December 2011 Surgeries - want to wait together?
Comments
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Well, looks like more surgery in my future. MO recommends I have ovaries/fallopian tubes removed. Where does it end?
Going to try to forget about it for the weekend.
Have a great Friday!
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Fortunately our government health plan covers 75% of the cost of the compression clothing. That removes one barrier. I may even be able to claim some of the remainder from extended health insurance benefits from work.The thing that impressed me was that body parts where I thought I was pudgy she said was actually swelling, particularly legs and abdomen. I like the idea that I actually have a better figure buried in there! So I'm willing to go for it and see what happens.
CookieMonster, so excellent about the weight loss and the exercise! Pretty soon you will be over on the 2012 Running thread with all the running (and walking) fans. Also good news about the spousal employment. I know how stressful that can be.
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Glad to hear most are doing ok, Spumky- sorry about more surgery- not fun. Cookie good for you! congrats on the weight loss. Bogie, I am glad you husband got a job again - that is not easy to do. To all, much love and small SEs.
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Spunky - sorry more surgery is needed, hopefully this will end your worries. I try not to think about my stage 2 coming probably this summer. No need to worry about it until it's closer.
Goldlining - not likely to see me over on that running thread, I can't do a lot of running, my asthma acts up if I do.
Thanks for the congrats though!
Happy Friday all.
-Judy
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Cookie-woohoo on the weight loss.
Spunky- I had that surgery and it was pretty easy. Just the surgical menopause stinks.
Gold lining-good you saw the LE specialist and have a plan. I had the belly and leg swelling as well as arms and chest and my therapist made me stop sleeping in the recliner. She said to get horizontal. Not sure if you are in a recliner still? -
ginger- I am still in a recliner- BUT, my recliner goes horizontoal- fully and even full trendlenburg (ie- feet highter than hear) Its why I bought it. It helps with my knees and it is a lift chair so I could get out of the chair when I had my BMX. I sleep with it horizontal unless my nose is stuffy or I had a port or something that makes me need to be up a bit.
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I couldn't bear the recliner. I have been in the bed since less than a week of coming home. My swelling is gone from the chest in the morning, but picks up once I am up and out. I don't really have a gauge for the other swelling, but I can see it in my bra. The delayed flap swells; the immediate flap does not. My cleavage moves literally an inch to the left in my bra by the end of the day.
Hey Cookie, I have asthma too. It has been SO much better since I started running. I use the blue inhaler before a run (two shots) as a preventive and honestly, I almost never have to use any inhalers otherwise any more.
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goldlining - I spent one night on our really comfy reclining couch and then moved upstairs into my bed. It was just as easy to make a lounge out of pillows up there and then I was upstairs with the rest of the family instead of downstairs alone. As for swelling, I haven't paid that much attention but I think that after a full day at work there is probably some, I was feeling kind of bloated/swollen in the belly area a bit this evening, that's probably it. Since I'm trying to lose weight, I always wonder if it's actual gain insead of swelling. So far so good, so I guess I shouldn't worry quite so much.
Running has never been and will never be my thing. I don't have the drive or the interest to do it.
I swim and I walk and that's most of how I get my exercise lately. I didn't even swim this week because my upper back/neck are acting up. If it continues for much longer I may have to go see the doctor about it. Compared to the BC it seems so minor, but it's gotten better and then worse again, we'll see if it gets better again.
Happy weekend!
-Judy
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Goldlining- I am usually alone in the house, so it didn't matter where I slept, and not going up and down the steps saves my knees. and because I had a BMx I couldn't , litterallly couldnt get in or out of the hospital bed without help, much less a regular bed. You cant use either arm to pull or push - try getting off a couch without using your arms. just cross them over your chest and try it- it aint easy. So basically I bought a sleep chair. I am so gald I did. When I have my knees done, I will be able to use it then too. so it paid off for me bigtime.
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Hello girls, I just wanted to say hello
I havn't posted in awhile. But I do stop by and check on everyone just to make sure you all are doing ok.
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Back from MO today and it will be Tamoxifen for me. Waiting until after next surgery (Lipo to even out breast) to start, so maybe mid-March? Looking forward to next steps. -
Fitz, where do they take fat from for the lipo? I am going to ask my PS about that. Not sure if it's fat grafting but I need to get educated on adding my own fat or tissue around the implants. I am developing the scar tissue and that may ease into avoiding more complications in the future with capsul contractions.
Spunky so sorry about another surgery... -
Hello ladies! I have dropped by, but never posted on this page before. I had a lumpectomy in November and finished 4 treatments of taxotere/cytoxan almost 3 weeks ago. This past weekend, I started feeling some sensitivity around my lumpectomy incision (which was previously numb). At my 3-month follow-up appointment, my breast surgeon said she could feel scar tissue, but that everything felt fine. Has anyone else suddenly started to "feel" in that area again? I'm hoping it's just "waking up" from a 3-month nap. My incision is along the outer breast (my tumor was at 9:00). Naturally, anything different has me completely freaked out. Oh, and my BS just went on maternity leave, so I can't ask her if it's the same thing she felt 2 weeks ago.
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Baileybump - nerves can definitely grow back, especially with a smaller lumpectomy scar. I bet that's what happened, it took time for the nervous system to re-ennervate (sp?) the area and now you're starting to feel it again.
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Bogie - fat from ab is to be used to add volume to the breast mound. Guess my bak muscle just didn't do it! Spunky - sorry to hear of your next surgery. My Onc suggest supression of the ovaries to avoid another surgery.
Plan to hit the gym this week for swimming - one exercise I enjoy and have been cleared to do.
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For those in the Oct. surgery group too, I posted both there and here, so you get to hear me whine twice! Lucky you.
OK ladies, can you help my stupid brain? About 2.5 weeks ago, my upper back and lower neck started hurting. I figured it was just a normal muscle thing and would go away - I pinched a nerve or slept on it funny or something. I've used Advil some, tried muscle relaxants (they just made me want to go to sleep but didn't help the pain or make it get better), heating pad, a bit of massage (but DH says he can't feel a knot there), and such. Well it's still not better yet. I've swum with it and it hurts off and on, I skipped swimming last week but it still hasn't gotten better. It hurts when I look left or right and my range of motion of my head seems less than usual.
It's worst 1st thing in the morning sometimes making me not want to lift that arm (it's on the opposite side from my UMX) and it's hard to get up sometimes. (I'm only 41, BTW)
Of course, after 2 weeks of this, my brain finally says, "maybe it's BC related, maybe it's mets." I rationally think that's an insane explanation. I can't get my brain to shut up about it though. I also now worry that every ache and pain will automatically become BC related in my head so I have to worry about it. UGH.
I may e-mail my MO just so that she can tell me I'm crazy, might shut my brain up, I don't know.
Any sage words of advice or anyone want to kick me in the head? Ha ha ha!
Edited to add: This started before I started on tamoxifen so I can't blame that. Also, I've tried a different pillow, two pillows, one pillow, to no avail.
Thanks.
-Judy
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Hi Cookie - I think I have the same thing. I have no fear of it being mets, and I feel awful for what you are feeling because I do go off on ruminating jags for a whole slew of things. The upper back/shoulders for me is the primary site for where my stress goes. I had also twisted a vertebra between the shoulder blades in a ballet class in the 80s, and didn't have chiropractic adjustment of it for five years, so it is a lingering weakness. The pain was blissfully g-o-n-e after I woke up from the DIEP surgery (11 hours of paralytic drugs are a wonder) and for several weeks after, but has come back since I resumed my full load of keyboard work and stress of responsibilities. My pain sometimes feels like it is burning, and is unresponsive to robaxacet. Heat feels nice but does nothing for it. Massage likewise. Massage therapist says it feels tight, but the massage does not provide lasting relaxation. I have the upper back worked on when I see the physio (physical therapist for you Americans) when she stretches out my hip joints and shoulders. She stretches out the small muscles as I turn to each side. I was told I might find more relief from cool packs rather than heat but I don't like being cold so I don't. I sometimes put the cold blue goo on it though. I am a side and front sleeper so I just use a flattish pillow so as not to deviate the neck too much. (I remember years ago I bought an "ergo" pillow and it was the most painful experience I have ever had from a pillow.) Have you had any physiotherapy?
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Cookie-I am so sorry you are in pain. Unfortunately, I have no idea what it may be, but do not hesitate checking with your MO-that's his/her job. ((hugs)) and wishes for relief from the pain.
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goldlining - I haven't had any physio.
spunky - thanks for the support.
I think an e-mail to the MO is in order. I'll do that later tonight or tomorrow.
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Cookie...stinks about the pain. Call your MO, that's what they're there for, to answer our questions.
I know what you are saying about thinking new aches and pains may be bc related. I do it too. I think a lot of us do. I've been having some pain in both of my hips. I know that it's because I don't stretch enough before I get on the treadmill. And, I've gone from working out sporadically to every day. Yet, the annoying part of my brain still wonders if it's something more.I'm sure it isn't. Just like your neck pain. But call to put your mind at ease.
Hope all are doing well. Exhcange surgery is coming up quick, just 2 weeks away. Yay! Good thing too, these te's are starting to get increasingly uncomfortable.
Take care and have a great day.
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Cookie - Everything is so interconnected in the upper back shoulder/arm area. I've had problems with my shoulder neck my whole life, after being in a whiplash accident, radiologist asked me when I was hurt in my 2nd cervical..had arthritis. I figured my big brother dropped me on my head when I was younger and I forgot (except for the excrutiataing stiff neck I had a 3 years of age). Didn't really bother me except muscles tightning up my whole life. After I added the whiplash, and presumably more arthritis, it took about 8 years more to develop degenerating spine, which spread to my shoulders resulting in full blown double shoulder tendonitis for nearly a year.....I can honestly say, that was WORSE than breast cancer in terms of pain and sleeping, though I'd never say worse to have.
So having no idea what you have, but experiencing this muscoskeletal pain, I will add this. There is the acute phase when you are in extreme pain, then there is the chronic phase when you have good times and bad times and need to be preemptive. When I'm in the acute phase, I just manage the pain by taking Celebrex and try to let it get better. Massage of the neck gave me much relief. When I was feeling better, paying UBER attention to my ergonomics at my desk prevented it's recurrence or atleast getting worse.. The PT can help with that. What I did wrong when I first felt the shoulder pain coming on, I did not get on to Celebrex or get PT. I think I could have prevented the really bad phase I went through.
I"m not a pill taker. I always forgoe rather than partake (cancer cured that). Anyway, I view Celebrex as a wonder drug. There can be serious SE's, though I haven't had any, but they literally cured my neck shoulder thing. There are also many journal articles of Celebrex slowing tumor growth! It is an anti-inflammatory and as such changes the terrane for the cancer tumor to react to.
Some of this may be helpful, maybe not. Just my 2 cents.
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Oncologist has given me choice between oopherectomy or monthly lupon injections. Trying to weigh pros and cons of each and am stymied, but need to make decision. Has anyone else wrested with this? Thanks-
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Thanks all, I've e-mailed BS and MO we'll see what they say.
Kam - like you, I'm NOT a pill taker, but I'm taking my tamoxifen (at least when I remember to do so - I've had to set an alarm for it now).
chrissilini - thanks for the support, I hope your exchange goes well!!
spunky - ugh, what a choice. I hope you find some peace with whatever way you go. I was offered either Tamox OR AI w/lupron, I opted for Tamox.
Friday hugs to all!
-Judy
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Spunky- I had an ooph with very little difficulty other than some surgical menopause SE's that you will probably get either way. I am 48 so I was probably on my way to menopause anyway...Good luck with your decision!
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Spunky: I am 45 and had an Oophorectomy on 11/03/11. I am Stage IV so Lupron wasn't really discussed. It also probably wasn't discussed since I don't have, nor want to have, children. I think that is the main deciding point. With Lupron, I believe once you stop, you can possibly still have children....with an Ooph...not so much.
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Hello, December Sisters!
We've just now gotten back from a week in Laguna Beach (we have a timeshare there.) GORGEOUS weather.....and for the first time since my BMX in December, I felt NORMAL!!!
After three weeks of pure H#LL after my BMX with TEs, the annoying discomfort has disappeared....of course, they still feel like boulders under my skin, but I had one of those cami's with a built-in shelf bra, and wore it under my shirt as we sat in our lawn chairs down at the surf.
DH was running the video camera of the waves, so we can have a relaxing DVD to play on our flat screen TV. While he was doing that, I took my shirt off, just had my cami on (and jeans), and went around taking pictures of shells and driftwood. (Couldn't take any with me, it was a protected tidepool.)
Standing in the surf, taking pictures, enjoying the beautiful surroundings, I felt NORMAL! I did not feel like a breast cancer patient. I even had him take pics of me in all my pasty-white, pre-weight-loss glory.
Of course, my stamina sucks something awful, but I have to say, I was NOT thinking about the TEs that whole time!
Will catch up with individual posts later when I've unpacked....or maybe when I've had a nice long hot shower....or maybe tomorrow!!! Nighty-night!!!
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blessings2011 the beach trip sounds glorious! I was picturing the surf and relaxation. Thanks for the vicarious visit!
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Just sending much love!
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Starting Singulair and Arimidex today. Yikes.. At the same time. Waiting a month to have my expanders replaced and scar tissue removed. I'm actually getting used to having surgery. The Capsular contracture is getting very tight on my chest so hoping I get some relief soon.
Blessings, the beach sound wonderful! I prompted me to start looking at resorts to take a much needed vaca when all this is over, hopefully end of the summer.
Happy weekend Dec Sistas!! -
Blessings -- sounds like a PERFECT getaway. Mentally and emotionally healing. Thanks for sharing.
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