Starting Chemo Feb 2010?
Comments
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I hope everyone is doing great and back to normal, well our new normal anyway. In many weays the new normal is better as I find I dont take things so seriously and am much more laid back. I still have much stiffness & back aches. I arise as if Im 80 instead of 47. I finished herceptin in Jan. But they tell me I'm cancer free so I will take it!
Have been having a wonderful summer traveling and at the beach & on the boat. We also lost our two dogs two months apart and I miss them too. Our german shephard had cancer and our border collie was poisoned by a toad and drowned. Im trying to figure out when to get a new dog, I guess I am waiting on one to just show up. I may go to the animal shelter this time and save a life.
I am considering taking part in a phase 2 trail for her2 3+ bc vaccine. Its goal is to create a vaccine to prevent recurrence. It involves travel to Houston and blood tests. The follow up is for 5 years. If I do it I have to start Monday. I feel a need to kind of pay it forward if I can. My daughter is going to college in Galveston so I will be able to have an excuse to see her when I'm there for the vaccine too.
A big hug to everyone! You each made it bearable.
Laura
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Hi girls! Checking in. I hope everyone is well with their "new normal."
I also worry about every ache and pain. I have terrible arm pain from the Arimidex, and actually called the Onc to question about arm cancer. Lol. I have an appointment with him next week. I'm sure the first thing he'll suggest is switching to Femara, but that has similar if not worse side effects. Hair loss and thinning. Just what I need.
Anyone else with terribly thin hair still? And mine is still so short. Frustrating. I don't know of anything that will help hair grow.
I hope everyone is enjoying their summer-it's miserably hot here, but that's to be expected for AZ
Take care-hugs to all!
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Ibreedl so sorry to hear about your lovely dogs. It is such a loss isn't it. I feel it more as the days go on, particularly for example when I open the biscuit tin as my boys could hear that from the front gate and would be straight in to share. Such great memories aren't they. We are resisting the urge for another dog at the moment as they really are a tie and we want to be able to come and go as we please.
My Herceptin is now done and I am very positive. I do worry about aches though. I had a pain in the right side of my back when I breathed in the other day and immediately thought lungs or liver. I even got on the BC site to look up symptoms and then remembered I had done some weight lifting at the gym, the first for years and the pain was probably muscular. Thank goodness it was and has now gone.
Burley my hair has come back thicker than before and i am keeping it really short as I can just wash and go with no hair dryers or brushes needed. My nails are terrible though they split all the time. They were never brilliant but these are almost non existent a bit like summer here in the UK . Rain Rain Rain .
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Just had my 6-month mammogram and everything looks fine. Not really enjoying the tamoxifen, but if the tests come back right - maybe I'll be in true menopause and can switch to something else. I never thought I'd be rooting for menopause, especially since it's HOT and DRY here in TX!
My hair has mostly grown back except for a thin spot in the back. Like Ado, I keep my hair short now because it's so darn easy to care for! My nails are also awful and they do split. I try to just keep them short now. My eyebrows and eyelashes are still sparse and thin.
WBC and RBC are still low, which surprised me since it's been a year since chemo, but I'm told that is normal. It also explains a lot!
Glad that this board is still going. It's good to hear how we're all doing on the journey.
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Great to hear from everyone who's still posting here. I just did my 6-month mammogram and ultrasound and everything comes out clear. So far so good and I'm enjoying life - so glad I'm still able to say that.
I also worry about aches and pains - I try not to, but there is this lingering little voice at the back of my mind that wouldn't rest easily. Usually though, I will find some more practical reasons for the pain. I may have walked a bit too much on the treadmill, or I overdid myself by running the carpet machine for too long (and it's heavy)!
It is hot!!! I don't know if it's the hot flashes but I do sweat quite a bit. My periods are not back yet so I don't think they will. Saves a lot of hassle since I'm only 42 (was 41 last Feb when the period stopped). It's been 14 months since my last chemo (May 2010), and my hair started curling up around March this year. Now it has some major curls (but not very tight ones). I kind of enjoy it - makes my hair look fuller. It's still the original color so I'm happy.
Hope everyone stays healthy - keep in touch. -
Laura and Ado, I am so sorry to read about both of you losing your dear pets. We waited about a year and a half after our cocker spaniels passed before we adopted two 6-month-old cockers, one from the SPCA and the other from the local cocker rescue. They are wonderful little girls, so loving and loyal, and the joy of my life.
I just had my yearly mammogram this morning and am thrilled that all is clear. Yippee! It hasn't been far from my mind the past couple of weeks, so I'm relieved that's over. I love that they read the mammo right away and you know something before you leave the building.
A couple of months ago, I was anemic again. I'm feeling better now, so I guess the iron pills are working. I'm not a big meat eater but am trying to put some back in my diet.
I've been lucky with my hair. I still haven't had it trimmed since chemo, but it's grown back evenly and there hasn't been a need. The waves are still there, but I get a lot of compliments on the look. Now I have long bangs hanging down the sides of my face, so I may need to get those trimmed soon. After not having hair for a few months, I'm just scared to have anyone come at it with scissors.
I'm practicising yoga at home, and it seems to be helping to limber me up. I'm looking into joining a local class that offers gentle/restorative yoga. I have to push myself to walk on the treadmill. It's too darn hot here to walk outside.
No period yet for me. I'd kind of forgotten all about it.
It's good to catch up with all of you. Good health to us all!
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three weeks out from my reconstruction and am thrilled!!! a bit uncomfortable, but not nearly as bad as i was expecting. so wierd to wake up from surgery with seemingly my old 'friend' back there on my chest. just amazed. even lacking the nipple, it is wonderful. so glad i did this.
my poor dog had a meltdown with me being gone for 5 days..when i got home he just went limp, slithered up my legs into my lap & sort of fell apart..then started peeing. oh joy. i think the poor thing had been holding it the whole time i was gone. nice to be missed.
hey kim--hows the dust storms down there?? my hair is about 4" & i'm getting the unruly mess cut tomorrow. daughters wedding is sat....oh, and the grey has to go too. i was hoping it would come in making me look chic, but alas, just makes me look like my dh's mother. sniff
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Lola, congratulations on the reconstruction! I remember how wonderful it felt waking up after the implant was put in and seeing a breast there again. You've got the real thing with diep, and I'm sure you'll be extremely happy with it. Poor puppy! Guess he had to mark you as his own again or he was really pissed you left in the first place.
I went to my first yoga class today and had a great time. After posting about it yesterday, I saw that my local yoga studio started running a $5 special for new customers, so it seemed meant to be. The practice I've been doing at home has really helped to stretch out and build strength in my arm and chest area where I had the surgery. I'm definitely going back to the studio for a weekly class while still practising at home.
Take care, everyone, and stay cool.
Cindy
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yoga sounds like a really good idea. guess i better get my tapes out & start stretching.
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Hi everyone hope you are all well. I have finished Herceptin as I mentioned a few weeks ago but am still getting the side effects of runny nose and tiredness. I have been sleeping for 45 minutes each afternoon over the last few weeks. I also stopped my Tamoxifen for 5 days as I was just having one long hot flush after another. I didn't have one during the 5 days and slept really well at night which had been a problem for me for ages because of the flushes. I started the drug again and am actually having far fewer flushes. Strange isn't it . My aches and pains especially in my arms are continuing and I find they are very painful when I wake up especially if I have carried anything heavythe day before.
I am missing my dogs as is to be expected and think about them and thier antics and loving ways. On the other hand we are now free to travel and go on our very first cruise on the 4th August. Both my husband and I remind each other each day to enjoy the moment and I hope you all do as well. What a roller coaster we've all been on. At least with most of us finishing treatment it has slowed a bit but of course we remain on it now don't we so let's hold hands. It's certainly worked so far through good and bad as I am sure you all agree. Off to the garden to eat ice cream.
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Hi, everyone! Is all the pink bothering anyone besides me?? I picked up an egg to cook this morning and it was stamped with a pink ribbon! Don't know why it bothers me so much..,just can't get away from the constant reminders. Hope you are all well and thriving.
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yeah--i'm pinked out too. in some wierd way it makes me angry. i use to do the walks before all this happened, wear the ribbons, etc. and it got me anyway. bloody cancer.
but, all in all, doing much better. having the reconstruction helped a lot. feeling almost normal unless i look in the mirror. maybe your right. it is the reminder. i just want to forget about it. i want to go play, have fun, and giggle about silly things, enjoy my friends, & family & pet my dog.
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Hi,
Anyone in Philadelphia, S. Jersey or nearby areas and on Placitaxel? If so, please message me!
Thank you.
Nichole
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Happy Thanksgiving, everyone! Hope you're all feeling good and getting ready to enjoy the holidays. We should all be at around the two year mark for diagnosis (my special call was delivered the day after Thanksgiving!) so I hope we can all look back over the past two years and say, "holy crap, did that really happen???" And then put it away in that neat little box in the back of your mind to live it up and enjoy this time of year with your friends and family - I know I am. Big hugs to all! Mo
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Mo, you said it. So easy to forget... I was diagnosed early December so yep, the 2-year mark is coming up really soon.
Well, hair remains curly (been like that since March this year) and I like it. Life is very much back to normal and enjoying every minute of it.
And then I had some (very light) spotting for an hour or two today. Does this signal the comeback of my period? I hope not.
Hope everyone is doing great. Happy Thanksgiving! -
Just a quick note to say that I'm thinking of everyone who has hit their 2 yr diagnosis date or will hit that date soon. Mine is 12/8/09. This week I'll have my annual mammogram (Tues 11/29) and then 3 month oncology appt (12/3) and then 12/8. I'm having some anxiety as I think about these next 2 weeks. I think that once I get past the mammo and get the results, the other days will be ok.
I'm happy to say that my hair is mostly back to normal texture and I do like the shorter style. I had dark brown hair before and my sisters say that it now is black. One of my sisters gave me a product called Revitalash. It is an eyelash conditioner. I've been using every night since July and my eyelashes are really long and thicker. Some of it could be getting further away from chemo but I really think it has made my lashes longer than then have ever been.
Hope everyone is well and had a happy Thanksgiving. Gina
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Great to hear from you, Gina! My mammo is this week, too - could be why I'm not sleeping so well. Trying to put it out of my mind, but it catches me and takes my breath away sometimes. Good luck on your appointments! Mo
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Hi Mo,
Good luck with your mammo. Mine was ok but I won't have the results until today or tomorrow. I'm pretty confident that it will be fine. The tech is the same one I've had many times and she's very competent and sympathetic. She did tell me not to freak out if they call me back for a better look. She says it's not uncommon because they are monitoring me very closely, etc. That made me feel better. Yes, sometimes it's overwhelming when we think back on everything that's happened. Take care, Gina
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Hi girls! Glad to see a few of us are still peeking in.
My two year mark will be 12/17, my husband's birthday. This year he will be 40, so his birthday will definitely overshadow my cancer diagnosis.
Hair! Holy cow. The hair on top of my head is literally only 3 1/4 inches long. And my last chemo treatment was July 15, 2010. WTH. The sides and back grow like crazy. It's so frustrating. I don't know if it will ever be back to normal. So I get a "guy's" cut every three weeks and try to just deal with super short hair. My eyelashes continually fall out and grow back. I always have some super short ones mixed in with normal long ones. I wonder if they will ever be the same either. It's not like I had some unusual chemo treatment-just ACT. My Onc checked out my thyroid and vitamin D levels and they were all fine. Strange.
I hope everyone had a terrific Thanksgiving :-)
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February 2012 and here we all are. If like me you doubted you would be then I'm sure you truly value each minute and worry about every ache and pain. Life changed for us all two years ago didn't it !
Awaiting result of mammo and keeping everything crossed. I didn't go for reconstruction and am used to the prosthesis. Back at work now but still extremely tired. I was lucky enough to be able to sleep for 14 hours last night.....lovely.
We have been on two fabulous cruises and have booked two more. We don't put anything off until tomorrow anymore. I love my new super short hair as does everyne I meet. It is so easy and makes me look younger. I've given up sweets and chocolate for the last 4 weeks and boy do I feel better all round. With my sweet tooth it was hard. I just hope I don't get back on to it. Have exercised like mad for the whole year but guess what....am still 7 pounds heavier than 2 years ago. Just can't compete with the menopause and Tamoxifen, but who cares I'm alive and kicking !
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Hello, Ado. Great you've been doing well.
Like you, we've been doing some traveling - no more waiting or too much planning any more. Just did a cruise to Hawaii and loved it.
Mammo earlier this month (Jan 2012) was fine - some calcification in the left breast (cancer was in right) but other than that I'm fine.
Haire still is curly. Kind of enjoy it. Shoulder length now.
Weird thing is that I had a period in November and like clockwork had a second one in December. Apparently it decided to skip January, but I could be speaking too soon. Heavy flow - seemed heavier than before, but it could also be that I already forgot what it was like LOL.
I do notice worse short term memory. No change in logical thoughts, but short on recalling recent facts (such as where I put my watch/keys/remote - you name it). Possibly due to chemo. Still I'd rather be forgetful but living!!
Wish every Feb 2010 sister a happy two-year anniversary. But if you choose to forget this date, all the better!
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Hi ladies, thinking of everyone from Feb 2010 group as Feb 2012 approaches. It's hard to believe that it's been 2 years.
I did have to go back for diagnostic mammo but everything was fine, some calcification, but being called back did trigger some bad memories. I have lost a little weight since last mammo and it was difficult for them to get me positioned just right. It was painful and I'm glad I only have to go once a year.
Hair - good, no period - good, tamoxifen - ok, hot flashes - ok. I do feel back to normal but not a day goes by that I don't think about it.
My sister gave me some RevitaLash that I've been using since July and my eyelashes are noticably long. Someone asked me if I had eyelash extensions.
All the best... Gina
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So pleased we are still logging in to this site. It helped me through the bad times and I hope we keep in touch whatever the outcome.
No result from mammo yet.Had cervical smear which was clear, I celebrate all good news these days. Have had some prblems which I think may be related to Tamoxifen, flatulence and pain between right shoulder blades plus very loose bowels. Will see consultant 14th February. Can't be bothered to worry, just enjoy each moment. Had a few glasses of Prossecco, can't drink wine since chemo. Added a few crisps and then a Spaghetti Bolognaise, not cooked by me and as the song says.......I FEEL GOOD !
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Anyone in our group experiencing lymphedema? I had some dental work done the other day and woke up the next morning with a real "thick" feeling in my arm on the bc surgery side and my hand felt swollen. I didn't even think to take antibiotics prior to dental stuff - no one mentioned that, but I've read on this site that that is one of the major causes of lymphedema! Who knew - well, me, now! Have to take antibiotics and go to a physical therapist to help ease this. So, word to anyone having a filling filled - ask about antibiotics prior to any dental work. If I knew, I would have definitely been more cautious because this is not fun. Hurts. Hope you are all well! Mo
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Mo, I'm sorry you're having lymphedema. Thanks for the warning about dental work bringing it on. I'd read about lymphedema way back when I was diagnosed, but I don't recall reading anything about antibiotics and dental work. I hope they're able to bring your swelling down quickly. The only swelling I have on my bad side is when I spend too much time out in the sun and humidity. I'll notice my arm very slightly swollen and feel a sort of tightening. It's not noticeable to anyone else, but I can tell. After a couple of days, it's back to normal.
I finally had my hair cut last week for the first time since chemo. It had grown back so pretty with the curls that I didn't want to cut it. Eventually it got too heavy and needed shaping so I reluctantly had it trimmed. It still looks better than it did before I lost it to chemo.
I hope everyone else is doing well with good test results and no problems. My 6-month check-up with my oncologist is in a couple of weeks. I remember looking forward to seeing my oncologist when I was in active treatment, but now I dread going in. I think I've been having some problems with anemia again, but I'm feeling better since I started taking iron again. I had anemia during chemo and a bout afterwards, both fixed by iron, but I've been feeling similar anemic symptoms again lately. Something for the oncologist to check.
Ado, I hope your appointment with the consultant went well. You said you can't drink wine since chemo, and I kinda know how that is. I'd given up alcohol for two years but after the hot flashes died down a few months ago, I thought I'd have the occasional glass. I find that I can only drink a very very small amount of red wine now. The odd glass of Moet champagne goes down much better than a red now, and I was always a red wine girl. I wish I could find good champagne in teeny tiny bottles, but for now I'll just order it out every now and then.
It's good to see those who post updates from time to time. I am still very grateful for every one in this group!
Cindy
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I had my 3 month check up with MO last week. I don't have to go back for 6 months and will now be on a 6 month schedule. Even though I like him, I'm happy to see him less. I will have labs done in Sept and will probably change from Tamoxifen to Aromasin. I've been reading about AIs and it seems there is a better benefit by making this change. I've been ok on Tamoxifen and I hope that I'll tolerate Aromasin well.
I hope everyone is well! Gina
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Hi girls! It's so nice that a few of us are still checking in! 2 year anniversay of my diagnosis and MX came and went...no big deal. Although I have started seeing a counselor because I feel like such a different person since BC. I term my life as in before BC and after BC because everything changed. I feel like I suffer from PTSD. I now hate to drive, be in crowds, be around germs...weird little things. Luckily my husband is letting me work from home, so I don't do much driving except the kids to school and my doctor's appointments.
Speaking of that, I still have so many appointments! Onc every three months (labs prior to that), sports/spine doc for my arm and wrist pain, doc to monitor my depression meds, plastic surgeon. And I was going to PT for my arm. I feel like a permanent patient. Right now I have a horrible wrist sprain from falling that I actually think is broken. Went to urgent care on Monday and I'm waiting to hear the results of the xrays after an actual radiologist reads them. 3 weeks ago I broke my toe. Haha, such a clutz.
I'm so glad to hear of everyone's hair stories. The hair on top of my head is still only 4-4 1/2 inches long. I was having her use a razor on the back and sides every three weeks, but this last time we just used the scissors. Trying to give it a more feminine look, which is hard. Right after I get it cut and colored I will get compliments on it, which is nice. Mostly, "your hair is so cute, but I could never wear it that short." Thank you?
Ok, I'm officially done typing with one hand. I hope everyone is well :-) Hugs to all
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Gina, I hope switching meds weren't hard on you. And Cindy, I know about the hair thing ... I still have not had a haircut since dec. 2010. Kind of liked the curls but do need a trim SOON.
Apparently my period decided to visit just the two times back in Nov and Dec. Then, nothing. Makes me wonder. I did have some bad hot flash kind of feeling again in Jan and Feb, like I had to go through menopause all over again. Much better now in April.
Been doing yoga daily since late Feb and also on a mostly vegetarian diet. Still eat meat but sparingly. Very little dairy except for once or twice of pizza every month. I think of all the poor farm animals with horrible living conditions and can't help but believe the meat contains more toxins than free range animals like in the old days. Today's cows, pigs, and chicken can't be happy ones.
Hope to see some of us here once in a while. You all mean so much to me! -
i thought it about time to catch up with those who really helped me through my treatment. Cannot believe where the years have gone since my diagnosis in December 2009. Still on tamoxifen and had a bit of scare this month when bleeding started. Had a polyp removed and thankfully all benign. I really neded this site back then and am so grateful that faithful had the idea to start it. Hope all well.
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Dear Ado, thanks for checking in. Happy 2013 everyone. Hope all is well.
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