Working during chemo
Hi,
This is my first post on these boards, but I'm so glad to find a place to talk to other women my age! I just got done my second round of chemo (I'm on adriamycin, also called the "red devil") and it's kicking my butt. I'm usually a high strung, type A personality who never calls out sick, but I'm having a rough time making it to work these days. Am I just a wimp or are there others out there who are having a tough time working through chemo?
Comments
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Hi. I'm not really "young" as I'm 47 but I feel young. I had to take a leave from my teaching position for chemo. There is no way I could be working during. I guess it depends on the job, but you are not a wimp at all. This is toxic stuff and it effects each person differently but don't be hard on yourself. It's tough to go through this.
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I'm also 47 (well, I was last year when I had chemo). I had to take many days off of my teaching position for chemo. I took at least a week off for reach round. It kicked my booty on many days, so you are definately not alone. Don't be too hard on yourself. If you can take the time off, take it off and take care of yourself.
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I'm 46 and work for a university as an oncology clinical trial coordinator - full-time job. My employer has been very good about accommodations for me during chemo. We have a VERY generous sick leave allowance but since we are all employed on 1 year contracts I am nervous about taking too much time off and not having my contract renewed. Part of my accommodations is that I am all set up to be able to work from home. This works because I can basically do everything except hardcopy filing.
I've been doing FEC 3 weekly on a Thursday afternoon. I have worked the Thursdays until I need to leave to walk up to my cancer centre (attached to the same university). Then I have either taken Friday as sick leave or once I did manage to work a half day from home. Then I've taken the Monday and Tuesday as sick leave, worked from home at least for the Wednesday and then gone back into the actual office fornthe rest of the week and the following days until the next treatment.
So I've had on average 3 days off each cycle. Bit worried about starting weekly Taxol next week though. I have organised for the infusions to be Friday afternoons and am hoping that it is more tolerable like everyone says and that I'll be able to work from home on Mondays and then be back in the office from Tuesdays...
What sort of position do you have? Is it office based?
Jenn -
PS: I have had horrible nausea despite the meds. Also the horrible mouth - white thrush tongue, dry, sore... A few other SEs as well, but luckily no major bowel probs to deal with (minor ones though).
Jenn -
Chemo knocks everyone done no matter how strong you are. I was up to a week off before my last chemo. Don't expect too much of yourself! It will drive you crazy if you do. It is normal to take time off. Some people take 6 months off. If we were smart enough to have a good disability policy we would be able to cash in. So, if the insurance companies can see it as a disability, then you should be able to also.
Sorry you have to deal with this crappy horrid disease, but glad you found your way here.
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Hi misslene: Just wanted to chime in. I was 38 at chemo, with 2 young kids at home and working full time. The A/C was kicking my butt, but I was able to mostly work through chemo, but it was hard. I would take Thursday off for treatment, then do a little (very little) work from home on Friday and back to work Monday. I'll be honest, I was hardly at 100% productivity for a whole week following A/C. Everyone responds differently to chemo. Don't feel bad about not being your full type-A self, that chemo is HARSH! And the best thing you can do is get your rest and not stress.
The good news for me was that the Taxol was MUCH easier for me to tolerate. Everyone responds differently, but I felt like a new person once I finished A/C and moved on to taxol. You can do this!!
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I was 30 and working full-time when I had the "red devil", after completing I would take the day of the treatment off. I was lucky to have a very understanding bosses (I was like the 5th to have breast cancer in the department) and my schedule was flexiable.
I didn't use an alarm clock, I let my body tell me when to get up, when to rest, etc, the biggest thing was making sure I had energy meaning always have a snack in reach distance along with gatorade. I don't have any kids by high demand job that is year around, 7 day a week with 14+ hour days. Needless to say I was lucky to make to the 8 hour mark. I really didn't have SE except for sinus infections biggest thing is learn to listen to your body.
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