November 2011 Rads

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  • rn4babies
    rn4babies Member Posts: 409
    edited February 2012

    No, I've never had a breast MRI. I have an extremely strong family history as well.

  • tvacrat
    tvacrat Member Posts: 60
    edited February 2012

    m4babies, I got chills reading your post! I finished treatment on my left breast the same day you did, but I don't have my next mammo until April and they're only looking at the left breast then. I hope they're wrong about the calcifications.

  • Joan811
    Joan811 Member Posts: 2,672
    edited February 2012

    rn4babies, how did they find the calcification?  was it diagnosed with your left?  or new?
    I hope it is something that is not requiring treatment. 
    I finished rads Jan 10th and nobody has looked at my right side since last July.  I had follow ups and it was suggested I have mammo next July (1 year).  It is so unnerving....I am counting on being healthy this summer....
    I am sending positive thoughts, prayers and hugs your way.

    Joan

  • rn4babies
    rn4babies Member Posts: 409
    edited February 2012

    The calcifications were found on my first follow-up mammo since my treatments (DCIS on left side) I last had a bilateral  mammo on my right 15 months ago. It is a new area on the right side. She basicallly told me she was pretty certain it was DCIS and will have to go through everything again if it is. The good news is that it is small. She called the surgeon immediately and they are seeing me on Tuesday. I had such a hard time with rads the first time, I hope I don't have to go through that again. Again, the waiting is the hardest part of this whole process. Thanks for your thoughts and prayers.......

  • kdajay
    kdajay Member Posts: 90
    edited February 2012

    Rn4babies that is horrible news. Keep us posted on the findings. We are there for you and with you!

  • kdajay
    kdajay Member Posts: 90
    edited February 2012

    Does anyone have radiation fibrosis? If so, what are you being told about it and how, if any, are you being treated?

  • Natters
    Natters Member Posts: 361
    edited February 2012

    rn4babies - Oh my God! I can't believe that. I always felt like our diagnoses, age, location and tx were so similar that it's like your my DCIS twin. Hearing your story makes me kind of wish I had a mammo scheduled sooner (they wanted me to wait until a year from my last one, in June). Are you having a mammo-guided biopsy on Tues or just a surgical consult? Oh man - thinking of you today and hoping it all goes well!

    I think my cancerversary will be the day I found out my results, 2 days after my biopsy, June 16th. Every year, I will be having a mammo around that time and hopefully hearing that I do not need more biopsies but who knows, right? Thinking of rn4babies today and sending positive vibes from Allegheny County.

    Nat 

  • rn4babies
    rn4babies Member Posts: 409
    edited February 2012

    Oh Natters.......this  is so surreal to me! I had the surgical consult today. The biopsy is scheduled for next Thursday. They were booked this Thursday.....grr...... My cancerversary is July 7.  He told me if this biopsy comes back positive then he will order an MRI.  Also, I found out that after I left that day, they found a second spot near the armpit. He said that area is very difficult to biopsy but he will try his best. 

    I feel the same, like we had so much in common! I pray that my results are benign and that you (or any other of our BC sisters) never have to go through this again.  I feel like it is deja vu. The waiting is brutal.

    Thanks for the positive vibes. I'll keep you updated.

  • Natters
    Natters Member Posts: 361
    edited February 2012

    Did you not have an MRI last summer? They ordered one for me right after my biopsy came back positive.

  • Natters
    Natters Member Posts: 361
    edited February 2012

    Rn4babies, I cannot believe you never got an MRI last summer - that seems negligent to me. I am not very spiritual but I am hoping with every fiber of my being that you don't need rads on the right. It just doesn't seem right, so soon after recovering from the the rads on the left. You should be getting your life back now, not going through all this again in the same year :(

  • MrsMot
    MrsMot Member Posts: 90
    edited February 2012

    Joan811 my anniversary is dx date.  That is when my world came to a halt.  I had lots of surgeries, chemo, rads...so mine is April 15th.  I call it my second birthday.  I plan on celebrating every year I Iive past dx date. 

    So sorry to hear this rn4babies...will be thinking positive thoughts for you. 

    My hubby and I went to Cambria CA (Central Coast) this past weekend.  What a nice getaway.  Didn't think of the BC once!  I am moving on and moving forword.   I hope you all can! Smile

  • MrsMot
    MrsMot Member Posts: 90
    edited February 2012

    Rn4babies - I am thinking of you and pulling for you.  I hope you don't have to do this again. 

    Why can't they find the cause to this?  It seems to me a whole lotta people would be out of work.  Maybe that's why.  I dunno.  BC is big business.  Hang in their rn4babies.  You will get through this.

    I had my port removed last week.  The nurse gave me a pink rose and everyone in the surgery center signed a card.  Very touching and moving.  Since my bilateral mx, I never have to have a mammogram again.  A silver lining. 

  • tvacrat
    tvacrat Member Posts: 60
    edited February 2012

    rn4babies - the waiting must be even harder this time around, knowing what's possibly ahead for you! I hope everything comes back negative and you can step out into "normal" again. But you also know that if it doesn't, you can get through it. You've got a lot of people walking with you on this journey.

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited February 2012

    Rn4babies, Our prayers and thoughts are with you. Good luck

  • Joan811
    Joan811 Member Posts: 2,672
    edited February 2012

    MrsMot,awesome that the port is out....you deserve that rose.
    rn4babies, I am holding my breath for you....what a thing to go through when you should be recovering.  I never had an MRi or anything further...I did have calcifications on my left; along with IDC; but nothing on the right.  It's as if they stopped looking at the right after the bad mammo on the left.  It's hard to wait for July for me....and I have vacation plans, just like last July when I had to cancel most of it.
    Anyway, my hopes and prayers are for a benign situation and minimal worries for you. 
    Enough!
    Hugs for you,

    Joan

  • rn4babies
    rn4babies Member Posts: 409
    edited February 2012

    Thanks everyone for the prayers and thoughts..........I will keep you updated!

  • Natters
    Natters Member Posts: 361
    edited February 2012

    Thinking of you tonight, and hoping you can sleep - at least you're getting this biopsy out of the way, finally! Here's hoping it's negative, and that they can tell you by Friday.

  • kdajay
    kdajay Member Posts: 90
    edited February 2012

    Rn4babies - positive thoughts coming your way.

  • Natters
    Natters Member Posts: 361
    edited March 2012

    rn4babies - thinking of you a LOT this week and obssessively checking on here for news. Hope your procedure went smoothly and that they let you know asap.  

    Nat 

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2012

    rn4babies, How are you? Nans, how was the Mexico trip?

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited March 2012

       I haven't been here a much, because I have been suffering with a very sore wrist and hand.  The pain is excrutiating at times.  I cannot take ibruprophen or nsaids due to being on Coumadin.  I gave in and took Tylenol for arthritis.  I am having some relief tonight.  Sleeping in a wrist brace.  I don't know if it is from Arimidex.

       I hope we hear from rn4babies soon.  I am hoping everything is OK.  Sounds like we are slowly getting our lives back to normal.  Mammogram on my one side next month--holding my breath.

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    Thanks everyone for thinking about me! I've been working constantly trying to get things caught up in case I'm off again. I had my biopsy today and it went smoothly this time. He was able to get the one that is close to the axilla and the other was pretty easy to get to. I'm really nervous this time. The mood just seemed a little more subdued to me by the doc and the techs (they're getting to know me pretty well). The only thing he would tell me is that he got good samples and will have the results Tuesday. The waiting begins.......

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    I just reread my original post. I guess I should elaborate a little. The radiologist told me about the calcs. I got my report after that and read that they are "casting type" or branching. Not good. It also says that after I left she saw a spiculated density near the axillary tail that also should be biopsied. I have my disc from the mammo.  The calcs light up like a Christmas tree. Much more prominent that the ones I had on the other side. The internet is a wealth of information but scary at the same time.

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2012

    Rn4babies, We are all here for you and waiting with you. Take care. Noticed you joined BCO in 2010. Was the lumpectomy in 2011 delayed or a recurrence? Don't answer if you don't want to.Just trying to have a clearer understanding.

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012

    ptdreamers- I joined the forum in 11/10 when I had questions about my first stereo biopsy which was benign. There was another area on that mammogram in which the radiologist recommended a 6 month followup. I had the repeat mammo in May 2011 and the calcs had increased. The biopsy of those calcs in July revealed DCIS and my lumpectomy was in September. BTW....I love the picture!

  • Natters
    Natters Member Posts: 361
    edited March 2012

    rn4babies, thanks for the update. That SUCKS that you have to wait all weekend - I really hope they give you a call before then because I'm sure the not knowing is the worst. You don't know if you need a plan of action or if you can relax until the next mammo. I've never heard of "casting" type but that is something else we can all worry about when we get imaged - thanks for the info! Now I am nervous that they are having me wait until June for my mammo, although initially I was happy about it because my rads breast is still pretty tender. Well, I will be thinking about you this weekend and hoping you get a call from the breast nurse sooner than Tuesday.

    Here is another hug for you from Pittsburgh:Kitten Hugs

  • rn4babies
    rn4babies Member Posts: 409
    edited March 2012
    Natters- Well..........preliminary diagnosis.....infiltrating ductal carcinoma in one site. Either lobular or ductal carcinoma in 2nd site........Given choice of another lump + rads or BMX. May need chemo either way depending on oncotype score. Having MRI soon. May change plan. As of now I'm scheduled for lumpectomy on March 23. I don't know Grade or ER/PR/HER2 status yet.  I am dumbfounded........numb. I just finished rads on December 14th. I know many will disagree but I'm just not ready to have BMX yet........Thank God for this site and the wealth of information and support it provides.
  • tvacrat
    tvacrat Member Posts: 60
    edited March 2012

    rn4babies - that sucks!! Excuse my English. I don't know what I would do in your shoes. I don't think I'd be ready for BMX either, but I didn't know when I went through the radiation that now breast reconstruction is not an option on that side. Did anyone ever mention that when they talked about radiation? Infiltration ductal carcinoma - is that still Stage 0 or is it now Stage 1? And chemo this time? It's too unfair! I don't know how to access those wonderful pictures, but you're getting a big bear hug from me anytime you need one.

  • MrsMot
    MrsMot Member Posts: 90
    edited March 2012

    rn4babies - I am so sorry to hear of this.  You have done it before, you can do it again.  I had a BMX and it was the best thing I could have done.  But its a personal choice.  I had lobular carcinoma and I read there was a 20% chance of it returning in my healthy breast.  The BMX gave it a 0% chance.  I also had immediate reconstruction.  I have new boobs out of my own tissue (fat).  My cancer was much larger then yours and I had no choice.  Whatever you do, fight the beast!  Sending you big hugs. 

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2012
    rn4babies, Sorry to hear your diagnosis. Can you get your oncotype score before surgery? That may help you decide.

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