Insensitive Friends / Family
Hey Gals . . . maybe there is a thread on this already . . . but as newly diagnosed DCISer . . . I have been amazed/shocked/suprised by some of responses I have had . . . or in may cases no contact at all. I've had friends who have been amazing (showing up with bottles of wine!!!), I have had friends who have made absolutely no contact at all (this has been the worst of all), I had one friend who emailed me to tell me all about her upcoming bunion surgery with a little "thinking of you" at the end (clearly getting bunions cut off is equivalent to getting your boobs cut off!!!), to friends who have told me how lucky I am and asked me to keep them informed (really - how about you contacting me?) . . . I just mostly wanted to hear everyone else's experiences on this topic!!!
Comments
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Sometimes I think that people, our friends included, just don't know what to say. My close group of girls night out friends, were great. They gave me a boob voyage party complete with a boob cake! While my own sister has yet to pick up the phone to see how I am doing. And I was dx. almost a year ago. I had to call her to tell her that she was in the clear....my BRAC results were neg. If we talk, I always call her. Oh well.....
I try to give folks the benefit of the doubt. But, there are times I just want to slap them silly!!!!
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OMG. How did you find the strenght to reach out to your sister? That is unbelievable. One of my sisters (big family) is in Florida with her hubby for a few months (they are retired), she has not reached out to me until this morning when she sent me an email saying "wish you were here we'd have a blast". I emailed her back and asked her if my other sister had told her . . . she said "yes", but then went on about how lucky I am to live in Canada . . . that was it. Slapping her was one idea . . . .
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Many of us have been through this. I never got my BMX or chemo acknowledged by DH's SIL and my surgery was over a year ago. I never got a phone call or card from her or my BIL either. Some of my own family barely called at times and my own mom acted like I should be calling her. My sister finally told her to pick up the phone herself. I was let down but many people along my journey, but I was also treated wonderful by others that stepped up way more than I ever anticipated. I am truly grateful for those that really went out of their way to do special things for me. I have come to realize that BC is very lonely. Most people don't get it and think you are curable. They don't understand what it is like to be faced with real thoughts of mortality because of being diagnosed with an incurable disease. I think I spent a lot of time convincing everyone I was OK because I didn't want them to worry but sometimes I needed people to show concern but they didn't get that. I think the whole topic of any kind of cancer situation makes people uncomfortable so it's easier to not do anything than do something. I really don't think that most people don't care, I think they just don't know how to handle it. This journey has made me realize that I too need to be more compassionate to others and take the time to support others with whatever they are going through that is challenging in their life. I know it makes you sad to feel like people are letting you down, but I don't think in most cases that is their intention. Hugs! Just know you will have lots of loving, caring support here

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Thanks mdg. Although I a may be thinking wwwwaaaayyyy ahead (being optimistic and all that), but I'm not sure how I will be able to look at certain people again. Did you experience major relationship changes when it was all over? I'm so glad to have found this site!!!!!
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I have been so lucky -- I work with about 100 people and I have received so many cards, emails, flowers, fruit baskets and prepared meals -- they have been wonderful. I have been off work for a bit so they have slowed down but still receive many emails with a quick "thinking of you" and "miss you".
I have one sister in Florida for the winter also like VeganGal and I think she must be related to her sister ... it is almost like she doesn't understand how serious this could be -- I am lucky because I am not going to have to have chemo but that was not knows until last week. Another sister finally visited last week - surgery was January 11. I am single so my younger sister has been going to all my appointments and tomorrow I meet with the Radiation Oncologist and she is coming to that too. I have assured her I can handle it alone ...lol.
I have to admit, the people that I expected to hear from, I have not and some have really surprised me -- right down to calling and bringing dinner 2 x's.
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Hey Joanne . . . maybe our sisters can just stay there . . . for good!!!! And, me too, I am getting more love and caring from people I work with . . . and other people that I would not have expected it from. My two sister in law's have not called me at all . . . nor has my brother . . . and he is the pastor at my parent's chuch and announced it in church . . . but still has never spoken to me!
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Joanne....Yes, I agree with you. The people I expected to be there for me, where often absent and those who I really did not expect much from really stepped up to the plate.
MDG....I think many of us have tried to downplay just how scared and worried we really are to protect those that we care about. I hate to worry people, especially those that I love.
All I know is that I try even harder than ever to live my life from a place of gratitude and show compassion and support to those around me.
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1openheart .. you are right when you say that we downplay just how scared and worried we are .... I think we also downplay how we are feeling -- if we are not feeling great we still manage to be "up". If people to contact us we don't sound "sick" so they don't know how to handle us.
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Now being a year out, I can say I have tried to let go of the negative feelings towards those that let me down. I just don't have the time or energy to focus on negative things. I know I have grown through this process and I know I will never treat ANYONE like that. I feel good about how I handle myself and how I treat others. I can't control what other people do....I have learned to let it go. I also have learned to expect "nothing more than what I got" from those people. I know they won't act any different at other points in my life where I may need them. Don't waste your feelings and emotion on these people. Realize that it is better to let the emotional stress of that go so you can stay healthy physically and emotionally for yourself. Hugs ladies.....we "get it".

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I truly understand what you are saying. I literally went through all of this alone!!! It's been two years, and there are times when I think it all didn't happen. I didn't have a BMX, but went through the biopsies, lumpectomy and 7 weeks of radiation alone. Only time my husband was with me was when I had the lupectomy because, of course, I was too sedated to drive. To this day, no one talks about it....no one....friends, family...you name it. If I bring it up, it's brushed aside and I think only because this type of cancer is downplayed from the get go. You know what I'm talking about..."it's not really cancer"...."you are lucky to only have this"....and it goes on and on. So what do we do? We, as women, push it down deep inside and try to live each day as it's a blessing, right? I don't know what to really say, other than you just have to do what you have to do....take care of yourself and do what is best for you. When it comes right down to it, we only have ourselves...and just remember "when someone shows you who they are, believe them"...in other words. if no one can take time out of their busy day to just call or email to say, "hi...thinking of you...how are you doing"...then in my book, their friendship really isn't all that great. As for family members, I don't want to really give my opinions on that....it has made me very sad, to say the least.....
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I hear you on this. 1openheart, I had the same experience with my sister. I went past the "WTF" stage to just not caring if I heard from her or not. When I finally called her I was genuinely ticked off. I mean, my co-workers surprised me with this heartfelt outpouring of just COOL stuff (like photographing the entire office, all 80 people, wearing pink and posting the pics on my FB page while I was in surgery) and my own sister couldn't pick up the f'ing phone? Grrrrr.
I sometimes wonder if it just hits a little too close to home when it's your sister. She did go get a mammogram a few weeks after my dx, so maybe she was just scared? I don't know. I still can't figure it out.
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Cherylmarie - some people just suck! I'm so sorry to hear all of that. And although it has been 2 years, and I'm glad to hear you are healthy (yeah you!), you will likely never forget. My MIL is 80 years old, and has slight dementia. She had BC with a DMX when she was in her early 30's. Although she is often not lucid, she calls me every day, and she is so clearly able to articulate exactly what certain people did and said (and didn't do and say) when she first got her dx, and through her surgery and after. It it as if it is the most clear memories of her whole life. She will often not remember about when my husband was a child, or her other kids, but it is amazing how she remembers exact words and comments from almost 50 years ago. And . . . indeed . . . Spinnerpom . . . family can really be the worst of all. And, the reality is that it hurst the most . . .
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You ask is there already a thread devoted to insensitive people? You bet there is!!!! Come on over to the Bonfire of the Goddesses thread! Just do a search (click the word "search" in the upper right hand corner and type in "Bonfire of the Goddesses"). We have so many people burning in that fire that last week, I could have sworn the entire East Coast of the United States was up in flames! Not only do we have people tossed in, but we also have...hmmmm....let's see... our calendars filled with doctor appointments, scan equipment and the technicians who run them, and a real big one that gets tossed is, all the side effects we get from treatment!
Jo1955, bless her, started the bonfire and I swear it is MAGICAL. Because after you toss something, you feel so much better! Come on down to the bonfire and start throwing in some of your fear, anxiety and frustration and see for yourself! We have marshmallows toasting all the time there as well....
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spinner....Luckily I had plenty of other family members who were there for me both physically and in spirit. My husband is amazing and it hurt him so to see me going through this. He was and is with me every step of the way. I"m getting my tattoo today and he wants to go with me. I really don't need him to, but he wants to anyway. Our neighbors were on my door step with food and gifts from my first day home from the hospital. And my girlfriends....I could not have gotten through this as well as I did without their humor, love and support. I always feel that "friends are the family we get to choose".
Vegan...I don't think that people understand just how much losing a breast or part of one for that matter affects a women...deep inside. First of all the fear changes you forever. And for most of us, our breasts are a huge part of who we are even if we don't realize it. We all remember those little buds starting to show when we were young girls beginning puberty. If we've had babies, we remember our breasts being the first thing to notice something different was up in our bodies. And for me, breast feeding my son was one is one of the most cherished memories I have....his little hand touching my breast as he suckled. And sexually, my breasts were an integral part of our lovemaking. I so miss the sensation. I am grateful everyday that I only had to lose one and I accept the little nugget of worry that is always present in the back of my mind that there may be cancer lurking somewhere inside the breast I kept. I know that I am so much more than my breasts and that they never defined me, but that said, they still are very meaningful and important on so many levels.
Wow, this was not what I thought I would be thinking about over my coffee this morning!
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