just diagnosed
Comments
-
hi again longislandmom....I have signed on with Elisa Port. She is extremely articulate, clearly explains what you have and what your options are. did not rush through the appointment (although somewhat of a wait) pissed me off a bit but once she was with me it seems liked the outside world wasn't there; she was focused on me. Answered all my questions and then some. she sent me to her PS Carlin Vickery and her partner Keegan. Here too, I went for consultation, she spent 2 full hours discussing the options of each procedure and then a half hour exam. An incredible education. Most important I felt very comfortable with both and sign on with them that very moment, as I think I said I switch doctors after numerous biopsys, genetic testing 4 other appts with first doc.....I checked them out with the president of the BCRF, someone at MD Anderson and two other sources through my connections all came back with "they are the best" "your in great hands" etc etc....Who are you seeing? When? Good luck. What helped me is that I actuall had a list of questions on my black berry and made sure that before I left all were answered.
-
Garden City... much closer to the city than the Hamptons.... what a schlep.
-
RTNYC -- i am seeing Port this Wednesday and Heerdt this thursday. I have heard they are both amazing and i feel lucky to have found them. i had an appointment at Cornell, but ended up cancelling it today because they don't take my insurance and i figure one of the other two will be perfect. i am so nervous that once i make my decision (assuming it is a BMX) i won't be able to get an appointment for surgery for a couple of months. i just want to get it done as soon as possible. did you get a sense of that when you met with your docs? how long a wait is it? tx!
-
LImom... I don't know your doctors, but I know my doctors reserve one day a week for active cancer patients, always fitting them in asap... I am sure your doctors have a similar protocol...
-
Longislandmom: I actually just scheduled my date about a week ago, Port has a few open dates within the first few weeks of April but the PS couldn't do it, so it's not months away. it's about getting all the doctors in the same room at the same time if your doing immediate recon. my date is 4/23; I feel like it's so far away just wnat to get it done with already! Anyway, Let me know if you like her, good luck!
-
Back from such an exhausting two days of doctor consultations that i can't even think about it for a day or so...appointments at both Sloan Kettering and Mt. Sinai Dubin Center. bottom line-- it's still my choice. both think lump/rad will work. both understand reasons for doing UMX/DMX. A choice doesn't make it easier. I am flipped out about radiation and recurrance and am still leaning DMX. Further stressing me out about RAD is that the DCIS is in my left breast and i am worried about my heart and the fact that i don't have a worldclass RAD facility near me. So i am still leaning strongly DMX... Breast surgeons Dr. Port (sinai) and Dr. Heerdt (Sloan). Plastic surgeons Keegan (Sinai) Cordiero or Disa at Sloan. I loved both Breast surgeons heerdt and Port. Slightly prefer the overall hospital at sloan to Sinai. and have a bunch of questions re the PS. I would LOVE any thoughts on any of this!!!!
-
I had a left sided cancer also... one of many reasons why I didn't want the radiation and having the MX meant I didn't need it.
About recon .. it really depends what you are looking for. I chose to use my own tissue and not get implants, as I have friends who complain about their implants and steered me away from them.. In researching tissue transplants (DIEP and GAP flaps) I in the end left the NY area and travelled to New Orleans to the Center for Restorative Breast Surgery. I have a friend who did implants at Sloan and was not thrilled (felt there was a lot of waiting until her exchange surgery)... and have another friend who was about to have surgery at Sinai and chose to travel to NOLA. Its a lot of decisions but really comes down to what YOU want in the end... I found no matter what, it pays to take an extra week or two now to do your homework so you trust you have made the right decision. And know that you can always change your mind. I have another friend who was supposed to have a MX this past week, and at the last moment also chose to travel to NOLA, and is now having her MX and recon next week down there. This is your body and your choices, so do what feels right to YOU.
-
Hi all,
Just diagnosed, phone calls and phone calls, crying, emotions all over the place, have a 9yr old daughter, scared. Comedo-type necrosis and microcalcifications. Cribriform, Solid Patterns, some areas apocrine features identified. DCIS .8cm and is present in multiple tissue cores from both tissue blocks. What does all of this mean? Advised for lumpectomy scheduled tomorrow March 27. Radiation 33 treatments. Then what? More scared after surfing thru internet. I do not want to go thru radiation and do not want to have to think that I might get this back. I asked oncologist, fam dr., surgeon and oncology navigator about getting masectomy. All said no, but I am having second thoughts. Can anyone help me? Thanks.
-
Dear littlelady55 ... Deep breath... you HAVE choices. this IS your body...and don't let anyone tell you otherwise. I don't know the particulars of your case-- and i'm not a doctor. just a newly diagnosed BC patient like you. I was diagnosed with DCIS/LCIS-- very small in one breast. Radiologist said Lump/RAD would be effective. I visited two breast surgeons and both confirmed that Lump/RAD would be as effective (i.e. 99% recovery) as Mastectomy-- however, the recurrance rate with Lump/RAD is statistically higher. SO....they advise that if i felt that psychologically i could not deal with the lifelong uncertainty of the higher recurrance rate, Mastectomy was a real and viable option. justified or not, i was also freaked out about RAD since i have a left side BC. So...after some anquishing, i have decided to have a bi-lateral -- as have several of my friends. Some prefer Lump/RAD and that's the right choice for them. the point is...there is a choice and you should not be pushed into anything. You are going to be OK. Peace
-
I had 4 doctors tell me that all I needed was lumpectomy and rads, and yet after extensive conversations with them, in the end all said they understood and felt that for MY peace of mind, that perhaps MX, although not recommended, may be what I should do... and so I did... no regrets.
-
I, too, had left-side bc and was VERY happy that my rad.onc. let me have my rad.treatments in the prone position. Please ask about this!!! My onc. was trained at Sloan-Kettering. I am now 2+ years out and there has not been 1 day that I wish I had had a mx rather than lump+rads.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team