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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    Sweetbean, I have been doing a whole lot of research for the past two years and have never come across what you claim.  Do you mind sharing some links ?  thanks

    ETA, I was consuming tons of soy before dx, tofu burgers, tofu, roasted soy beans, soy milk, even had genistein in one of my supplements.  It certainly did not prevent my BC, if anything, I'm convinced it fueled it. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012
    Hello Birdlady, I believe the studies you refer to relate to fermented soy, i.e. natto, miso, etc. which I feast on Smile
  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    It's spelled edamame.

  • Layla2525
    Layla2525 Member Posts: 827
    edited March 2012

    Actually there are a lot of vegetables with phytoestrogens in them,however,that is a different thing from  human estrogen, since the soy supplements have not been followed in clinical trials well enough you might ask your dr and most will tell you to stay away from the soy pills cause we dont have evidence to know if its helpful or harmful. I have a friend in Japan and I asked her if she eats bacon and eggs for brkfast like we do in the US and she said she eats eggs and rice and then for lunch she eats fish & rice and sometime they eat a riceball which is rice rolled up in those types of seaweed wrappers that black stuff you see on the outside of sushi. I thought to myself,,how can someone eat so much rice?! She never said she ate any tofu or miso but I suppose she probably does from time to time as its common in their culture but you always see the friends from Japan and Taiwan eating and the table is laden with these small bowls of all sorts of stuff like a bowl of daikon radish,a bowl of bok choy etc  However,we keep getting reports that they eat a lot of soy so dunno why that is?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    I know Layla, my SIL is from HongKong and her daughters ages 10 and 12 don't know what soy is...lol  I believe there's one dessert made with soy, but it's not as common as we might think. yum...California rolls, my mouth is watering Tongue out she makes the best ones !

    "Patisaul compares the effects of genistein to Bisphenol A, or BPA, the estrogenic compound found in plastic bottles that many scientists suspect can harm brain and reproductive development.

    Genistein does the same thing and yet we are supposed to be eating tons of it because it's supposedly healthy-it just doesn't make sense," she said"

    http://www.scientificamerican.com/article.cfm?id=soybean-fertility-hormone-isoflavones-genistein 

    The flower that follows the sun does so even on cloudy days. ~Robert Leighton

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    Well, foods in Asian countries have regional variations just like anywhere else. I think soy in more common in some regional cuisines than in others. Can't recall the name of the region in Japan where tofu/miso intake is high and has been extensively studied. Chemo brain...

  • althea
    althea Member Posts: 1,595
    edited March 2012

    bl54, most of the soy grown in the US is genetically modified, GMO.  It's a problem for farmers who want to grow organic because the wind blows and the gmo crops are contaminating the organic ones.  This is one reason of many that I avoid soy as much as possible. 

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited March 2012

    It is edamame -- you can buy them in a bulk section of an organic store - whole foods type -- or in Canada we have a store called "Bulk Barn" and they are available there.

     http://en.wikipedia.org/wiki/Edamame

  • truebff
    truebff Member Posts: 642
    edited March 2012

    My Chinese Medicine Practitioner wanted me on a soy free fish oil and I wanted one burp free too, and have found one am going to try:

    Medigenics 

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2012

    Thatgirl, Soy lecithin is not an isoflavane. It is okay to take, Soy isoflavanes are the ones that should be avoided and those are found in most soy foods.

    Birdlady54, If you are still looking for edame Costco sells it in the freezer section.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited March 2012

    I drank 5,000 protein shakes and ate over 4,000 protein bars containing soy protein isolate on a medically supervised diet over the course of 5.5 years.  Then was diagnosed with Stage III Breast Cancer ER+ PR+ her2neu+

    At Univ of Michigan they said absolutely no soy protein isolate.  I talked with several nutritionists and professors about this all over the country.  They said they could not say the soy caused my breast cancer but they can say it contributed to its size and growth.

  • Thatgirl
    Thatgirl Member Posts: 276
    edited March 2012

    ptdreamers,  

    My Onco told me to stay away from soybean oil, soy letchin and anything else that list soy of some sort as an ingredient.

     I'm confused on why eating a food that is clearly in the gray area when it comes to BC is being pushed and supported on a BC board? Again, there has to be another food that does the samething soy claims to do. No one has answered what is it that soy claims to do that benefits BC?

    Were all you die hard soy eaters before your BC dx? If so, we need to get this information to a researcher ASAP.

    How often are you guys eating soy? What are you eating? Do you think soy has prevented a reoccurance in your same breast? 

    If you are willing to take responsibilty for possibly influencing women with ER+/PR+  BC to eat one of the foods that scientist and researchers can't agree on, that's up to you. I have a list of other foods scientist do agree on, and I'll support those.

  • Thatgirl
    Thatgirl Member Posts: 276
    edited March 2012

    From what I'm reading on BC.org, the theory is that receptors on the cancers cells will attract the weaker estrogen given off by soy rather than the stronger estrogen your body makes.

    Is my understanding correct?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    I quickly glanced at an article pertaining to soy recently - now this will sound very controversial - but I just had a conversation with a naturopath yesterday and she agreed with it - the fact that boys are being fed soy in their formula may/does affect their sexuality in adult life, their testosterone being suppressed by an excess of estrogen.

    A must read on soy:  

    "Recent research on rats shows testicular atrophy, infertility and uterus hypertrophy (enlargement). 

    Worse, there's now scientific evidence that estrogen ingredients in soy products may be boosting the rapidly rising incidence of leukemia in children. In the latest year we have numbers for, new cases in the U.S. jumped 27 percent. In one year! Toxicologists estimate that an infant fed exclusively on soy formula is getting the equivalent of three to five birth control pills per day

    There's also a serious connection between soy and cancer in adults - especially breast cancer. That's why the governments of Israel, the UK, France and New Zealand are already cracking down hard on soy.

    In sad contrast, 60 percent of the refined foods in U.S. supermarkets now contain soy. Worse, soy use may double in the next few years because (last I heard) the out-of-touch medicrats in the FDA hierarchy are considering allowing manufacturers of cereal, energy bars, fake milk, fake yogurt, etc., to claim that "soy prevents cancer." It doesn't.

    Plus, a soy-based diet at any age can lead to a weak thyroid, which commonly produces heart problems and excess fat.  

    If soy is so harmful as to potentially alter sexual physiology and behavior, why haven't the Chinese and Japanese all died off or become homosexual centuries ago?

    One of the reasons is that Asians simply do not eat as much soy as Westerners think. The average daily consumption in Japan (one of the highest soy-consuming countries in Asia) is at most about eight grams of soy protein. China and other countries eat far less."

    http://www.ourinterestingworld.com/health/shocking-effects-of-soy

  • althea
    althea Member Posts: 1,595
    edited March 2012

    I believe your understanding is correct thatgirl.  That explanation for me, however, never made much sense.  Admittedly, I skirted science class requirements with the bare minimum requirements, but I think that's largely because I would read the conclusions of scientists and wonder how on earth they came up with those conclusions. 

    The pro soy camp says soy is protective because its phytoestrogens are weaker than the estrogen in our bodies, so when the weaker estrogens glom onto the receptors, less fuel is available to a cancerous cell.  I haven't found any material anywhere that explains to my satisfaction why a weak phytoestrogen would win the race to a receptor over a stronger estrogen that is our own. 

    Whenever I read descriptions of this, I see a lot of ambiguous language.  That indicates to me the researchers are supposing what happens.  It sure seems to me like someone could find some kind of way to figure out for certain if weaker estrogens really do glom onto the receptors better than, or at a higher rate, than stronger ones.  

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    Most studies I have seen suggest larger gram intake and/or a greater soy/isoflavone intake in Japanese diets than in American diets. For example:

    -- A large study citing that Japanese women eat 700 times the amount of isoflavones of caucasian American women (http://jnci.oxfordjournals.org/content/95/12/906.full.pdf)

    -- A community of Japanese American women in Japan ate about 10.4 mg isoflavones/day, about 1/2 to 1/4 of their cohorts in Japan (http://www.ncbi.nlm.nih.gov/pubmed/11784407)

    --  Isoflavone intake of approx. 35 mg/day in the famous Okinawan Centenarian study (http://www.okicent.org/study.html)

    Something I'm curious about is whether ER+ tumors are more prevalent in some groupls/cultures than in others, and what environmental/diet factors are present in those different groups. 

  • Hipline
    Hipline Member Posts: 195
    edited March 2012

    Edamame can now be found frozen in most grocery stores. Just quickly boil it, salt and pop the beans into your mouth. This type of soy is full of protein and healthy nutrients.

  • Stacie
    Stacie Member Posts: 607
    edited March 2012

    I had a hysterectomy in my 30s and ate a soy diet for a year to ward off menopausal symptoms.  Because fo hot flashes I knew when my body was low.  I ate tofu 2x weekly and ate some of the following daily:  soy nuts, flax seed, soy milk, soy butter.  And if I let up for a couple days, HOT FLASH.  So I know for a fact that soy does mimic our natural estrogen in the body.  But the amounts that are hidden in foods did not cause symptoms "i could detect"..

  • truebff
    truebff Member Posts: 642
    edited March 2012

    If anyone knows, please list the soy ingredients to be watchful of - and avoid- in ingredients!

    Thanks!

  • shelclaire
    shelclaire Member Posts: 55
    edited March 2012

    Hi girls, interesting thread. I have been getting fat and am on tamox wanting to switch to aromisin since it's been 2 years and her2 does not work as well with tamox. So we did blood work to see my estrogen level, No periods for 2.5 years and getting fat figured all gone. Well they are through the roof higher than the start. No my doc is wondering what I am eating, supplements and what I am doing to make it so high. She asked a lot about soy. Crap I eat chinese weekly, unsweet tea ten times a day and grocery food. What can I eat and do and has anyone else had sky high levels>

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Truebff, I found the following, be especially careful about soy in supplements, i.e. DIM, omega 3, and many others

    "Soybeans may be ingested as whole beans, as flour, or as oil. In addition, soy can be used in the manufacture of food in a great variety of ways, including as a "texturizer," emulsifier, and protein filler. Soy may thus be listed on the ingredient panel according to its use (e.g., "hydrolyzed protein" or "lecithin"39) (Table V).

    Soybean flour is often added to cereal flour and is used extensively in the baking industry. The majority of breads contain some soy flour. Pastries, cakes, biscuits, and baby foods may contain soy flour. It is also used in the manufacture of sausages, processed meats, hamburgers, and other meat products" (Table VI). Fermented soybean may be used in the preparation of soy sauce or Worcestershire sauce. Fermented soy is in wide use as a food in the Far East.

    Soy is so widely distributed in processed foods that avoidance of soy in the diet is very difficult. Soy may find its way into a food product when added as a "compound" ingredient. For example, if margarine is added to a food product it will be listed as such, but soy present in the margarine itself will not be listed on the ingredients panel.

    Soy protein isolate or concentrate may be used to emulsify fat in food products and may thus be used in the manufacture of ice cream, mayonnaise, and a variety of other liquid fat- or oil-containing foods. The concentrate or isolate may also be used in soy milk and as a protein concentrate added to health foods and high-protein biscuits. Other foods that may contain soy include pureed and cereal baby foods, margarine, and white and brown bread (Table VI).

    Other uses for soy include the manufacture of tofu (soybean curd), which may in turn be used for the manufacture of soy-based ice cream. Soy may be converted into products having a meat-like texture. This "textured vegetable protein" is used in simulated meat products or may be added to meat as an extender. These products are often used as meat substitutes in vegetarian products and in catering establishments, including hospital and army food services, and feeding programs.

    The seeds of soybeans are widely used as a source of oil. The oil has many uses (e.g., in salad dressings, margarine, baby foods, industrial components, linoleum, paint, plastics, soap, and glue for plywood) (Table VII). Although soybean oil was initially thought to be safe for soy-sensitive individuals, it is now evident that soy protein may occur in soybean oil. Thus the allergenicity of soybean oil would depend on its purity, which in turn depends on the extraction process. Recent evidence has demonstrated that although oxidized soybean oil may not show allergenicity, proteins in soybeans are capable of interacting with oxidized lipid to form products that are allergenic to soybean-sensitive patients. Indeed, Hiyama et al. report a case of urticaria associated with paren-teral nutrition with an intravenous 10% lipid emulsion containing a soybean oil base. Such reactions, however, appear to be uncommon, and there are very few reports of this nature in the literature.

    Soy products are often purchased by those specifically avoiding cow's milk, often with the assumption that a soy-based product is free of cow's milk protein. This may not always he true, and caution is required. Again, labels should be read carefully, and they should, of course, contain the correct declaration.

    Thickeners, stabilizers, emulsifiers, and bulking agents may be manufactured from a variety of other members of the legume family in addition to soybeans. On the basis of in vitro studies, Barnett et al. suggested that there may be cross-reactions between soy and other members of the legume family (Table VIII). Further evidence for broad cross-reactivity has been provided by RAST and skin prick tests: however, it is rare to have symptomatic reactivity to more than one member, and clinical hypersensitivity to one legume does not require elimination of the entire legume family. Carob, derived from the carob bean. is used commonly as a chocolate substitute, and one should possibly guard against cross-reactivity to this legume. Peanut sensitivity is discussed below.

    Labels that may indicate the presence of soy protein

    Gum arabic
    Bulking agent
    Carob
    Emulsifier
    Guar gum
    Hydrolyzed vegetable protein (HVP)
    Lecithin*
    Miso
    MSG (Monosodium glutamate) !
    Protein
    Protein extender
    Soy Flour
    Soy nuts
    Soy panthenol Soy protein
    Soy protein isolate or concentrate
    Soy sauce
    Soybean
    Soybean oil
    Stabilizer
    Starch
    Textured vegetable protein (TVP)
    Thickener
    Tofu
    Vegetable broth
    Vegetable gum
    Vegetable starch
    References 39,90,92
    * Mostly produced from soy but may be manufactured from egg.
    ! Sometimes produced from soy or wheat but now mostly by synthetic means.39

    Foods that may contain soy protein

    Baby foods
    Bakery goods*
    Black pudding
    Bread (esp. high-protein bread)*
    Breakfast cereals (some)
    Burger patties
    Butter substitutes
    Cakes
    Candy
    Canned meat or fish in sauces*
    Canned or packaged soups*
    Canned tuna
    Cheese (artificial) made from soybeans*
    Chinese food
    Chocolates (cream centers)
    Cookies
    Cooking oils
    Crackers
    Desserts
    Gravy (sauce) powders
    Hamburger patties
    Hot dogs
    Hydrolyzed vegetable protein (may be wheat)
    Ice cream
    Infant formula (including cow's milk formula)
    Liquid meal replacers
    Margarine
    Meat products (e.g., sausages, pastes. Vienna sausages [wieners])
    Muesli
    Pies (meat or other)*
    Powdered meal replacers
    Salad dressings
    Sauces (e.g.. Worcestershire, sweet and sour, HP.,Teriyaki)
    Seasoned salt
    Shortenings
    Snack bars
    Soups
    Soy pasta products
    Soy sauce
    Soy sprouts (Chinese restaurants)
    Soybeans
    Stews (commercial)
    Stock cubes (bouillon cubes)
    Tofu
    Tofutti
    TV dinners
    * May be present because of soya in the flour used.

    Other sources of contact with soy

    Adhesives
    Blankets
    Body lotions and creams
    Dog food
    Enamel paints
    Fabric finishes
    Fabrics
    Fertilizers
    Flooring materials
    Lubricants
    Nitroglycerine
    Paper
    Printing inks
    Soaps

    http://allergyadvisor.com/hidden2.htm 

  • truebff
    truebff Member Posts: 642
    edited March 2012

    Thanks for the helpful article.

    Do Ineed to stay away from soybean oil too? I found it in a lot of my products..

    I read the fermented soy (soy sauce for example) is fine. It's unfermented soy that is not - does that mean everything else including the oil?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012
    Truebff, I would think so, at least you can try  - I know it's in everything - paper ? who would have thunk Yell
  • truebff
    truebff Member Posts: 642
    edited March 2012

    It's so unfair that our food is so polluted with additives. And how they sneak up on us.

  • Chris13
    Chris13 Member Posts: 254
    edited April 2012

    How much soy is really in supplements? I see soy is listed on my fish oil capsules. One capsule a day--how much soy would I be consuming? I'm taking Arimidex to eliminate estrogen--what a hassle to keep ourselves in balance!

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited April 2012

    Hi there.

    The soy warning is for soy "foods" only.  Like tofu, edame, paste, etc.  I would not take any supplement that had it in a large or significant amount.

    Mind you, the soy warning is only for those of us who are ER+.  Soy is an estrogenic food.

    Soy sauce is fine.

    hope this helps!

  • CancerStinks
    CancerStinks Member Posts: 84
    edited April 2012

    Hi Allie,  could you let me know what book you referred to in the posting:  Soy?  I have a book written by a male doctor that contains alot of info re: Soy as an estrogen blocker, but looks like your is written by a woman.  Many thanks.

  • CancerStinks
    CancerStinks Member Posts: 84
    edited April 2012

    Hi Thatgirl:  there is another thread on the Alt Med forum called "Soy as an estrogen blocker":  there are some post there that might answer some of your questions about research that is showing soy and ground flax seed as an estrogen blocker.  Research is still in progress but the biggest study I have found (and I just started looking at this yesterday so I'm really new to this concept too as I'm trying to find something natural that does what Tamoxifen does.) is from Canada where a doc had patients injest 25 grams of ground flax daily in muffin form before surgery to shrink tumors.  (I don't reme3mber how long they ate the muffins)

    Hope this helps even though I know it "muddies" the issue.  But that is what reasearch does: it takes a while to get to enough evidence that something does or does not work, and this is evidently a new area of research.  That said;  right now I am avoiding soy and phytoestrogens even though my MO said it was ok in the amounts I get it.   

  • Hortense
    Hortense Member Posts: 982
    edited May 2012

    My doctor assures me that soy is ok to eat and gave me a printout with information about it that basically said most studies find soy safe. I'm still not so sure so plan to avoid it; however, it does seem to be in everything. It's in almost all my canned soups and every loaf of bread I checked, plus every protein bar, so they are out too. Eating for my health is becoming a full tiome job.

  • karen1956
    karen1956 Member Posts: 6,503
    edited May 2012

    My onc says soy in moderation is okay for me...I love tofu and we eat it a few times a month....also like edamane but I go through spurts when I eat it and then not for a long time....I don't read labels closely either, so I'm sure there is soy in some other things I eat, but for the most part I don't eat many prepared foods....

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