Calling all TNs

Irr- I think we are all scared- just normal human emotion. At least we have each other to discuss our fears with.

My good thing for today- My PS office called and asked if I would speak to a woman who was going to be having the same surgery I did- Right MX and left lift. She is very scared and really wanted to talk to someone who had been throught it. I spoke to her, answered her questions and offered my support. The last thing I told her was to check out BCO. She is a TN, but thankfully DCIS only so no chemo. I told her I would not have made it without the knowledge and support of all the wonderful ladies here. It made me feel really good to help alleviate her fears.

MBJ's husband's blog:

http://www.ryandavidjahn.com/apps/blog

I am trying to not let all of this get me down.  I think I have a pretty good support group around me.  One of the surgeons at work came in and gave me a hug yesterday.  (working at a small hospital, you can't keep a secret, HIPPA or not). Plus it will not be much of a secret when all of my hair is gone and I am back in scrub caps again.  

Oh, my MO sent me to an oncology dentist (who knew there was such a speciality).  This guy is wonderful.  I know that I need to have a lot of work done, but his main concern was that the bones were healthy and to get my teeth cleaned and 2 fillings done for now.  everything else could wait.  It was almost pleasant for a dentist appt.  I will see him again next Wednesday before chemo on Thursday.  I am getting Abraxane this time and then a shot called Xgeva it is used to prevent bone breakdown due to the mets.

 Becca 

Oh Inmate, just Rads is the best news I got today.  That is so wonderful.  No chemo?  Yeah! Hooray!!!!!  Rads is a piece of cake, it was for me.  No hair loss!  You GO GIRL!!!!!!!!

I was also diagnosed in 2010 (July).  I think MBJ was diagnosed in 2009.

LJ -the feedback I've gotten thus far seem to indictae the bench being the most popular. As I stated, the museum quoted me $2500 for it. I will contact the museum and see if we can create some kind of escrow account and, if the donated funds allow, have a bench placed in LJ's garden. I'm hoping to perhaps get some support from those who visit the garden (via a donation box, perhaps?) to those who may want to support a BC cause/memorial. If the donations do not amount to $2500 we can always opt for a birdbath, plaque or other suitable item.

I'm going to post this on LJ's facebook page, as well as her daughters. I will let you all know where to donate when it's all arranged. Hope that meets with eveyone's approval. 

Inmate- You are not selfish. Susan was the first one to PM me when during chemo I was scared because my nodes didn't shrink. Or when I got my lung nodule scare last april,or when I was sad on my son's first day of kindergarden, or when I had  good results, or just to talk about our vacations. She always knew what to say and how to say it to make me feel better. I always loved to see the " (1 new)" beside the PMs because I knew it was her and these days I find myself always looking to see that "(1 new)" from her even if I know she will not write to me anymore. I miss her. I miss Laurajane's "good morning all you beautiful ladies" she used to start her posts with. Always put a smile on my face. I miss MBJ's joy and genuine kindness you could feel in her posts. She was full of life, happy.They were all very important to us and it's normal to miss them and remember all the brought to all of us here.

Joinning OBXK in that (((((Group Hug)))))

My heart just breaks  this is awful to lose 3 amazing woman in just days...

On a good note, today I am a 1 year survivor...kinda feel selfish to even think about it.

I hate FC!!!!! 

Unbelievable. I have no words left.

Ksmatthews- great news! Just what we needed. Wishing you many happy returns of the day.



Inmate - No chemo!!!!! Rads were pretty easy for me too - and my center, had great snacks! I also got to ring a bell and got a certificate when I finished. (I'm so not the person who enjoyed that

I am so sad.  To lose all 3 so close together.  I thought I was holding it together until I found out about MBJ also.  LJ was my favorite, MBJ so full of information and she researched everything - she always gave great advice.  I didn't know Suze much but I always sympathized with her having youg children.  I find it the hardest when those left behind have little ones.  I read MBJ's husbands blog - so loving.  Why! 

minxie, so sorry for your additional loss, you have a lot to handle right now.

Titan - Oh No!  I am so sorry to hear about Mary slipping through the medical cracks.  How awful!  I never ever imagined in my wildest dreams that MBJ would get a recurrence.  She was a regular on these boards when I first joined. Remember that time, when she felt that nobody was responding to her?  And then she told me about the iodine therapy?  She was taking all the right supplements.  She PM'd me a website regarding the iodine therapy.  She also talked on the subject of people having low body temperatures.  She was researching and learning and sharing with us. 

ccn4pg - Yes, your words are very consoling, thank you.

Mary and her husband were such a handsome couple.  I am so saddened for her nice husband that she left behind.

OMG..Im so shocked... I havent been on here in so long and the last time I was here I had missed Posts from MBJ.  I just scrolled up and read her husband blog aftzer seeing what all of you had posted... I just couldnt beleive it so I had to read for myself.  Im so sad.... she's the one that welcomed me to this topic in 2010 ( when i was diagnosed ) and has kept me inspired the entire time.. she was was helpful in times when I was very down.  She is at peace now and God has a new Angel on his team.  My thoughts are with her Husband and her family.....

she will will be sadly missed here !!!   rest in peace Mary.... and thank you for being there for me