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  • PSK07
    PSK07 Member Posts: 781
    edited February 2008

    Sharona -

    Yep - husband, 2 kids (teen girls, no less), full time & then some stress-filled job, 2 pugs (almost as much stress as job + kids) normal mammos, then wham. After a planned vacation, I had the 'partial mastectomy' (no lump) about 8 weeks after dx. I took a week off work for that. Rads started about 6 or so weeks later, and I finished up right at the end of the year.  I worked the first couple of weeks, then took medical leave for 5 weeks. A few things - results aren't typical. I am horrible about work - too much of it & too much loyalty. I decided that I had the leave, I was physically and emotionally exhausted - the rad fatigue is not feeling sleepy, it is something else - and it was time to take care of myself. Best thing I could have done. The family did ok - although it was still somehow incumbent on me to 'do' Christmas, and it was tough convincing them that I wasn't cooking or cleaning for the duration. 

    The DCIS process can be nerve-wracking, but the thing about it is that you will come out the other side just fine.  It took some doing for the rad onc to convince me that I'd be ok, but he did & I am. It would have been much different if there'd been stuff in more than one spot or if I'd had mastectomy and reconstruction. I met several times with a counselor at the cancer center & it helped a lot.

    Big hugs...you have a lot on your plate.  Take care and take time.

  • ottawagirl
    ottawagirl Member Posts: 27
    edited February 2008

    Hi Bessie,

    It's great to hear from someone from Toronto.  I lived there (Pickering actually) for 10 years.  I've only been back in Ottawa for 2 years now. Intertersting, implant in the "good breast".   I think that would be the ultimate in irony, since I just had a breast reduction!

    I'm seeing a plastic surgeon next week for a reconstruction consult.

    My oncologist spent quite a bit of time talking to me about the different approaches to BC depending on the country.  He said in the US they treat DCIS more aggesivley (more mastectomies) there than we do here. In Canada they tend to do more breast conserving surgery.  It was an intertesting conversation - all part of the learning curve.

    My DCIS grade is 2/3. My margins were clear, but they were not in there looking for cancer.  They stumbled on it by accident.  My DCIS was solid and cribiform(?).  It was only in the left breast, but could still be in the right breast, just not in the area they removed.  That's why I have to wait to heal more before any imaging can be done.

    I feel more calm reading the posts here that re-confirm I have time to think and make the right choice.

    I still miss Toronto and love going back to visit!!

    Michelle

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2008

    Michelle, since you just had a breast reduction, if it turns out that your best surgical option is a mastectomy but you have only a single mastectomy, you probably won't need to have anything done to your 'good' breast.   Implant reconstruction tends to result in breasts that are firm and high on the chest - sort of like 20 year old boobs but without the natural movement (or natural nipples).  For those of us who have a single mastectomy, an older natural breast (I was 49 when diagnosed) doesn't match that well to a new perky breast.  For smaller breasted women, a good option is to add an implant.  This perks up the natural breast by adding fullness at the top and creates better symmetry with the reconstructed breast.  For larger breasted women, the option is usually a reduction and a lift.   And for those of average size, sometimes it's just a lift.  In your case, since you've already had the reduction, and I assume, a lift, you can probably get great symmetry if you have a single mastectomy without any further changes to your healthy breast.

    But.... if the imaging show no further signs of cancer, then since you already have good margins, you may not need any additional surgery at all.  I understand your immediate urge to have a bilateral - it's a natural reaction when you've first been diagnosed - but with a 1cm Grade 2 DCIS with good margins, your recurrence risk with no further surgery may be quite low and given time, you may decide that no more surgery is a better option than a bilateral.  Waiting this extra time isn't easy, but it will help you get a clear head so that you can decide which option is best for you for the long-term.

    Do you know what tests your doctor plans?  Will you be having an MRI?  It used to be thought that MRIs weren't good at detecting DCIS because they don't 'see' calcifications, but recent studies have shown that MRIs are significantly better than mammograms at showing DCIS.  So if your doctor doesn't have an MRI planned, you may want to ask about having one. 

  • sharona
    sharona Member Posts: 33
    edited February 2008

    I  appreciate these facts and stats, it will help me with the upcoming discussions with my doctors.  I am already grasping the concept, lowering my risk of recurrence is the goal.  It sounds like an easy concept but when you keep hearing, non invasive, 100% survival, the rads and tamox seem so drastic.  I have always been very healthy, I just hate to start down this path. On paper, the mastectomy sounds better for long term peace of mind, but a very emotional  decision with this diagnosis.  

    Thanks for the input, I will stay in touch as this board has been very eduational.

    Sharona

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  • Beesie
    Beesie Member Posts: 12,240
    edited March 2012

    Quoxdautt, since you've come back here after your initial 2 spam posts, I'm guessing you might be back again.  So I will address you.  You are a useless, inconsiderate spammer.  Spamming on a breast cancer support site is about as low as a spammer can go, don't you think?  So how about you leave and take your spam to a website where people aren't dealing with cancer diagnoses? 

    Folks, push the "Report this Post" button let's get these posts deleted.  

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