Scared

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Dahlia1966
Dahlia1966 Member Posts: 26
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

It's been 5 months since I finished all my treatments for triple negative breast cancer. I've had it all. Chemo, double mastectomy and radiation. I was feeling great but lately, I've had pain near my shoulder, knee and leg. I'm scared. I am seeing my oncologist and taking blood tests next week but I can't concentrate on anything. Someone please give me some incouraging words. I'm very depressed.

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  • Emdw
    Emdw Member Posts: 2
    edited March 2012

    Dahlia, It's hard not to be scared and to think the worst, but pain can be the result of so many things. There have been examples of this over and over on these message boards. Stay strong. I'll be sending good thoughts your way.

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  • Cyborg
    Cyborg Member Posts: 848
    edited March 2012

    Scared- sounds like you have been through the works as far as tx goes. Could the pain be related to an antihormonal you are taking?

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  • Dahlia1966
    Dahlia1966 Member Posts: 26
    edited March 2012

    Thank you ladies for your posts. I am not on any medicine right now. Because I am triple negative. They told me that I was in remission after all my treatments. I have noone to talk to. My husband is a wonderful man and my sisters have been great throughout this whole nightmarish process. But I don't want to burden them with my fears. They are so happy right now because I'm feeling better and I don't want to take that away from them. I have to say that I have had tremendous support from everyone including my bosses at work but I feel no one can truly feel the way I feel unless they go through what I am going through. Until I speak to my dr's I am going to share my fears with all of you that know how I am feeling. Thanks for listening. And hoping someone responds to help me ease my fears.



    A little bit about myself...

    I am a 45 year old with 2 boys. 16 and 10 years old. I was first diagnosed on January 2, 2011 and feeling blessed to be alive.

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  • Dahlia1966
    Dahlia1966 Member Posts: 26
    edited March 2012

    Somebody please give me some encouraging words. I'm struggling by myself.

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  • pupmom
    pupmom Member Posts: 5,068
    edited March 2012

    Dahlia, I think fear is our new constant companion. I've gone on anti-depressants and they really help. Before bc I had just as many aches and pains, but didn't think twice about them. Now of course we worry, but its really counterproductive. Life does go on. I'm doing some of my favorite activities again, that were put by the aside over the last few months. It feels good to be enjoying myself again and not thinking non-stop about cancer. Just had my last radiation treatment and so am done with active treatment, aside from hormonals, which will go on for years. Just know that we are here for you. God bless.

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  • HantaYo
    HantaYo Member Posts: 280
    edited March 2012

    Namaste!

    Dahlia:   {{{{{{Hugs}}}}}}.  This waiting and not knowing is sooooooooooo hard.  Please, please share your fear with your DH and sisters.  Although it is true they can not understand what you are going through as well as we here can, please allow them the opportunity to support you.  Ask them to help keep you distracted while waiting to find out things.  Go for a walk or take a ride into the country with your children or DH.  Go window shopping with your sisters.  Keep busy.  Set limits on yourself for how much time you spend thinking about this.  The best way to do that is to get busy doing something else.  You are already taking the steps to find out what is causing the pains.  That is as much as you can do right now except to take care of yourself with a balance of rest and activity, healthy eating and a bit of comfort food, and some love from your family.  I will be praying for your.

    Karla

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  • shells43
    shells43 Member Posts: 1,022
    edited March 2012

    Dahlia, do you have an appointment scheduled soon? If not, make one. My onc will see me for anything, even just to talk if I am worried about something, but pain is a real concern. You could also try calling the nurse line and talk with them. I think we all feel the way you are feeling after the end of active treatment, it is a shift in the routine. I know you don't want to stick your head in the sand either, so if your pain continues, definitely go in for an office visit. I had my hip x-rayed a couple of weeks ago for this very reason. It turned out to be nothing, must be muscular from exercising too much (who'da thunk it?)  Big hugs!

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  • spitnspunk
    spitnspunk Member Posts: 138
    edited March 2012

    HI Dahlia, surgery, chemo, radiation - it's all hard and it ALL messes our bodies up, not to mention our chemistry, so we are bound to feel aches and pains, not to mention that we do notice them more.  I know for me, if a pain sticks around for a bit I find myself wondering if it's just a pain or if it's "something". Talk to your onco, they will reassure you or do testing if they think it may be something. I've been having a lot of bone pain so while they said they don't think it's anything, they did do a bone scan this week, to which I haven't heard anything from yet but I figure if it was something they would have called by now so I'm going with the belief that it's nothing and they better not burst this happy bubble with bad news next week, I'll just tell they they were to late with the news and I'm returing it  - LOL - wouldn't that be great, if ALL OF US could simply say RETURN IT on the "you've got cancer" news! Hang in there girl, there is life after, and during, breast cancer!!

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  • Dahlia1966
    Dahlia1966 Member Posts: 26
    edited March 2012

    Thank you ladies for your encouraging words. I feel better emotionally. My onco appointment is on Tuesday and I definitely will mention it to him. I will post after my dr's visit.



    Thank you again ladies for making me feel better. :)

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  • Janie-bug
    Janie-bug Member Posts: 181
    edited March 2012

    Hey Dahlia as the other ladies have said fear is our constant friend now, but that does not mean that just because we fear recurrence it will happen. Know that you have done everything you can to prevent it form coming back. The pain could be from several different things NOT just cancer. Instead of thinking its cancer think of the other things it could be to. Let us know how your appt goes Tuesday so we can all say we told you so...Keeping you in my prayers

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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2012

    Dahlia- I am a TN 15 months out from my last chemo. I have lots of aches and pains. Last Sept. I was having terrible back pain and was convinced it was mets. My onc. ordered a bone scan and it was clean. I have achy knees and sore ribs (never even had radiation). As Spitnspunk said- chemo really messes with our bodies. It is hard on our joints. Just tell your onc about any concerns you have. He/she will order a scan if necessary. I know just how you feel- having no follow up meds. I have that feeling of "okay- you're done, hope you have a nice life". I can't remember if I have seen you on the "Calling All TNS" thread before. If not, please come over and check it out. Lots of great ladies with lots of info and support.

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