What's wrong with me????

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faithfulheart
faithfulheart Member Posts: 544

Hi sister's, I really don't want to post anything negative, I just don't know who else to turn too!!

I feel you are the only ones that might understand. I have been out from my dx now since sept. 2oo9,

lately, I am really struggling!!!!!!! I have no motivation to excersize, at all, I have had my ovaries's out,

and I am feeling depressed.............but that was almost 2 years now!!!! I am not sure whats wrong with me I feel like I have taken ten steps backwards!!!!!!!!!! HELP!!!!!!!!!!!!!!!!!!!!!!! I need some advice, any oldie's from this club out there go through this at almost 3 years out!!!!!!!!!

My DH and I are in threrapy, after 22 years of marriage......................I just don't think he knows what to do with me, quite frankley neither do I. Where is my motivation, I should be feeling so grateful right??????? I went into my childrens room last night and just cried and prayed that God would continue to let me raise my little ones!  I did just have a dear friend reacurre, However she did start out in stage 4. I think it's messing with me more then I KNOW......Just need some advice, I feel lost right now......Lost and alone!!!! Sorry to be a downer...........................

Thanks Sister's

Steph

Comments

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited February 2012

    Dear Steph - I wish I could give you a HUGE hug right now. Please know that you are NOT alone that we are ALL in this together. And we All have these crazy moments ( I do) when we are utterly lost and confused and pissed !! about what has happened to us or to our dear friends. It is a constant fight. Stay in the moment. Breathe in through your nose and out with a big sigh through your mouth. Make a sound now! Breathe in again through your nose and out through your mouth......continue. You will feel a bit better. And I hope you are reading this. this shall too pass.... in my next entry I will write some more.

  • 1openheart
    1openheart Member Posts: 765
    edited February 2012

    Hi Steph...I am so sorry that you are having such a rough time of it.  Depression can sneak up on us and maybe it has done that to you.  Lack of hormones can cause depression.  Your friend's recurrence may have started your own mind reliving your own fears.  And it sounds like your marriage is feeling the effects of all of this.  Glad that you and your husband are seeking help.

    I honestly don't have much to offer other than my wishes for peace and wellness.  I just wanted to write to let you know you are not alone and to encourage you to seek medical help or therapy to get through this.  Take care and best wishes, Steph.  {{{{{{{Hugs}}}}}}}}} 

  • PennyCookson
    PennyCookson Member Posts: 366
    edited February 2012

    Oh Steph, course you should not feel grateful,  we are stuck with managing this long term. I am only a year out so can't know what I will be like at 3 years, but you are certainly not alone.   Some people gets meds to help with the depression, it is an option.  I work with the little things, find small things every day that will make me and DH smile, the big stuff will happen or not.

    Just wanted to send hugs 

    Penny

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited February 2012

    OK , here is more....

    come join us in the Motivation exercise group and start a work out plan with us. I am sure the other ladies would just love to have you as much as I would. It is working for us so far, we are doing jumping jacks and wall push-ups even at our jobs. Here is the link below:

    http://community.breastcancer.org/forum/58/topic/729840?page=187#idx_5586

  • MaxineO
    MaxineO Member Posts: 555
    edited February 2012

    Steph: Sorry you are feeling down. What is wrong with you is that you were unlucky enough to get breast cancer!! That's all.  I think it just sneaks up on us once in a while how scary it all is.  I agree with all who have suggested some meds...this is too much to deal with, sometimes, and the meds were developed for just this kind of thing.  Some days the bad news about others is also too much to bear.  I hope you get some relief soon. Until then, know you are certainly NOT alone!

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2012

    As we are in winter, perhaps you are dealing with SAD - Seasonal Affective Disorder.  Especially if you live in a 'northern' area.   It has to do with not getting enough sunlight and thus Vit. D in the winter.  I've fought it every winter since we moved here 17 yrs ago.  It makes you tired, no motivaton, depressed.  Taking extra Vit. D and using a light box really helps.  A light box  simulates natural sunlight and having it hit your face for 20 minutes in the morning does a lot.  Longer is fine.  When I was managing the barn my office had no windows in it so I used my light box for my desk light and it worked great.

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited February 2012

    Kicks - great idea about the lightbox.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2012

    Steph, you never have to apologize for how you feel here, and you never have to feel alone either. We're always here to support you. As well, there are several articles on the main Breastcancer.org site with information and advice that may help you (a very popular topic, with good reason!):

    Depression or Feeling Unmotivated

    Sadness, Depression and Fatigue

    Depression (as a side effect of treatment)

    Judith and the Mods
  • Rachel1
    Rachel1 Member Posts: 363
    edited February 2012

    Hi Steph,

     I was dx in 5/2010 with IDC 4.5 cm, grade 3, 7+ nodes, ER/PR+, BRCA2+ -- kind of a similar dx to you. I've also had a hysterectomy -- just last Feb. And a bilat. mx in Sept.  I just had a 3 month check up and have been totally freaking out since then. I've felt so scared and depressed. I think part of it has to do with coming up to 2 yrs. Does that make any sense?? The onc. nurse said 2 yrs. is a milestone and I should be --- be what? I'm not sure how she ended the sentence -- happy? proud? 

     I want to feel all those things, but I can't. I want to trust that all is well, but that is so hard. Maybe it is the time of year. Maybe it is just the seasons of my mind now. Sometimes I can embrace that all is well and other times I wait for the shoe to drop.  Let's face it, we've all been to hell and back. But it doesn't end there for some of us does it? Some of us swing back and forth -- that's when I realize how much this dx has taken from me.

    I'll stop rambling now.

    Hugs,

    Rachel 

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2012

    Steph, how you feel is how you feel.  I don't think anybody, even you, can say how you "should" feel.  I'm not as far out as you, but I'm far enough out to be wondering "Why am I still obsessing about this?  Shouldn't I be getting back to my life?"  In truth, I am getting back to life, but it's not "my" life as I knew it.  It is taking me time to figure out what my life is going to be now.  And I worry so much about leaving my kids early.  I worry about how devastating it is to lose a parent as a young child, about how they'll be financially if I die, and also also about how hard it would be too see me dwindle.  

    It's also horrible to see friends dealing with stage IV.  When I was diagnosed, all 3 of the 3 people I had known who had been diagnosed with premenopausal breast cancer had died very quickly after diagnosis.  I felt like they were hovering at my shoulders as I went through treatment, especially since I used some of the same doctors that one of them did.  It's real, the fear and dread are not of something imaginary.  And every new diagnosis in a friend or acquaintance, or every recurrence, brings it right back again.

    I am finding that working with a therapist is helping me focus on the here and now, because that's what I've got.  I know that's what we've all got, but I think having a not-early stage cancer diagnosis makes that real in a different way.   Exercise is good.  I wish I could meditate more.  I did acupuncture for a while.  None of it makes the diagnosis different, but they help even me out and keep my mind here.

    Hugs.  I hope you find something that helps you.

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    faithful......I'm 6 years since Dx and I still struggle....I am not the same person I was before Dx...and it impacts my marriage....I've been married for 34 years.....and my husband has been on this journey with me....but he hurts too...he mourns the loss of the wife he married....we are not intimate...I know I struggle emotionally....how can I not!!!!  I do think sometiimes that I should be really greatful for all that I have.....even though I am, I still miss the old me....SOOOO, yes you could be struggling with depression....2 years doesn't mean that you should be over it!!!!  Honor your feelings and try to figure out what you need to do to address them....maybe counseling...maybe yoga, exercise, journaling or somesthing else that makes you feel good.....So for rambling, but I'm thinking outloud while writing....Hugs...

  • SharonMH
    SharonMH Member Posts: 353
    edited February 2012

    Hi Steph,  So sorry that you are feeling so sad. I think it is harder now that we are done with treatment. People think that we are back to normal.but things are different. I am glad that we have this forum to talk about things. I wish you a better tomorrow.  SharonH 

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2012

    I'm sorry you're having such a tough time Steph.  I wish I had some magic words to take it all away, if I did I'd use them on myself right now too.  I don't have any words of advice but just wanted to let you know you're not alone.  I'm having a hard time myself right now and even though me & DH are not in therapy, we should be.  I feel the same way, I should be so appreciative of what I've been given but instead I'm angry, bitter and sad.  I'm sure you're friend has a lot to do with your emotions.  I've moved on in some parts of my life and in others parts not so much.  You come here and vent anytime and if you ever need to PM me I'm here for you. Sending you hugs and prayers. 

  • lexi4
    lexi4 Member Posts: 1,074
    edited February 2012

    Sending you hugs and prayers. Prayers for strength and comfort to get you through. It's a tough road that we are on. You are not alone.

    Hugs and Prayers,

    Lexi

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited February 2012

    (((HUGS)))) Steph,

    Sheesh, your post could be signed by me except my husband and I aren't in therapy... yet. I think it's a matter of time though.  Some days I just want to sleep and forget about it all.  I am on Lexapro but don't know if it's working.  I had a rough patch a few months back but am feeling better now, although getting up in the am seems to be the hardest part.  Once I get going I'm usually better after a cup of coffee or so.

    We get it, so don't EVER be afraid to post here when your'e feeling this way.  I know I have and you all ALWAYS make me feel better.

    Love,

    Sharon 

  • Karina121293
    Karina121293 Member Posts: 370
    edited February 2012

    Oh, how I can relate. It's been hard for me lately too. I love the night, as I can sleep and block out from the world. Otherwise I am hopeless. No problems with DH, but then he is away a lot and somehow I am glad for that. Don't have to play OK . 

    Steph, I really wish there was something that could be done to "correct" our lives, guess it can happen only with time, well quite a long time...Oh and clear scans too.  Meanwhile we have this forum to pick up each other.

    Sending you hugs. Please feel better soon. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    HI Steph,  There is nothing wrong with you hon,.  Depression can hit anytime in our lives even when things looks seemingly good outwardly.  First you've been throught the traumas of this diagnosis that have ongoing issues no matter how far out from dx.  You mentioned your friend having a recurrance.  That can be triggering a lot for you right now, especially so, because you are in therapy with DH.  Therapy always brings up a lot of feelings we've pushed down over the years. Whether it's couples or individual therapy, feelings and issues can come up and we may be crying tears we've pushed down for so long.  Trust me, I've gone thru this whole thing, and it's a long story, I won't get into here but allow yourself to feel your feelings.  Write down some things that you are feeling about different issues, then read them back to yourself or DH and your therapist.  By doing this your are giving your feelings a Voice, and by reading and speaking and hearing those feelings you've written down, you are allowing your senses to process them in your brain, in the non feeling and feeling part of the brain, and somehow it helps us to process all the stuff that comes up into our heart. 

    I hope you do feel better.  Also, this time of year can cause a little cabin fever, so try and force yourself to get out and walk in the sun even if it's for a couple of minutes.  Peace and blessings to you faithfulheart.

    image  

    Barb

     

  • brazos58
    brazos58 Member Posts: 261
    edited February 2012

    (((Steph))) I hear you! And you have alot of company with alot of my issues. I am 20 months out. I did not have my ovaries out.... but next month will be official mentalpause if I go that month.

    I have to push thru the TIRED. I find motivation comes later in the afternoon. I do weights for my LE. I know I will have to get back to walking....

    I pray alot. I am not quite sure what to do next in my life/ not thriving yet/ just getting scares every 3 months for myself...not so much with people I know....its very confusing and disorienting still.

    I find Girlfriend time with best friends/ and swimming in Music ala headphones helps me get out of my headspace and dance...

    The DH issues, its an ATOMIC BOMB dropped on marriage. Its a long road back. I am just smiling about US for the first time. Not only do we have to re-invent our Sorry Selves..we have to re-invent Our Lives...and Marriages. Its a tiresome/ journey leaving me bouncing around in all stages of Grief after Mastectomys.

    Its left me with my Pissy On more of late...and wondering when my Gratitude will arrive.

    Hope this helps.

    ARRRGGGAAHHHH!

    Hang tight. Keep your Chin up.

    love

    Brazos

    xo

  • faithfulheart
    faithfulheart Member Posts: 544
    edited March 2012

    You really are the most amazing women in the world!!!!!!  I sooooo understand the sleep thing...................The greatest part of my day, I don't have to think!!! The nightmares people have in there sleep, such as getting the big C, We wake up to in the morning and this is our reality not our nightmare!!!!!!!!!!!!!!!!!!!!!

    Speaking of the big "C" has anyone watched that SHOW??? i was always to afraid, but, I have to tell you guys, It was really good!!  My DH and Iwatched the whole 1st season, I think it helped him alot..............There's this part where the husband knows how hard it is to wake up in the morning, right? So he starts putting pictures on the celling of all the people she love's in her life, its awesome. It starts out as one or 2 pics and turns into her whole celling. I think we should all do this!!!! How great to wake up and see all the people and things you love, first thing, I love it! It's a bigger reason to get up and keep on keepin on!!!!!

    I love you ladie's soooo much, I pray for us all everyday, and I will take your words and love any time...... Thanks for being there like no one else can!!!(((((((( Barb, such sweet words, God Bless you right now too!!!!!!!!! You have really been in my prayers lately!!!!!!!!!!!!!!!!!!!!!

    What would I do without you all, I am grateful!!! Tears...............

    Steph

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2012

    So glad to hear from you again Steph. Please come on over to the Motivation thread and start doing some exercising with us. It would be good for you, I promise. There was a lady on this thread above who mentioned taking walks. I highly recommend it also. It is very healing. I remember ...one time ....before I joined BCO, I called the HER2+ hot-line b/c I was so depressed and the lady on the phone told me... "I want you right now to get up and get out of the house, do something like getting an ice-cream and go for a walk!".I did . And I will remember those words and her "orders", as they helped me greatly. Although, I rarely eat ice-cream nowadays, I still think a big walk always helps. I am about to take one right now.  

  • financegirl
    financegirl Member Posts: 114
    edited March 2012

    I agree - never allow anyone to tell you how you "should" feel.  My mother died from this dreaded disease over 40 years ago (and trust me when I say, we HAVE come a LONG way).  Sister and I have been STRONGLY monitored and I have never missed a mammo in over 30 years.  I had always been told that because I have been so vigilant, I had no worry, it would always be caught early.  Then, when my cancer was finally diagnosed, the tumor was small (about in the 1cm range)but it sure had done a heck of a lot of damage in a short time because there was a lot of node involvement.  Worse yet, I say in a short time b/c I'd had a mammogram just 9 months earlier and it wasn't on that film or any of the others from the last 5 years.  This serioiusly was found only due to one of those fluke things. 

    For me the dx was almost a year ago and I have just been released from treatment.  In the next 5 weeks I am in "appt mode" for tests to make sure it worked.  I have decided that my life has to move on and I can't think about "what may happen".   It's where I am now but I can easily see how this disease has changed me already in ways I'd never be able to explain.  Depression because of this is a real possibility.  I am not married, have no children and have decided the easiest revenge I can place on this disease is to accelerate the rate I enjoy life by doing as much as I can and I've just scheduled a trip of a lifetime for September.  No matter what happens I don't want to become an old lady and think that cancer has held me back from doing things I coulda, shoulda or woulda have done when I had the chance.  Or worse yet, I am not one of the lucky ones and don't get a lot of years and then am angry because I allowed it to hold me back.  

    My hope for you is that you find something to lift or help the depression and find peace within yourself and begin to feel better.  After all we go thru, we all deserve it!

  • jdootoo
    jdootoo Member Posts: 253
    edited March 2012

    Hi Steph,

    I haven't been coming to this board as often as I used to, but I saw your post and I just wanted to send my love and support. Some days are easier and some are harder. I have young children too, and that alone is hard. We are here for eachother...

     One love, Jackie

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited March 2012

    Financegirl: well said! Thank you!

  • fondak
    fondak Member Posts: 376
    edited March 2012

    Thank you for sharing this.  I am new to this forum and it's been such a blessing.  This week has been unusually difficult for me. I just finished 5 months of chemo and I start radiation next week.  I believe my feeling is related to finishing chemo and expecting to feel so much better than I do.  Another thing.....I think....is that while in chemo, even on the bad days, I felt like I was fighting cancer. Now that I am not having the chemo going through me, I believe I feel more vulnerable.  I'm hoping it's just an adjustment.

    Also, going through photos for my sons' graduation dvd which is coming up. I homeschooled them (twins) all the way through their school and so that is a big adjustment in itself.  Then my friend from high school who had the exact same diagnosis as me with the exception of her having 2 more lymph nodes, had a recurrance.  I just found out 2 days ago.

    I have to not let my mind go places that it can tend to run to.  I have to focus on that fact that it doesn't mean I will have to go through the chemo and all again.  Too, for her it doesn't mean that she won't do well after this is dealt with. 

    One thing about us stage 3 girls, they keep us in check and stay on top of things. 

    Above all, I have faith that God is in control and I belong to Him.  When I focus on that it helps.

    I hope you are feeling better.  If you get a chance let us know how things are going. 

    Aren't these ladies just wonderful?

  • faithfulheart
    faithfulheart Member Posts: 544
    edited March 2012

    Hi my dear sisters,

    thank you all for your beautiful words ........ I am feeling better and I really believe its just one day at a time....fondak, we are all Gods children, I believe He is in control of our life, His plans are not ours, The Lord loves us and without my faith, I would not be strong enough to take this journey.......... I feel strong, and I feel so blessed to have all of you. There will be times of fear, However as time goes on, it does get better..........Thank you so much for your support,You are the most amazing women I know!!!!

    God Bless all of you!!!!!!!

    Steph

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