6 month CT Scans "normal"?

Options
TheNancyGirl
TheNancyGirl Member Posts: 40
edited June 2014 in Stage I Breast Cancer

Is it unusual that my oncologist gives me CT Scans every 6 months?  I don't know what they're called but they're the ones with the iodine iv and barium.

 He said he gives them to be because "you're too damn young to have cancer".  I was 42 when I was diagnosed and I know that doesn't make me "young" for breast cancer. 

eta:  My breast cancer never "showed up" in my blood work so tumor markers aren't a good measuring tool for me... maybe this is why he does the ct-scans??? 

Comments

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2012

    Nancy, the sense I got is that all pre-meno women are considered "young" for BC.  I read something today on a BC-research website that said that half of BC Dx's are in women over 65. (That seems high to me, but what do I know?)

    Regardless, I've never heard of regularly scheduled full-body CT scans for stage 1 patients. Is that what your MO is recommending?  My DH likes to point out that many tests have drawbacks (in addition to the emotional stress of waiting for results). I don't know CT scans but I think some scans emit a fair amount of radiation; if CT scans are one of them, I'd consider that in deciding how often to do them. Maybe time for a second opinion? FWIW, my follow-up (over the next 5 yrs) is annual mammogram and annual B-MRI, but offset by 6 months. 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited February 2012

    Nancy - My diagnosis is similar to yours. I never had a CT scan, just mammos and MRI before and between surgeries. And like Peggy, my follow up will be mammo and MRI 6 months offset, so one of each each year. I'll also be on Tamoxifen for 5 years.

    Early BC doesn't usually show up in blood work and I doubt mine did, no one ever told me about it even being a possibility.

    -Judy

  • Panmars
    Panmars Member Posts: 299
    edited February 2012

    Indeed, CT scans emit a fair amount of radiation. Every six months seems like a lot to me. I have had one since my DX, at 43 years of age, and like peggy_j, I have an annual mammo and breast MRI, offset by 6 months. Being early stage, I would question the every 6 months CT scan. The only extra test my MO orders is an annual chest X-ray.

  • TheNancyGirl
    TheNancyGirl Member Posts: 40
    edited February 2012

    Thank you ladies.  I do have to ask though.... Mammo's????  MAMMO"S???  Aren't my days of mammo's over?  Sorry if this is a dumb question, I just thought that since I had bilateral mastectomy with reconstruction that I didn't have to have mammograms anymore.  Am I wrong?

     As for the CT Scans.  It's not that I don't want them and feel that the small risk of radiation is worth the piece of mind.   I don't know how long he plans to do them (I've only had 2 so far, most recently last week and my next visit with him is on Tuesday).  I'll be switching oncologists next month anyway because I'm moving out of state and need to find a new one.    I just wondered if it was unusual so that I could kind of guess whether the new oncologist will do them too.

  • thegoodfight
    thegoodfight Member Posts: 560
    edited February 2012

    In my bc experience I have found that most mo's think less is more and they choose not to do cat scans or any scans unless "something" presents.  I would ask your onc why regular scans?   I,  like those before me have alternating mammos and breast mri's every six months.   But.......................I did not have a mastectomy and I think that has a lot to do with the oncs choice of followup care.  But ask, so you know what is going on, especially that you will be  going to new drs with the move.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited February 2012

    I had a UMX, but my BS said that I would have Mammos on both sides. But others have said not, so it seems to depend on the doctor, as does so much of our treatment, it seems.

    -Judy

  • bevin
    bevin Member Posts: 1,902
    edited February 2012

    My doctor does scans too, plus blood work, mostly due to my young age (45) and size of tumor.  I'd assume your Onco may do them the first 2 years when the rate of reoccurrence is highest. Perhaps then, after clean scans he will change to an "as needed" frequency.  It's good to ask  him what his plan is. Good luck, I hope you have many more clear scans!

  • DocBabs
    DocBabs Member Posts: 775
    edited February 2012

    Too much radiation exposure especially for someone with your diagnosis.This from my husband, chief of radiology at major teaching hospital in NYC.

  • TThyme
    TThyme Member Posts: 1
    edited March 2012

    If you are referring to a true CT scan being performed every 6 months, this is not standard practice for stage 1 breast cancer and are not recommended.  CT scans should only be done if needed because of the amount of raditaion that they emit, and medical news reports are now warning drs that the scans may cause cancer. See link to asco guidleines for follow up care for breast cancer patients

    http://www.cancer.net/patient/Publications+and+Resources/What+to+Know%3A+ASCO's+Guidelines/What+to+Know%3A+ASCO's+Guideline+on+Follow-Up+Care+for+Breast+Cancer?sectionTitle=Recommendations&sectionId=101150&vgnextrefresh=1 

    You need to directly ask your dr why he/she is making this recommendation. Also, I agree with Doc Babs coomment.

    This is just me--I would not have CT scans every 6 months just to be sure I was not stage 4. Scans are done in stage 4 patients to make sure tumors are shrinking etc based on chem being given or in non Satge 4 patients when they have compliants of bone pain etc lasting more than a couple of weeks.

    You indicate you are stage 1 and I would advise you to get a second opinion on what your medical oncologists is recommending. Just my thoughts.

  • TheNancyGirl
    TheNancyGirl Member Posts: 40
    edited October 2013


    Resurrecting this old thread to say, I found out why he was doing the CT scans. I have too much metal in my body from injuries to do MRI's. :) They switched me to just regular bone scans, twice per year.

Categories