Do you call DCIS "breast cancer"?

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  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    Dixiemine - no worries on the name. :)  A beach house sounds awesome.  Funny story - my hubby knew all along that Disneyworld was my destination of choice and was cool with it.  I even told him we were staying at Polynesian and paying the big bucks. :)  Then we do our taxes and were bummed to owe more than we thought.  He says to me "maybe we should scale back on DW."  You know that look we can give our husbands...you know... "THE LOOK!"  He sees it and then said "No.  Of course not.  We won't do that."  Good boy!  You just redeemed yourself!  So funny.

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    There is a tab at the top for Private Messages.  Click that and you'll see where to send PM (short for private message).  I'm no expert on the shorthand but I know these:

    mx - mastectomy

    unimx - unilateral mastectomy

    bmx - bilateral mastectomy

    rads - radiation

    ps - plastic surgeon

    onc - oncologist

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    Thanks - I'll start my dictionary!!

  • lane4
    lane4 Member Posts: 175
    edited February 2012

    Go to this thread: http://community.breastcancer.org/forum/131/topic/773727

    This is a very helpful list of abbreviations that is provided by the Moderators. If this link does not take you there, go to the Forum Index, Welcome to Breastcancer.org, New to this site? and you'll see the list there.

  • CLC
    CLC Member Posts: 1,531
    edited February 2012

    I told everyone that I had breast cancer that was caught as early as could be.

    I think the way I explained it to my 7 and 10 year old children had the most meaning for me.  In the fall of 2010, when I was diagnosed with ADH, I told the kids that cancer is cells that grow like crazy and therefore are dangerous to the normal cells around them.  I told them that I had ADH which were cells that were not yet dangerous, but could become dangerous, so we were removing them. 

    Then, when I was diagnosed with DCIS this fall, I told the kids that I had dangerous cells this time, but they hadn't yet been able to cause damage.  The doctors were removing the entire breast to be sure there were no cells left that were dangerous. 

    I explained that IDC is when the dangerous cells have started causing damage, but that wasn't happening in my case.

    I think, in essence, that is all accurate.  At the time, it helped me come to terms with what was actually happening.  I felt much reassured, as did my children.

    I personally feel very lucky.  They caught my cancer at the first moment and I had all sorts of options and choices available to me.  I, too, was nearly vegan and worked out extensively and quit smoking years before and rarely drank...etc...  A couple of times, I thought, why'd I bother??  But mostly, I was grateful that I was in such good shape and it allowed me a quick recovery from surgery.  I wonder if it also caused my cancer to grow much more slowly.  I will never know, but I am not going to second guess myself by knocking myself down.  I am glad I am in good shape and I believe that it HAS helped me in relation to cancer.  I didn't get cancer in spite of my lifestyle, I am surviving cancer in style because of my lifestyle!!

    I feel for all of you who are so newly diagnosed.  Those first months are really a roller coaster.  It is getting better now, but I still feel newly diagnosed, 5 months later.  Wishing you all the best...hang in there...it gets better.

    Claire

  • CLC
    CLC Member Posts: 1,531
    edited February 2012

    Deleted as a repeated post.

    Turn your face to the sun and the shadows fall behind you. ~Maori Proverb
    Diagnosis: 9/15/2011, DCIS, Stage 0, Grade 1, 0/1 nodes, ER+/PR+

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    CLC - I love this statement you made..."I am surviving cancer in style because of my lifestyle!!"

  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited February 2012

    VG -- There is no such thing as too many or silly questions here.  Ask away :-)  I have found the body has a remarkable ability to make tears because I've shed buckets of them.  The first couple of weeks I began to wonder if I had also developed a personality disorder because I could go from normal to angry to weeping all within 5 minutes.  It's A LOT to process, feel what you feel and know that we are here to support you.  We know what you are going through and it's nice to have somewhere to turn for answers.  This forum is wonderful and there are so many knowledgeable ladies here....I love it!!!!

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    That is quite a list of short forms . . . oh my! Much to learn . . .

  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited February 2012

    Unfortunately, you'll be a pro in no time :-)  I swear I have never in my life spent so much time thinking about and talking about my boobs....haha.

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    VeganGal - a couple of other terms that I find kinda funny...

    Foob(s) - fake boob(s)

    Fipple(s) - face nipple(s)

  • CLC
    CLC Member Posts: 1,531
    edited February 2012

    A list of abbreviations can be found on the forum index.  If you go to the forum index at the top, then go to the "New to this site" forum, there is a thread with a list of abbreviations...

    Here is the url

    http://community.breastcancer.org/forum/131/topic/773727?page=1#idx_1

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    You chicks are awesome!!! Thanks for making me laugh for the first time in almost two weeks . . . and . . . yes. . . I don't think I said the word "boob" outloud so much in my entire 43 years of life as I have in the last 10 days . . . so funny . . . and I've never looked at so many sets of boobs online either!! Boob, boob, boob, boob . . . . I may write a boob song . . . or a Bye, Bye, Boob song . . . I was even considering throwing a Farewell Boobie Party before my surgery . . .

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    VG - I am 43 too.  Too young for the real or fake cancer!

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    Merritmalloy . . . sounds like we have a lot in common . . . it is a pleasure to "meet you" . . . .

  • CLC
    CLC Member Posts: 1,531
    edited February 2012

    Well, girls...I am an old lady compared to you...I come in at the ripe old age of 44...:)

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    CLC - maybe you should head on over to the DCIS/AARP board. ;-)

  • CLC
    CLC Member Posts: 1,531
    edited February 2012
  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited February 2012

    Several ladies have had farewell parties for their "girls".  One even had an awesome boob cake...haha.  If I can find that link I'll PM (private message) it to you.  It was great!!

    I know!!  My husband and I have both been looking at boobs for weeks....sometimes we both crack up at ourselves.  I am almost positive that before January 3 had I come home and found him looking at boobs on the internet there would have been a huge fight.  Now I just ask him if he's boob shopping...LOL.

    VG -- you are going to be fine.  Is it fun? No!...but it is doable!!!  I am also 43...one more thing in common.

    Love & Hugs ~Karen

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    CLC . . . I really need to embrace some of the comments you made about doing better through this because of my lifestyle . . . not inspite of it . . . thank you for that!!

  • Dixiemine30
    Dixiemine30 Member Posts: 163
    edited February 2012

    Merritmalloy -- real or fake breast cancer?....totally cracks me up.  I will be 43 in July :-)

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    Karen . . . so great - so funny . . . I can't believe that we are all the same age . . . all with DCIS . . . all the same experiences . . . I didn't know what it would be like to come on this board, but I am grinning ear to ear right now because of all of you . . .

  • Carolanne03
    Carolanne03 Member Posts: 42
    edited February 2012

    Hello girls, I had to chime in w/ a thanks for making me laugh and making me feel relieved that there are others out there like me who have been completely blindsided over the past few months.  I was diagnosed in Nov 2011 w/ DCIS. I wanted a BMX from the beginning , knowing that I would worry myself sick for the rest of my life worried that it would come back. I've had many people that are super supportive. I do feel very lucky that my cancer was found so early. Biggest complaint... I've had a few people that have had breast augmentation comparing their recovery to mine.... REALLY??? So I'm forced to either smile and nod (knowing that they just dont have a clue) or ...kindly remind them that these are very different surgeries since I had cancer..

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    Welcome to the "gang" . . . I am leaning towards the same decision . . . I am a worry wart . . . and don't want to live like that . . . did you have immedicate reconstruction? I want this but I understand that some surgeons push back? Did you have nipple tattoos . . . I've checking these out online and they look very cool . . .

  • gumshoe
    gumshoe Member Posts: 248
    edited February 2012

    I am so grateful for all the feedback regarding this question.

    I started out actually feeling somewhat guilty when explaining DCIS to my family at least (go figure, I'm Canadian) and then had an about-face after going through surgery. My sister had a more aggressive form of breast cancer, so that might have had something to do with it. Plus my surgeon did say "you don't have cancer" which really confused me. I realize that surgeons see in black and white at the cellular level at least.

    I think I am in the "anger" stage also. I had some surgery complications this past weekend, which didn't help matters because it might mean more surgery even though I have clear margins.

    And the fact that I haven't been able to return to work as soon as I would have liked doesn't help either. So, it does add up.

    I'm very grateful to everyone who has chimed in on this. It has given me much food for thought, and it really helps to "talk" to people who are going through the same thing.

  • Emaline
    Emaline Member Posts: 492
    edited February 2012

    Here is the thing about being lucky, someone is always going to be luckier and someone is always going to be more unlucky.  It is a very vicious and ugly game to play.  My brother in law was saying how he thought he had a bad year until he compared himself to what I went through....I told him how I felt we had a bad year until I compared myself to my other SIL who lost her 4 year old daughter to cancer.  That sister in law recently posted about how badly she felt feeling sorry for herself when a woman she knows who lost a child to cancer was recently diagnosed with stage 4 cancer herself.  There is always going to be someone worse off then we are, and there are always going to be someone in a better situation.

    We all have to deal with the situation we have.  Whether your doctor feels it is cancer or not, it still needs to be treated, whether it is mastectomy or lumpectomy, whether you take tamoxifen or not, radiation or not.  If doctors truly did not feel it was dangerous, then they would all just "watch and wait".  I've read and seen to many post by women who started with DCIS, who did the BMX or the uni-MX, who take the tamoxifen or not, then years or months later, see it return. Sometimes as something worse.  It is dangerous and it needs to be treated.

  • Merritmalloy
    Merritmalloy Member Posts: 79
    edited February 2012

    Well said Emaline.

  • gumshoe
    gumshoe Member Posts: 248
    edited February 2012

    Yes Emaline, you hit the nail on the head. 

  • akmom
    akmom Member Posts: 272
    edited February 2012

    Love this thread! Thanks for making me laugh and cry at the same time....

  • VeganGal
    VeganGal Member Posts: 154
    edited February 2012

    Hear Hear Emaline . . . Agree Wholeheartedly!!!

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