How to deal with mom's recurrence

Options
LisaThompson
LisaThompson Member Posts: 26

I am so deeply depressed right now that I don't know what to do.  My heart is broken.  I'm very sad over my mom's recurrence that I just can't stop crying.  My mom was diagnosed with having breast cancer again last week.  It is in the same breast again.  She was initally diagnosed with having stage 0 breast cancer in 2010, and now doctors are saying that the cancer has returned and that she is in a higher stage this time.  We She has DCIS tumor mixed in with IDC and the tumor is poorly differentiated and grade 3.  She is also triple negative this time which just really kills me inside.  I was diagnosed with having triple negative breast cancer in 2007 so I know who bad this cancer can be.  The doctors told my mom and I today that the cancer is the size of half of her thumb. 

What really depresses me is the fact that the cancer is IDC and that she is triple Negative.  I am afraid of losing my mom.  She is the only person that I have. If something happens to my mom, I don't want to live anymore. I can't go on with my life without her. I don't have anyone to talk to about this, so I come here.  I just need someone to talk to.  I could really use a hug right now.  I'm trying to be strong for my mom, but it's difficult. Doctors perform surgery next week.  They won't know what stage my mom is in they have said until after surgery.   I'm afraid that cancer may have gotten into her lymph nodes. Doctor said that if my mom had of taken radiation the first time, cancer wouldn't have returned. My mom didn't take radiation during her first diagnosis because she said that it doesn't work because there are lots of women who take radiation and the cancer still returns so she finds it to be useless.  Do you think my mom will be fine?

Comments

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited March 2012

    Lisa~ Im so very sorry to hear about your moms recurrance, you both have been through so much, it reminds me of me and my daughter first she was dx with bc about 4 years ago she is triple neg , stage/grade 3c and doing very good now with no problems at all, i was dx almost 3 years ago although not trip neg im doing good too. Im telling you this because my daughter is tripneg and wanted you to know that your mom can be ok too. there is a trip neg thread here, you can go to the search engine at the upper right hand cornor type in triple negative and it will take you to a lot of threads if it makes you feel better to talk to these ladies with the same dx (diagnosis) I know you are so scared, i cant promise whats in store for your mom but there are very good meds and new meds coming out all the time, your mom could respond to them and do fine. She is lucky to have you as a daughter and gone through the same thing you will be a great support for her. I wish you and your mom the best. Im sure others will come along and give you more advice. Please let us know how she is doing and we are all here for you if you have more questions. Sending lots of love and hugs and saying prayers for you both.

    Gentle hugs

    Debbie

  • suebak
    suebak Member Posts: 199
    edited March 2012

    Lisa-I know how scared you are right now, but try to think positive.  My mother was diagnosed with bc when I was just 18 years old, then again 6 years ago.  I was diagnosed last March.  We are both still here and doing great. I understand how frightening it is when Mom is diagnosed with a life threatening desease.  I love my mother so much and could not imagine life without her. Now I am dealing with my 3 girls, all in their 20's, who are just as frightened. When I was first diagnosed, they were scared to death.  I try to keep reassuring them, I am not going anywhere.  I am going to be here for a long time, putting my nose in their business.  Hang in there, and come here whenever you need to talk.  I wish I could reach through this computer and give you a great big hug.

  • LisaThompson
    LisaThompson Member Posts: 26
    edited March 2012

    Thanks Debbie 6122 and Suebak

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2012

    Hi, Lisa ~ First, let me give you a very caring virtual (((HUG))).  I can only imagine how difficult and scary your Mom's recurrence must be for both of you.  But it does sound like it's been caught early, and hopefully she will have an excellent prognosis.

    And don't let any doctors make either of you feel bad or guilty about a past choice.  I'm sure her decision not to do RT was well thought out, and, although it goes against conventional recommendations, was what she wanted at the time.  For whatever reason, it's come back.  But it might have also come back with RT, too.  We just don't know.  And looking back isn't going to help now, except to add guilt to her worries.

    What I would strongly suggest... if she hasn't already... is to get a 2nd opinion on her course of tx this time around.  Her situation sounds a bit unusual (e.g. recurrence, and possibly a change in hormonal status), and it would be wise to be dealing with docs who have seen the most of this type of recurrence in the past, just so that they have real firsthand experience dealing with it.  If your Mom isn't already at a major comprehensive cancer center, here's a list of some of the top ones:

    http://cancercenters.cancer.gov/cancer_centers/map-cancer-centers2.html

    I absolutely think a second opinion would reassure both of you that she's getting the best possible recommendations going forward --  just to be sure surgery first, for example, is the best option now.    Deanna 

    PS ~ I wanted to add that having bc in the lymph nodes can also be looked at as the lymph nodes having done their job and stopped the bc from going any further.  Obviously, no lymph node involvement is better, but positive nodes may not be as negative a finding, if it happens, as you are fearing.  

  • LisaThompson
    LisaThompson Member Posts: 26
    edited March 2012

    Thanks so much dlb823!  I was worrying my self like crazy, but you've helped me to feel better.

Categories