What did you use on skin during radiation?

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Momof2inME
Momof2inME Member Posts: 683
edited June 2014 in Stage III Breast Cancer

I know this should technically be posted in the radiation section, but I have found all of you so helpful. Plus, unfortunately I know as stage 3 we have all had or will be having radiation like myself.

So that I can get prepared (Type A I am) what are some of the skin products you used during radiation. Heard a lot about emu oil, aloe vera etc. But where do I even buy emu oil?? Looking for suggestions and helpful hints... Thank you

Brooke

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Comments

  • jancie
    jancie Member Posts: 2,631
    edited March 2012

    I used Aloe Vera gel that I got at a natural shop - 100% aloe vera.

    The problem with the stuff at Target, etc. is that many of them have chemicals in them but worse some amount of alcohol and you don't want to dry out your skin even more. 

    At night I used Aquaphor as it is pretty messy to use during the day.

    I am VERY fair skinned.  I went through 24 treatments before I even got a sunburn and made it through another 6 treatments and never blistered or peeled.

  • lexi4
    lexi4 Member Posts: 1,074
    edited March 2012

    Hi Brooke,

    In the beginning I used the 100% aloe. More than halfway through rads, my RO phoned in a rx for silvadene cream. It worked well. I, too, am fair skinned. Didn't blister but I did get really red and my skin kind of sloughed off.

    Take care,

    Lexi

  • diana50
    diana50 Member Posts: 2,134
    edited March 2012

    100 percent aloe vera.  i think it is the best thing to use. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Emu oil. It's pricey, but it worked great!

  • Momof2inME
    Momof2inME Member Posts: 683
    edited March 2012

    Windlass: Where did you buy emu oil? is there a certain brand??

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    I got my local health food store to order it for me, but you can find it online. It's $25 or so for 4 ounces, but you won't use the whole bottle.

    Only thing is make sure it's not rancid, since it can go bad if it's been on the shelf a while.

  • menan
    menan Member Posts: 37
    edited March 2012

    I have fair skin and the rad said he was amazed at how good my skin came through even though I did blister and my armpit turned black.  14/15 lymph nodes had cancer and cancer had broke out of at least 2 so he used all the radiation he could on me.    I used  St. Ives Replenishing Mineral Therapy. The Mineral Therapy really cooled my skin and make it feel more elastic.  I also use this on my hands and feet for neurpathy.  No scientific proof but I did not have hand and foot syndrome when I was on Xeloda and even ended up in hospital.  Other oncs drop in just to see my hands and feet because they couldn't believe it.  I credit the Mineral therapy which I used all the time!

  • Wordwrangler
    Wordwrangler Member Posts: 29
    edited March 2012

    Try lindiskin @ www.lindiskin.com it saved my life. I never tried emu but I got a huge rash using aloe. I have finished treatment but I still use lindiskin. My Radiology Oncologist's nurse turned me on to it. I love it. I had chemo 6x and 35 rads treatments Lindi skin is all I used. I'm in great shape and my doctors are happy.

  • MaxineO
    MaxineO Member Posts: 555
    edited March 2012

    Olive oil!  My RO recommended it, and I had an olive oil salve that I had bought at a craft fair, so it wasn't just liquid.  It worked wonders.  It was definitely messy, but any oil would be.  She also said to use it on my scalp to help hair growth.

  • Pegs
    Pegs Member Posts: 198
    edited March 2012

    I used emu oil too and i loved it, i got it at my local vitamin shoppe, but you can order it online too.  I only wish i found it sooner

  • pheno
    pheno Member Posts: 12
    edited March 2012

    The NP at my radiology center recommended Miaderm (online, expensive) and Calendula cream (at your local natural food/products store, not so expensive).  I'm using the Calendula cream and it seems to be doing the job.  Not at all messy or oily.

  • fredntan
    fredntan Member Posts: 1,821
    edited March 2012

    I just got the aloe vera stuff at one of those mastectomy stores, but saw same bottle, cheaper at whole foods. think I saw emu oil there also.

  • gillyone
    gillyone Member Posts: 1,727
    edited March 2012

    I was given Jason's aloe Vera by the RO which I used all the time and then got a tiny tube of Aquafor for a little spot which was extra red and tender. It is very messy. I'm very fair skinned too and did well with my skin. The RO said there was no connection with how fair or not your skin is and how it holds up to rads.

  • Kicks
    Kicks Member Posts: 4,131
    edited March 2012

    Don't remember the names of the creams I used - they were samples the Center kept me supplied with. For the most part they worked fine - just a very mild 'sunburn' after 23rd/before 24th rad but day after last (25th) the entire irradiated blistered and was oozing. What finally healed the area many weeks later was Domebro soaks. During the 'open" time, Dr did not want any creams other than Aquaphor or plain aloe (thankfully I had a huge aloe plant and just about killed it taking so much of it to use).

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2012

    Definitely emu oil.  My rad onc actually recommends it over 100% aloe vera gel for her fair skinned patients, and that's how I found out about it -- from another patient.  Wherever you buy it, be sure it's "super refined."  Slightly less expensive ones can be a bit gritty, which isn't good on radiated skin.  The super refined brands are very pure and smooth.     Deanna

  • chef127
    chef127 Member Posts: 891
    edited March 2012

    I read an article that said that using creams did not help with skin that has been radiated. Thats hard to believe. I did use use emu, and some aloe but not regularly. The rad nurse yelled at me for using any oil," just use creams." I used the emu because it is sooo softening. My skin never broke down or burned but turned brown a little peeling. My last tx was tuesday and the clave area and my armpit is fully healed.....Who knows. There are so many conflicting recomendations.

  • marjie
    marjie Member Posts: 1,134
    edited March 2012

    My RO recommended Glaxol - You can get a big tub of it at Costco.  It's not glamorous, but I love it...still use it as a regular moisturizer now because it works so well - even on my face.

  • krcll
    krcll Member Posts: 343
    edited March 2012

    Just to muddy the waters even more, I was told not to use ANYTHING. So I didn't. I had no burning or any discomfort. But I as I am not fair-skinned, I might just be lucky there... Good luck. It is a piece of cake compared to chemo!

  • Outfield
    Outfield Member Posts: 1,109
    edited March 2012

    Two aloe vera plants.  Just chopped sections - you can get a surprising amount of gel from a relatively small piece of the plant.

  • jdootoo
    jdootoo Member Posts: 253
    edited March 2012

    http://shepherdschoice.com/

    Hi Brooke,

    My sister's friend started this company. She has a sheep farm and uses all natural ingredients. If you are not allergic to lanolin, I highly recommend her products. I used the Lanolin Rich moisturizer during rads and my oncologist commented on how she had never seen skin come through rads with so little damage. She also makes a sunburn soother that is wonderful.

    Best of luck,

    Jackie

  • Zinnia
    Zinnia Member Posts: 8
    edited March 2012

    My radiologist recommended Calendula Lotion by Boiron.  It is pretty light weight and worked well the first couple of weeks.  Once I started getting red I added Aquaphor to seal in the moisture and it worked great. No blistering or skin breakdown.  I wore my husband's undershirts as my first layer so my clothing would not get greasy or stained. They initially thought my skin would do poorly due to my history of sun exposure, but my skin did fine although I did lightly peel at the end. Always made sure I slathered the aquaphor on at night.

    Good luck,

    Zinnia

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited March 2012

    I also recommend calendula cream by Boiron.  They have done some research studies on it that show it can make a difference.

    http://www.mskcc.org/cancer-care/herb/calendula 

    Literature Summary and Critique
    Pommier P, et al. Phase III Randomized Trial of Calendula Officinalis Compared With Trolamine for the Prevention of Acute Dermatitis During Irradiation for Breast Cancer. J Clin Oncol 2004;22:1447-53. Two hundred fifty-four patients who underwent surgery for breast cancer were randomized to receive either Calendula or trolamine, a routine treatment for topical application during postoperative radiation therapy. Occurrence of grade 2 or higher acute dermatitis was significantly lower in patients who used Calendula compared to those who used trolamine.
    Due to differences in texture, color, and smell, the trial was single-blinded. Double-blinded studies are needed to confirm the beneficial effects of calendula. 

  • NancyD
    NancyD Member Posts: 3,562
    edited March 2012

    I was given a calendula cream by the rad's physician's assistant. They kept me supplied, just had to ask for another tube when I needed it. I also bought some Aquaphor, but used it less because it is rather messy (like slathering on Vaseline).

    By the end, though, nothing seemed to stop my skin from peeling, like after a sunburn. I still have tiny spots where the skin get crinkly and peels, and it's been over three years!

  • Medigal
    Medigal Member Posts: 1,412
    edited March 2012

    I was told "only" to get a jar of Sween Cream and use it.  It worked great but I have no idea what was in it.  I just had to use a small bit of it and never used it again for regular use.  I thought it was only for use if you had radiation treatments.  My Onc was amazed that my skin showed no sign whatsoever of even having rads.  I am olive skinned so maybe that helps. 

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited March 2012

    I used the Aloe gel that they supplied in the radiation treatment changing rooms and was sold at the pharmacy downstairs.  Something like $5 which was all I needed for the whole period.

    After I got home from each treatment, I would also slather on Bag Balm, a veterinary product for sore, chapped cows' udders.  It has a lanolin base, and various herbs.  I knew that it was very effective on our cows growing up from the obvious relief they expressed when I would apply it.

    I got no more than very minor skin peeling and no problems with "skin healing" at the end.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited March 2012

    Oh, and I use body creams/lotions or body butters on both breasts now.  Something that keeps my skin soft and smells nice.  I had a ton of stuff, so still haven't needed to buy anything almost 2 years later.

    In this respect, I follow Mae West's lead, but don't spend quite the hour she claimed rubbing skin creams into the area.  I do both breasts as half way through treatment, I noticed that the breast having radiation looked much better than my other one.

  • stage1
    stage1 Member Posts: 475
    edited March 2012

    Aquafor and Aloe Vera (make sure you get the gel without alchol)  I wasted some money before I got the right stuff. And always check your products (even prescriptions) to make sure there are no parabens.  And... I blistered toward the end, under my breast and Neosporum ointment worked great for that.  My RO prescriptions both contained parabens, so I got the nurses advice.

  • Momof2inME
    Momof2inME Member Posts: 683
    edited March 2012

    Claire,

    It's funny you mention bag balm. My father swears by it. He puts it on dry skin, scrapes, his balding head, and even my son's bottom for diaper rash. He bought me some last week as he takes care of my son a few days a week. He said I needed a supply at my house for him...Smile

    Thank you everyone for all your suggestions. I'm tempted to get a small amount of everything to make sure I'm covered...:)

  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited March 2012

    Hi, I used Udderly Smooth. It  is thick and greasy, it worked great on my skin. I got it at my local grocery store.

  • financegirl
    financegirl Member Posts: 114
    edited March 2012

    We got a sheet from the center with what to use.  Early on told to use Aquaphor.  About midway thru, given a prescription for Silvadene for the redness/soreness and to sprinkle Zeasorb A/F powder on the site (it is an antifungal for athlete's feet) to avoid infection.  Sessions toward the end may begin to get "wet" or weepy looking.  If it does told to buy Domeboro soaks (astringent to dry the area) and while using Domeboro, use no creams, lotions, etc but also sprinkle Zeasorb on the site.  At my 2 week appt after last session, the area was again dry and told okay to go back to Aquaphor.

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