How to deal with this?

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yellowdoglady
yellowdoglady Member Posts: 349

I am a three year TNBC survivor, and my surgeon wants a looksee at a bit of thickening that might be a bit of scar tissue or maybe something more troubling.  Okay.  No problem.  I'd rather be watched by a flock of hawks than left to my own devices.

I mention this to my sister as I have three sisters and they need to be vigilant.

Next I hear is that I need a Health Care Directive immediately, and I must make out a Financial Power of Attorney immediately.  Two days later, I am told I have little time left and must do this.

WTF??  I am facing an outpatient procedure with a local.  I won't be put under at all.  My sisters don't visit me ever or call me or email me much exept when they think it might help them when I die, but I guess they get excited if they think I might die soon.  Isn't that lovely?

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited February 2012

    I started writing and then just wiped it.  Two of my docs see nothing to worry about.  The third is worrying, so I will have an excisional biopsy.  Having three sisters, I let them know.  What I got back was insane.  All about getting ready to die.  Articles about hospice care.  Emails about getting my stuff in order and making sure I have powers of attorney for health care decisions and for financial decisions, and all of this with a large suggestion that 3 or 4 people should be on them.  I have a husband who knows what I want, and I won't have him outvoted by my not so caring sisters.  I watched my sister unplug our mother she didn't like very much.  And two of them went out on the town while our dad was in intensive care and slipped into a coma, after they promised me I could go home to sleep after being by his side for two days and they would not leave him.  I don't trust them at all.  I've protected my finaces.  I have a will that doesn't include my sisters.  The whole thing pisses the hell out of me.  Instead of feeling support, I'm seeing the vultures circling.  Again.  They did this when I first was diagnosed, and they are doing it again.          

  • bak94
    bak94 Member Posts: 1,846
    edited February 2012
  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited February 2012

    That will never work.  I was hoping for someone with a bitch of a family.  I guess I am the only one. 

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    yellowdoglady, you deleted the original post so I don't know the subject matter but I can assure you, you are not the only one with a bitch of family.  I'm sorry your having issues, family is suppose to be supportive and there for you all the time and it's not always the case. Again, I'm sorry, the last thing any of us need is more stress.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited February 2012

    My bad.

    I was told I should have an excisional biopsy to check out a spot of thickening that was probably from all that radiation, but no one wants to take a chance with me.  I had a fine needle aspiration in September and it was clear, but when I went back, the surgeon still didn't like it.  And no, it didn't show up in my perfect mammogram in October, and the oncologist checked that spot out in September, two days after the needlework and could not find anything wrong.

    So, in the abundance of caution that is my world now, I went in and had the thing taken out and sent under a microscope to be sure.  That was Tuesday, and now it is Saturday and I spoke to the nurse on Friday and there is no report yet.  This will be a long weekend.

    But in the interim I told my baby sister that this was going down.  She demanded that I immediately execute an Advance Health Care Directive and a Financial Power of Attorney and she wanted both to have multiple people who could act on my behalf.  I refused.  My sisters pulled the plug on our mother and want to be able to act without my husband.  I just felt the vultures circling and said no.  If I ever get bad news, I'm sure they will be back.  I will never let them have access to my power plug or my bank account.  They seem too eager for my taste.         

      

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    I am so sorry.  First. I can't believe you had to wait the weekend, I hope you found something/anything to keep your mind off of it and I hope you get good results, which I'm sure you will.  As you said, everyone is overly cautious now and that's a good thing. 

    As far as your family???  I'm really very sorry, why in the world would anyone even think you'd want someone other than your hubby in that role?  And it's just a test, NOTHING has come of it, IMO there was no need whatsoever to bring that up.  I just don't know what to say, I hope you don't mind my opinion. 

    Again, wishing you good results and praying for you.  Please don't stress about the insensitive comments, its not worth it to your health. 

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited February 2012

    Thanks mccrimmon324,

    I got the good news today that the Pathology folks found nothing at all.  Also had a sister on the phone to get the inside scoop, which was no doubt passed along to the others.

    The deal is that my sisters are known for showing up at the door of a dead relative and "helping" the survivor to take care of stuff.  Some of that stuff shows up in the homes of my sisters.  They have done that for decades and I don't respect that at all.  When I got sick, I got frozen meals shipped to my door, and books about cancer and dying, and a couch blanket and pillow, and special deodorant and lotion and shampoo, and flowers.  All from sisters who had not visited me in years.  I went ballistic.  I wasn't planning on dying.  In fact, I worked through 16 weeks of chemo and 7 weeks of radiation.  Took a day off here and there when I was "sleeping on the bathroom floor sick."  When I had a break between chemo and radiation, I attended the wedding of my cousin.  I asked everyone politely not to photograph me because I didn't want to remember this chapter of my life.  Most happily complied.  One sister took that as a challenge and would jump out of doorways and snap bad shots of me trying to cover my face with hands covered with tape over my fingernails.  She put the worst one of them on the internet, and I had it taken down in a matter of hours, and received more flowers as an apology because she claimed not to understand that I meant what I had asked.  That is not a kind person.  And she is not stupid.  She has a graduate education.  She is simply cruel.

    There is no way I would trust a person like that with anything important to me, and I won't.        

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Yellowdog, Congrats!!!  What a relief! 

    As far as your sisters are concerned, I'm sorry, I really don't understand why family, who are supposed to be supportive, are the worst offenders.  I won't even comment on the picture posting other than to say I think that was completely unacceptable and you just didn't deserve that. 

    It's funny, my closest living relative is my 91 yr old grandfather.  Christmas day was the first day I was going to visit him without my wig.  I had a very very short grey,white buzz going on.  I told my husband I was worried it would upset him to see me like that because I know he worries about me.  Well, boy was I wrong, he managed to keep his opinions to himself for the entire lunch but as we were leaving he said to me.  "The chemo did that to your hair right?, I'm glad, you didn't decide to do that yourself because I don't like it"  I was hurt and embarrassed.  We took both him and a friend of his to lunch on New's Years Day, all he did was sit across from me and giggle about my hair.  His friend was actually the first to ask if I was ok now.  I know he didn't mean to be hurtful, but I have to be honest, it damn well was, and it was from family which made it worse and quite frankly, I'm sick of people telling me I need to let it go because he's old and doesn't know better.  I'd like an apology, I don't care how damn old he is, he knows better than to be rude, AND to the only person that comes to visit him and takes care of all of his finances and things of that nature. 

    Ok, really didn't mean to vent about me, but I think I was just trying to make a point that as family it makes it even more unacceptable.  I really just don't understand how people can be like that. 

    Anyway, Congrats again, I'm sure that was a huge relief!!!  Very happy for you.  Thanks for letting me vent.

    Heather. 

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited March 2012

    mccrimmon32,

    Sometimes you need to get to the bottom of it, and sometimes you don't.  It's your choice.

    From where I am right now, I'd probably get up and kiss your grandpa on the head and say that if he'd had better hair, you would probably have had more back already, and thicker than before.  It's a genetic thing.  But then say that you love him anyway.

    Family has the capacity to hurt a person more than anyone else.  Understanding that can set you free.  I know my siblings don't care much.  Other people do.  Find your other people who do.  They are more family than the dna ones, and they care more.

        

  • ma111
    ma111 Member Posts: 1,376
    edited March 2012

    Yellowdog, Have the paperwork done and with your husband in charge. You can leave out your sisters and even name them in the paperwork to not be allowed to touch anything. You can also name a friend in the event that your husband is absent. Then give them a copy. I left out a sister in my paperwork that is trying to take charge of my life.

    I throw away some, if not most of the care packages. I should have given them to Goodwill.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited March 2012

    Thanks, ma111 and mccrimmon32.

    I have the forms.  I'll get them done.  What has taken me so long is that there are a few family things that should be passed down as there is so little left of family things.  Deciding on those is harder than everything else, and I don't even know if young people today give a flying about something in the family for a hundred years or more.

    I got a call from my aunt.  My Dad's only sibling, and my Dad is gone now over 8 years.  She was giving what used to called a "courtesy call" to ask how I was and gather information, while mentioning that she also is a survivor (Stage 0), and knows how hard it can be.

    I didn't actually laugh, but could have.  I just shared that I was initially told that I'd have less than a 30% chance of being alive and well at 5 years, and so I also know how hard it can be.

      

       
        

  • ma111
    ma111 Member Posts: 1,376
    edited March 2012

    I think young people do care about things being passed down in the family. I have that all done and it made me feel at ease.

    Hopefully your Aunt understood things a little better. Sometimes those comments can hurt more then help as people just expect that we are going to live and don't understand that there are different forms of breast cancer. Stage 0, she can't understand how hard it can be. We half to worry about children, house, funeral, etc. I frequently stay away from people that just don't get it. Breast cancer is the number one cause of death for women age 45 to 55. One of my sisters, who is not staying in touch, is trying to take over my life, so I had to get things done or it would have been her way. Two other of my siblings and their spouses know everything and we all reviewed my will toghether.

    Feel free to PM me, even if you just want to vent.

  • menan
    menan Member Posts: 37
    edited March 2012

    Hi Yellowdoglady,

    I am blessed to have a loving family (6 sisters, one already passed from brain cancer  25 years ago), but we have our moments.  I have one who uses religion like a club and another who is already planning to come stay with me for my final days, but I'm not done fighting!

    I also have 2 sons and a daughter and wondering about passing things on in the family is a good question.  If my oldest sister had her way it would all go to her and her daughters in Washington/Oregon which upsets most my Dakota sisters.  Especially the sister who visited her, and said she is a candidate for the TV show 'The Hoarders'!  I think the heirlooms should go to people you want to have them IF they want them.  I have been asking if people want things.  Unfortunately lots of the things they don't want, but don't want to see it given to good will either.  Or sold on EBay!

    Just wanted to let you know you are not alone with these stuggles although your family does seem rather worse than mine!  Sad we couldn't have picked our families. :)

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited March 2012

    Thanks to all of you for hearing my rant.  We can pick our friends but not our families.

    And some of our families are dysfunctional.  When I got sick, I got flowers from my sister who stole my bicycle decades ago.  Refused to return it and then gave it to another sister who refused to return it as it was a gift from my thief sister, even though she well knew it belonged to me. It wasn't just a bike to me.  It was the first thing I ever bought for myself when I started working so young.  That represented a lot of a summer at 50 cents an hour because it cost over $100.  And I lent it to a sister so she could study for the bar and get home safely without a car, and it was gone, poof!

    I don't know why people behave so badly, but they sometimes do.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited March 2012

    manan,

    We can pick our friends, and can limit our family.  I hope you are okay, my friend.

        

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