CANCER MAKES YOU CRAZY
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BIG HUGS from me to you, Green Monkey. I understand how this ca diagnosis makes you ccrazy....Before this diagnosis at 57, two months ago, I thought I was pretty, (had/have great boobs for a 57 year old until I was told by the first PS I had seen that I had "droopy" breasts), had a great supportive hubby, was a strong person, was athletic, a little overweight but good enough, was healthy (unlike my sister and mom who had br ca...that was THEM, I, yes, I was the strong, healthy one...geesh), etc., etc.
Last night I yelled at my husband over and over again becausse all he does is work, come home from work and work again, play his piano, then go to bed. He's done ZERO research about this whole thing...he doesn't even look at me anymore...I feel like the walking dead. Thank heavens for my girlfriends- 2 of whom just called me this morning and make me feel alive again..LOVE them....
Yes, cancer does make you crazy....
BTW, I am set up for my MX one week from today....I take Xanax daily and I STILL am going crazy...maybe I have placebos (lol) because I am normally a sane, competent, woman...
Do you know that when I saw my br surgeon 2 days ago, I wouldn't take my clothes off for the office visit? I told her that when I take my clothes off, I can't think, so I'm not doing it anymore unless she needs to look at my breast right then and there....
Well, Green Monkey, hang in there and know that your "sisters" here care for you...just keep writing and we"ll write back with hugs....and know that YOU ARE NOT ALONE...we are here ....
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One of the reasons why I love it here is that their is no pitty or judgement. I never portray myself as a victim but I do appreciate telling all you lovely ladies how I truly feel - no filter, no watering it down.
Cyborg... you just gave me what I needed! how did you know
Ali, I wore a wig for 7 years back when I was in my 20's because of a condition I had called alopecia areata - patches of my hair fell out until I was almost completely bald. So... I know a thing or two about wigs PLUS.... I LOVE costuming and look for reasons to wear outlandish wigs. If I do need chemo and I do lose my hair, I have many colorful wigs to choose from. but, these wigs are scratchy - look for a "do rag" at a drug store, they work better than a wig cap which is just fancy pany hose. And when the wind blows the hair lifts up and doesn't always go back down unless you get a real human hair wig but they're expensive. I had them too because my baldness was longterm but the synthetic wigs were my favorites.
So the MRI was fine. I took a valium which helped. I tend to be JUMPY so the sounds startled me. Now I'm back in bed about to eat a grill cheese and tomato that "good husband turned bad husband turned good husband" is making for me.
Think I will also treat myself to endless episodes of Sex and the City!
xoxoMonkeyME
todays post is a small tribute to Kerry.
its crappy out. snow/sleet/rain. no reason to go anywhere..... zzzzzz
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GM - LOL, I love the good, bad turned good husband! Even better is that he's making your lunch!
As for wigs, you guys are better than me! I can barely stand to wear a hat even when it's cold outside. I just go bald indoors unless I'm afraid of scaring someone I like. I'm the "cancer lady" that a lot of people don't want to be. It works for me because I'm more comfortable PLUS it works in perfectly with my Oppositional Behavior tendencies!
Phyllis
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"oppositional behavior tendencies" ......oh my dog!!! I LOVE THAT! can I borrow it, bow to it, (dot, dot, dot) use it explain some of my more bizarre behavior!
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GM, LOL, of course you may! I was verry happy, myself, when I found it. It explains so much!
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Green, I thought your blog story was pretty dang stunning, so unexpected, too. Ali, I'm telling you, my wig looks so good, I may just wear it all the time even after my hair grows! But I only wear it when I make upscale personal apperances! Ha! Like eating out with the folks up the street at the Cracker Barrel. Hahahaha. Folks, finally got us a new dog, our other older ones died last year, such a relief to have a dog in the house again, it got rather lonely there for a while. GG
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Hi dodged, I'm using the cooling cap to save my hair and will carry on. Down side had to have my long hair cut in short bob as it died badly. Have been told on here not to wear a wig because you have to keep your head cool. So spent £200 on the wig what do I do. I will have to wear it when I need to and maybe stick a hat on but the onlyone i have that looks ok is wool. My hair has thinned very badly on top and I ashamed how it looks.
Forgot to say what breed of dog have you got? My youngest daughter is mad for a dog. We have a cat and I would like a smallish dog and hubby says he doesn't want one. He did change his mind when he found out about me. She is also mad about horses so I have decided to let her loan a horse. Any tips on having a dog. -
UGH..... just got off the phone with doctor. the mri showed an additional mass about 5cm behind my DCIS. this does not, for whatever reason, suprise me but it does shake me.
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as for DOG... I love my dog! there is a picture of her here:
http://greenmonkeytales.blogspot.com/p/about-me.html
she's smaller than our cat! She's a 5lb shihtzu and she's fabulous. As I often say, she's better behaved then I am.
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GreenMoney, sorry to hear that, are your lymph nodes ok? DH and I had a good night away and we were asleep by 9.30pm Cancer stresses everyone haha.
Going to see a horse tomorrow for Lucy it will be her first time loaning a horse. It has to be cheaper than the lesson I've been paying.
It's DH birthday today and I forgot to get a card i remembered then forgot. My brain is fried since having Cancer. -
GREEN, love them Hollywood glasses on your doggie.
ALI, I could write a book of tips on "having a dog," but let me just give you the link to the website for the "Dog Whisperer" on NatGeo TV for now: www.cesarsway.com Our last dogs were Husky and Chow mixes, with a German Shepherd Dog in between, and this one is a sight-hound mixed with Aussie Shepherd, reminded us of the Husky. For a smaller dog, Green has a good one, she can talk to you about their fur. Find a book on breeds of dogs, see what their temperments and requirements are, plus which ones you're drawn to and why. You can adopt a similar one from your local shelter or the exact breed from a local breeder. Try to get a dog that is already "house broken," house trained, potty trained, any of those terms. The dog must have a soft bed inside, a Nylabone and toys, many walks outside or fenced yard, play time, sleep time, breakfast and dinner, treats, reward-based training and no harsh treatment, for their souls are noble yet sensitive.
Also, ALI, Tina Turner in her part in Mad Max III (Beyond the Thunderdome), had to shave the front of her head so her "Road Warrior" futuristic headgear would look right, and she was totally into it. GG
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regarding THE DOG....
I woke up the other night and caught my husband, online, crying, while looking at pictures and bio's of dogs that need adoption.
this is SOOOO much better than waking up and finding husband, online, in private adult chat room, talking to topless women. (can't remember if I already told you that but it happened about 2 years ago and it sent us into serious therapy. OH and the worst part about it was his screen name - "nursing nipples").
SO... when husband told me he wanted to adopt a dog named Nooky, I said "great idea"... LOGICALLY... what we DON'T need right now is a 85 pound great pyrennes/tibetain mastiff mix! Especially since we live in a condo with a one pet rule and we already have a 5 lb shihtzu and a 20 pound cat. Besides, husband doesn't have a job and I'm not even sure if we're going to stay a couple after all this subsides...
Regardless I told him that it was fine with me if this is what he wanted. CRAZY, I know but I want him to feel empowered (if that makes sense). When he's not looking at dogs he's researching condo's in New Orleans (which is a dream destination or ours).
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as for my state of mind... I'm very nervous and stressed and freaked out. My BS gave me a script for ativan but I don't like it. I'm going to ask for valium. I'm going to try some reiki this week.
as for my cancer, and my plans for treatment... here is my copy and pasted update which I posted somewhere on here. I was initially all set to go with direct too implants using alloderm and also doing nipple sparing. I even had a surgery date of 3/1 - but then I did a complete about face...
My surgery date is March 5th.Because the cancer is my main focus I want to be at Memorial Sloan Kettering Hospital. None of the PS at Sloan use alloderm. Also, my cancer doctor said I should NOT spare my nipples because the ADH on the left breast is very close to the nipple.So I'm going to have the old fashioned BMX with TE :(The only happy, happy, joy, joy, moment in all this is being able to pick the size and color of my areola. Today, I'm leaning towards "green" but that could change. I need to be at Sloan because my brain knows they are the cancer experts. So far, at the age of 52, with no family history of cancer of any kind I - a healthy, nonsmoking, regular exercisers, who breast fed two children and had her children before she was 35 - has had 1 melanoma (on my back) 6+ basil cells on my face and body. And now, ADH in my left breast and DCIS and a "highly suspicious mass" directly behind the DCIS on my right breast. From this point forward I also want to use the dr.'s at Sloan for my annual gyno exams. Part of my reasoning to go to Sloan is also because they picked up the ADH in my left breast when the radiologist at my local hospital missed it. So I don't have faith in the hospital anymore, or the doctor. And the top breast doctor at this hospital said, "honestly, I don't see anything suspicious in your left breast but maybe the doctor at sloan used a magnifying glass" .....I hope this doesn't sound like I'm an advocate for MSK or against alloderm, I'm just writing out my fears and hopes so that I can remind myself of why I made this decision. I'm so scared.A doctor recently said to me, your decision should be based on the fact that you have cancer. It should not be about cosmetics or convenience. That rang true for me. I wanted to get the operation over with so that I could go to burning man at the end of August (this would be my 10th year) and I wanted to save my nipples because my husband (not even sure if I'm keeping HIM) is a huge fan of them (and apparently other womens too).I knew from the beginning that lumpectomy was NOT an option for me. If I could have done it without radiation that would have been different.I'm trying to find the thread that talked about the best pain meds. Does anyone know where that is? I'm so afraid of the pain.okay... thanks for listening! really appreciate the advice (here, no where else)
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Oh... enough about ME!!!!! How is everyone doing????
I don't know if you know it, but you are ALL my best friends (unless I've blocked you because you judge and belittle).
You make me feel not alone. You listen. You advice. You understand. THANK YOU!
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Oh, GREEN, that was some kinda funny description about your husband and the giant dog. Yup, that ought to keep him busy for a while! Ha! And glad SK will be the place you go, you were wise to visit them. I also prefer Valium to Ativan, no question about that. I had some sort of deep massage that had an Asian name to it and it was downright spiritual. The docs at SK will know what pain pills to give you, and halfway thru chemo when I was ready to quit the program, doc gave me oxycodone, worked fine for me, but no refills on scripts. The funny thing about surgery for me was, the incision wasn't too big a deal, but THE DRAINS really ruined my attitude, and many women here said same as me, that I was a new woman once they pulled those out a week later. I'll give you a free tip: A nurse will say to you several times thru the day, "Do you need more pain control?" Your answer every single time should ALWAYS be, "Oh, yes, please, thank you." GG
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let me practice that.... "OHHHHH yes, please, thank you!" got it!!! great advice.
I get how the drains can be a pain in the ass. I will also miss sleeping on my side. but all that is temporary. right? I will be able to sleep on my side again, right?
I had a magical day yesterday! truly magical. Dog, that asian massage you speak of... not sure if this is the same but I decided to try Reiki for relaxation. I've heard a lot about it but never tried it but I've heard lots of great things about it so I googled it, looking for a practitioner in my area, found a women named BETH WRIGHT, liked her name (no way would I have seen her if her name was Beth Wrong), so I emailed her and had my first Reiki session yesterday. When we talked we found out we had 2 accuaintences in common. One is a very dear friend of mine, we refer to each other as soul sisters, AND the other is my BS!!! They all belong to the same church. (I am not a church person but I am a spiritual person). I had no idea my BS lived in my town and I like that she is a spiritual being! I feel soooo much calmer after the reiki. I'm going to go one more time before my surgery (on thursday) and try to continue it as I heal.
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OHHHHHHH, GREEN, the Rolfing is what sent me to the stars! I remembered the name. Basically it's deep massage where they tear your muscles apart and throw them out the window. Hahaha. I'm SO glad you had your Reiki. I'm all for massage. Looks like you put together a whole congregation whilst at it, too! And yes, dear one, once they pull the drains, you will be able to leap tall buildings in a single bound cuz... BABY YOU'RE A FIREWORK, come on show 'em what you're worth, give it to them oh, oh, oh!!!
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Hello Green Monkey, I just saw your post about the PS at Sloan. My PS is there and he used alloderm on me for my reconstruction...hope this is not old news, I know your post was a few days ago.
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really??? who was that!!! its too late for me, but its good to know! everyone is so different. I have Heerdt for the BS and Corderio for PS. My surgery is tomorrow! I am pretty calm. How are you doing? thanks for reaching out!!!
Here is my last blog post... (until after surgery)
http://greenmonkeytales.blogspot.com/2012/03/acceptance.html
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Hey GreenMonkey...My PS is Dr. Disa. I wish you well on your surgery tomorrow. I visited your blog and loved your "voice". How wonderful that you have Dr. Heerdt, she is so amazing. I had a unilateral mastectomy and had a friend photograph my breasts. I'm glad I did it.
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Well, Green Monkey, I have to say that it's horrible timing but it's sounds like your husband is an absolute jerk and you would not want him around during this very scary time. During my six months of weekly chemo, I realized that even if I was still with my ex-husband (or ex-fiance), I'd still be going to chemo with my parents because neither of them would be supportive or caring. Right now you need to be surrounded by those who love and care about you, not those who cause you additional stress. I hope that you have the support you need. You are not alone.
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Hello everyone, I am new to this forum. To make a long story shorter, my experience is your worst nightmare. 11 1/2 years ago I was treated for triple neg BC (left breast)with 4 rounds of A/C and went into remission. I had a mastectomy and the next year the other side, too, with reconstruction for both breasts. Last spring I developed a new primary triple neg BC in the same breast, which I understand is very rare. Because the docs didn't know whether this a recurrence or a new primary, I needed a PET scan before they considered surgery. By the time I'd had my Pet scan and the Breast Surgeon and the Plastic Surgeon coordinated their schedules, my surgery was July 22.(and it had grown since my needle biopsy on June 6). It seems that the general surgeon whom I had back in 2000 left a little too much breast tissue. Lesson learned: If possible, choose a Breast Surgeon. The tumor was a different subtype of Triple Neg BC. Since that time I have been through 4 rounds of T/C and 28 rounds of radiation. Fortunately, my skin held up well during radiation and I will have the permanent implants put in late summer or early fall. I learned that the reason I didn't have a sentinel node biopsy this time was because my BS and MO thought I was at too high a risk for lymphadema. I was 0/1 nodes in 2000.
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Anyway, I would really appreciate your thoughts about my situation with my husband: He has been living in another state for 3 years for work.. I was working near our home prior to the new cancer and working hard to complete my Master's Degree in Music Education. Now I am retired and have a small flute studio. While my husband visited for each of my 4 chemo treatments, he does not treat me respect or kindness, which makes me very sad. Also, he knows how much I would like to have a cat or dog and says that it is either him or the dog. My dear daughter lent me her cat from Thanksgiving until Chrstmsas. I have taken my marriage seriously and pray that he lets me have a pet and that he will demonstrate love and affection for me. Any thoughts? PS I have a friend who has a Therapy dog. I feel very lonely when no one is home and am so happy my 21 year son is home for a short break.
I apologize for writing so much but now you know what is going on with me. -
Hi Lee,
In both of our cases the husband component made things even more painful. Please write and write and write (no apologies needed), this is what I do to deal. I hide nothing. Your situation is very difficult. The only advice I have is to do what is best for YOU. You deserve it. if YOU want a dog or a cat YOU get it.
My beginning was very difficult and I was convinced I wanted no part of my husband. My cancer made me feel even more vulnerable - this coupled with his ongoing fantasizing was disastrous. Ultimately, I had to decide what I wanted and he had to figure out what he wanted. I pushed him away because I wanted him to be here because he wanted to, not because he was obligated to.
Lee, I am a bit out of it, so I'll stop there. Just got home from surgery and feeling a bit high and exhausted.
Its safe here and I'm here for you. Much love, Shannon
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GM, I've been gone for a bit and not keeping up. Please let us know how you are as soon as you feel like posting.
Lee, Sorry I have nothing on the subject of your husband except to echo what GM said. Get the pet! Unless of course it makes him sick, but then the question of does it make him sicker than you? I'm betting not. So sorry to hear about your new diagnosis and treatment. How awful for you! Congrats on getting your Masters!
Phyllis
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FLAUTA LEE, you know, I have some thoughts, not based on much experience, altho I was divorced from first husband many years ago. But it just seems to me that since your husband basically lives out of town, and now you are stricken yet again with cancer and all the treatments and fear, and nobody was there to hold your hand the first time and no one is there to hold it a second time, and with his attitude being in general quite negative, that while I know you want to keep the peace, YOU NEED A KITTY OR DOGGIE. I've had both, we've stuck with dogs, they were always our favorites, we cannot live without a dog.
Sooooo, I think you and husband should sit down after a nice dinner that you make for him, tell him you want to talk, sit beside him (they do better when they don't have to look straight at us, I read that somewhere), and start in about how you are feeling vulnerable with this new cancer and must know if he loves you, and thus ask him how come he was generaly disrespectful to you on a couple specific occasions. Then bring up the cat/dog situation again, first explain how you were so alone when you went thru cancer the first time, that you do not believe you can bear to go it alone again, and this is why you want a cat/dog. And if he doesn't know, you tell him how you borrowed a cat last year, just for the company, even.
See, my husband is as faithful and loyal as the day is long, but about five years ago when we had to downsize, I lost my nerve because I loved that house, and so once we got settled into this house, I had to sit down with him and ask him some questions about some old history and if some bad events meant he didn't care for me. And that man came clean with me, he said the items I mentioned had nothing to do with me, rather some other stuff, and then he was able to tell me more often after that how much he cared and so forth. We are much closer now, and even closer still with the cancer stuff. And of course I was able to talk with him pretty freely about a lot of things then, with some exceptions because the whole thing made him tearful, too, so i didn't want to make him sad.
Now, could be he does not want a dog for a specific reason, maybe one bit him ages ago and he simply cannot get it straight in his head. Or if cats are out of the question on top of everything else, perhaps you could ask him which would he choose. And if he has to overcome some dislike issue, next time he's in town, you all can plan to go together to get this dog, and fix him a bed to sleep in, in the house, and a couple toys, food dishes and food and treats, and that way he can ease on into the thing with you and see that there is nothing wrong with a pup. You see, for him to just outright say "NO," he obviously does not know your side of the story, so I think it's a good idea to try to draw him out on the issues, help him see your point of view, and thus hopefully he will be much more sympathetic and give way on this thing with the dog, and could also be his respect problem has more to do with his regret with not being able to be with you very often, or maybe some junk at work, who knows? But you need to know, so you will not feel abandoned and not listened to.
As you well know, BC is a nightmare enough as it is without all this other bothering you, and I really cannot imagine why he won't let you have a little pet, for gosh sakes! There are BC girls in my other forums, waaaay back when I started chemo even, and one of them got her a dog just when all this started, and that dog slept with her and stayed right with her the whole time she was miserable with chemo side effects. And in our home, I too could not have made it without our dogs, warms the heart so much, and believe it or not, both died during my year of the cancer routine, and we had to wait a couple months to get another, and we were both bereft and out there, we were desperate for a new dog, and at long last, we got one, and I felt SO much better almost instantly! Let us know how things go, dear one. GG P.S. I played flute thru college, bought a crystal flute many years later and blow on it now and then. Smile.
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Dogeyed.... YOU are special. I figured that out before this post and before I knew you played the flute and I never heard of a crystal flute but now... I so want to hear it. now
Flautalee, you need what you need. YOU deserve your needs, whatever that maybe.
you need to be able to have a side by side (love that suggestion dogeyed) conversation with your husband.
I need to get mine into therapy...but lets not make this about shannnon today, okay shannon.
as for feeling lonely, you can feel that way even when the house is full. that is why we are here. we are here for you. I am here for you. I'm just a click away!
Monkey love and hug, Shannon
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Yah, GREEN, thanks, and when YOUR husband gets lost, he really gets lost, winds up in Mongolia or something, for heaven's sake! He is sort of funny, tho, the way he just goes off. Those guys ought to watch some of the movies like the one with Michael Douglas, where his affair girlfriend came to his HOME to cut everybody up. Ann Margaret was in another one ages back, that one works too. As for where you husband ought to go, I used to tell people that when I got stressed out or did stupid things, I'd go out in the backyard where I had a mule tied up and let him kick me in the head, and I'd be fine. I wonder if you can get one for your husband on Ebay? Hahaha. GG
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Hello everyone--it is so nice to feel that there are other ladies out there who are behind me. Something that worries me a lot is the fatigue that I am experiencing 2 months after completing chemo and then radiation. I don't remember that from when I went through this in 2000. It's true that radiation wasn't part of the protocol then and also that I am eleven years older than then. I don't have a visit for another month with my MO--do you think I should try to see him sooner. The fatigue is such that I could spend the entire day in bed reading and napping, but the reality is that I need to be working at least 5 hours a day in order to complete my Master's Thesis so that then I can take the Comprehensive Exam (a 2 week long take-home test--doesn't that sound like fun?) to graduate in May. I have always been a goal oriented person but my body isn't willing. I emailed my Thesis Advisor and my Graduate Advisor about finishing next year---they both said that I have plenty of data to write about and that I should just push through it--easy for them to say. I'm feeling better now just writing to all of you -- here it is 7 PM and I will now just be getting dressed---so I will now go work on the Thesis. Thank you all for yor encouragement and support. Best to all of you, Lee. Oh, one last thought--do you think that if I begin a walking program I might feel more energetic? I've done it a little with no change.
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FLAUTalee, sorry I missed your post for a week, but I am 61, I had chemo, surgery, rads, in that order, and it took six weeks for the FIRST wave of exhaustion to end after rads. And now, five months down the road, I still sleep, sleep, sleep, and except in the mornings, I cannot do much. Some say this radiation tiredness can last for six months or more. So, I guess you could say I'm in my SECOND wave of sleeping. The way I see it, you're just a couple weeks after when I was finally able to take some baby steps, so I should think before long, practice getting up and moving around will finally click for you. I hope you are breaking your 5 hours into two parts. Perhaps 3 hours sometime afer you wake up, and then polish it off with 2 hours later in evening. Listen, people trying to finish their thesis, some can take YEARS of fooling around with it, so it's nothing new. But if you simply know at some point there's no turning back, and you cannot finish it, then you will have to explain again to the profs what happens to people when they get radiated at your age. Let us know. GG
AND HI THERE GREEN! Hope ye are surviving well enough! GG
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I read all your posts here and find you gals, especially Green, so absolutely wonderful. You gals are very strong...I have been having such a hard time emotionally since my BMXon 2/1 - I have been on anti-depressants and anti-anxiety meds for many years forpanic attacks. This diagnosis just put me over the edge...I had to up the anti-anxiety meds...I lost my mother 3 years ago and was so close to her - had a hard time with that and my only brother (sibling) was murdered years ago...My only daughter is getting married in June and I am trying to hold myself together for that and it is a constant struggle everyday...she too had issues with me after BC...I think she is so upset that I got this BC and she goes from nice to downright nasty...we had an appt. with a therapist which really helped last week so we are back on track...but I am almost afraid to talk to her..my only happy times are when I am so distracted by something...I lost over 23 lbs...need to lose...but can hardly eat from the nerves in my stomach...I take my xanax and then can get some food down...everyone keeps telling me it takes time to come to terms with this...I was so strong before during and after surgery and nowfeel that it was all too much...I am going back to work on Thurs. as I really think keeping my mind occupied is the only thing that can help me out of this hole. I do want to wish you all well and tell you that your spunk has really made me feel like fighting!!!! (((((hugs))))
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