Is There A September 2011 Chemo Group?

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  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    ugh!! stupid broken machines.  Mine was broke yesterday and they called in the afternoon to say it was fixed so I went and got it done.  Only 1 more regular tx then 7 boosts ( found that out yesterday...thought it was only 5 boosts.)  Hang in there Belle.  I got quite depressed about half way through but the last 3 wks went by super fast. 

    Rae sorry you are so swollen.  OUCHIE---looking forward to the foobies after my skin heals from the rads.

    Rj--woot woot love a party.  My girlfriends are planning one for me the end of next week.  Anything is worth celebrating on this crappy road.

    Maggie

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    rj, some of the best times are when things go wrong,sounds like you had a great time! good for you!!! stick to your guns concerning your daughter,i know it's hard! but it's the right thing to do otherwise you would just be enabling her not to be responsible.

    maggie, woohoo you're almost done!!! how is your skin holding up? my shoulder on the bc side has been killing me,guess it's from holding my arm above my head during rads!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    My skin has held up quite well...just some nasty rash that itches and some peeling under the arm but no breaking of the skin, oozing or other nightmares I have read about.  A tear fell today knowing that It was the last regular tx  Just get so overwhelmed knowing that this 7 month tx plan is almost over.  Can't wait to get the recon soon.  Do you check the Jan rads board to see how women are faring?  Gives a good idea of what to expect and anticipate.

    Maggie

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  • Kelliregi
    Kelliregi Member Posts: 138
    edited March 2012

    Wow! So much going on for everyone!

    This past week has been a whirlwind here. My middle son graduated from RASP this past Friday. He is now an Army Ranger!!  My oldest son left for Afghanistan on Tuesday, the day before his baby girl's first birthday. What a rollercoaster!

    I saw my PS yesterday and had my last TE fill (YAY!!!!). My reconstruction surgery should be in about 2 weeks. I also found out he will be able to build nipples at the same time as placing the implants. One less surgery =). This has left me singing a little song/chant (only in my head). It goes to the tune of that dog food commercial Kibbles and Bits ~ Nipples and tits, nipples and tits, I'm gonna get me some nipples and tits!

    It's almost Friday, the sun is shining, and I hope everyone has an awesome weekend!

    XX 

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    maggie,i hear you!! i've read some of it but just like chemo everyone reacts differently so u have to just wait and deal with it as the se come.

    kelli, great to hear from you! i bet you are so proud of your boys!! that it hilarious -nipples and tits!!!!! missed your humor!!

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited March 2012

    It's spring and the nipples and tits seem to be blooming for a lot of us.  I think of the Fisher King and the flamer singing "Everything is coming up roses."  Love all your tulips coming up.

    Hoping, watching, my hair and nails.  The healthy nails are halfway out,but the sick ridged stuff catches on everything. God know what is going on with the toes.  They never looked like this before.  I just keep chopping the nails shorter and shorter and shorter.  The hair has such uneven growth, the sides and back beating the top 3:1. I can accept a silver head of hair, but nature's joke on me is that there is a half-moon surrounding my ears that is dark hair, like my Dumbo ears shaded it and it kept color longer. Also have dalmation type patches of light and darker. 

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  • CJRT
    CJRT Member Posts: 524
    edited March 2012

    You ladies make me laugh! And now I can't get your song out of my head, Mags! LOL Hope you  all have a wonderful weekend.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    Thanks for the great laugh kelly...cant wait to get me some nipples n tits soon too!

    Maggie--only 5 more rads to go!

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  • shelley2011
    shelley2011 Member Posts: 199
    edited March 2012

    Hello, ladies!  Its been a long time since I posted.  It is so nice to see all of you still in touch, still supporting each other.  I won't even try to address all the individual comments except to say that I loved the army analogy and that my heart is bleeding for RJ.  I have a similar situation going on with my granddaugher, who is 5 also.  RJ, feel free to PM me if you want.

    Okay, so as for me.  I have been on Aromacin since January 1.  No side effects whatsoever.  Radiation was completed Jan. 11.  I faired well, just got a little red and am now just a little more 'tan' on one side than the other.  Energy is almost all back...still going to bed earlier than before cancer, but heck, I got older along the way!   Yesterday was my first day at work 'topless'.  Hair is maybe 3/4 inch long and coming in sort of a blend of light brown and grey.  Got lots of encouragement from my co-workers. Waiting to see how it looks to decide if maybe I can stop coloring my hair after 30 years of it.  I did go and have the new growth trimmed up since it was not coming in evenly - sides were a lot longer than top.  It was like 2 weeks ago when I woke up one morning and celebrated bed head!

    Funny, I was just thinking this morning about going and buying some seeds to get a jump start on my veggie garden.......

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  • cooka
    cooka Member Posts: 278
    edited March 2012

    Ha ha, you guys are cracking me up!  I would sing your song too but I am flat as a board...streamlined:)

    Well I have a nice widow's peak going and I graduated from lymphedema therapy...racing in my first canoe race in a couple of weeks. Still pretty tired though, anybody else dealing with fatigue still? I didn't have rads even. But, I am feeling good about getting through everything, even if I still have anxious moments and some insomnia. I think the sleep issues are from chemopause/ hot flashes maybe?

     I lurk here often but don't write much. Good to see everyone is doing pretty well, and RJ and Rae you guys still have such great senses of humor after the ringers you have been through.

    Stay well everyone and have a great weekend! Anne 

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  • rjbaby69
    rjbaby69 Member Posts: 349
    edited March 2012

    Nipples and tits, nipples and tits.....see what 'cha did!  Now I can't get it outta my head either!  Dang that was so funny!

    And guess what.....I have freaking hair on my legs!  Damn!  I've got to go to Wal-Mart and buy razors and shaving cream again.  And my hair is lopsided like Shelly's!  WTH?  And I've also decided to go topless.  I've been topless since this passed Monday.  Onc didn't want to see my wig this last appointment so I wore my BC hat that the ladies I work with gave me.  So, after I left my appointment I was going to put my wig back on and decided....ummm....NO!  If people don't like it they don't have to look and I'm pretty damn proud that I've made it through the last 7 months of hell.  So, lost the wig and gained the BC hat ever since.  Sure is a lot cooler on the old noggin.  Onc said head needed to breathe so it's getting all the air it could ever need!  LOL!

    Kelli sounds like you've been a bit busy lately!  I know you are one proud momma.  I certainly would be.

    Kimberly.....fingers and toes, fingers and toes!  LOL!  Me to girl.  My fingernails seem to be getting better and I keep cutting them short!  Hopefully I can get rid of the ugly stuff soon.  And my toes!  Well, just don't know about them.  I got some of the ugliest toenails I have ever seen!  They are bad, bad, bad.  But I just keep cutting away and hope they grow back better but they really look worse than my fingernails.  Summer's coming soon and it will be time to be in the water but I just don't know about those toenails.  Guess I'll buy me some pretty nail polish and hide the ugliness best I can.

    Hope you all have a wonderful Saturday.  Will talk to you soon!

    HUGS!

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  • RaeBob
    RaeBob Member Posts: 79
    edited March 2012

    I just love this board so many days I just barely had enough energy to read it and seldom felt like replying but I always felt better after being on here.

    Kelli: nipples and tits will be running in my head all day although the nipples part of it is in song form only for me. The real (fake) thing won't be coming back on board for a few months yet. Know you must be proud of those boys. Our 20 year old son is going in the Navy in a few months.

    Mags & Belle: Hang in there you are almost done. The last of all of it will be a great feeling. Each time one more step is done its time. For a party.

    RJ: wow what a night it's because of all the things that went wrong that made the great laughs and memories. You definitely have the right attitude.

    Cooks & Shelley: Glad to see you all on here.

    Kimberly: my nails are a mess but it's the no feeling in my feet that is worse. Now that I am feeling better need to resume midnight therapy :)

    Hope everyone has a great weekend. Me and my new titties are going to spend some time bonding!

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    hi all, GREAT to see everyone checking in!!!!

    cooka,yea i have fatigue issues don't know if it's from chemo or rads, our bodies have been thru a lot!

    my nails are about halfway growed out,keep cutting them short,too.

    supposed to be really nice this week in 60's and 70's,come on hair i want to be able to ditch the scarf and hats,soon!!!

    hope everyone has a great weekend!!!

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    shelley, when was your last chemo and when did you notice hair growth? trying to get an idea when i might see some hair! my last chemo was jan 17,almost 2 months now.

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  • ccjj
    ccjj Member Posts: 128
    edited March 2012

    Hi Ladies, 

    I have been enjoying reading all your posts and catching up. 

    Shelly and RJ... so happy for you that you have ditched the wigs.  I have about 3/4 inch of hair right now and still think I am about a month out before I will be comfortable going topless.  I wish I could be as confident as you two.  My exchange surgery is 3/16.  I am excited to get it done. Hope I like the results. Not sure if I'm getting nips and tits at this surgery or not. I think its getting done later. I 

    Question... I'm feeling pretty good overall. I still have to do herceptin and am on tamoxifen. Are any of you having like a heaviness feeling in your legs? They dont hurt. They ache and feel stiff and heavy. Kind of like I worked out alot. 

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  • rjbaby69
    rjbaby69 Member Posts: 349
    edited March 2012

    Hey ladies!  Glad to "see" everyone!  It's been a great weekend for me.  Got past the shaving and couldn't believe how much hair I really had!  Hair on head is continuing to grow and I'm pretty proud of it.

    ccjj:  I was put on Tami last Monday.  The only things I have noticed are:  headaches, stiffness in my joints, and a few more hot flashes.  So yes, I feel really good other than the achy body.  It feels like I too have been on an extensive workout and believe me, I have not!  Don't really know if it's Tami related or not but I think it is.

    Belleast:  I noticed that my hair was growing a little right after treatment ended on December 22.  But in the last couple of weeks, I would say the hair has really started to come in.  This may sound silly, but I use a comb to kinda gauge how it's growing.  When I run the comb through slowly, then I can see how much sticks up.  Weird, I know, but it works for me.  And like I said, I haven't shaved my legs since the end of September, but finally had to shave this past Saturday.  So I would say it's been about 2-3 months since my last chemo that I'm really starting to notice the hair.  The hair on my arms is not growing as fast, I don't think.  But I do see signs that it's growing.

    RaeBob:  I love it!  Hope you and your new titties bond well!

    Well ladies, gotta go for now.  We just got home from my best friend's granddaughter's birthday party and I have to say I had a blast.  They had face painting, nail painting and a scavenger hunt.  It was so much fun!  Had a big piece of cake smothered in chocolate ice cream too!

    Hope you all have a great evening and week! 

    HUGS!

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  • CJRT
    CJRT Member Posts: 524
    edited March 2012

    ccjj- I have been on Herceptin since 8/31 and started Tamox. 3 weeks ago. I sometimes feel that sensation in my legs but it isn't constant. I didn't know if it is just that I am so out of shape and finally starting to use those muscles more since being off chemo. I had a headache for the first few days but now just some hot flashes.

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    thanks,rj. i'm starting to notice my scalp is looking smudgy? 

     wouldn't it be great if my hair came in brown not grey,i can only hope!! lol

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited March 2012

    A lot of us are through treatment or close.  I just want to remind anyone on Herceptin to monitor their heart function closely. My sister was one of the percentage that couldn't continue Herceptin because of cardiac side effects.  The way she explained it to me was "I thought it was leftover fatigue from radiation.  We were walking from the basketball game to the parking lot and I couln't keep up. My legs felt like lead." When tested, her EF had dropped significantly.  I think in the end she had made 7/12 Herceptin treatments but had to stop because of cardiac causes, and that basketball game parking lot walk was her big tip-off that something was not right.  Her heart function did regain after stopping Herceptin.  Her cancer has not returned 7 years out and she had a lulu size tumor to start with. When your legs feel like lead, double-check your heart function.

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    gosh dang it, rads canceled AGAIN, 3 tues in a row!!! machine broke down again! at this rate,it feels like i'll never be done.

    on good note, my youngest son took me to springfield for lunch at my favorite sushi bar!! hadn't had any since jan 17 on my last chemo day. mmmmmmm

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  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    YEAH SUSHI!!  I went too when chemo was done.  poo poo on the rad delay.  3 left for me

    Thanks Kimberly for the warning for those on Herceptin.  Not me but others can benefit from the advice.  I get irritated that docs do not warn you about some of these SE's.  My surgeon never said a word about lymphedema and I found out from my MO that I should go to therapy for the severe cording.  Thank goodness it has not turned into lymphedema in the arms.  My body is really swollen from the rads though on the left side.  OUCHIE!

    xoxo

    Maggie 

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  • RaeBob
    RaeBob Member Posts: 79
    edited March 2012

    Belle: so sorry about the Rads being canceled again that is so frustrating. I am with you and Maggie on the sushi. I couldn't stand food for so long and I am making up for lost time.

    Kimberly: Thanks for the Herceptin warning. I was a little worried about my heart so far so good but it's nice to know some of the possible symptoms.

    CJRT & ccjj: my muscles are so out of shape and I can't tell what is SEs and what is atrophied from lack of use.

    I finished bi- lateral mx and stage one of Diep flap reconstruction. My pathology report came back clear praise God. My hair is coming back in and is about 1/4 inch. Hope you all have a great weekend.

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    hi all, this week have started diet and exercising,mostly walking and recumbent bike, to get in shape. i've been using fitnesspal.com to help stay motivated and to keep track. my girls and sister use it. going to do all i can to keep this FC from coming back. i am starting slow on the exercising but its a start.

    i have 2 reg rads and 6 boosts left, will miss tues because my uncle died,going to funeral. oh well machine probably would have broken down anyway.

    congrats, rae on the good news and progress.

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  • rjbaby69
    rjbaby69 Member Posts: 349
    edited March 2012

    Hello ladies.  Just stopping by to check on everyone and make sure you are all doing okay or as well as can be expected.

    Things at my house have calmed down and we are adjusting quite nicely.  The baby's daddy has her until Thursday and I have my little man.  Youngest daughter has been here pretty much all spring break and it has been wonderful to have her here.  At least a mature child that can carry on a civilized conversation with me!

    I feel really good and my boob has healed from the radiation.  No more peeling and I look a little tan but that is fading.  I am still achy especially when I first get up.  I'm still thinking that is from the tamoxifen but not sure.  I know I didn't have this for the few days after radiation before I started tami.

    Got out in the yard yesterday.  It was a beautiful warm day here in the south and I raked some leaves out of my rose bed and just did some spring cleaning on the patio and such.  It is supposed to rain for the next three days here but so far, no rain.  So I am going to be doing my inside spring cleaning.  Started on my bathroom and bedroom last night.  So far, looks good.  Fixing to get started on the big bathroom and living room in a few minutes.

    Hope you all have a wonderful day.   I am so enjoying my spring break.  Working for a school does have some advantages!

    HUGS to you all!

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited March 2012

    Belle, have you finished yet?  What do you have left?

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  • SCPMadi
    SCPMadi Member Posts: 42
    edited March 2012

    Hi Everyone,

    I thought I write a quick post to say Hi. I appologize for not posting for so long I needed the break. I skimmed the posts and it sounds like you are all doing well. I am glad and I am gratful that I was able to have all of you to talk to throughout this journey.  I completed my Rads on March 9th. went out and celebrated with friends at our local casino. Had a wonderful dinner and caught the Leno stand-up show with a meet-and-greet, all compted by the Casnio as my friend is in thier premere club. It was like living a night on the othr side for night I felt like a movie star.

    I had minimal SE's from Radation and now 2 weeks later most of my skin has healed and the peeling has stopped.  I am awaiting some MRI results from last week. A follow-up from the MRI I had in Sept. after I get results we are having a big party to celebrate my children's birthdays which are April27 and May 10 we are going to tell them we have booked a Disney trip for August with their cousins.

    I am still off work on LTD. I am unsure of when I will return I do miss the normalcy off work but I am not ready to return quite yet. I need to get my mental anxiety in check before I take on the problems of 100 families dealing with dementia. For now I am enjoying a bizarre Canadian Spring it is 28 or 81 for you Americans outside today are normal would be 6 or 40. I have been puttering in my gardens and spring cleaning with the music on high and the breeze coming in. I think it is fitting that we are all completeing our treatments as the spring is arriving with all the new life of the world. 

    I hope you all continue to get better and better. 

    Take Care

    Sarah

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    kimberly, i have 6 boosts left 1st one tomorrow!

    rj, so glad things have calmed down for you. i've been doing some outside work,too. it is so warm here,this winter has been crazy. told my daughter the lord has been looking out for me cause i was freaking thinking about driving in the ice and snow for chemo and rads. didn't have to at all!

    sarah,nice hearing from you,sounds like you had a wonderful time! your kids will be so excited going to disney. i'm going next year with my daughter,sil,and 2 grandchildren! been there once years ago with my son and family.

    it is so nice here,i get hot in my scarf working outside! i just rip it off and show my white downy hair. i sure hope it grows faster and changes color!

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  • belleeast
    belleeast Member Posts: 653
    edited March 2012

    sarah,hope you get good results from mri,in my prayers!

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  • rjbaby69
    rjbaby69 Member Posts: 349
    edited March 2012

    Hello ladies.

    Sarah - Sounds like you are doing well.  I like that.  Hoping for good results from your MRI.

    Belleast - Yes, I am glad things are calming down.  Oldest daughter and grandson's father signed custody papers today.  At least I think they did.  She went and got him, brought him to the house to see little man and then they met my attorney's secretary at the courthouse.  I have not heard from my attorney or my daughter, so I am assuming all went well.  Next, I have to get granddaughter's father and my oldest together to sign papers on her.  Hope this goes as planned also.  Not really sure where my oldest is.  I've heard she's living in a nearby town.  I don't know.  I'm feeling really guilty about not letting her stay here, but I do feel it's the best for me and the kids.  They are doing well and I really don't want any disruptions to their already chaotic life!  She's supposed to be back at my house on Friday.  Grandson is supposed to have ball practice on Friday evenings and I'm sure she's planning on being there.  That's fine.  I think she knows she's going away for a while this time and probably feels it's best to just leave them be.  Very sad situation!

    Okay ya'll I'm already tired of this rain. Been raining here for 2 days and rain, rain go away! Both mowers are ready for me to pick up but what's the point? I can't mow a lake now can I? LOL!  That's bout what my yard has looked like the last 2 days. I guess if it's not raining tomorrow we will venture out and try to pick them up.

    Have ditched the wigs and now just wearing a hat. Youngest daughter colored my "sprouts" the other night and they look pretty good.  I can tell my hair is growing pretty good. And it feels like it's going to come back pretty thick like it was before. I keep thinking pretty soon I'm going to need a haircut! LOL!

    Time for me to climb into the bed and get some much needed sleep. Hope you all have a wonderful day tomorrow. Talk to you soon.

    HUGS!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2012

    I have been topless now for 3 days.  It is so liberating!!  Even at work I wore nothing on the head.  It seems to be growing fast.  Adjusting to not having treatment to go to now.  Went to rads for 7 wks.  felt like an eternity.  Another pet scan tomorrow so starving today as no carbs or sugar all day.  have actually been worried about headaches, not pain anywhere in the body.  MO wanted the scan as the last blood test the CA 2729 came back elevated.  Hate the constant what if crap.  Wondering if it ever goes away.

    So glad to see all moving forward with life.  Hugs to all

    maggie 

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