Calling all TNs

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  • LRM216
    LRM216 Member Posts: 2,115
    edited March 2012

    Thanks so much Heidi for all the info re the funds, as I tried googling the bank over the weekend to see if we could do it online, but I had no luck finding anything pertaining to the funds.  I will mail off the check in the a.m. when I get to work.  And thanks for doing all you have been regarding the bench and keeping us so well informed.  It's really swell of you to take the time to do this, and I see LJ smiling down at you!

    Linda

  • LRM216
    LRM216 Member Posts: 2,115
    edited March 2012

    ATeamNana:

    So happy for your great results!  Celebrate!

    Linda

  • Titan
    Titan Member Posts: 2,956
    edited March 2012

    Thanks for the info Heidi..I'm thinking of going with the college fund for Joe..with both my kids in school. (well one out but debts to pay)..any help Joe can get will help him out...

    This is probably stupid..but does anyone know IF there is help with college for kids if a parent has cancer?  I kinda hate asking this acting like I want a hand out..but dang..

  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    lovelyface-that sounds terrible! I am a bit worried about se's and I really don't know when he plans on starting me. He said I should have a hysterectomy about 6 months after rads, wants me to regain some strength I guess, so I wonder if he woud starte me on tamox. now and then switch me to an ai after surgery. I see him in a couple of weeks so I will find out more then. I know absolutely nothing about tamoxifen or ai's! I guess most of us on the trp neg thread wouldn't!

    Titan-I am not sure, but it sounds like a good idea. Cancer is definitly a financial stress, even with good insurance!

  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Bak - Maybe the tamox will work out great for you. And even if he changes it to Aridimex, many women hardly have any SE's.  If Aridimex doesn't work, try Aromasin.   Someone I know is doing very well on it.  Whichever one, I hope one of the anti-hormone works for you.  I hope you realize you are very lucky.  I mean in my opinion, first of all in 2002, you had stage 2B which is amazing, and having been BRCA positive, you had a nice long break of 9 years.  And when it hit you the second time it was a new primary - extremely lucky!  Even though you seem to fall on the border of receptor positive/negative, I truly hope these anti-hormones work for you, that way, you are protected for at least 5 years.  I honestly felt that Aridimex was a wonder drug when I first started.  It just made me into a different person, toned, thinner, happier, prettier, with all the hormones getting out of my body.  Some have said that if continued, I would have balanced it out to a certain level, and the SE's would have gone away.  I had to choose between my job and the medication, as I felt completely disabled in my right arm and fingers.  Good Luck!

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited March 2012

    Thank you Heidi for taking the lead on this. You are the glue that holds this board together. I just love your humor it really breaks up the anxious feelings we have from time to time.

  • beckyv
    beckyv Member Posts: 18
    edited March 2012

    I have just finished my first four treatments of A/C and start Taxol next week.  How does the Taxol compare to the A/C?  I had few side effects with the A/C thankfully.  My onc said that T is easier on the stomach than A/C - but neuropathy and joint pain are the most common side effects.  What are the differences that you have felt?  Is the T easier and less SEs than the A/C?

  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    beckyv-it is so different for everyone, but it seems like for most taxol is easier to deal with than ac. I think your onc was right on.

  • riley702
    riley702 Member Posts: 1,600
    edited March 2012

    bak, don't be afraid to try another drug if the Tamoxifen doesn't work out. It didn't for me, so my onc switched me to Aromasin, which had all of the previous SEs PLUS painful, creaky joints. I wasn't initially thrilled with the idea of trying another drug (Arimidex), but he convinced me to give it a try. I'm glad I did, because I'm having no SEs so far. I'm losing weight (metformin is helping there, too), my achy joints are gone and I think I'll have no trouble finishing out the 5 years.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Some humor:

     The older we get....


                  Recently, when I went to McDonald's I saw on the menu that you could have an order of 6, 9, or 12 Chicken McNuggets.

                  I asked for a half-dozen nuggets.

                  'We don't have half-dozen nuggets,' said the teenager at the counter.

                  'You don't?' I replied.

                  'We only have six, nine, or twelve,' was the reply.

                  'So I can't order a half-dozen nuggets, but I can order six?'

                  'That's right.'

                  So I shook my head and ordered six McNuggets

                  (Unbelievable but sadly true...) (Must have been the same one I asked for sweetener and she said they didn't have any, only Splenda and sugar.)


                  TWO:

                  I was checking out at the local Wal-Mart with just a few items and the lady behind me put her things on the belt close to mine. I picked up one of those 'dividers' that they keep by the cash register and placed it between our things so they wouldn't get mixed.

                  After the girl had scanned all of my items, she picked up the'divider', looking it all over for the bar code so she could scan it. Not finding the bar code, she said to me, 'Do you know how much this is?'

                  I said to her 'I've changed my mind; I don't think I'll buy that today.'

                  She said 'OK,' and I paid her for the things and left.

                  She had no clue to what had just happened.


                  THREE:

                  A woman at work was seen putting a credit card into her floppy drive and pulling it out very quickly.

                  When I inquired as to what she was doing, she said she was shopping on the Internet and they kept asking for a credit card number, so she was using the ATM 'thingy.'

                  (keep shuddering!!)


                  FOUR:

                  I recently saw a distraught young lady weeping beside her car.
                  'Do you need some help?' I asked.

                  She replied, 'I knew I should have replaced the battery to this remote door unlocker.. Now I can't get into my car. Do you think they (pointing to a distant convenience store) would have a battery to fit this?'

                  'Hmmm, I don't know. Do you have an alarm, too?' I asked.

                  'No, just this remote thingy,' she answered, handing it and the car keys to me.  As I
                  took the key and manually unlocked the door, I replied, 'Why don't you drive over there and check about the batteries. It's a long walk....'


                  PLEASE just lay down before you hurt yourself !!!


                  FIVE:

                  Several years ago, we had an Intern who was none too swift. One day she was typing and turned to a secretary and said, 'I'm almost out of typing paper. What do I do?'
                  'Just use paper from the photocopier', the secretary told her.
                  With that, the intern took her last remaining blank piece of paper, put it on the photocopier and proceeded to make five 'blank' copies.

                  Brunette, by the way!


                  SIX:

                  A mother calls 911 very worried asking the dispatcher if she needs to take her kid to the emergency room, the kid had eaten ants. The dispatcher tells her to give the kid some Benadryl and he should be fine.
                  Then, the mother says, 'I just gave him some ant killer.'
                  Dispatcher: 'Rush him in to emergency!'

                  Life is tough. It's even tougher if you're stupid!!!!

                  Someone had to remind me, so I'm reminding you too.
                  Don't laugh.....it is all true...



                  Perks of reaching 50 or being over 60 and heading towards 70!


                  01. Kidnappers are not very interested in you.

                  02. In a hostage situation you are likely to be released first.

                  03. No one expects you to run--anywhere.

                  04. People call at 9 PM and ask,"did I wake you?"

                  05. People no longer view you as a hypochondriac.

                  06. There is nothing left to learn the hard way.

                  07. Things you buy now won't wear out.

                  08. You can eat supper at 4 PM.

                  09. You can live without sex but not your glasses.

                  10. You get into heated arguments about pension plans..

                  11. You no longer think of speed limits as a challenge. 

                  12. You quit trying to hold your stomach in no matter who walks into the room.

                  13. You sing along with elevator music.

                  14. Your eyes won't get much worse.

                  15. Your investment in health insurance is finally beginning to pay off.

                  16. Your joints are more accurate meteorologists than the national weather service.

                  17. Your secrets are safe with your friends because they can't remember them either.

                  18. Your supply of brain cells is finally down to manageable size.

                  19. You can't remember who sent you this list.

                  20. And you notice these are all in Big Print for your convenience.

                 

                  Never, under any circumstances,take a sleeping pill and a laxative on the same night!



     

  • NavyMom
    NavyMom Member Posts: 1,099
    edited March 2012

    Ateamnana:;Yeah for good scans!

    Heidi, tahnks for info for LJ's funds.

    Tired tonight from traveling to and from JAX to see Navyson and his family.   :)  :)

    I'll catch up later

  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    LOL! those are great!

  • Titan
    Titan Member Posts: 2,956
    edited March 2012

    Ok..I'm laughing here...some of you tn's are YOUNG and won't get Heidi's jokes...but I do..ha ha....

    See it all gets better when you get older..you have an excuse for everything...I use this excuse daily.

  • Sandlake
    Sandlake Member Posts: 211
    edited March 2012

    I guess I am old too.....hahaha Thanks Heidi

  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    My husband once asked for "a couple" of something at a restaurant and the reply was "how many is a couple?" I think he should have answered "4"!

  • moe0279
    moe0279 Member Posts: 200
    edited March 2012

    ok ladies, I have a question....I keep  having joint pain in my fingers, is this normal after taxol and ac?  My ankles and feets tend to be achy in the evenings...is this also normal...anything that can help with this?

  • moe0279
    moe0279 Member Posts: 200
    edited March 2012

    My heart is breaking for the 3 wonderful ladies who helped me thru this past year...all the suggestions, advice and comfort they gave me....May God bless their families and friends and all they touched...

    just read all the post and i think im in shock :(  

  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    Heidi---ROFL--thanks for the great laugh...needed it

    Maggie

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited March 2012

    Ha ha I love a good joke.

  • LRM216
    LRM216 Member Posts: 2,115
    edited March 2012

    Hilarious post, Heidi.

  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited March 2012

    Moe,

    Joint pain in hands, feet, ankles is all typical with Taxol. For me and others, it seemed worse in the evenings. How long since you had treatment? I took Neurontin (gabapentin) for neuropathy-tingling/numbness in fingers and toes. I think there are supplements that some take but I am not familiar with those. Maybe others can speak up on that.

    Kristy (aka Huskerkkc)

  • OBXK
    OBXK Member Posts: 791
    edited March 2012

    Enjoyed the laugh!



    I've been really fatigued of late, all test come back fine. Found a study saying Omega 3 may help.





    http://m.medicalxpress.com/news/2012-03-inflammation-fatigue-tied-omega-intake.html







  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    obxk-have you had your thyroid checked?

  • ATeamNana
    ATeamNana Member Posts: 464
    edited March 2012

    Hi Navymom. Glad you made it safely back home.

    Heidi. I loved the jokes.
    OBXK . Hope you get some energy back soon.

    Take care all.

    Marsha

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited March 2012

    Love the jokes

  • monisch
    monisch Member Posts: 57
    edited March 2012

    beckyv :  for me the taxotere was the worst.....I still have pain in my feet after 1 out of chemo.

    Moe:  the symtoms your experiencing are normal, and they will continue for  a while after chemo is done. Hang in there..... I made it thru .... so can you :)

    can anyone tell me what MJB said about her shoulder pain in Nov ?  i cant find the post on it.  It would interest me. I have had shoulder pain since nov and have been going thru physiotherapy for 2 weeks with no relief.  Doc. said I have a small spot of Arthrosis on the shoulder bone, but normal xray cant spot a met.  any suggestions or tips?

  • monisch
    monisch Member Posts: 57
    edited March 2012

    Heidi:   that cracked me up...... so funny. Thanks for making my day start so great.  by the way I'll have to rememeber not to take a laxative and sleeping pill at  same time. Dont even want to think about the consequences ...yuck.  LMAO

  • Summer38
    Summer38 Member Posts: 253
    edited March 2012

    Becky - For me, the Taxol was worse than AC. I had few SE's with AC other than a little queasy and fatigued. But with the DD Taxol I had severe bone & joint pain (mostly in my legs) - it would start about 2-3 days after treatment and last for about 4 days. Pain meds were the only thing that really helped, and I had to take 2 in order for it to really touch the pain. Sorry, I hope you have a much easier time!!!

    OBXK - I've been realy fatigued lately too, I keep falling asleep on the couch which is not normal for me. I'll look into the Omega 3 - Thanks.

  • moe0279
    moe0279 Member Posts: 200
    edited March 2012

    My last Taxol treatment was in march 2011 and my last AC treatment was May 12th...lol you would know I would remember that date...It seem to be just now popping up...I go to see the rad oncon Monday and will talk with her about it , but i wanted all you your suggestions since you've also been thru it...

  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    monisch - this is what MBJ said about her shoulder pain:

    MBJ said: 

    "I will try to keep it brief. Over the last period of 7 months I  tried my best to get an appt. with my dr. due to a very a painful shoulder (appointent still not until Mar 17th at my fomer address/dr).  After we moved and after having 2 months of PT I had a fever for 2 weeks, went to the hospital barely able to walk & found out I had a large shoulder bone lesion on my  MX side, and my diag. was reversed from triple neg to to Est +80 plus it was throughout my spine and in my entire liver so no surgery - just Tamaoxifin.  Lots of muscle loss, doing home bed exercises to strengthen. Focussing on getting stronger (I am given 4 months) and I am having home hospice care."

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