Calling all ladies in their 20's

MiniMacsMom: My first MO is not a top institute, my second one is..Froedtert Memorial Lutheran Hospital and the Medical College in Milwaukee, Wisconsin. I agree, I think it is annoying that we are just clumped together when being on here it seems like there are so many of us...I know in the whole picture of BC we are small, but still. I have thought of a third opinion, but I am pretty sure they are going to be telling me the same thing. It is a toss up basically.

I had just an MRI before my surgery and showed no other sites from the one we found..no lymph nodes and the SNB confirmed. I asked both MOs about doing a PET scan, but both agreed it isn't the standard and at this point, my BC does not have any other factors warranting them to go and do other scans. I really want to get rid of any random floating cells obviously, but am i willing to go through all the side effects when it is such a low risk...yet a real risk? ugh I just don't know. I hope to God if I do end up doing chemo that my period would also return. One has no idea how badly they want children when they don't have the choice..I hate it. I hate this. I am so exhausted and just want to wake up and be over.

Minimacs: Idk how well Im actually gonna take my hair being gone,I have a feeling that when I go to shave it I will cry A LOT!! I should be done with my chemo May 24th, at least that should be the day I get my last treatment! Then I will get about 3 weeks before I have to start the radiation!! I understand about the research, when they told me what chemo I was gonna be taking I sat there and read the papers then looked up things on the internet, asked my Onco questions and every thing!!

sjensen29: I think you should try to get another opinion from the best!! You should not be walking into this as confused as you are about what plan you should take. Dont be afraid to ask for 2nd opinions until you feel you found the right dr to go with, I knew my Onco was the right 1 just with the way he talked to me and explained things from the get go. Just dont let them pressure you to do anything do what you feel is right for you! You are in my prayers

sjensen: I understand I was the same way I just wanted it to be over and I still have days that I wish it was, but when my doc told me what he wanted to do and that he would recomend his wife to do it if she was in my shoes then I felt 100% ok with his decision. Dont feel bad about asking drs if that is what makes you feel better,right now it is all about you and you do what you feel the best about!! I understand that you like your 1st MO but that dont mean you have to do what he is comfortable with just dont forget that!! ((HUGS)) and prayers to you

hey ladies. I just wanted to second NannaBaby's comment.

Cancer treatment will be over soon.  Once you get started, the time just flies!

I was diagnosed back in August and now I only have 8 more radiation zaps left. Hold on tight and ride this roller coaster. You'll be on the other side before you know it.

Rosaa  I can understand how seeing others with beautiful hair makes you stop and think! I actually got through today with out getting upset about my hair, Im not gonna say that I am getting use to it but I knew it was something I was gonna have to go through and your right its better loosing my hair for just a while then loosing my life! I know that you will beat this also! We always surprise our selves on how strong we can be when we have no choice! I have always been tough and felt as if I can handle anything so for me this is teaching me how to depend on my husband more and not feel like I have to do everything for the kids! I guess our expierence teaches us something about ourselves and those around us!

Praying for you all each and every day!!

KK- also, I heard something great in church today and thought of you immediately. It's so funny b/c I don't really know any of you  personaly but trust me when I say, I think of you all often. We are a true sisterhood...

Anyways, there is a woman that comes to sing at our church sometimes with her band. A few years ago she went through a molar pregnancy that I believe turned into some sort of cancer. I'm not 100% sure..you prob know more about it. But anways..she had chemo and everything. And they announced in church today that she is pregnant! She's about 12 weeks along. I just wanted to send a little encouragment your way.

Melanie Ann: I say your friends should be a little more understanding, your body has been put through it and I can say that this is even harder on your body the pregnancy!! Glad you had a relaxing trip!! I agree with you, you all are my sisters!!

Hi! Another 20 something (27) who's SO glad to have found this thread. I just started reading through, will definitely have to go back and catch up on goings-on but just thought I'd drop a line and say hi! Got diagnosed in Nov, had a lumpectomy and about half way through chemo now to be followed by radiation and tamoxifen too. I also opted to have the ovarian suppressant shots druing my chemo. So hopefully it'll all work out fertility wise as I'm still single and very much want to be able to have kids still when I do find someone.

Rosaa, Yay for finding out all you stats, it will definately make it better to finalize your treatment.  I honestly don't know anything about being Her2 positive, but there is a forums on here for her 2 + people (of all ages).  You will probably get better answers there.  You can also try the Young survivor coallition.  Its a BC forums only for women under 40, and you may find more women there with Her 2+ cancers.  I hope this bump in the actives list gets you more answers. 

On a side note, I get FAC #2 today.  Not looking forward to it, but its only a few days of not feeling good and then a couple weeks of normal.  I also still have the hair I had left after finishing taxol.  Weird, but kinda interesting  

Nikk, welcome, no one wants to be here, but we are a nice group of ladies I hope your fertility also goes well. There are many women here who definately have been in your shoes and can give you some great advice and stories.

Welcome Sarah though wish you didnt have to be here!! I agree with waiting until you know everything before you decide what to do. I am so ready for mine to be over also, I have 4 more rounds of chemo and then radiation and Im just so tired of having to do it all and worry about getting sick. I just got out of the hospital Monday after being in there for 5 days it made me wish it was all over sooner..My prayers go out to every one, and extra prayers for those wanting kids!

Rosaa:  Yay for not needing herceptin   Thats great, so when you are done with TAC, you can actually be done.  Woot!

 Sarah:  thats a super hard decision to make   Let us know how your test goes!  But yay for being done with the other chemo.  I am BRCA 2 positive and I wanted to add cisplatin or carboplatin but my 2 oncs said there wasn't enough research.  From what I have read though the platinum drugs do a great job with BRCA cancers, and supposedly (from one onc) BRCA responds better to chemo than non BRCA cancers... go figure. 

Amanda:  Boo for being in the hospital.  I was in the hospital about a month ago for 3 days and it sucked.  A stupid virus that gave my son 12 hours of vomitting and my hubby one case of diahrea knocked me out.   I hope everything is under control and the warm weather will help kill all the flu germies that are out there so you don't end up in the hospital again. 

I just had FAC #2 on Monday, so 2 more to go at the beginning and end of April!!!  Then on to more surgery and Rads.  They gave me IV Emend on infusion day with this round and i was SOOO much better.  Not nearly as sick as with the first round.  Plus the insurance is supposed to pay for IV emend, the pills are really expensive!  Ask for it if you need it, it made all the difference in the world.  I was even out planting my spring garden this weekend!    Hope everyone is getting the awsome weather we are having!

Amanda:  Boo for not knowing.  They really threw the book at me when I was at the hospital, since I am immune compromised.  I had a hospitalist, infectious disease, and my onc all visiting me   So popular.  The hospitalist said in about 80% of the cases they never know what causes it.  Its just conjecture in my instance that it was a virus...  I also had a rogue fever.  No fever when admited, but it would come and go after and it didn't always respond to tylanol.  Regardless, I hope the antibiotics take care of preventing everythign in the future! Its also prolly hard to keep under chemo quaratine with kiddos in school.  That was one bonus of having such a young baby, less germ exposure.  Good luck at your treatment tomorrow.  They gave me IV emend as a premed on this last round and it was AMAZING.  I felt so much better so much faster.  The insurance apparently pays for it via IV, but not pills.  I didn't get any of that terrible day 3 stuff I had last time.  I didn't feel great, but it was much more managable.    Hugs!

MiniMacsMom - Thanks! My appointment is tomorrow morning. I am trying to expect the worst but hope for the best. I keep assuming it will come back high risk cause I have been "difficult" in every other aspect of all of this. I was very very happy to have taken the cisplatin. My doctor does a ton of research and is the head of a company that does all the testings on stuff (Caris) so he wanted me to try it. It worked well enough to lower my tumor from 2.2 to 1.5. I had a good response from it, just not as good as if I did Adreomyocin (sp?). Hoping to avoid it again but if I have to, I have to...

Nannababy: I take the neulasta shot and my onco said it wasnt that my WBC dropped it was the fever to why the put me in the hospital, so now I have to take an antibiotic for 10 days to try and prevent it from happening again. My thoughts and prayers are with you with your PS I know its alot to take in!!

Sarahmfallo: You are in my prayers today ((HUGS)) I pray that you do well with your treatment and have no problems at least none to bad!!

Thanks everyone for your well wishes.  I got the mammaprint test back yesterday and it came back high risk   I will have to do 9 weeks of weekly chemo and on the bright side after that, I will be done! I start up again next Thursday.  Ill be doing Cytoxin and something else I cant remember.  I am just barely over what is considered negative for her2 but not positive either.  My doctor doesnt want to give me herceptin because it doesnt cross the brain membrane barrier just in case any cell ever got to there.  Ill be taking a pill form of something else that I also cant remember the name of, it starts with an L.  Insurance doesnt usually cover it unless herceptin didnt work so hopefully they do or Ill have to just pay out of my own pocket to use it.  He said I can probably negotiate how long I have to take it, he originally said a year but possibly as low as 2 months. I just want to be off this chemo so I can try and get pregnant.

The good news is I only have to do 9 weeks and by doing it I will lower my chances of a reoccurence from 22% to 10%.  And after this Ill be done.  My doctor is hoping that by doing the chemo weekly instead of once every three weeks it will lessen my chances greatly of losing my hair.  Well just have to wait and see I guess. The chemo will have similar side effects to the cisplatin which wasnt too bad at all for me. The main thing it just made me tired and not much of an appetite. But I didnt have naseua or anything like that.