Calling all TNs
Comments
-
Painting - I am so sorry to hear of your cousin's dx. I hope it is treatable. Do they think it is a primary tumor? Sending good thoughts her way. Enjjoy your visit from your kids; may they run a great race, in perfect weather! Hugs!
-
I check in here from time to time, and am so saddened by the losses of LauraJane,Susan, and Mary. Yes, triple negative can be ruthless. But please take hope from my date of diagnosis. I am NINE YEARS OUT as of February! So it's not always a death sentence! I do exercise, but I eat sugar and drink wine and eat all kinds of bad stuff:(
-
Maywin congrats on 9 years! WOOHOO! Thanks for stopping by and giving us hope!
-
Oh as usual I forgot something....a friend of mine in this town was also diagnosed six months before me and she had either three or four positive lymph nodes. She's a TN also, and still doing fine. We both had mastectomies and chemo, she had rads but I didn't.
-
maywin,
WOW!!!
-
Painting, I hope you have a great visit with your kids! I'm very sorry about your cousin, too. I hate this disease. It strikes so suddenly and so randomly. I have a friend who had brain cancer twice. She is a tough as nails lady who runs a dog and cat rescue. It has been over eight years since it recurred and she is doing great. It was an aggressive type that generally younger people get, but I cannot remember the name.
Bak, I had all sorts of eye issues, too at the end of extended treatment - last chemo was 2/17 and even my constant tears have begun to dry up! I had a lump on top of my eyelid, then pink eye, then herpes simplex next to my eye - BUT now I am fine! I think some of it was caused by my eyelashes falling out then when they tried to grow again, the surrounding oil glands became clogged. I started using baby shampoo on a Qtip to wash my eyelids every night. This helped tremendously.
Best thing that happened to me today was getting out in the sunshine and walking/jogging 4 miles. I felt very positive while jogging, like my old self.
Maywin, Thank you and congratulations, too!
-
Maywin - congratulations on nine years...you are an inspiration. Thanks for letting us know.
The best thing today was visiting my mom for the weekend to celebrate her 79th birthday. My daughter and I took her shopping. She's on oxygen 24/7 and uses a walker because she has congestive heart failure (but no history of breast cancer, thank goodness) so she doesn't get out much. She was so happy to hit the mall and was such a trooper shopping 'til she dropped.
-
Happy St. Pat's day everyone!..I used to go out and party the night away on St. Pat's day but now I'm sitting at home talking to you and watching basketball....times have changed...lol
Beacher..I wish I knew what to do after treatment...the only thing I can say is to exercise, try to eat right and possibly put this behind you...being active physically and eating good stuff helps with the mind as well as the body... every time I start freaking out I just go for a jog..did alot of jogging with the news of Suze, Laura and Mary...
You guys may be interested in the story of a couple of co-workers..One is TN and 8 years out (or more)...another has just been diagnosed..lobular but estrogen driven..two tumors in her breast...anyway...the other tn and I have been talking to her about things...kinda ironic but my tn co-worker is positively convinced that being tn is better than er positive because we don't have to deal with tamoxifin...my just diagnosed co-worker is already freaking out about taking it... saying it causes uterine cancer, etc...
I just find it a little funny that a tn is actually thrilled that she didn't have to take tamoxifin...
Maybe we should be too????
-
Sugar..my mom is 77 and gets short of breath..she thinks it is because she is "chubby"...They can't find anything wrong with her so maybe she is right
My Dad and Mom took my DH and I to a casino last night..remember I told you that they gamble and then go to church..(Laura loved that..heh heh)...Anyway, they drove us, and gave each of us $50 bucks..and then drove us home...Here I am..52 years old and I felt like I was a kid again...what fun....the thing is..WHEN..they cannot drive to the casino (or to church..lol)..my DH and I will be the ones taking them...pay back time...
-
Thank you for the welcome a few days ago. I wish that none of us had to be here and I am so very sad to read of the grief that this board has had to bear with the passing of 3 cherished members recently.
-
Titan - I love your family! Sounds like more fun than bingo!
As for the tamoxifen - for me, it was a terrible drug. Horrible bone pain and fatigue.I only took it a year. My BS says a lot of women who took tamoxifen, have it come back as TN, as I did.
Sweet dreams... -
There are pros and cons to everything. I, too, am glad not to have to take Tamoxifin, as the SEs can be bad and it only delays the fears of recurrence, IMO, by providing a "safety net" for 5 years. Also, it's a daily reminder of "oh yeah, I had cancer". Believe it or not, there are many days when it doesn't even cross my mind; it's coming in here that reminds me (more pros and cons).
-
When they found the really low ER receptors (5-10% mod stain) at surgery, my MO wanted me on tamoxifen. I saw 2 other oncologists, both TN specialists - one said the tamoxifen wouldn't do much and if I had problems I could quit taking it, and the other called me low estrogen positive and I needed to take it. I've been on it about 10 days. My local onc thinks my tumor mutated in response to the chemo.
-
Maywin thank you so much for cheering us up!!!!! Congrats on the 9 years out! I know someday I will say the same thing...
-
Congrats Maywin! I love seeing posts like yours- very reassuring!
Michelle- I am going to ask my Gyn when I see him next month- he is an awesome guy! If he won't, I will consider the dr. you recommended!
-
Maywin - your posts are encouraging and uplifting! Something all of us TNs need right now and something only a sister would know. Thanks.
-
Christina, I forget, were you at 0% er with your biopsy? I was 3% at biopsy and the were going to redo the test after bmx, but since I had a complete response they do not have any cancer to test. So my mo still wants to start me on tamoxifen. I am thinking of having them send some of my tissue from the biopsy to a different lab and have it re tested. I do not have 100% confidence in the lab since the mistake they made with my mastectomy tissue. My mo calls me er positive, he says positive is positive.
-
Well girls the best thing that happened to me today, was my hubby, boys and I had a bonfire in our backyard. We cooked hotdogs and made smores
Hope all is well and I hope we all have a great week.
-
The best thing that happened to me today is we spent almost the entire day with our grandkids. It was so beautiful here today and we had a "swing building" picnic in their back yard. I'm not sure how the weather could have been any better.
-
The best thing that happened to me today was reading all the positive posts from our TN sisters who have gone 3 yrs and beyond without recurrence, thank u so much. I know I will do the same every 5 yrs once I'm done with all my treatments and surgery.
-
This definitely gives me some hope. Thank you!
-
It was beautiful here today. I agree all the positive posts are certainly an encouragement. Thanks to those that posted!
I am two years out and counting on many more:)
Recent CT Scan showed not liver lesions .... no signs of any abnormalities.
-
Bak, I think I may have tested 1% or less ER at biopsy and I had a good biopsy - they did six samples. I remember there was a recommendation from the pathologist writing the report at that time to retest for ER following surgery - it almost didn't get retested. I'm sending you a PM.
-
Such a sad week.
I already donate to the American Cancer Society through payroll deductions. Suze was such a pretty lady. Just as I imagined. I lovely bob cut and a soccer mom at heart.
I will donate to BCO.org in Mary's honor, and I SHOULD I come here so often for support that I generally forget to support. Can I blame it on the chemo???
Please someone let us know about LJ son's fund. It is so hard to loose a mother. No one cares for you like a mother can. That is my biggest prayer, PLEASE let me raise my kids so that they do not become someone else's burden.
I planted Pansies(?) over the weekend. They look GREAT and have added so much color and life to our front yard.
Stay blessed ladies and enjoy spring, and count all your blessings!!!!
-
Nana- Great news on CT scan!!
Fighter- I need to get out there and start planting. My husband has done quite a bit in the vegetable garden, but it's my job to do the flowers! I think it is still a bit early for most flowers here, so maybe I can procrastinate a while longer!!
-
Donations to assist Laura's children with estate expenses and/or Joe's education will be greatly appreciated and can be made to either the Laura Shively Benevolent Fund or the Joseph Shively Education Fund, both at Key Bank (418 S. College Mall Road Bloomington, IN 47401).
-
Heidi - do you know if there's a way to donate to the education fund online? I was going to send you a PM but since you just posted a few minutes ago, I thought I'd check here.
-
Ormie on vimeo http://vimeo.com/m/27256955
Something funny to enjoy, have a great day all! -
christina and bak - I just wanted to chime in and tell you that I was also 5% positive for Progesterone (PR) not Estrogen. My Onc. said he was going to twist my arm and make me take aridimex, since I am post menopause. I took aridimex for first 2 months, perfectly. It made me look really pretty and I was losing weight, yes losing, not gaining like others. But after 2 months, I experienced the SE from hell. I could have become severely disabled. My right arm was stiff and very painful. I was told that I had carpel tunnel, and my nurse argued with me that it was caused by typing for 30 some years. I was shocked. It was100% from aridimex, no doubt. The pain in my right hand/arm went away after couple months. I think my back hurts today because of what aridimex did to me, that is it somehow deteriorates your muscles, bones or something, especially TN's. I stopped it. My Onc. was not happy, but I think aridimex drastically reduced the hormone levels in my body.
-
Donations to assist Laura's children with estate expenses and/or Joe's education will be greatly appreciated and can be made to either the Laura Shively Benevolent Fund or the Joseph Shively Education Fund, both at Key Bank (418 S. College Mall Road Bloomington, IN 47401).
To donate to either of the two funds listed above you must send a check to the branch address above, attention "Karen" (she knew LJ) and specify which fund you want the money to go towards: benevolent (pays for funeral expenses, etc.) or educational (goes towards Joeseph's education). He is 18 and, as some of you may recall, LJ had hoped to live to see him graduate.
You can specify if you want to be anonymous or named in the donation, and if you want a receipt for tax purposes.
If you wish to have any further information beyond what I have provided the bank's number is:
(812) 331-0600
In conclusion, I sent the following email to the Wonderlab:
Hi Courtney,
I spoke to you last week about a bench in memory of Laura Jane Shively, landscape architect.
It has come to our attention at breastcancer.org that two funds have been set up at Key Bank in Bloomington for LJ's expenses and her son Joseph's educational trust. Since these are already set up, the decision has been made by the gals in BC.org that donating to either of these existing accounts would be the best course of action for us to take, as they represent LJ's concerns and wishes.
Therefore, we will no longer be pursuing the bench. I *am* hoping that her daughter Sarah might still be able to place a limestone plaque in honor of her mom somewhere in the Wonderlab Garden, and I will be suggesting this to her as well.
Thank you for your time and consideration in this very sad matter.
Regards,
Heidi
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team