IDC or IBC..???

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angiebaby1
angiebaby1 Member Posts: 6
edited June 2014 in IDC (Invasive Ductal Carcinoma)

I was diagnosed with Invasive Ductal Carcinoma on 11/14/2011....I saw a breast sugeon a few weeks after and she said I have IBC. WOW!! I did all the reasearch I could and wasn't started ion chemo until Jan. 11,2012. My tumor was right under the nipple of my left breast...and it was huge.

A little more history about that lump. The year before is when I found the lump and went to my doctor who then sent me for a mamoogram and an ultrasound. I was told by the radiology department at the hospital and my doctor that it was a cyst and not to worry about it. 

almost 1 year later i ended up in the emergency room  getting a biopsy. 

The lump was so large and painful that my whole breast was irritated and red...and infected as I was treated with 2 different anitbiotics while i waited for the test results. 

I have had a biopsy, an ultrasound,an MRI, a pet/scan, 2 lymph nodes were also biopsy(negative)...thank goodness.  I just finished my 3RD round of chemo(Taxatere and cytoxen).

My Oncologist said after only 13 days after my first treatment..."I don't beleive that you have IBC."

WOW!!! that would be awesome of course....the tumor had shrunk to less than half the size we started with.  Today we can't even feel a lump and I see my new breast surgeon next Wednesday....

Here is my question or rather questions.....

How do they know for sure if it is IBC?? 

Could they have just misdiagnosed me?because due to where the tumor was, it could have been irritating me in a number of ways.

The pathology report says Invasive Ductal Carcinoma

 Are there any other tests I should or could ask for?

I was thinking about it and my energey level was tanking back in September of last year while before I was diagnosed. I mean if it were IBC it is fast spreading and according to the pet/scan it has not spread beyond the breast right under my nipple. 

I think they are wrong but I want to make informed decisions when it comes to surgery and radiation and whetever may be left to do.

thank you for your input and God Bless.

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  • cc2008
    cc2008 Member Posts: 6
    edited March 2012

    I wish I had some input to help you, but I feel like I'm headed down the same route.  It seems that there is a lot of "cyst" diagnoses that end up being cancer.  Praying you'll get some answers soon!

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited March 2012

    I had a biopsy done last Tuesday and on Friday they called and said I had IBC.  But then today I get a call from the hospital where I will be treated and the nurse said I had IDC.  She said IBC can only be positively diagnosed by a skin punch biopsy which I did not have.  So I'm in the same boat waiting to see whats really going on.  I will find out Friday for sure.  Good luck with this, hopefully you've had some answers by now.  

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  • ma111
    ma111 Member Posts: 1,376
    edited March 2012

    I think it is not IBC. The lump is my first clue. IBC grows in sheets and confirmed by a skin punch bx. There is no lump with IBC. The pathology report said IDC and that is what I believe. The mastitis cleared up with antibiotics, so that what that was. IBC travels in the nodes. It would be very unusual to have negative nodes. 2 months with no chemo for IBC, your affected breast would have grown a few cup sizes and be painful, etc.

    Mammograms are usually negative, so are MRI and such.

    I think they were wrong and don't know of any tests for you to ask for. Just confirm it when you see them next.

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