9 years later a third primary cancer

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Enri
Enri Member Posts: 4

Was beginning to think I could relax but have just had mastectomy for third primary cancer 9 years after lumpectomy in right breast (2001).  First was also lumpectomy in left breast (1998) followed by chemo, rads, and tamoxifen for 8 years.  I managed ok for the first time but seem to find it a struggle to face up to prospect of possible chemo, radiation to chest wall and herceptin.  Maybe it is just that I am getting older (64).  Oh well here we go again....

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  • aspen
    aspen Member Posts: 102
    edited January 2011

    I completely understand ... my first was in 1997 (left), 2nd in 2003 (rt) and third exactly a year later in 2004 (left).  Had lumpectomies and RT first two times, then BMX and just finished 5 yrs of Femara. 

    You CAN do this.

    Hugs and prayers.

  • Enri
    Enri Member Posts: 4
    edited January 2011

    Thanks,  I know I will get through it but find that this time I feel I have had the legs knocked out from under me.  Prospect of all that treatment is creating fear,  I do yoga and am trying to meditate to learn to control my mind.   Hugs to others dealing with their situations!

  • aspen
    aspen Member Posts: 102
    edited January 2011

    My second diagnosis hit me the hardest.   The third time it was a "oh what the h*ll, here we go again moment plus I was going thru a divorce as well.   Just one day at a time...

  • ellenmoriah
    ellenmoriah Member Posts: 1
    edited August 2011

    11 years later, a third primary: this time ILC. I feel more knocked out by this than I'd have imagined. I really, TRULY, thought it was all behind me. All three cancers have been found early, including this one. But with three (count 'em), it seems awfully likely there'll be more. That's the tough part: will there be more even if I have a bilateral mastectomy and everything else the medical world has to offer? I'm 62 and trying to decide how much longer I want to live and how much discomfort I'm willing to live with. 

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited August 2011

    I opted for a mastectomy after my lumpectomy, even though I had no recurrence.   It just seems that this happens so often after lumpectomies.     You are going to be fine :-)   For what it's worth, I do not think 60's is old   .....

  • gkodad
    gkodad Member Posts: 188
    edited August 2011

    I was diagnosed with a recurrence after 9 years, and I was floored...even more shocked and upset than the 1st time.  But it was caught even earlier than last time, so I had the mastectomy.  An MRI on the other breast looked normal.  My doctor is planning another MRI next year, just for comparison purposes and then we might not be doing an MRI annually.  So maybe this will be it..  Or maybe not...  I'll just keep on top of everything and hope for the best, which is really all any of us can do.

  • Mina1
    Mina1 Member Posts: 50
    edited November 2011

    Enri and Fearless one

    I had a recurrence after 4 years. I was shocked too.I had a partial masectomy.2nd time  I am now struggling with the decision of a full masectomy.  I am scared to get rid of my breasts but may have to worry about this coming back. How old were you with first diagnosis? What stages were your cancers?

    The cancer card sometimes never ends. We can be good and have a masectomy but it can come back anyway. It just does not seems so unfair.

  • Mina1
    Mina1 Member Posts: 50
    edited November 2011

    Hang in there. Hugs

  • Enri
    Enri Member Posts: 4
    edited January 2012

    I haven't been back for awhile.  Treatment finished.  Herceptin stopped as now have heart damage and seeing a cardiologist, otherwise I am doing well. I  even have some short hair.  I have mastectomy on remaining breast due in April.  No plans for reconstruction.  Love and hugs to all

  • dreaming
    dreaming Member Posts: 473
    edited January 2012

    Unfortunately breast cancer can come back after many years, there was a posting of somebody after 19 years. It seems all were very good with their follow ups.

    That is all we can do, hoping  that a recurrence is found early.

  • Mina1
    Mina1 Member Posts: 50
    edited January 2012

    Dreaming

    Can you direct me to the posting where cancer happened after 19  years. All we can do is hope for the best. There are no guarantees just lowering ones risks.

    Mina

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited March 2012

    That was me - a new primary after 19 years!  I had a lumpectomy, rads and chemo when I was 34, followed by 19 years of follow-up.  During this year's mammogram/sonogram, a new DCIS and a small (9 mm) IDC were found.  Since they were in the same breast as the original, I could not have another round of radiation and I opted for a bilateral mastecomy. 

     I am almost glad that the new primary occurred in the same breast. Had it occurred in the other, I would have been struggling with the idea of another lumpectomy, when what I really wanted to do this time was get rid of "them."  Even though I am BRCA negative, there is clearly something in me that creates breast cancers and the prophylactic mastectomy on the other side just felt "right."

    Because I kept up with my yearly mammo/sonos, this new primary was found early - thank God for the sharp radiologist who found it!  I am in the midst of chemo, but am hoping to go another 19 years - heck - forever - without another breast cancer.  It is unlikely that it will recur in the breast - it is metastasis I will need to worry about.  

    Just rambling.  My situation is an unlikely occurence - I don't think the average breast cancer survivor needs to worry about a new primary after so many years. 

    Joan

  • Karen3
    Karen3 Member Posts: 307
    edited March 2012

    Hi there - I am in same situation as JoanQuilts. I am TN and have just had a bilateral mastectomy due to second breast cancer in opposite breast. I was more than happy to have the surgery as my  second BC (4cm DCIS this time) was NOT seen on mammograms or ultrasound. I found the swelling / ridge in my breast in the summer of 2011. It was growing / changing quickly and my surgical team said later that they believe it was the precursor to another TN IDC. They said that ironically early fast growing aggressive cancer cannot be picked up by mammograms because of lack of calcifications. I also had dense breasts which make detection difficult. I feel that my own regular self checks/self examinations may well have saved my life. Who knows how long it would have been before the new cancer showed up on my annual mammogram screening. It would certainly have become invasive by the time traditional screening methods picked it up. They strongly recommended a bilateral mastectomy and it felt right. There is no way I want to go through this again if I can help it! Wishing you all the best Erni.

  • germanygirl
    germanygirl Member Posts: 1
    edited March 2012

    Rita - so glad to see there is a three-times survivor out there. I have just found out that there is a lump in my left breast, which they "suspect" is only an adenoma, and should be kept "under observation". From December 2010 unil May 2011 the oncologists and two gynaecologists insisted that the lump I had found in my right breast was just a cyst. It wasn't - it was a local recurrence in what little remained of the original breast tissue after my mastectomy in 2008, and had grown larger than the originl tumour. My husband has said tonight he can't take it any more after four nightmare years (chronic problems with my reconstruction and Tamoxifen) and basically told me to deal with it on my own. I am devastated. I am only 45 and we have a 10-year-old son, but I now believe it would be better to end it all so that my husband and he can get back to a normal life. Reading your entry has made me feel better. Thank you.

  • geewhiz
    geewhiz Member Posts: 1,439
    edited March 2012

    Germanygirl...WELCOME!! We are glad to have you here with us. YOU ARE NOT ALONE! Post away, you will make many new friends to share your journey with. Your son needs you! You are not replaceable. Nobody gets through life unscathed. Some wear their scars outward, and some inward. But we are all in this together. So take heart, and know that we are all by your side!

  • Fytnlykeagirl
    Fytnlykeagirl Member Posts: 15
    edited March 2012

    ellen your 62 years young our Father is not ready for you to stop fighting, hes not ready for you to go yet.  He brought you to this again and he will continue to bring us all through it. Keep being strong and keep fighting!  We're all here for you and you are an inspiration.

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