Lymphedema and nailbiting

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Lymphedema

I know I can not be the only person with this nasty habit. I've probably been biting my nails, down to nothing and bleeding, since I was 2. I've tried many different things to break the habit and it may work for a month, and then there I go again, gnawing away. It wasn't really a SERIOUS problem until now.

The surgeon took 40 nodes from my left side. The therapist says I have latent to stage 1 lymphedema. So it's there just not bad, yet. Can anyone give advice to stop this nasty habit?? Anyone?? I don't want this to get worse.

Comments

  • Suzybelle
    Suzybelle Member Posts: 920
    edited February 2012

    Hi, Jendon:

    I don't have advice on how to kick the nailbiting habit, but I can tell you that after 2 bouts of cellulitis in the past 18 mo., I've decided to be more careful with my nails and hands in general.  I have LE in my right arm and am guilty of not wearing gloves to clean, not protecting them against hangnails, cuts, etc.  I resolved to do a better job, and so far, it's working well.  I'm keeping my nails manicured and gloves on constantly when I'm cleaning house and washing dishes.

    Cellulitis is nothing to laugh about - it's serious and it's something to consider.  Your nail-biting habit could land you with a case of it, and believe me, you don't want it.

    Good luck to you - I'm sure some more ladies will chime in with some good advice.

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited February 2012

    Making a new habit is a a difficult thing.  In fact some experts say that it takes at least 45 days to make a new habit.  What have you tried?

    Substituting a new habit for the old is frequently the "easiest" (of the not easy) approaches.  To decide what substitution you will make, you need to observe yourself a bit.  When do you bite your nails? In your sleep?  While waiting in line?  When you're nervous? While watching TV?  When you're on the phone? on-line? You need to make up your own list.  If you're not sure, try to write down the time/circumstances each time for the next day or so.

    When you know when you bite them (and perhaps some of your triggers), you'll be able to come up w/ one or more strategies to pursue. 

    I've seen strategies employed that involve one or more of the following tools: (1) Bad tasting stuff, (2) Manicures (3) Knitting or other needlework, (4) gloves/mittens, (5) worry stones, (6) prayer beads, (7) Ohm finger position, (8) a bracelet that can be "fingered," (9) a toothpick to chew on, (10) exercise, (11) tapping on your wrist, and (12) affirmations.

    What tools you'll include in your strategy will depend on your list of triggers/times and what you think will work for you.  Identify a tool (not necessarily the ones in my list) that you can substitute in that circumstance.  As you go along, you may discover new times/triggers.  Don't let it throw you.  Just add the new time/circumstance to your list and decide on a substitute.  

    At the end of the day, take a look at your list, and think about what happened that day.  Certainly you'll want to celebrate successful substitutions (I call that giving yourself a mental "atta-girl."), but when you discover that a substitution didn't work, decide for yourself whether you need a different substitution, or whether there was something that prevented you from employing your substitution:

    • you didn't have what you needed with you.
    • you didn't notice until it was "too late."
    • you didn't want to employ that substitute in that circumstance.

    whatever it was.  You'll notice that some of the tools in my list are things to make you notice that you're nail biting (bad tasting stuff/gloves), some are to prevent your from nail biting (like mittens/some gloves) and others are to use as or with a substitute habit.  

    Make a calm plan for what to do differently the next time, edit or add to your list, and start new the next day.  This is not an easy thing, but if you keep at it, you will get there.  Remember, this isn't something that you'll have accomplished in a week or two.  At least 45 days to make a new habit.  And each of your substitutions is a new habit.

    If you want suggestions for particular times/places, share them with us.  We can help come up w/ possible substitute habits.

    Good luck!

    LisaAlissa 

    eta: closing paren 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    I can relate, as during the winter months my cuticles get dry and the tip of my thumb has always tended to crack. I used to pick and try and get rid of the dead skin, but occasionally (okay, more than occasionally) it would cause my cuticles to bleed. Ever since my LE diagnosis, I realized it was important to stop this behavior, exactly for the reason Suzy mentioned. Since I have truncal LE, I am so afraid of cellulitis, and I think this helps provide a negative association with cuticle picking. Instead, my attitude now is to maintain my hands and nails in a proactive way, and I apply lotion after every hand washing. I apply lotion before bed, or anytime I notice my hands feel dry. Makes me feel a lot better than I do when I pick! I think cuticle picking and nail biting are a nervous habit, and the only time I catch myself picking in spite of my lotion routine is usually when I am ruminating over something or during/after a tense social situation.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012

    I was a serious nail biter as a child & saw no reason to stop. Working around germs has helped me stop. OK, I haven't completely stopped. Sometimes I'll get a break in one of my nails while washing my hair in the shower & I'll trim it with my teeth. I swear I can do a better job with my teeth than with cutters/scissors/file. One of the things I've done over the years & still do is take my thumb nail & run it under my other nails(just to the quick). It provides stimulation similar to biting. My fingernails often extend past the end of my fingers.

    Another thing that slowed me down was braces(the old metal kind) back in high school. But once the braces came off.........I had no reason to quit.

    Since I've had nodes removed bilaterally I'm also trying to take better care of my hands. I'm working to stop tearing off & sometimes biting hangnails. Also trying ways of preventing.

    I never understood why I was a nailbiter in the first place. Not nervous, boredom........Good luck!

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2012

    Jendon,

    I attacked my cuticles and the skin around my nails all my life until my diagnosis.  Really dry cuticles seems to run in my family.  They get dry, split, lift up a little, then it only seems natural to try to peel the rough thing off.  I have cousins who have the same thing - we weren't together enough growing up to have learned it.  My fingers have also always split a lot in winter - the sides, the pads, under the nails, you name it.  

    I quit cold turkey very soon after I was diagnosed, before I started chemo.  I work in healthcare and knew what would be coming with the neutropenic precautions, didn't want any hangnails being the reason for ending up in the hospital.  Then I got lymphedema and my motivation changed to not wanting cellulitis.

    LisaAlissa's post is amazing, but honestly, for me, it was simplyl the motivation of fear making me very suddenly stop doing something I'd done all my life.  I now have nail clippers in every car, at work, in my jackets, so that if one of my cuticles suddenly ends up splitting and sticking straight up, I (VERY carefully) clip offthe protrusion so it doesn't snag.  So maybe keeping nail clippers all over and using them instead might help?  I also pay more attention to keeping my hands moist now.  I buy a ton more bandaids to treat splits I otherwise would have just lived with for a while.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    Yes, I put bandaids and neosporin on my split thumb immediately. I should buy stock in both. I carry them everywhere. Fear is a great motivator! And honestly, my smooth and moist hands look so much nicer than dry skin and raw cuticles. Duh.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012

    One thing that seems to be helping me with the dry cuticle/hangnails is that I put a heavy layer of Bagbalm on my hands, extra on the cuticles, & then wear cotton gloves to bed most nights. Definitely makes my hands soft & seem less dry. Some times I'll take them off 1/2 way thru the night. I get the cotton gloves at CVS in the badages dept & the bagbalm is with the vaseline. I was going to try cocnut oil when I run out of bagbalm.......With my finger nails being somewhat longer the gloves keep me from scratching(usually my arms) in my sleep. Also switched soaps so I wouldn't itch so much.......

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    Thanks for all you input ladies. Didn't bite today. Maybe posting and reading your stories helped keep it at the front of my mind. Probably the fact I ate sweet tarts all day. hmmm... maybe that'll be my next bad habit to kick, but we'll leave that for another day. Thanks again for your input.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited February 2012
    I'm glad I'm not the only cuticle picker here - giving that up has been the hardest for me as well.  besides using moisturizer constantly, I've had the best success with Outfield's method of keeping nail clippers everywhere, and carefully nipping off a cuticle if it splits and sticks up.  It doesn't help that ever since chemo my nails have been brittle and peel and split at the drop of a hat, and sometimes they split right down to the quick.  Frown

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