November 2011 Rads

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  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    Yes, my surgeon is sending the tisse for oncotype scoring.

  • kdajay
    kdajay Member Posts: 90
    edited March 2012

    rn4babies - There are not words to say how sorry I am that you have to go through this again! I, like you, do not know if I could do the BMX. It is a personal decision and we will be here to support you no matter what.

    No one told me that rads meant that reconstruction would never be an option...grrrr.

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited March 2012

    rn4babies, Sending hugs to you and letting you know that you are in my prayers.

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012
    kdajay - No one told me either that reconstruction wouldn't be an option after rads. I figure I've already had the first one damaged with rads so I'll take my chances on this one, too. If it comes back again, I won't have a choice. At least I still have choices......
  • moonbeam12979
    moonbeam12979 Member Posts: 3
    edited March 2012

    If your plastic surgeon told you that reconstruction is not an option after radiation - see another doctor!  I've been told by my rad oncologist that some plastic surgeons will NOT do it after radiation but you can!  The plastic surgeon I saw before my surgery told me he would not do immediate reconstruction due to the good chance I would need radiation but would do it after.  I finished radiation in November and they suggest I wait a year before I do reconstruction but it still an option~!  I had a double mast and 33 radiation treatments.

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    My surgeon did not tell me that. He is a general surgeon that specializes in breast surgery. I'd have to go somewhere else if I had BMX. He never indicated to me that I couldn't have recon after rads and I've already had rads on the right breast.

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited March 2012

    rn4babies--I am sorry to hear of your situation.  I, too, was found out today that my mammogram on my cancer side(left) was found to have something that needs a biopsy.  The radiologist came in and told me it is in the same spot as where my original tumor was.  He said it could be from rads, or another cancer in the duct.  He showed me the films.  Needle biopsy next.  I am in TOTAL SHOCK.

  • kdajay
    kdajay Member Posts: 90
    edited March 2012

    RealtorJackie - I hope your biopsy turns out to be nothing more than scar tissue or radiation fibrosis or something like that. Keep us posted on what the results are and ((((((HUG))))) that is for you.

  • tvacrat
    tvacrat Member Posts: 60
    edited March 2012

    RealtorJackie - I am so sorry that you have to worry and wonder all over again. When will they do the biopsy? After all the treatment, one would hope that whatever they're seeing is a side effect and not something new. Please keep us posted. I'm starting to dread the new posts!

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2012

    RealtorJackie, Keep us posted. When is your biopsy? You would think that with surgery, and rads that it would be scarring or fibrosis. Here's hoping that is all it is.

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited March 2012

    My biopsy is 3/16.  I am currently on Coumadin, and they need some days for my blood to thicken.

  • MrsMot
    MrsMot Member Posts: 90
    edited March 2012
    I am wishing the best for you RealtorJackie!  Sending big hugs.Smile
  • Joan811
    Joan811 Member Posts: 2,672
    edited March 2012

    rn4babies, I support whatever you decide; I would probably go the lumpectomy route again if it were the other side....unless there were nodes...well....lots of ifs...

    anyway, my BS assured me Friday that there ARE PS options after radiation.  You will find the right path.  I do not take this time of recovery for granted....I know that these are the good months after dx, surgery and rads; and I know that it can change for me.
    Jackie, I am shocked as well....and so sad you have to face this once again.  It is just so hard.
    I hope that it turns out to be minor or a false positive.
    It never fails to amaze me what we go through before, during and after surgery...
    Hugs and prayers for all...
    Joan

  • Natters
    Natters Member Posts: 361
    edited March 2012

    rn4babies, I'm sorry I have been MIA. I was out of the country for work and then had some trouble traveling home (delayed flight leaving to an overnight hotel in layover city, then bag delivered 2 days later). Anyway, I am in shock reading your dx, so I cannot even imagine how you feel. I will be on edge until my own mammo this June because, except for your family history, we are so similar. We even finished rads on the same exact day. Wow. I can't believe it. I was really hoping to log on and see that everything was benign and that you were sleeping easy again.

    I am so, so sorry you are going through this. Not just again but worse. As you said, it sounds like you still have options and being able to make choices is always good. I hope your oncotype comes back favorable so that you can go ahead with the lumpectomy and this time you know what to expect with rads. I hope they can cut you some slack at work, too! Jeez....

    For the record, my BS and RO never said anything about rads and recon. Rads was never presented as any kind of option for me, but something everyone expected me to get 100%. But I know this woman who had rads with my RO and then recon after a recurrence, and apparently her PS was able to work with that radiated skin. She told me this by way of encouraging me to stick with the RO, despite our personality differences. Although now I'm starting to think that our skin's reaction to rads is mostly individual and there's not much we or any DR can do to prevent the damage if that's the way our skin is going to react?

    Anyway, rn4babies - thinking of you and hoping you get all the information you need before your next surgery. I'm assuming you also got an MRI? I hope there was no nodal involvement. Fingers crossed the oncotype and hormone status come back in your favor!

    Nat 

  • Natters
    Natters Member Posts: 361
    edited March 2012
    Jackie, please update us - really, really hoping your biopsy just shows scarring from surgery and rads, as the other ladies have suggested. It must be hard to tell on the mammo films and once we've had this dx once, they are going to be super careful and investigate every possibility very closely from now on...
  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    Natters - It was reallly good hearing from you again. Nothing much has changed at this point. My MRI is scheduled for Thursday and the radiologist wants me to come to her office afterward to talk to her. She wants to look at my prior films to see if maybe something was missed on my last mammo. My surgeon said it's amazing that she even saw the second area on the the mammo. I see the surgeon before my surgery on March 23rd, unless the MRI changes my plans.

      My dear grandmother who is am very close to is very sick and is not expected to live much longer. I'm so upset by this, too. I'm overwelmed right now with everything. Not so DH is being a jerk and I'm ready to kick him to the curb.

    And life goes on...........

  • Natters
    Natters Member Posts: 361
    edited March 2012

    I do not miss my ex and her lack of support and acting like a jerk at all. it's hard to deal with everything at once, though. 

    Sounds like your radiologist has an eagle eye and that is good - hopefully she will spot anything there is to see and you will have the best information to tackle this thing once and for all. Get something to take for the MRI if you are at all claustrophobic - next time I have one, I want an Ativan on board! 

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited March 2012

         Biopsy done.  It was pretty much a breeze compared to the excisional one I had the first time.  This was sterotactic.  A little sore tonight.  I won't have results until next week.  Keep thinking happy thoughts for me.

                                                   

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    Prayers and happy thoughts to you.  Hoping for benign results!!

  • Joan811
    Joan811 Member Posts: 2,672
    edited March 2012
    (((((Jackie)))))  Hugs for you and thanks for starting this thread.  Hoping for the best possible report.
    Joan
  • kdajay
    kdajay Member Posts: 90
    edited March 2012

    May your biopsy show nothing abnormal. Thinking good thoughts for you.

  • Natters
    Natters Member Posts: 361
    edited March 2012

    Jackie, I am praying that they phone you tomorrow to put your mind at ease over the weekend. But glad that it isn't too sore and hope you have some fun St Paddy's Day activities with your family and friends to distract you in the meantime.

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited March 2012

    Thank you for all your concern and prayers.  They called this afternoon, and the biopsy was NEGATIVE!!  It was fat necrosis from the previous surgery and rads.  Slept 2 hours this afternoon.  Feeling great!

  • kdajay
    kdajay Member Posts: 90
    edited March 2012

    GREAT news! Wooooooo Hooooooo! Celebration all around.

  • tvacrat
    tvacrat Member Posts: 60
    edited March 2012

    RealtorJackie - what a relief!!! So glad the news was good and that you didn't have to wait too long to get it. Enjoy the weekend.

  • Natters
    Natters Member Posts: 361
    edited March 2012

    now that's what I call a great way to start the weekend, Jackie! Happy St Paddy's to you!!

    rn4babies - how was your MRI? did you get any more info from the radiologist? I hope your grandma is feeling a little better and that you get the time to breathe and process all of this over the weekend. Or are you working?

    Nat 

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    Natters -  My MRI was good. She said she didn't see any new tumors. That was such a relief! Now I'm hoping for clear nodes.......... My grandmother is not good at all. I've been working every day and going to see her immediately after work. At least it's a diversion. She came home from the hospital yesterday and is being seen by hospice. She's declining every day. If she passes away at the end of the week I'll have to cancel my surgery and I know it can't be rescheduled for at least 3 weeks. Yes, I do work all weekend. I work every day until Thursday. I'm trying to work as much as I can until the day of my surgery.

    Thanks for thinking of me....I'll keep you updated!

  • kdajay
    kdajay Member Posts: 90
    edited March 2012

    Rn4babies-glad you MRI was good. I hope your grandmother is not suffering terribly. Keeping you and your family in my thoughts and prayers.

  • fightn4fam
    fightn4fam Member Posts: 48
    edited March 2012

    RealtorJackie and Rn4babies, I'm so glad your MRI's were good.  I'm hoping for the same.  I was told the same thing this past Thursday.  My Onc told me they see something on the MRI, same spot where I had lumpectomy.  They aren't sure if it's Fatty Necrosis or if the cancer has returned.  I have to under go an US and possibly a biopsy... ugh... feel like I'm riding the Roller Coaster from HELL!!  Praying for fatty necrosis and not the latter :(

     Welp... lovely ladies, I'm out of here... have to work tonight.. yuck.  Might just end up taking a sick day, we'll see.  Love you all ♥

  • Natters
    Natters Member Posts: 361
    edited March 2012

    rn4babies - thank God the MRI didn't turn up any more surprises. That is just the last thing you need right now. So that is great news. Now I'm hoping your grandmother hangs in there and that you can have your surgery on time. Also hoping this new stuff is all ER/PR+ and low oncotype and no nodal involvement. Are they making you have a SNB or just the lump on Thur? Are you still taking your Tamox? I've been on it since Sept with some SEs, but nothing I can't tolerate so far. It sounds like you are a good candidate for lump + rads again on this new side. Maybe your skin will react completely differently this time?

    fightn4fam - that stinks about your MRI! Do you have your US/biopsy scheduled?

    All of these stories make me feel like I'll be getting biopsies the rest of my life (well, as long as I keep me breasts) if they can't tell the difference between radiation fibrosis, fatty necrosis and tumors... 

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