TUMOR MARKERS AFTER DCIS?

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pkb3937
pkb3937 Member Posts: 54
edited June 2014 in DCIS (Ductal Carcinoma In Situ)
TUMOR MARKERS AFTER DCIS?
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  • pkb3937
    pkb3937 Member Posts: 54
    edited March 2012

    I am one year post diagnosis.  I had my double mastectomy in April of 2011.  I am refusing to have Tumor markers drawn because I have heard that other things could give false positve results.  I also can not take the stress of waiting on any more test results.  I know that sounds crazy.  If I had had an invasive cancer, I would not refuse them , of course.  I am just now in a place in my life where I can relax.  I am all healed from my reconstruction surgery and I have never felt better.  My doctor usually does them on all his patients, but he understands my point also.  Does anyone else NOT have Tumor Markers drawn after DCIS?

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  • Beesie
    Beesie Member Posts: 12,240
    edited March 2012

    I had DCIS with a microinvasion and had a single mastectomy.  I've never had tumor markers drawn and it's never been suggested by any of my doctors (surgeon, PS, oncologist, PCP, gyn).

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  • pkb3937
    pkb3937 Member Posts: 54
    edited March 2012

    Thanks Beesie,

     Do you think Im being unreasonable to refuse them?  I have an appointment next week and I hate to feel non-compliant.  I told him he can ultrasound me and examine me all he wants....lol

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  • brazos58
    brazos58 Member Posts: 261
    edited March 2012

    I just asked this same Q to my Surgical Oncologist and she said NO on the need for tumor markers.

    Hope this helps.

    Blessings!

    brazos

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  • Emaline
    Emaline Member Posts: 492
    edited March 2012

    This was never even offered to me.

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  • deborye
    deborye Member Posts: 7,002
    edited March 2012

    In November 2010 my onc ordered the usual CA, CEA, CA15-3 and CA 27-29, most were in the normal range.  The CA 15-3 was in the high normal range but the CA 27-29 was 45.9, normal for that is 38.6 U/mL.  In February of 2011 the CA 27-29 was 42.1 then in July 2011 it was 41.4.  In March 2007 I had a lumpectomy 2X because of DCIS which the margins were to close, Rads and 4 more months of Arimidex.  The CA 27-29 can be elevated due to B9 reasons so after a CT can and uterine ultra sound, it showed I still have uterine fibroids since 2003 and remain the same.  My onc and I are pretty sure the abnormal TM is due to the Fibroids.  But of course every 6 months I have to have the tests done.  I wish she never ordered them because it scared the SH** out of me. I lost my Mom to this beast 16 years ago.

    I was a little over 3 years out when she ordered the tests.  Even she had a suprised look on her face when she opened the folder. 

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  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2012
    I'm nearly 2.5 years out from diagnosis -- Never offered to me, never suggested.  I'm not "looking for trouble" and already had my false positive MRI. 
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