Informal Poll - Where were you treated and what was your chemo?

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  • Kicks
    Kicks Member Posts: 4,131
    edited March 2012

    I'm on the Northern Plains and was outsourced by VA to the local Cancer Care Center that is attached to our local hospital. I don't know of any other Centers closer than 300+ miles away. This was in 2009.



    I had 4 A/C 2 weeks apart followed 2 weeks ater by a Mod. Rad. Mast.. 3 weeks after surgery started 12 weekly Taxol and a week after last one started 25 rads. Have been on Femara for a bit over 2 yrs.

  • Lutienyc
    Lutienyc Member Posts: 9
    edited March 2012

    I am being treated at New York University.



    I will get 12xTaxol, then FEC 4 x (day 1 FEC, day 4 more F on a 21 day cycle), Herceptin every 3 weeks.



    I have complete node involvement in the left chest region , with 7 areas of ILC and IDC.



    NYU changed to this protocol this year ( from ACT), after results from trials at MDA and in the UK.



    BMX and rads I am not thinking about just yet!

  • krcll
    krcll Member Posts: 343
    edited March 2012

    I got FEC100 x 4 and Taxol weekly x 12 + Tykerb one year (ALTTO trial). FEC seems to be the European and Canadian preference instead of A/C. I asked my onc about it and he said that Epirubicin (the "E" in FEC) is less hard on  the heart than the "A" in A/C, and that this was especially a consideration for HER2+, women because Herceptin is also hard on the heart. I also read somewhere that Epirubicin is more expensive than the "A" in A/C, but I don't really know if  that is true. I figure there must be other factors to consider, since it seems most Americans use A/C instead of FEC.

    I have understood that FEC100 is a kind of "dose dense" type of treatment. HER2+ women get FEC100 x 4 plus a taxane with Herceptin, while HER2- women get FEC60 x 6. The difference is the amount of Epirubicin- 100 mg/m2 compared to 60 mg/mmg/m2 each time. But the total amount is nearly the same.

    I do think that in the end it doesn't matter much which we got. They are always trying to find something a little bit better, but the differences are small.

    Edited to say that I got treatment in Norway.

  • weesa
    weesa Member Posts: 707
    edited March 2012

    Posy, I had almost what you had in early 2003. DD AC and DD Taxotere. Before my mastectomy. I think I might have been one of the earliest patients to receive this protocol, and was the first for my onc. My  onc is in NC but Yale educated.

    I am doing well almost ten years out. Weesa

  • jenlee
    jenlee Member Posts: 504
    edited March 2012

    GeorgiaRal, my head is spinning too!  

    Now I'm worried that I might have been better off with DD ac x 4 & DD T x 4, as opposed to the TAC x 8 every three weeks that I'm doing...  now that I'm on the 5th of 8, I guess there's no changing it.

  • Racy
    Racy Member Posts: 2,651
    edited March 2012

    It's interesting that there are only a small number of treatment protocols mentioned throughout this thread and they essentially involve the same drugs and are quite aggressive as I understand it. This shows that treatment is quite standard.



    This is good information for anyone about to start treatment.

  • diana50
    diana50 Member Posts: 2,134
    edited March 2012

    the clinical trial i was in back in 2002 was this:  one arm:  TAC x 6 every three weeks OR AC-T

    i got the TAC

    there are studies comparing the results.  it was BIRG clincial trial but i can't remember if it was BIRG 5 or BIRG 6.  i think both showed good promise for people with lots of lymph node positive.  that is how i qualified for the clinical trial because of all the pos nodes . 

    my treatment in rancho mirage californa.  (southern california) 

     bestCool

  • clariceak
    clariceak Member Posts: 752
    edited March 2012

    My onc is at Swedish in Seattle so after my bilat had

    AC  DD X 4

    Taxol X 12 weeks

    and then rads at Chomp in sunny Monterey, CA!

    My onc was considering put me in a trial through University of Washington for AC DD x 6, but during my first treatment my counts were so low I had to beg her to keep me at the same level of AC.  I think someone else on this board completed the trial.

  • NancyD
    NancyD Member Posts: 3,562
    edited March 2012

    I had neoadjuvant TAC x 4, BMX, and an additional adjuvant TAC x 2. My onc said he liked to split it up...how's THAT for personal style?

    Chemo and surgery were at my local community hospital which has a small cancer center, but being in a NYC suburb they confer with oncs all over the tri-state area.

    Rads at New York University Hospital for five weeks because it was within walking distance of work. Recon at Beth Israel in NYC.

    Arimidex for 3-1/2 years at this point.

  • Maya847
    Maya847 Member Posts: 41
    edited March 2012

    I was treated in Iowa.  I had a lumpectomy and although I was stage 1b, grade 3, my onco score was a 45.  My oncologist thought it was best to be very agressive, thus I did TAC every 21 days for 6 cycles.  The plan was to follow this with radiation, however after my 5th cycle I learned I was    BRCA 2 +. (I really wish they would have tested for this in the very beginning)  I was at Mayo in Rochester, Mn. this past week and am now scheduled for bilateral mastectomy and reconstruction...  

  • oaktownmom
    oaktownmom Member Posts: 114
    edited March 2012

    I am being treated at UCSF in San Francisco.  Did BMX, DD AC x 4 and weekly Taxol x 12, started Tamoxifen as soon as I finished chemo, currently in the middle of 25 rads.

  • jennifer1
    jennifer1 Member Posts: 185
    edited March 2012

    Did 4 ACx4 and 8 taxol once a week at the Veterans Hospital in Kansas City.  33 Rads by Manorah Hospital in Kansas City.  Tamoxifen   They told me this was to prevent return and just in case kill any little cells that escaped.  Bilateral- small spot on other side.  Removed lumps, Tumor was large but was encased and I have large breasts so just ended up with a little dent.  This was done at North Kansas City Hosp.  Been all over town.

  • mcsushi
    mcsushi Member Posts: 174
    edited March 2012

    I was part of a clinical trial (E5103). That trial protocol was DD ACx4 Taxolx12 with/without Avastin. I was only able to do the AC half and 1 Taxol due to an allergic reaction to either Taxol or Avastin. I had my treatment at Kimmel Cancer at Jefferson Hospital in Philadelphia. 

  • orlandpark65
    orlandpark65 Member Posts: 106
    edited March 2012

    I was treated at Northwestern in Chicago.  I had 4 A/C then 4 Taxol.  33 radiation treatments and now on tamoxifen. I did notice that some women were getting 12 Taxol and I asked my Onc and said that the 4 is as effective.  I was able to tolerate it well.     I acutally asked the Dr. for more chemo just to make sure.  Lol.......

  • JacquelineG
    JacquelineG Member Posts: 282
    edited March 2012

    I was treated at Emory University Winship Cancer Institute. Had 3 FEC and 3 Taxotere. They do use this protocol in the US as well, though not as commonly as in Europe/Canada. Treatment protocol seems to vary more by cancer center/doctor, not so much by geography, it seems.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited March 2012

    I was diagnosed april 2010 IDC triple neg BRCA neg.  4+cm tumor in "lefty".

    Treatment at Swedish in Seattle. 

    Lumpectomy June, 2010 (3 positive nodes) followed by 4 DD AC every other week then 12 Taxol every week.  7 weeks of radiation including 5 boost.  Radiation was moved to TOMO therapy due to additional positive internal mammary nodes found after surgery.

    Finished original treatment March 2011.  June 2011 12 new tumors in "lefty".  BMX July 2011 followed by 3 months of Cisplatin and Gemzar every other week.  Nov 2011 additional tumor on left side of chest.  Removed the same day then 3 months of Navelbine, Methotrexate, 5-FU and Lucovorin.  5-FU and Lucovorin is the same as Xeloda, but infused instead of oral.  

    Finally finished Jan 12th of this year.

    I hope that wasn't too much information.  In hindsight I wish that we would have done neoadjuvant, but am just happy to be done. 

  • YATCOMW
    YATCOMW Member Posts: 664
    edited March 2012

    Arlington Cancer Center....

    I had TAC every 16 days (dose dense) which wasn't even done.... I had started with second of the TAC and then the dose dense study came out so I convinced my oncologist to dose dense the TAC.  Put me in the hospital twice. Had two blood transfusions.  After 6 TAC I was given 3 FUMEP to sop up any remaining cancer cells every 3 weeks.  I had BMX prior to chemo.. rads wtih boosts after chemo... ooph after rads so I could go on Femara.

    Jacqueline

  • sewingnut
    sewingnut Member Posts: 1,129
    edited March 2012

    Hope Center for Cancer Care,  Howland Ohio.  Did TCH x6 with Herceptin to finish out the year. The Hope Center is affiliated with US Oncologists.

  • dreidteacher
    dreidteacher Member Posts: 53
    edited March 2012

    Surgery in Greenville, SC and treatments at the Cancer Center of the Carolinas.  I had a BMX in May, chemo started in June TAC x 6, then 28 radiation visits followed by 8 boosts. I am 59 and just starting to feel good again.

  • katyand4
    katyand4 Member Posts: 171
    edited March 2012

    Nashua NH - AC x 4 DD - 12 taxol and now radiation.  

  • lexi4
    lexi4 Member Posts: 1,074
    edited March 2012

    Had right mast first (later diagnosed w/ IBC and surgery usually after chemo) followed by 4 DD A/C, 4 Taxol and Herceptin. Had Herceptin started with my 2nd Taxol infusion, than Herceptin for about a year. I was treated in Northern Calif.

  • TectonicShift
    TectonicShift Member Posts: 752
    edited November 2018
  • Laurie09
    Laurie09 Member Posts: 313
    edited March 2012

    I was treated at Maine Center for Cancer Medicine in Scarborough, ME.  

    I had 4 DD AC followed by 4 DD taxol as neoadjuvant treatment.  Then mastectomy, radiation, and reconstruction.  Now am on tamoxifen.   

  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    Wow! Interesting thread! 4 of us treated at Swedish in Seattle! Hi ck55, clarice and inmate!

    2002-stage 2b right breast-lumpectomy 4 ac every 3 weeks followed by  4 taxol every 3 weeks, then radiation-triple negative idc.

    2011-stage 3 (technically stage 4 blah blah blah)  left breast. Neodadjuvent 6 ac every two weeks, 24 hour drip to be easier on the heart followed by 12 weekly abraxane with avastin every 3 weeks. BMX and then rads. Zometa every 6 weeks 6 times now every 3 months. Will have hysterectomy. 3%er 1%pr her2 neg. Will be starting tamoxifen.

    My doc is definitely treating me aggressively! Doc says I am under lifetime dose of adriamycin, but I think I am over the lifetime dose, but it got rid of the cancer so I am ok with it. What is strange I think there is a different lifetime dose for leukemia patients and breast cancer patients (really not 100% sure about that) and I had the leukemia life time dose. Also, I guess they do the 24 hour drip for leukemia patients, but my doc said because I already had ac that I needed to do the 24 hour drip.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited April 2012

    Hi

    had a lumpectomy at Mass General, 4 AC treatments at Dana Farber, radiation, now on AI/lupron.

    Both Dana and MGH oncologists told me that the A/C treatment was state of the art for my kind of situation (slow growing medium grade, no nodes kind of tumor).  

    I am now in negoitations to end the lupron and perhaps take a femara vacation this summer!!!!! 

  • RIV54
    RIV54 Member Posts: 359
    edited April 2012

    Hi, I'm in PA. I was treated at Phoenixville Cancer Center. I had a LT mx and TAC every three weeks X 6, 28 rads.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Great Thread!  Found lump myself,  went to Gyno who immediately sent me for diagnostic mamand biopsy at Bette Toriccellie Breast Center Hackensack University Hospital, Treatment began as follows  Left breast mastectomy, with immediate "Free Tram" reconstruction, CT, MRI,Pet, Bone, Muga Scans prior to Chemo.  6 X AC DD every other week  4 X Taxol slow all day Drip DD,  Meds added to Chemo were Emend, Benedry., Ativan  Treatment at John Theurer Cancer Ctr @ Hackensack University Med. CTR.  Zometa, after 6 weeks 3 months 6 months and yearly, Arimidex,  changed to Tomox, changed again to Aromasin.

    Barb

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited April 2012

    Protocol from Seattle Cancer Care and treated at Skagit Valley Cancer Care (Mount Vernon, WA).

    Neoadjuvant Chemo trial:

    12 weekly Taxol with daily Sutent pill

    14 weekly Adriamyacin with a daily Cytoxan pill (was supposed to be 15 but CBC wasn't recovering)

    daily Neupogen for the last 14 weeks and about half the time on the first 12 weeks

    BMX

    30 rads

    5 low dose Carboplatin (couldn't make the full 12 because CBCs)

    It was a tough treatment. One transfusion on Taxol/Sutent, 6 during AC and 1 at the end of Carbo.

  • TectonicShift
    TectonicShift Member Posts: 752
    edited April 2012

    Wow, Christy, I've never heard of 14 weekly Adriamyacin with a daily Cytoxan pill.

    Is that typical at Seattle Cancer Care? I've only ever heard of AC every other week or every three weeks and given via IV.

    And the Carboplatin is interesting too. Like some people are getting Xeloda now after rads. My onc won't give it to me.

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020

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