March 2012 chemo

Wondering if headaches are a side effect.  Terrible, terrible headache and some strain around jaw.  Not a normal occurence for me.   I'm 3 days out from first TCH treatment and this headache is something else.  Wondering if anyone else has gotten them? 

And TC9876:   I also had heartburn.  For me days 2 and 3 after treatment.  So far, none today:)

Sissydi - even though I don't have a start date, would you add me to the list? A/C x 4  T x 4  Thanks.

galena_79 - No, they haven't found a primary tumor.  I'm wondering if my MRI will find one Wednesday.  Mammo, CT Scan and PET Scan showed nothing in my breast.    I went to dr for swollen lymph nodes under my arm and had a sinus infection. They were thought to be swollen from that.  They just sent them to be checked because they took them out and it's standard procedure not expecting it to be anything else. 

PET Scan showed all three levels of breast lymph nodes and also nodes in my neck and chest.

I got my port this morning. All went well.  I'm sore now, but it's not as bad as the incision from the biopsy.  Chemo starts Thursday, still don't know what yet.  Will update as soon as I do. 

Hi Marchers,

I am now able to fuzz my way through the haze I have been in for the past few days. Day 4 was a wash for me, I could not even keep my eyes open to eat, it wasn't tired but a feeling of complete helplessness. I am feeling much better today and was able to work from home for 5hrs. Still feeling a bit dizzy and light headed, a stray headache hear and there. The taste bud is completely shot. Everything taste of metal or salt. But all in all I was expecting much worst, so still happy with day 6. Has anyone else been passing gas, I spent all of last night in a fetal position just passing gas.



Welcome to all the newcomers !!!! Margaret hopefully your have minimal SEs after your treatment.



Wishing all minimal SEs and lots go HUGS!!!!!

So if chemo began on Thursday, is that Day1? If so, Day 5 didn't work out so well.



Zillamom- i'm sorry you have to go thru this again. Welcome.

Hi ladies- for those asking the day of treatment is considered Day 1. It's good to know so you can communicate timing with your medical team because that's how they will think of it.



For anyone worried about the TEs and implant, the TEs feel nothing like implants. I had implants prior to my BMX and so had space in my muscles for the TEs and even mine are super firm and uncomfortable. You can probably also feel where the different materials are or maybe even folds. Your implants will be soft and comfortable and because you have TEs they will feel more natural right out of surgery. I can't wait to get mine switched out. I'm going with silicone as I had saline before and know they won't look natural without any breast tissue over them.

Alicea: you described me exactly. It's gets better. I felt like myself on day 8.

Masserz: went to therapy for the first time today because of these TE. Very intense stretching by therapist of my entire chest. I hope I can move tomorrow. She said I am extremely tight. I can't wait to get these things out and get the implant. Thanks for the light at the end of the tunnel praying for you Thursday

Thanks msbelle! Let us know how the PT goes. I may ask my PS about it too. I'm so tight I feel like it's hard to sit up straight. I just got the drain removed from my ALND so I'm only now able to do much stretching again. I have cording again already on that side now. So bummed!



Lisajcj, how's your cording issue going?

Hello Ladies, It's sad but I feel a strange sense of comfort knowing that I am not the only one suffering.  Today is Day 6 and I still feel like I am still in a fog but less so.  Day 2 of work and I truly do not want to be here.  No nausea or anything though...just general malaise.  I have been sleeping like a rock.  Heartburn went away, taste buds are subpar.  I've been eating a bit of junk to see what will stimulate the taste buds.  Nothing thrills them. 

I keep reminding myself that this too shall pass.  We will make it through!

Hi all. I am new here and have only posted once. I am supposed to start chemo on march 12th to the best of my knowledge. I have a PET scan tomorrow, a MUGA and CT AND port insertion Friday and then onto the oncologist Monday for "education" and to get started. All the drug names went in one ear and out the other at my first meeting with the onco so I will post more when I know more. Oh and I am having neoadjuvant chemo bc that us the way my surgeon/onco proceed these days do the only surgery I have had so far is my sentinel node biopsy. Best to all.

Hi everyone.  I agree with TC.  I am also at ease that we all have this place where we can lean on each other and share our highs and lows!  I am right behind your TC, today is my day 5.  Still have the headache and the jaw pain comes and goes.  Another problem I have is I must have been in the bathroom 5 times last night.  I kept waking with stomach pain.  All together I must have went a dozen times yesterday.  What is up with that?  No more senekot for me. 

 I have been lucky in that I have not really had much nausea.  I made a scrambled egg this morning and I could taste the butter I melted in the pan.  It was "gross".

Galena, my heart goes out to you.  Lisajcj is right maybe there is something more they can prescribe.  I am new and don't know all that you are taking, I had the tiniest bit of nausea upon waking.  I was very lucky.  I took emend, zofran, and compazine.  My nurse told me to interchange the zofran and compazine whether I needed it or not for at least three days.  Hope you have a better day today.

I have an 8 and 11 year old Katy. Thank goodness they are old enough to understand somewhat and be a little more independent but worrying about them is the worst part of all this for me. How old are yours?