update

roxy42
roxy42 Member Posts: 495
edited June 2014 in Stage III Breast Cancer

Hi ladys just letting you know that Im 4 and a half years out.Dr put me back on arimidex after trying all the drugs.I have been sick for three months and dr dont know why scans are fine.Going for a upper GI on the 6th because have been having swallowing problems.Can arimidex cause that My ONC says no but i have read all the side affects and swallowing problems are one of them.I have begged him to take me off but he wont.I have lost 48lbs in three months because of the swallowing difficulties.Im freeking out about this test.Any advice ladys on weather i should go off arimidex and see if swallowing gets better.My Onc wont listen to me.My ins wont pay for me to see another.Onc any advice would be great

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Comments

  • Karina121293
    Karina121293 Member Posts: 370
    edited March 2012

    Roxy, I have no experience with Aromasin. Surely others will post with some advice. I just wanted to wish you good luck with the test. I, myself have Tamox bad SE and in the same situation- to go off for a while or not. Hope you get answers and relief very soon.

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  • diana50
    diana50 Member Posts: 2,134
    edited March 2012

    roxy

    i was on arimidex for 6 years; i didn't have swallowing issues.  is your throat swollen or is it in your jaw and muscles in the throat area? 

    i hope you can get this issue resolved....let us know* 

    hang in

    diana

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited March 2012

    Roxy .. I am so sorry this is happening to you.  I had severe nausea and vertigo on Arimidex.  Have you tried Tamoxifen?  It might not have the same side effects.  I hope you get the all clear on your GI series.

    Keeping you in my thoughts,

    Bren

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  • financegirl
    financegirl Member Posts: 114
    edited March 2012

    I probably can't be of help - I am on Arimidex (and it's generic) but only going into my second month.  I don't have problem with swallowing but about 2 hrs after taking it I experience bone/joint pain.  It gets less noticeable after about an hour and then life goes on. 

    My hope is they figure it all out for you and your situation gets better.

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2012

    Roxy, I have been on Arimidex (and now it's generic) for 3-1/2 years. I haven't had a problem swallowing, but if I were you I would print out the manufacturer's side effects and show them to your onc. Just because it is a rare SE doesn't mean you don't have it.

    What does he say about trying another AI? 

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  • jennifer1
    jennifer1 Member Posts: 185
    edited March 2012

    Well I dont take that but I lost alot of weight.  Caught it in blood test, thyroid  hyper.  Worth checking never would I have dreamed I had that problem.  It is in your throat.

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2012

    roxy, we're sorry to read you're going through this (and looking back at your old posts, I see you've tried everything before going back to Arimidex when the generic forms of the others caused allergic reactions).

    The main Breastcancer.org site has an article about Swallowing Problems and some causes and ways to help manage these problems. Please let us know how your test goes on Tuesday.

    Judith and the Mods

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  • roxy42
    roxy42 Member Posts: 495
    edited March 2012

    I have been on all the AI and tomox and couldent tolerate them.Its been a total of 4 and half years on these drugs.Dr cant put me on any other Im so close to the 5 year mark.Going tomarrow the 6th for the upper GI and I.m totaly freeking out........I will update when i know some thing please pray for me

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