February 2012 MX

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  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited March 2012

    TJP -- WOW, girl....I'm so sorry you had so many problems.  Saying a special prayer for you right now.  I don't know how many February Sisters had your type of surgery....so if you don't get an answer here I'm almost sure there is a forum for the specific kind of reconstruction.  If you can't find it PM me and I'll hunt it down for you.  Keep on keeping on!!  Love & Hugs

  • DebbieOS
    DebbieOS Member Posts: 140
    edited March 2012

    TJP- Oh my goodness....your complications sound terrible!  Thank heavens time is progressing and before we know it, all of this will be a distant memory......

    I'm sure glad we all have each other to talk to.....

  • DebbieOS
    DebbieOS Member Posts: 140
    edited March 2012

    Hey Ladies,

    Has anyone graduated out of these compression bras yet?  If so, what kinds of bras are you wearing and what works best for all of you?

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2012

    TJP-What an ordeal! I'm happy to hear you're finally home. Take good care of yourself. (((Hugs)))

  • barbiecorn
    barbiecorn Member Posts: 437
    edited March 2012

    God Bless you all....I am surely much older than you gals...don't heal that quickly - age 66 - but I must say I thought the surgery was going to be a lot worse...my BC said I am doing remarkably...I am doing my stretching exercises and I opted for no reconstruction which I believe is easier than the reconstruction so I am not complaining but that tightness that comes across from chest from time to time is very annoying- BS said it is normal healing symptoms but I can't imagine returning to work for another couple of weeks....I also drive 50 miles a day to get to work and back...but I am bored, so very bored and feel very unproductive, so returning to work will be a good thing even if only on a part time basis...I am going to be working part time soon anyway...at my age, I am going to cut back now but I do like being productive and feeling as though I am needed...I have been at my job 40 years and it is hard to let go completely....Good Luck to Everyone when you return to work and take it easy too!!!! (((hugs))

  • mary625
    mary625 Member Posts: 1,056
    edited March 2012

    I had my BMX (no TEs) on 2/6 and returned to work on 3/5.  I am working nearly full-time but having so many medical appointments still, mainly for PT, I am working on average 6 hours a day.  It's going fine.  Every day is a little bit easier than the one before.  I have a desk job in an office.  I take time occasionally to do some stretching exercises. PT has been very helpful for me.

    I still have the really tight feelings across my chest regularly, as well as stiffness mainly on the side of the lymph node removal.   I do improve every day in terms of less discomfort and less stiffness in my arms.  I am still not recovered on my prophylactic side from the skin necrosis.  I don't know how long that's going to take.  I'm beginning to show some signs of lymphedema and am having that evaluated tomorrow.  I started on Femara about a week ago and am having some stiffness in my legs.  I start radiation next week. 

  • Deborah2012
    Deborah2012 Member Posts: 234
    edited March 2012

    Greetings Feb MX and BMXers!

    TJP071 you have been "Fukushima-ed" and Daiichi-ed too!  Like it's not enough to have the quake, but let's throw in a tsunami- oh and nuclear disaster too! 

    Please know that we are very relieved to get your post.  There are a few others that we've yet to hear from.  They have been in the back of my mind as well.  Frankly, my dear- your spirit and mood is remarkable for the ordeal you have been through.  Please continue to post.  It's safe here. We care and have great affection for our Feb. sisters.  Pelican girl (and a couple of others) have had a particularly difficult set of physical issues to confront. Numerous Feb. women have had way too much emotional stress dumped on them.  Not easy to put a band-aid on that either.

    The people at my work place ahve been tremendous!  They have given me welcome back cards, goodies, hugs, prayers, good will, kisses, they literally have cried tears of joy for me and tears of relief for them.  It has been really something to see someone cry because they see that I am well and they can finally let it out.  They can't get over how terrific I look.  I say thank you and tell them "Im under construction".  They laugh.  It's been emotionally very welcoming and satisfying.  

    If I miss a day on this thread, I feel a genuine concern.  I have to hear my fellow Feb. buddies are doing. DH must feel like I'm emotionally "cheating" on him!  All of you are in the back of my mind.  Even if I'm too pooped to post, I have to at least see how everyone is doing. 

    Smiles and comfort to all.

     Deborah2012

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    barbie, you'll do just fine.  i still get spent and put the jammies on when i get home.  don't rush, if you can at all.  i've let them know there's no way in HELL i'll rush it with the recon surgery!

  • november
    november Member Posts: 103
    edited March 2012

    Hello to all of you

    TJP- 13 days in the hospital. I am sorry you had so many complications, hope you feel better day by day

    So many have difficult issues that I feel guilty posting this but I will anyway, may be in will help you know that you have better days ahead; so here it is

    Today has been one of the happiest day for me since this journey. I feel great; lab results are getting back to normal evn better than before surgery. Surgery was 2/1/12. I went back to work on 3/5/12 for 2 days; was very tired by 2PM on second day; had wednesday and thursady off, back to work tomorrow and off the week-end, same schedule for next week then hopefully full time

    Today I saw the BS. He told me that I don't need anymore follow up appointments unless I experience pain or something come up and I want to talk to him. Ok to resume exercise as much as I can tolerate

    I also got fitted for bras and prostheses. My insurance covers 6 bras for the year and 2 pairs of prostheses. For the first time in my life I had fun trying on bras. I use to hate shopping for bras.The fitter at Friends place at Dana-Farber was great. Everything fits well and looks very nice 

    I wish everyone a speedy recovery; remember to take it easy; give yourself time; you are going through a lot. Good night 

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    Sorry to hear about the complications TJP.  Sure feel for you but glad you're finally out of there!

  • Lisa75
    Lisa75 Member Posts: 137
    edited March 2012

    this may sound like a silly question but is it ok to sleep flat again once the drains are out? Ive been sleeping in a recliner the past week, and haven't felt rested. My last drain was out today and I guess I worry about sleeping flat or on my right side. Gonna try to prop up some pillows but Im sure it will be much better than this recliner I have been in.

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    Can't say yes or no for you personally Lisa, but once my drains were out it took me at a few days before I tried the bed.  Still sleeping with many pillows propping me up but tend to scoot down during my sleep to where I'm mostly flat.  While I still wake up at times during the night, I can SO much easier go back to sleep.  I just can't toss and turn like before surgery.  Hope this helps some.

    Sally

  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited March 2012

    I was in the recliner for 28 nights....I just couldn't get comfortable in the bed and everything felt like it was pulling and tugging.  Sleeping is MUCH better now, praise God!!

    Now....off for a fill.....yay!!

  • Lisa75
    Lisa75 Member Posts: 137
    edited March 2012

    I tried it and think I did ok. I used one of those bed lounge back pillows to prop myself up a little. I used to sleep on my right side, I miss that but this will do for now....I feel more rested. Now I have to get an arm sling for work Monday. I chose not to tell my work my diagnosis (the horror stories I've heard and Im such a private person)....so arm sling will help me not have to be asked to life anything (just in case), or tire myself out too much.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited March 2012

    Hi Deborah2012

    So sorry to hear about the tissue sample not being big enough. 

    Let us know what happens!

    Alice

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    Drum roll please...I have an appt with Plastic Surgery next Wednesday afternoon for a consult.  YES!

    A few big questions for those who are going the implant route - what was the catalyst that was involved in choosing to go the implant route instead of another recon route; any regrets at this point of the process.

    I find I'm becoming undecided which way I'd like to go with recon.

    Thanks,

    Sally

  • Deborah2012
    Deborah2012 Member Posts: 234
    edited March 2012

    Alicethecat,  Good to hear from you.  How are you doing?

    Galsal ah yes, the reconstruction. What are your choices?

    This is my situation (and questions for others to assist):

    1.  Already had the "parking garage" ready to receive something from a previous elective augmentation implant many mnay years prior.  I had a MX. I wanted a squishy shoved in there during my MX.  Why have a TE if I already had the cavity ready to receive somtething?  Why have a second surgery later? I was told, not as great an idea as it sounds.  Could be because as we learned on this thread, apparently there aren't that many PS s that are trained in that art? 

    Here's what mine said. In the case of an MX, one has matching to do. A TE provides more flexibility and betterlonger term results because you have initial swelling etc.from the MX. One's healing,any surprise final patholgy reports etc. can be better dealt with.  For example, don't have to remove or damage the final implant if radiation or infection could go wrong.  In hindsight, I can tell you it was nice to have one side of my body that had been untouched and pain free. I'm glad I'll ahve a chance to thoroughly heal from my MX before I subject my poor body to more trauma.  

    I have decided on saline not the realistic silicone or whatever the latest "gel" is implants.  I had saline before (that's what in my remaining breast).  I'm going to be 56 yrs. old. If anything were to happen, saline in my body isn't a problem.  I didn't worry with all my biopsies etc. if a needle burst my implant, vacuum core biopsies- whatever.  No damage to me.  And because I have one breast left- I may have to have a biopsy some day.  I hope not!

    The saline will not feel as natural as a silicone or "gel".  However, I've had one for about ten plus years and am very happy.  They look great in clothes, nude, and when one has some of their own remaining breast tissue, they feel good, too.  Have no idea what my foob-in-trainig will be like with only saline and no actual breast tissue to go with it.  That will be new for me.  It will also be nippleless.  She's going to be the mannequin breast.  Meanwhile, the remaining breast will get a change out and a little bit of a lift to match Ms. perky TE.

    Dixiemine30, could you weigh in please?  I have gotten one fill in my TE.  However, my TE was almost the same size as my remaining breast anyway.  I'm seeing my PS this week, too.   We may or may not fill 'er up again. I've been directed to bring in some bras and to see how the existing breast and the foob compare in a bra.  We'll discuss what I want and how he plans to "match" them. It's not just size, it's lift/sag etc. So Dixiemin30, here's what I don't know.  I had presumed that my near future change out operation would be like my original elective small augmentation implants years ago.  Easy-peasy, outpatient surgery.  I didn't have them "stuffed" fast recovery- one pain pill and ready to go in around a week (or less)?  Now, PS will have to remove a TE, will have to hike up my existing breast a bit.  I'm down three nodes on one side.  Maybe this will be a hospital procedure and sent home same day? Sounds like there's a bit more than just making a small incision under my breast fold this next time?  My nipple area was not be cut at all for the previous elective implants.  The scar was practically invisible.  No vertical or keyhole scars.

    Anyone know yet the scope and particulars of changing out a TE for a squishy and matching with a remaining breast?  

    Deborah2012

  • Layla2525
    Layla2525 Member Posts: 827
    edited March 2012

    TJP,it will be so fun to have a baby around.  I didnt even notice my drains with the stupid Q pain pump hung around my neck 24/7. It did nothing for my pain,most useless thing ever! One of my drains fell out when I reached for a high shelf and the PS removed the other one which was like a second of pain so it wasnt too much. They are a lot of work to empty and record tho. And I went thru a lot of Wet Ones and rubber gloves trying to keep things sterile. Warning,if I were you,I would hold back a couple of pain meds just in case the fills hurt later. My first fill hurt a lot,in fact waking up in ICU and the fill were the 2 most painful things so far.

  • Layla2525
    Layla2525 Member Posts: 827
    edited March 2012

    Lisa, My PS has a list of No no thats amile long and so I asked her if I could sleep in the bed instead of recliner (I have slept in the bed twice since surg and gone back to recliner since my fill..I might buy a fancy leather one later I like sleeping in it so  much!!) anyways she told me that I could have slept in the bed anytime. Wow,when I try it I have to arrange the pillows for hours to get them right so my back wont hurt. Its just not worth it to me. My fiance bought me a wonderful recliner fabric covered b4 surg and it has a massager built in and a cubby to hold your drink and remote. I love it almost as much as him..lol.

  • DebbieOS
    DebbieOS Member Posts: 140
    edited March 2012

    Hi Galsal-

    I decided to go with a "hybrid implant" and boy am I happy!!!!  Granted, it is "stiffer" on my body and to the touch, however, because post op surgery was soooooo difficult for me, I am grateful that I went the easier route.  I don't know that I would've even survived a 8-10 hour surgery....barely made it through the 2 1/2 hour one.  Plus, the pain from the recovery after a flap surgery takes a long time.  Again, this was difficult enough!

    Several people have asked me what a "hybrid implant" was....it's a saline implant that can still be pumped up.  Basically, it's like a tissue expander that has the comfort level of a regular implant and it never has to be removed.  It gets filled with saline like a normal implant has in it.

    Good luck with your decision!

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    Looks like it was a good question.  Unless the PS says differently, the options that I heard from the BS are a standard TRAM or Implants.  We'll see I guess.

  • barbiecorn
    barbiecorn Member Posts: 437
    edited March 2012

    Feb. gals- do you still get tired easily....just never like me but I notice in the afternoon I can definitely use a nap???

  • Galsal
    Galsal Member Posts: 1,886
    edited March 2012

    Barbie, "nap" has become my middle name!

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2012

    My Mom took a nap every day of her life and I think she passed the gene along to me. I've had 2 naps this week and am still sleeping well at night. When I worked, I had a 4pm slump that probably could have been prevented by a short nap.

  • cajmi
    cajmi Member Posts: 80
    edited March 2012

    Hi Ladies,

    I definately feeel like a could use a nap, but when I do, I can't sleep at night...  Back to the same old fun of sleep issues.  Trying to get out and do my walking hoping that will help with sleep.

    Happy Saturday:>

  • barbiecorn
    barbiecorn Member Posts: 437
    edited March 2012

    Okay...then it's not just me....I can fall asleep right now while I am typing....it is hard for me to actually nap but I guess I have to realize that my body has been through a lot...when I first got home from the hospital,I think I had more energy...but maybe it has all caught up to me!!! 

  • Bern25
    Bern25 Member Posts: 125
    edited March 2012

    Hi Galsal,

    I had breast augmentation 10 years ago and went with the saline.(I never really had much breast to begin with which surprised me that there was even enough to have cancer)(In fact my brother trying to cheer me up and joke with my sisters said they probably will just us a potato peeler to do the BXM, we have twisted humor that way). Any way I was told because of that surgery the recon will go much better for me and it did.  They were also happy with the fact that my implants never got incapsulated and there was a concern for this if radiation was needed. Since I got the BMX and the old implants were removed and replaced with the expanders I was given the chose for Silicone or Saline when the time comes for the permenant inplants go in. It is just my theory that the reason mine never got incapsulated/hardened is because of the saline so I will be going with the saline this time also.

    Barbiecorn...yesterday I napped for 3hrs in the afternoon and still was in bed by 8:30. We have done alot of worrying, and our bodies have alot of work to do healing and I know for myself I am not used to taking pain meds or Valium, so Yes I am still napping.  I seem to be getting more energy between naps but still need to close the eyes for alittle.

    Hope everyone is doing better everyday.

  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited March 2012

    Deborah2012 -- I couldn't imagine it would be any worse than when you had the original implants.  I don't know anyone who had a uni and then exchange/lift.  I couldn't imagine it would be worse than when you had the implants the first time. The girls I know that have had the exchange said it was so much easier than the first surgery.  They were up and around in a couple of days...one had her surgery on Friday and was back to work by Tuesday the next week. I bet there is someone around here who's had your surgery...we just have to find them for you :-)

    Naps -- I gone back to work full time and I really miss my afternoon nap.  I'm back to my same sleeping issues too...hate it!

    Fills -- my experience is that fill actually get more comfortable as I go along.  I had my forth fill yesterday.  I feel extremely "full" and there is pressure....I don't know if I'm getting used to it or if it's actually easier.  I only have 2 more to go.  Whoohoo!!!

    Houston, we have a PROBLEM -- So during my fill yesterday, PS had his little dodad out looking for the port on my right expander.  He couldn't find it. Turns out it is now on the bottom!  Yes, I've managed to flip my right expander so that the bottom is now on the top and top is on the bottom.  He said it wasn't a huge deal and he has seen it happen a couple of other times....we can fill it this way.  Of course, I'll be lopsided....ugh...only me.  He aslo drew 30 ccs of fluid from behind the TE.  Anyone else ever heard of this?

  • mma59
    mma59 Member Posts: 43
    edited March 2012

    Deborah2012, I guess I will be doing the same as you.  I had MX on left with tissue expander.  I will be having a lift on the right and hopefully a reduction cause I don't want to be as big as I was before.  Still waiting to see if I will be doing chemo so I guess the other stuff will have to wait if I need it.  I decided on implant in case anything ever happens with the right breast, I could match them up easier plus I did not want the 10-12 hour surgery!  I want to keep up with you to see how it goes and what you decide.  Good Luck!

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited March 2012

    barbie.

    I nap most every day but I come from a long family of nappers.  Most days between 2-3 pm I just can't keep my eyes open.  And then I can sleep at night as well.

    TJP - Hope things are going more smoothly now that you are home.

    The last day or so some of the discomfort has begun to subside.  It has been about 3 weeks with no reconstruction, so I know i have had it a bit easier, tho my puffy pillow will sometimes move or not stay put.  Just have to check befroe I leave the house. 

    And just when I think my kids understand what is going on, my daughter age 13, asked me if my breast was jsut going to develop again, like sharks teeth or a chameloens tail.  WOW, that blew me out of the water.  She knows about the suyrgery, knows I will have a prosthtic, just didn't think I would need the foob forever.  Denial or wishful thinking on her part. 

    Gentle evening for all

    Nel

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