contrast with CAT?

Options
Annabella58
Annabella58 Member Posts: 2,466

Hi all;

waiting on onc visit next week.  I am pretty nervous as it is an unusual 3 month follow up.  I have posted on here re: why the 3 months check...he called me last week.  Refused to call him back, as he terrifies me, frankly.  Always, always an unpleasant surprise out of left field when I see him.  This is just his working style...if he's got the file in front of him, then he tends to deal with everything then.  As I have posted on here before, I am hopeful that he just wants me to get some stuff out of the way pre appt., such as mammo, dexa, etc. and NOT a new CAT scan.

Have cysts in both lungs and liver that have been r uled benign.  Followed since 2007.  Latest cat was without contrast in March 2011, still ruled benign.  Now had my MRI in November 2011, still benign....no change.  (they used contrast).  The 3 month follow up would be three months since this last MRI which found the same liver cysts and lung cysts with again, no change and the report ruled "benign"

So am freaking out.....the only thing I've never had done is a cat with contrast (altho I did have the MRI with contrast)....I've got myself into a state since a friend who works in the radiology thinks that I should have a cat with contrast, now.  To my way of thinking I'd have had that already if my onc, who tho terrifying and overly test loving, certainly would have ordered that one if he felt it was needed.  I mean, my friend means well, but she's not a dr....

It's been since 2007 with no changes.  Anyone feel like chiming in with some good common sense so that I can get thru the weekend intact, here?  I admit I've gotten myself into a state.

Thanks, all. 

Comments

  • momof3boys
    momof3boys Member Posts: 896
    edited March 2012

    I feel really bad for you and your anxiety. Are you taking anything for it? Is it your anxiety or is it your MO's bedside manner that have put you in this state?

    My MO bends over backwards to be reassuring and calming. She's a Mom with three kids under 6, and her mother is a 16 year BC survivor, so she really 'gets it' and is very compassionate, yet professional. I never leave her office feeling anxious.

    My first RO, on the othe hand, was just the opposite. First time I left his office, I took 2 Ativan. When I told my MO this, she referred me to a different MO with a different personality, more like hers, very professional, matter of fact, prepared, and kind.

    Maybe you need a change in MO's?

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited March 2012

    Dear Mof3,

    Thanks for chiming in.  It's actually the unusuallness of the 3 month follow up (I'm on a 6 month schedule, and as we all know, the rule for checking to see if something is cancer, is 3 months)

    Coupled with his style.  Two unusual things.  One, for him to call pre apt.  I've been with him for five years now and he doesn't do that.  Two: the three month timing.  And I guess, yes, his style.  I do have to take something to even see him.  He's renowned, very, very kind man, but his caffeinated style and over test loving attitude (he'll test for everything...a steroid reaction made him put me into the hospital for a heart attack.  Drinking a gallon of water pre chemo as the nurses advised and diluted my urine a great deal had me put into the hospital for my kidneys...both times everything AOK.  Clearly, the guys' an overreactor.)

    I am trying to get a prophylactic mtxmy scheduled and he said that was what this appt. was for at the last one when I asked why 3 months?  But due to all the anxiety head, cannot get that to make sense to me just now.

    Now,  when I read what I had just written, I can see that 1. My friend is just that.  Because her mom had not had something found without cat scan contrast, this does not make her a dr.  She is surmising that I may have to do this.  (Cat scan w contrast). 

    Good ness, I do get anxious over these 6 months quite enough without his curveballs.  And yes, you are completely correct.  I may truly consider switching oncs.

  • momof3boys
    momof3boys Member Posts: 896
    edited March 2012

    That "caffeinated style" was the reason I had to switch RO's.... On my first appt with him, he was up and down out of his seat at least three times, pacing the room, looking for paper to draw something for me, getting aggravated because the nurse interrupted him a few times and he left the room twice. I told my MO it was like trying to get my 9 year old to sit down and do his homework. Add: he obviously didn't look at my file before he sat down, never spoke to my surgeon or MO. Said "I will be doing that" what? I waited 3 weeks for an appt....

    Then, after this whole mess that left me in tears, I got a stiffed report from him in the mail, on a Friday at 6 pm, right before New Years, that stated that a SNB was not done at the time of surgery, but there was evidence of a positive node! Thank God my MO gave me her cell phone number!

    I did have a SNB with clean nodes!!!! I was definitely having a paranoia moment. I think if I had to wait to speak to her after New Years I would have jumped off a bridge at that point.

    She was really angry with his antics, and mistakes.

    The good thing about your Dr is that he's very proactive. I see a lot of women on here that complain that their MO's are too lax with follow up and it makes them nervous, they are also refused scans, etc.

    Maybe have a heart to heart with him.... I know when I get a call from my MO I panic... But, I always ask the person: "ok, exactly what will we be doing at this appt?" then I'm prepared..

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited March 2012

    thank you, but oh no, no heart to heart with him...I'm liable to end up traumatized, hiding in the closet and eating my own hair, having given him brand new ideas to go on....

    The idea about asking "what exactly is this appt. about" is a good one and one I will take forward.

    If he wanted a cat anyway, it would be completely refused by my insurance on the grounds that I just had an MRI that I had to fight for 4 months to get approved.  Finally got it, had contrast, it was fine.  They aren't about to ante up for a cat scan 3 months later.  that would take an act of god to get by them and I certainly can't pay for it.  They think I am AOK with a mammo yearly.  the other breast is a recon and of course, does not get mammos anymore.  Mammoth insurance fight, tho.  We won, but I live in fear of being dropped.  My rates went thru the roof.

    That SNB tale is utterly horrible.  How dare he do that to you!  And on NYE when you can't reach anyone is cruel.  I'm glad you do not use him anymore!

    How old are your 3 little guys?  Mine one and only is all grown up (daughter) and she's our pride and joy.  You must have one happening household.

    I will do whatever is suggested, if it makes sense.  If it's a cat scan just for the sake of "being sure" then, no.  It would not get thru insurance anyway.  But I do have a resonsibility to my husband and daughter to stick around.

    I am that close to my daughter as well.  It's wonderful, but so painful when they fly.  Hopefully, he won't fly far and these days there are so many ways to keep in to uch.  My daughter texts me all day long. 

    Keep well and thanks!

  • momof3boys
    momof3boys Member Posts: 896
    edited March 2012

    My boys are 7, 10, and 16. They're great boys... Even though the last few months since my diagnosis has been hectic, they somehow make things bearable and truly make me laugh every day. I don't think I could have made it thru so far without them to keep my mind sane!

    I know how you feel about "flying", our oldest races a car (a real race car on an asphalt track). He's been racing since he was 13 and it makes me a nervous wreck!

    Don't you hate insurance companies? Our family doctor (we loved him) retired a few years ago at 58. When we asked him why so early he replied, "I can't take the insurance companies anymore. They dictate how I can take care of my own patients, and the stres of that is killing me"

    It's beautiful here in PA today! 77 degrees! I hope you're enjoying the weather.

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited March 2012

    Oh girls,you simply will not believe....

    Onc did not tell me that it was the canadian drug company where I get my 1/2 $ arimidex calling for a refill.  He told me and I sat there with mouth agape....he said "didn't I mention it was no big deal?"

    NO HE DID NOT.

    OMG.  I was very, very angry..when he asked why I did not call him back, I said "do you even know what a call like that, cryptic "call me back" does to a cancer survivor?"  OMG.

    I was at a loss.  There is no concern over anything.   He, to his grace, did apologize but if he ever does that again, he'll be eviscerated.

  • momof3boys
    momof3boys Member Posts: 896
    edited March 2012

    Omg! Do you think he just does it on purpose? Like a power thing? Only an idiot could do something like that!

Categories