THINK BEFORE YOU PINK

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  • Kaara
    Kaara Member Posts: 3,647
    edited March 2012

    AMP47:  I have been prescribed tamoxifen which I took for three weeks until I got a cold bug.  I got so sick with flu symptoms that I went off the tamoxifen and will start it back up the end of this week since my cold has passed.  Not sure what caused the flu symptoms.  Usually a cold doesn't do that to me.

    I would like to read that study as well 

  • AMP47
    AMP47 Member Posts: 200
    edited March 2012

    guardengumby& Kaara -

    I started with Femara but my muscles on my back were on fire, joints very painful, fatigue out of this world,

    Arimidex very nauseated, severe fatigue, joint pain similar to shooting fire in my foints.  

    Now on aromasin with both shoulder feeling alot of aching, random series of pain, shooting down my arm, both arms, back pain on left side especially when swimming my 2 miles every other day.  I had to stop taking the meds for about two weeks, symptoms have decreased.  Dread starting them after 2.5 years of these side effects.  

     I will have to find the study read.  As soon as I do, I will post it to this site.  

  • Kaara
    Kaara Member Posts: 3,647
    edited March 2012

    I hate starting back on the Tamox but promised myself I would give it a good try before giving up completely, but I simply cannot live with those QOL issues of feeling like death warmed over most of the time.  I see a new MO this next week and will be interested in what her take is on this whole thing, although I have a pretty good idea.

    The additon of yet another health issue, the advancement of my macular degeneration, has given me another challenge to deal with.  Fortunately, the diet and supplementation program that I'm on is also one that works well for that disease, so I don't have to tweak it too much.  When it rains it pours! 

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Ladies . . . thank you for this thread! I am going to "cut and paste" a piece out of a paper I wrote on global governace for my master's degree a number of months of ago (of course, before my dx). I apologize in advance for the length . . . but it may be interesting . . .

    Susan G. Komen for the Cure Foundation

    This organization was founded by Nancy G. Brinker, after her sister, Susan G. Komen, lost her life to breast cancer in1982. The following excerpt is from the website:

    "That promise is now Susan G. Komen for the Cure, the global leader of the breast cancer movement, having invested nearly $1.5 billion since inception in 1982. As the world's largest grassroots network of breast cancer survivors and activists, we're working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure®, and generous contributions from our partners, sponsors and fellow supporters, we have become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world." (www. http://ww5.komen.org/AboutUs/AboutUs.html).

    This organization purports to epitomize the qualities of legitimacy, which, in part, have allowed it to achieve the kind of success that it has. Ms. Brinker has demonstrated the qualities of a visionary leader, and has been able to "enlist every segment of society - from leaders to citizens", and has, herself, received countless awards including being honoured by "President Barack Obama . . . with the Presidential Medal of Freedom, the nation's highest civilian honor"; "she was named Goodwill Ambassador for Cancer Control for the United Nations' World Health Organization";  "Brinker was named one of TIME magazine's "100 Most Influential People" in 2008"; "she served as U.S. Ambassador to the Republic of Hungary from 2001-2003"; she "served as U.S. Chief of Protocol from 2007-2009"; and  "in 2008, President George W. Bush appointed her to The Kennedy Center Board of Trustees" (http://ww5.komen.org/AboutUs/NancyBrinker.html). This is only a short list of her awards. She has also managed to form corporate alliances with some extremely successful international organizations including but not limited to ReMax, The Bank of America, VISA, and Kentucky Fried Chicken (KFC). It's almost difficult to believe that this is not an international capitalist organization . . . or is it?

    Let us explore specifically the relationship between The Susan G. Komen for the Cure and KFC. The guiding principal of the former is to save human lives, and of the latter it is to sell deep fried chicken.  Do synergies really exist between these two organizations?

    The National Cancer Institute in the United States issues annual fact sheets about cancer as it relates to genetics, diet, and the environment. One particular area of concern that a number of studies have pointed to is HCA's - Heterocyclic Amines. HCA's are the "carcinogenic chemicals formed from the cooking of muscle meats such as beef, pork, fowl, and fish" (The National Cancer Institute (NCI)). Although the NCI indicates that lower levels of HCA's can be found in meat cooked in some fast-food restaurants due to cooking temperatures and time (they don't specifically mention which ones) as opposed to meat cooked at home in a deep-fryer or on a BBQ, there is no mention of what the threshold of exposure-to-risk is. Suffice it to say that the risk is clearly evident. More importantly, however, are recent studies showing the increased cancer risk based on the consumption of animal-protein. Dr. T. Colin Campbell, one of the leading diet and nutrition scientists in the United States, recently published one of the world's most comprehensive studies ever conducted on this topic. Dr. Campbell cites that "increased intakes of animal protein enhance the production of insulin-like growth factor (IGF-1) and this enhances cancer cell growth" (Campbell, p.367). IGF-1 is a hormone. "It manages the rates of which cells "grow" - that is, how they reproduce themselves and how they discard old cells, all in the name of good health. Under unhealthy conditions, however, IGF-1 becomes more active, increasing the birth and growth of new cells while simultaneously inhibiting the removal of old cells, both of which favor the development of cancer. It turns out that consuming animal-based foods increases the blood levels of this growth hormone" (Campbell, p.179).

    Now let us examine the particulars of the partnership: KFC pledges to donate fifty cents for every bucket of deep fried chicken purchased to The Susan G. Komen for the Cure Foundation. To achieve the stated goal of $8.5 million this means 17 million buckets of IGF-1 and HCA laden food will have to be consumed. A bucket of KFC chicken costs approximately twenty dollars (CDN). Do the math: KFC will garner $340 million in gross revenue and donate a mere 2.5% of that money to a foundation that hopes to cure the very disease that eating this type of food could actually cause. If KFC were genuinely altruistic they would simply donate the money from their annual revenues and forego this ridiculously cynical campaign. If The Susan G. Komen for Cure foundation genuinely sought to prevent and end breast cancer, would they really partner with KFC?

    So, what is The Susan G. Komen organization's excuse? If their goal is to find a cure for breast cancer, they could achieve far more by exclusively promoting the virtues of proven preventive measures like healthy diet, nutrition, exercise and sound medical screening as opposed to entering into ‘a deal with the devil'. Instead, they have created a campaign where they promote the consumption of carcinogenic-promoting food while making consumers feel good about it!

    The Susan G. Komen organization has irreparably damaged their reputation and credibility and fueled the public's increasing cynicism for such campaigns. Arguably this is a slap in the face to all the breast cancer victims and survivors the world over. What could possibly be next? A carton of a package of Marlboro cigarettes wrapped up in pink ribbons to promote "Smoke for the Cure"?

    Diagnosis: 2/17/2012, DCIS

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    vegangal,

    Smoke for the Cure!! That's a good one.

    You raise good questions.....I quote from your post:

    If their goal is to find a cure for breast cancer, they could achieve far more by exclusively promoting the virtues of proven preventive measures like healthy diet, nutrition, exercise and sound medical screening.."

     This is the problem I have with 'modern medicine'. They are not into prevention AT ALL. They label chiropractic, naturopathic, homeopathic as 'quackery' when in fact treatment with herbals has been around longer than medical practice. Why do they call it 'practice'? Because that is what they're doing. They are practicing on YOU. For any real changes in the world of cancer, we will have to see a huge focus on PREVENTION, no GMO foods, access to nutritional supplements, affordable alternative health care (natural, as opposed to unnatural health care should be covered as much as the drug/surgery oriented world of current medicine which is a series of trials...and errors) and real research, not coverups for medicines that can work. Anything with value such as vitamin C, gets thumped as big pharma can't make the bucks off of it. Why isn't AHCC being used in cancer hospitals? It is used in many other countries. Just not the US.

    Why can't docs be regulated in the US?  This runaway train of docs charging exorbitant fees for everything is way out of hand. Big Phama should be regulated as well. They are running a drug cartel, not a health business.

    Komen was profiting off of breast cancer just like so many others - big pharma, doctors. It's difficult to find a truly altruistic organization when so much money is involved. Corruption inevitably happens.  I don't care if people support Breast Cancer Action or not, what is important is that women become aware of the Pinkwashing that goes on concerning breast cancer.

    What is Dr. Susan Love doing about the cure? She had a million women in one of her studies, did she not? 

    tucker

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    You can volunteer to participate in a wide variety of studies on BC through Dr. Susan Love's Army of Women program. I am involved in two right now. One involves an online questionnaire (on links to ovarian cancer), one is giving a blood sample (for a study of young women with bc). The aim is for a million women to be willing to participate, don't think the numbers are there yet.

  • thenewme
    thenewme Member Posts: 1,611
    edited March 2012

    I'm one of the Army of Women too, Kadia!  Clinical research is so very critical, and it's sad when legitimate studies can't get enough participants. I read somewhere an article discussing some of the reasons for low participation, but I can't seem to remember now where I saw it.  I'll look for it.

    I'm also doing the ENERGY study (UCSF), which aims to study the role of nutrition and exercise in breast cancer recurrence.   Sadly, they too are struggling to meet enrollment numbers.  In fact, they've had to lower some of the inclusion criteria in an attempt to increase participation. 

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    I signed up for the Army of Women yesterday . . . I'll do anything to help. Being in Canada, however, there are limited participation opportunities. But I will do what I can.

    Tuckertwo . . . I totally agree!!! Hear Hear!

  • Hipline
    Hipline Member Posts: 195
    edited March 2012

    Another great organization that funds researchers directly and cuts out the drug companies is Stand Up 2 Cancer. It was founded by a famous Hollywood movie producer (Laura Ziskin) who died recently of breast cancer. She was all about prevention. Here's a link to an early PSA. There's lots more on you tube worth checking out. This past Saturday would have been her 62nd birthday and here in LA we celebrated her with a fundraising walk.



    http://www.youtube.com/watch?v=rwC87ZKF1dQ

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Thank you hipline!  Do you have other you tubes you'd recommend?

    tucker

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Is breast cancer really prettier in pink??!!

    New movie coming to US and Canada - I gotta see this one!

    http://www.nfb.ca/playlist/pink_ribbons_inc/

    tucker

  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Tuckertwo . . . I just watched the trailer!! Thank you . . . . I have had a major bee in my bonet about the whole pink ribbon thing for ever . . . well before I was ever dx'ed with BC. I am going to go by the book tonight!!!!!!! I loved the one quote . . . "anger can be a good thing, if you do something with it" . . .

  • AMP47
    AMP47 Member Posts: 200
    edited March 2012

    Tuckertwo - the link about the new movie is invaluable information.  Great job.  

    I have used it on many forums to educate people to what is going on in the exploitation of breast cancer while funding the bottom line of many companies.  An yes-if people really knew where their dollars were going they would be "really pissed off".  I am. AMP

  • Pompeed
    Pompeed Member Posts: 239
    edited March 2012

    Thank you, Tucker, thank you, AMP.  I'm hoping this comes to Philly ASAP.  I'll be buying a ticket for myself, of course, and a whole bunch of tickets for others too.  Anyone reading here who is in the Philly / Wilmington area is welcome to come as my guest.

  • dp4peace
    dp4peace Member Posts: 58
    edited March 2012

    Great thread! Happy to see this here. I post a lot of pinkwashing articles and other controversial health-related topics on my facebook group called "Donna's Choice: Global Healing From The Inside Out." I've been on the DCIS journey for over two years and have taken my time to research and not rush into aggressive treatments. I did have 3 surgeries, and I am awaiting results of the Oncotype DX test (which my insurance denied, but I was told that Genomic Health's patient assistance program would pay for.  I also created a website, but I was asked not to promote it here so I will honor that. It is basically using my anger at the system for good. Focused on "stopping the breast cancer insanity" and helping women get informed about DCIS and the controversy around low grade treatment. Keep up the great posts! :) Donna 

  • melly1462
    melly1462 Member Posts: 84
    edited March 2012

    Just downloaded the Think Before You Pink Toolkit.  Enlightening. 

  • CityFi
    CityFi Member Posts: 95
    edited June 2012

    I just saw the documentary last night, and while I have an issue here and there, I agree with its intention and core message. A must-see. My sister wants to organize a "pink party" for me, and I'm having a conversation with her with this in mind. I'm going to download the kit and contact BCA to see if they have printed copies that I can distribute at my gathering. I'm an activist and many of my closest friends are, too. I think they'd love it, and rather than give to the usual "brand-name" organizations in my name, I'd rather the support politically-oriented groups like BCA and grassroots nonprofits that are creating access for women who otherwise would not have support. 

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