting there, I have just over 3 years! Yay me!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2012

    Hi Sisters......Next month I will be a 7 year survivor.

    Smile

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  • ladyfighter
    ladyfighter Member Posts: 184
    edited March 2012

    This is giving me more positive! Thank you all. Xoxo

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  • Caya
    Caya Member Posts: 971
    edited March 2012

    I am 5 years out  - diagnosed Oct. 2006.

    Herceptin is the magic bullet for us gals.  We are the new statistics, that's what my onc. told me when I started Herceptin in June 2007 - coming up on 5 years since starting those infusions.

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  • Lauriesh
    Lauriesh Member Posts: 692
    edited March 2012

    Well, I was one of the unlucky ones that did reoccur after 5 years.  My liver mets were found 4 months after my five year check up.  I also did a year of Herceptin.  My onc told me that there was about a 1 % chance of the cancer coming back. I guess I was that one of a hundred that it happened to.

    Laurie

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  • marejo
    marejo Member Posts: 1,356
    edited March 2012

    Hi Laurie...

     Just wanted to acknowledge your post and say I was sorry you had a reoccurence.  No, I cannot relate, however, it is the fear of each one of us and can imagine how disappointing/frightening it all is.  Know I care. 

     Asking God to heal your liver mets and give you His peace,

     Mary Jo

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  • kathleen1966
    kathleen1966 Member Posts: 793
    edited March 2012

    Thanks for sharing such wonderful and hopeful news!  I am four months from two years. I think it would also be nice to hear from Stage IV women doing well on Herceptin and living many years.  I know of one in a group I was in, surviving 11 years with stage IV.  That was four months from two years ago! (LOL), so that makes it four months from 13 years for her now!!!!!

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  • Lkott921
    Lkott921 Member Posts: 8
    edited March 2012

    I am currently receiving my 4 out of 13th herceptin treatment. I am not even one year out, but this gives me hope as I am terrified! My ONC told me today that i had a 40% chance of recurrence until I hit the 3 year mark? Looking a forward to that day.

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  • cbm
    cbm Member Posts: 475
    edited March 2012

    Hi, Friends; I was diagnosed in June of 08, a triple positive mixed tumor, one node, Stage 2a, Grade 2.  I had a bilateral mx, A/C/T/H, with 2 years of Herceptinand a year on the neratinib trial, and I got the neratinib.  From what point do you count the "years out"?  My first year of treatment with herceptin ended at the end of 09, so is it 2.2 years or so?  Or do you count from the diagnosis?

    Or the last of your treatment?

    Warmly,

    Cathy 

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  • jacksnana
    jacksnana Member Posts: 168
    edited March 2012

    cbm...  I think it depends on who you ask.  My breast surgeon said she counts "years out" from the time of surgery, but my oncologist counts from the time of your last treatment.  I've never really seen a definitive answer to this!

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  • Lkott921
    Lkott921 Member Posts: 8
    edited March 2012

    My Onc says from the date of surgery.

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  • swimangel72
    swimangel72 Member Posts: 1,989
    edited March 2012

    Hi there Mary Jo - so nice to see you! I'm four years out now - and feeling fine. I still see my onc and breast surgeon every six months, but so far so good. Still swimming & still trying to lose weight - still have tightness in my abdomen from all the surgeries and mesh repair - still have an unscratchable itch in my free-tram reconstructed "foob" - and I STILL have to get the tatoo - but as you can see, I haven't been in much of a hurry to return to the Plastic Surgeon's office.

    I'm so happy to hear you are feeling well Mary Jo and hope all's well with your grandbabies. I am so grateful for the help I received 4 years ago on bc.org and at her2support.org - and I continue to pray for a cure for this awful disease!

    BTW - anyone else feeling spooked with this strange early Spring weather? Watching my crocuses, hyacynths, daffodils and forsythia all bloom at once feels like a space-time continuum error. I hope we're not in for a long, hot and dry summer! Cool

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  • Mitch56036
    Mitch56036 Member Posts: 16
    edited March 2012

    SmileHi Marejo, when I saw your name I thought 'how fantastic' congratulations!!! - yes I've also reached that 7 year mark on the 22nd February 2012. Its a great feeling isn't it? I feel so lucky and blessed.  Your postings always helped me while I was going through my treatment and it is so good to hear of others who are beating this beast of a disease. I take one day at a time and just keep my fingers & toes crossed. All the best and take care.

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  • LouLou40
    LouLou40 Member Posts: 180
    edited March 2012

    Great to hear positive stories.

    My Onc counts from date of surgery

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