Pregnancy after Stage IV diagnosis

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Jejik
Jejik Member Posts: 191

I was just wondering if there is anyone out there who has gotten pregnant after a stage four diagnosis. I have been in remission just under a year, and found out a couple of months ago that I am pregnant. I am 33 yeas old, and always wanted children, but after my diagnosis of metastatic disease last year, I gave up on the idea of ever having a child. But here I am. I have decided to have the child, and an ultrasound at twelve weeks shows the baby doing good. I, on the other hand, am a wreck and would give anything to have someone to talk to who has been where I am at. I have to decide what to do about my treatments (have stopped for now), feelings of helplessness over my future, feelings of guilt over the fact that there is a good chance my child will grow up without a mom, the list how's on and on. Even if you have not been through it, if you have any inspirational stories, words of wisdom or hope,,,I would appreciate it so very much.

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Comments

  • raro
    raro Member Posts: 1,092
    edited March 2012

    I have not been in your position, but God bless you for trying to do something so amazing. I am sure a lot of people will disagree, but I think it's wonderful. In the midst of despair and sickness and fear and frustration, there is a little light of life and love. I would assume that the fact that your cancer does not feed on estrogen/progesterone is a good thing, yes?

    You do what you feel is best for you and your little one. You're trying something very daring and brave and there will be a lot of people who will assume you are selfish at best and stupid at worst. Don't listen to them. You have the chance of bringing a little life into this sad world, and I say, go for the stars. You are not dead yet, you are alive and nobody can tell you when you will die. So you have the baby, and if things go downhill, you write her a bunch of letters and scrapbooks so that she/he will always know how much they were loved. You could live for decades, for all anyone knows!

  • LilSchatzie
    LilSchatzie Member Posts: 430
    edited March 2012

    Good luck to you!! I know it must be a rough road you are traveling, but I'm stage iv and my 3 little ones are my life. As much as it hurts me to think they may have to live without me, I couldn't imagine doing this journey without the love and happiness they bring me. I don't personally know anyone that got pregnant stage iv, but I do know of some that found out they had cancer or stage iv during pregnancy. Make sure you look into an OB that has dealth with this. I would guess it's good that you are ER/PR -.

  • reesie
    reesie Member Posts: 2,078
    edited March 2012

    I can't imagine what you are going through. I know Katie31 was dx Stage IV while pregnant. She had her baby about 6 monthe ago and they're doing well right now. You should try to PM her.



    Gfood luck.

  • JustJudi
    JustJudi Member Posts: 198
    edited March 2012

    My daughter was Stage 111 when diagnosed and was also pregnant, The Drs. wanted her to terminate at the time, because then they could throw everything at her in the way of treatment. She chose to go through with the pregnancy and gave birth to a little boy, she had chemo during the pregnancy , leaving out the harsher chemo until after she gave birth. She had the same thoughts was it fair to have a child who may lose their mother at an early age, as she has an aggressive form, but they wanted another child and they are happy with their decision, you cant put your life on hold, in case of the what ifs. a child could lose their parent because of an auto accident, things in life are not guaranteed. If you can have some joy in your life, live your life to your ability, go for it.  I wish you all the best.

  • 33skidoo
    33skidoo Member Posts: 1,029
    edited March 2012

    Congratulations!  I have no words of wisdom for you, but hey, at least you are PR-!!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited March 2012

    There was a woman who stayed on herceptin while pregnant.  I will look for her blog to see if I can find it for you.  Congratulations!

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited March 2012

    Are you married? You haven't mentioned a husband....this sounds terrible, but it's an idea I have to throw out there....have you considered putting the child up for adoption?  I can't think of anything worse than my child watching me die; it's my worst nightmare played out and my son has to live with that fear. I am just trying to hang on until he goes to college - he is 15.  

    Maybe you can do an open adoption and visit your child but you will know he/she has parents when you die?

    I know that Katie was diagnosed Stage IV in the middle of her third (?) pregnancy so she can talk to you about the fears you are experiencing.   I'm sorry you are experiencing this - it should be such a happy time for you.

  • Jejik
    Jejik Member Posts: 191
    edited March 2012

    Thank you all so much. I will definitely try contacting katie31. Jamieh, if you do find that blog please let me know, that would be super helpful.



    My oncologist told me that I should look at this like a gift from God, and I do. But knowing that the Lord givers and the Lord taketh away gets me super anxious sometimes. But I have never wanted anything more in my life for this baby to be born healthy and for me to be able to watch it grow. Cool breeze, I don't think that sounds terrible, especially coming from a mother who worries about hanging on for her son's sake. I didn't mention it, but I am married to a wonderful guy who is already an awesome father to two girls. This baby will have him and two half sisters and lots of extended family that loves it besides me.



    Maybe it is selfish of me but I cannot imagine giving the baby up for adoption. Just as no matter what doctors said it never crossed my mind to terminate.I already love it do much, and want to be a part of its life for as long as possible. I am doing the journal thing so that if the worst does happen the baby can at least know how much I loved it and what I am like and my thoughts on things.

    I am just wondering how to cover it all!!



    I hope to get to know y'all better as I navigate the site more. Thanks again.

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited March 2012

    You know, when my husband and I were first married, we were friends with a couple who were stuggling with multiple miscarriages, as we were. And then there was the healthy pregnancy that stuck. About halfway into it, Mary was diagnosed with advanced brain cancer. She chose to continue the pregnancy, despite termination recommendations.

    She has been gone for a long time, now, and Seth is graduating from college. I can see Mary's face in his graduation picture, and I know how grateful his dad and brother and sisters are to have him in their lives. Thanks for sharing.

    You are giving your family, and the universe, a great gift.

  • anonymice
    anonymice Member Posts: 532
    edited March 2012

    Congratulations, Jeljk!  Even this agnostic would agree with your oncologist about it being a gift from God.  

    My cousin also quickly became pregnant when her husband was diagnosed with an (unquestionably) terminal form of cancer...about 25 yrs ago.  He died prior to her birth.

    She grew up to be a beautiful, strong, brilliant, and incredibly successful young woman for one so young who, obviously, is so thankful for her parent's decision.  As are we all.

    And...you may live to see your grandchildren.  It simply can't be known, for anyone, but it absolutely does happen and will continue to happen in greater and greater numbers.

    But regardless your child will have a warm and loving environment and that, that is truly the only thing a child really needs.  

  • cookie97
    cookie97 Member Posts: 908
    edited March 2012

    My younger sister was dx'd with pancreatic cancer at 33 yo on 34th bday gave herslef a huge Bday party. She conceived her 3rd child around this time. She didn't think she could get pregnant! She experienced all the fears that you are having now, this child is now a thriving 13 yo and I'm happy to have my sister.

    Her onc and onc nurses at Mayo were all so happy for her; they considered my sister to be a miracle herself and then to have a miracle baby. However her particular type of cancer is not hormone driven, only you know BEST!!!

    Luck to you Sweetie, wishing all the best to you,

    Edie

  • katie31
    katie31 Member Posts: 442
    edited September 2012

    Hi there,

    Firstly congratulations on your pregnancy!

    I was 14 weeks pregnant when I was diagnosed with bc and liver mets. I wanted herceptin but no doctor would give it to me so early into my pregnancy.I started AC chemotherapy at 17 weeks. I had 3 rounds of it and then I had a scan which showed progression. The doctor had no choice but to put me on taxotere and herceptin, even though it is not approved for use in pregnancy. After my first infusion of herceptin the level of amniotic fluid around the baby dropped significantly. I had to spend a week in hospital being monitored. I was having weekly doses of herceptin at the time and I agreed to stop herceptin for 2 weeks to see if the level of fluid would come back up. It didn't. I managed to hold on untill I was 31 weeks and then I had my baby girl by c section. She weighed 1.45 kg.

    To be honest at the time I just got on with it and didn't think too much about what was happening. I just took each day as it came and didn't over analyse to situation I was in.

    Looking back I can't believe what I went through. Every day I wonder if I should have waited untill the baby was born before starting herceptin. Should I have tried to hold off a couple of more weeks before having her? The guilt is something else.

    All that said she is now 6 months old and yes she does have some problems but they are related to being born premature rather than the treatment. She is a little angel though. She is smiling and laughing and everyone who meets her just falls in love with her.

    Sorry for the long rambling reply! Please pm me f I can answer any more questions for u!

  • Patriotic
    Patriotic Member Posts: 281
    edited March 2012

    God bless you. I think what you are doing is inspiring. It's the cycle of life; birth and death. Cancer takes so much from us. There's a tendency not to take chances and risks and really continue to LIVE your life. That is the hardest part for me. If I were in your shoes, I wouldn'tt terminate the pregnancy. I am sure you're scared; that's normal. Try to enjoy it because it goes so fast. I find my kids and my job keep me so preoccupied that the dark thoughts only tend to creep in at night after my kids are in bed.



    Congrats on your remission. You're where so many aspire to be. None of us knows what the future holds. Even if, and it's a big if, the beast comes back, it sounds like you have a loving and supportive family that will do their best to keep you happy, healthy and supported.



    All the best.

  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited March 2012

    What exciting news, timing is a bit off but still exciting!  I hope everything goes well and know there are alot of people who get pregnant and are on chemo that who have had healthy happy children!

  • bestfriend05
    bestfriend05 Member Posts: 227
    edited March 2012

    Jejik..i feel your dilemna and agony..it is not an easy decision to go through...at the end of the day..yes practicality matters a lot..!! raising the child, making sure they have a secure future, but if u think on the other hand nothing is guaranteed..

    I wish there was an easy answer for this and wishing you to be at peace with what ever decision you take...

    Also my mum says have faith in your God and if you do go ahead with preganancy may the child  bring u a lot of luck..

    hugs and loads of love..

  • loligag
    loligag Member Posts: 175
    edited March 2012

    Jejik, congratulations on remission and your pregnancy. It's never a mistake to bring a new life into this world. You may be in remission for a very long time. Sounds like the baby will be well loved and cared for in the event you are called home to heaven. Get the guilt out of your head. Stressing out over it is not helping you or your baby. Don't go by "what if's", focus on "what is." Look after yourself. Praying for a great outcome for you and your baby. Blessings xoxox

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited March 2012

    I am glad you weren't offended.   It was just an idea, but since you have a loving family and husband than it sounds like your child will be well cared for.  I'm sure he or she will bring you tremendous joy.  Katie will be able to tell you about the treatment she got during her pregnancy.  There are some chemos that they can do that won't hurt the baby.  

    Just wanted to say that Stage III is not the same as Stage IV.  Taking a risk at Stage III is not the same as when you already have metastatic disease and there is a 100% certainty that you are going to die from cancer. It's not a fair comparison, and yes, anybody can get hit by a car, but the vast majority of people live long lives and don't get hit by cars. 

    Sorry but it's just a fact.  I've never been one to pretend.

    I would never advocate for terminating a pregnancy though.  It's not the child's fault and I know that you will be a wonderful mother, Jejik, and I hope that you get to be one for many years.  Knowing your disease, you have the opportunity to surround your child with many people who will love and support her, and who knows?  Maybe she'll end up having a better life because of it.  And, who knows, you could be a miracle like Kathy36, who is on year 20 with bone mets.

    A baby is a blessing no matter what, so congratulations are in order.  I can't wait until you share the photos!  :) 

  • nancyh
    nancyh Member Posts: 2,644
    edited March 2012

    Jejik,

    Congratulations!!  I am so happy for your pregnancy (so sorry you have to deal with cancer, especially being so young, but hope you will get loads of information and support here on the boards).  I pray you will have many years of joy and happiness with your baby.  I get the feeling you will be a wonderful, amazing mom. 

    Be sure to check YoungSurvivalCoalition at youngsurvival.org).  They have a lot of information specific to the needs of younger survivors.

    Welcome to the boards and best of luck on your pregnancy,

    NancyH 

  • apple
    apple Member Posts: 7,799
    edited March 2012

    jejik - first of all - super warmest congratulations. may you live long.,. and may things work out for you.

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited March 2012

    Congrats!!!

    You know, you might be around for a long long time.! A true gift from God.



  • texasrose361
    texasrose361 Member Posts: 1,829
    edited March 2012

    I just want to say congrats!  I am actually giddy with excitement for you!!!!!!!!!!!

    Honestly my onc told me "you cant get pregnant" i dont know if he meant i physically am unable to or if i shouldnt, well he did caution for me to use birth controll (non hormonal of course) but eh... LOL

    Who cares youre gonna have a baby! Update OFTEN! 

  • cookiegal
    cookiegal Member Posts: 3,296
    edited March 2012

    One of the most inspiring books I have ever read is by Darcy Wakefield.

    It is called "I remember running, the year I got everything I wanted and ALS."

    She is a writer who was pregnant with Lou Gherig's. It is such a sweet book. 

  • justjudie
    justjudie Member Posts: 3,397
    edited March 2012

    Congratulations jejik. I wish you the best. Welcome to the board.





    Judie

  • 3littlegirls
    3littlegirls Member Posts: 853
    edited March 2012

    I am so happy for you. I hope you stay in remission for many years. Until they give us the magic "all better pill". 

    I hope it all goes smoothly for you and the babe.

    Congrats!!!!!! 

  • apple
    apple Member Posts: 7,799
    edited March 2012

    many of us have children.. and just because yours is not born yet... is really no different.  Perhaps it is not what you would have planned but what a wonderful wonderful gift.  I think all the time about preparing my children for life without me.. they are thankfully older.. the youngest is 12 and I've been stage 4 for a while and we are all comfortable talking, and being frank, and discussing options..

    I hope it all goes smoothly.. that you have a wonderful long life with the child and can contribute much..   I am really excited for you... (with a few scary tears.. you must be going nuts)

    Oh i guess i have already commented above.. can you tell i love babies?

  • china
    china Member Posts: 1,567
    edited March 2012

    Congratulations on your pregnancy. It is a gift from God and a miracle. Wishing you a safe, healthy pregnancy and delivery. Trust in your oncologist and your Ob/Gyn, they will provide you with excellent care, knowledge and keep you and your baby safe as possible. Hugs Dawn

  • china
    china Member Posts: 1,567
    edited March 2012

    CoolBreeze, I think you need to apologize for your first comments. They were not very nice and you should not be judging her. It is her lifestyle and choices. We are here to offer support. Dawn

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited March 2012

     china wrote:
    CoolBreeze, I think you need to apologize for your first comments. They were not very nice and you should not be judging her. It is her lifestyle and choices. We are here to offer support. Dawn

    What do I need to apologize for?

    She said she gave up the idea of having a child, is a wreck at the idea of being pregnant and is feeling helpless over the situation, along with feelings of guilt that her child will grow up without a mom.  She sounded desperate in her first note.

    I shared my very personal experience of agony over what this is doing to my own child and gave her the suggestion of thinking about adoption, as an offering.

    Since when did adoption become a bad thing?  When is it judgmental?   Many women have given up children over not having money, not having a husband - feeling helpless in their lives.   That is a loving thing to do.  They are heroes

    She wasn't upset at my note, just didn't feel my idea was for her and so then I congratulated her and told her she would be a great mom, which I'm sure she will be.  How is that judgmental?

     I am not judging her - YOU are judging me, it's so hypocritical.

    I use the plural because NancyH also seemed fit to chastise me in a nice long flame-fest and I'm sure she's not alone. 

    Support takes on many forms, and not everybody sees things the same way. That's why an internet board can be so useful. 

    Honestly, I have about had it with the women on this board.  You want to accuse me of being judgmental when that is what you are being yourselves. Some of you are the most close-minded women I've ever met, or you are stuck in middle school and anybody who doesn't wear the right clothes you feel the need to chastise.   Anybody not in lockstep with a certain idea of support, way of writing,  or a particular method of saying things is always treated badly or called out.  

    Last time I said something a little different (but with a kind heart), I was told I didn't belong on this board because the surgery I had removed my cancer.  (Apparently temporarily)  Several people kept asking me to come back so I did, but I think that was a mistake.

    I owe no apologies because I meant no harm, I called no names, I wasn't judging her and I don't think badly of her no matter what she does.  I feel like we are all in this together.

    Or, at least some of us are.

  • 33skidoo
    33skidoo Member Posts: 1,029
    edited March 2012

    If someone wants to advance the discussion, fine.  If you want to criticize someone you should PM them or let it go.  My 2 cents worth.

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited March 2012

    Jejik,

    Congratulations and remind yourself every baby is a blessing.   No matter the circumstances of their birth , their health whatever.  Breathe and hold on to the hoepfull expectaions as often as possible

    Gentle evening

    Nel

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