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  • SyrMom
    SyrMom Member Posts: 862
    edited February 2012

    Would like to hear what your experience has been.  I am now permanently disabled and need to file for Social Security Disability.  Some say do it on line, others say by phone; would you mind sharing your experience as to which way to go.  Thank you.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2012

    Thank you thank you thank you. A million times. Please don't ever leave us!

  • angellinda
    angellinda Member Posts: 7
    edited February 2012

    Hello, Thank you most kindly for your time and care. And for your gift of time replying. If you do and can! Please in advance forgive me if I don't make sense! Its so hard to get my question in words. And to get my hands to cooperate. I got Triple Negative Breast Cancer in 2010. I had 3 big Chemo. The Adriamycin/ Cytoxan. 4 rounds every 2 weeks. Chemo Monday & Neulasta shot on Tuesday. Every other Week. Following up requiring 12 weeks of Taxol. Once a week. Did 7. I had a lumpectomy and then 35 days of Radiation. I feel like I was tortured and killed half way, left to die. Neuropathy and what not kicked in and never left. I can't hold things, walk well or use my body right! To date nothing has gotten any better. I feel little quality of life. Not able to do much daily normal things. Chemo Brain and fog Etc.. Every side effect you can get I think I got!! I was a stay at home mother/Grandmother. I'm now 51. My husband is 53. He lost his welding job of 24 years, 3 years ago. We have NO income at all. I'm at my wits end! He prayed for me to live. He begged for me to live. When I felt too ill and to go for the light.. I came back. I fought hard. For this.. I live in pain from head to toe. And like I said we have no income at all. I feel helpless and hopeless. We met on Christmas Eve 1976. He was 18 & I was 16. He wants his Happily ever after.. with me! Is there any Help for me? It seems like no. Your find favor to reply is greatly appreciated! We live in a quiet, rural area of WI.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2012

    Linda....have you contacted ACS? Can you talk to the social worker at the hospital? Have you tried for any grants? Habitat for Humanity? The Council for Aging?

  • Chickadee
    Chickadee Member Posts: 4,467
    edited February 2012

    Syrmom, not sure if Stephen will get back soon but thought I'd at least share my process. I applied online, it was fairly straightforward. I received a letter in about a week asking for whatever medical records I had. I sent the recent pathology reports that indicated metastatic breast cancer and progression. Then I followed up with a phone call to the state disability determination agency to verify that they had all my documents and that I was marked for Compassionate Allowance. That expedites your application. I was approved in about 6 weeks, though some states are quicker. Good luck.

  • scuttlers
    scuttlers Member Posts: 1,658
    edited February 2012

    Syrmom, same here, filed on line. Quick process, had one very short meeting at social security office. Approved in a few weeks. Checks started about 5 months later. Easy and quick. (and even got a raise this year!)

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited February 2012

    I applied online and faxed the records I had.  The SS office made one phone call to me.  I don't know who else they contacted, but within 10 weeks I had a deposit in my checking account last October amounting to payment back to October 2010, and have been receiving SSDI regularly ever since.  I hadn't worked in about two years and they (SS) backdated my application to the date of my original diagnosis.  I am 61, maybe that makes a difference.

    I found the online application fairly straightforward.  Make sure you have all your medical records, lists of doctors and hospitals handy because you will need to provide all of that. 

    It's a huge relief.  Because of the backdating, I will qualify for Medicare this coming October which will be the end of the two year waiting period.

  • SyrMom
    SyrMom Member Posts: 862
    edited February 2012

    Thanks for all of your input.  Stephen has advised in the past to apply online; however, recently someone told me that wasn't a good idea that some people "had problems" with the online experience.  I will go forward online.  Does anyone know if there's a way to print off the application first so I can have all the necessary info filled in before I actually enter it online? 

    Thanks for all of your help. 

  • Chickadee
    Chickadee Member Posts: 4,467
    edited February 2012

    I'm not sure you can print it . You can come and go with the application. What I mean is you can sign out and sign back in.



    I did my son's in person and it was far more trouble and they made stupid mistakes. Who wants to sit around the SS office sometimes for hours to talk to someone who often don't know their own business. That was my experience. I applied for SSDI for him and he qualified but the idiots set him up on SSI and I had to go visit again and get that corrected.



    Give me a computer anytime.

  • 37antiques
    37antiques Member Posts: 643
    edited February 2012

    I asked social security which I should do when I applied for my husband, and they said they prefer you to do it online.  I did it for both my husband and BIL and both went very smoothly.

  • NMM
    NMM Member Posts: 138
    edited February 2012

    Re: Applying,

    1. Online Best.  SSA is (has) moved to Electronic files only.  Anything not electronic becomes electronic.

    2. Telephone.  Internet made this obsolete.  But for those who cannot do it via internet then this is second best.  Basically instead of you or a family memeber inputting info into computer via internet, one just schedules an appointment to do so with a SSa employee who inputs it over phone.

    3. In person.  For the reaosns discusses above, i.e., wait time, errors, etc, this would be my last choice.

    Steven

  • NMM
    NMM Member Posts: 138
    edited February 2012

    trpoicmom:

    Yes you should appeal.  If you think you are disabled then you should appeal.  Obviously I am biased, but a good lawyer I beleive can help.

    Steven

  • NMM
    NMM Member Posts: 138
    edited February 2012

    ladyleenL

     If you have not worked since 2000 then you are not currently insured for DIB purposes.  But you may qualify for SSI.

    Of course if you are talking about SSA retirement that is not based on current insured status.

    Steven

  • NMM
    NMM Member Posts: 138
    edited February 2012

    If I have missed your question please re post and I will try to answer this week.

    Steven

  • SyrMom
    SyrMom Member Posts: 862
    edited February 2012

    Good morning everyone.  Again, thanks for all of your input.  I completed the online process and it was fairly painless.  I would say it's important to read all the directions ahead of time for moving around the site and getting in and out, if necessary.  The most grueling part of the process was looking up the information/dates needed.  I wanted to be sure I was accurate, so I took some time.  I had as much information in front of me as possible.  Also made sure I referenced the Stage IV diagnosis and corresponding POMS code.  Now the wait ... will keep you posted.  Also, mailing the back up information today.

  • tshhinman
    tshhinman Member Posts: 3
    edited February 2012

    You are wonderful for offering to help.  I am IV stage and trihave applied for disability.  I have breast cancer that mastasized to the bone so stage IV.  I am using an attorney/firm but haven't been able to feel comfortable communicating with them.  I go before the Judicial Law Judge in a couple of months.  Are there things I should know before I go into the ocurtroom.  I haven't worked since Dec 2007 but just hired this firm in April 2011.  Unfortunately I have used all my savings etc trying to keep my head afloat.  What are the odds of being turned down?  From what I have read 20% of us make it past 2 years and I am going on 6.  I am in remission for which I am very grateful but have had friends die that were in the same boat.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2012

    Stephen, thank youu for continuing to provide SSI insights here.

    I read pages 1-2 and jumpted to the last page, but plan to read them later.  I am not sure if you had an update on your wife - you must be very much like my own DH who is extending his initial area of expertise into looking at the toxicity of cancer therapy.

    I am not sure if I qualify for SSI.  I am 58, initial dx July 2010, surgery, chemo, recurrence July 2011, more surgery, complications, etc.  I am a college professor, have to be able to develop lectures and give them.  I have chemotherapy induced neuropathy, so typing on computer, emails, etc. take multiple hours rather than a couple of hours - foggy thinking from the meds to treat the neuropathy slow me down and make my lectures less than good - fatigue - etc.  It takes me 16 hours to do what I previously could do in 6 hours.  I am stage IIIC, with over 20 positive nodes.  I have post-traumatic stress disorder that has been long-standing from childhood health issues, which has made current treatment plans extremely difficult for me.  I have continued to work full-time, with accomodations, but only through sheer gutting it out. I am truly unable to do my job, and had planned to not renew my contract this year, but it is terrifying to think of no income and trying to draw retirement income early. 

    When I looked at the SS website, it looked like comordities may play a role in approval or not, so I was wondering if you think this might be in that category - i.e. is it worth my time to apply?

    Thank you so much.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    I'm sure Stephen will see this soon. SSDI is the disability program. SSI is an income based program. Perhaps you were reading the SSI info.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2012

    Thanks, Chickadee - I think you are right - I should be asking about SSDI, not SSI.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Hi - I appreciate the goodwill and all your time to explain.  My questions are bulleted at the bottom of post, the editorializing is first, in case you need more info.

    Was told I should apply for SSDI and did not know I could.  

    Am 54.  Have been self-employed for 15 yrs, joint file with hubby, insured under hubby at his job. I worked 40 - 80 hours a week.  Business I run costs a lot to operate.  Don't earn much but we got back all the taxes he paid during the year and got to spend time together. 

    He was to retire in 2013 and collect pension, I was going to begin working then until he would collect SS, earn the rest of my credits so I could get SS when I am older, I don't have enough now, the report says, need 5 or so more.  

    I got sick early in 2010, the memory was gone nada scary gone, could not work for months, shows in all my onliine work, it just stopped.  Went to doctors, had many tests here and there but did not get the dx, afraid it was Alzheimer's and did not want to be diagnosed with it, and have it on my insurance info.  Nothing we did helped.

    In July 2011, found breast tumor, started using alternatives to treat cancer to get better.  Viola!  The memory came back somewhat, felt better but still could not write or work.

    Surgery in November 2011.  Long recovery due to swelling and infection and 'ripping' and now lymphedema issues.  But my mind is sharp again, after the surgery, so much improved. 

    Am still having trouble using the computer with the arm like this.  Hand hurts like a boil, fingers stiff, arm swollen and sore.  Perfectionist. I have to make constant corrections, takes forever.  But I never give up, even when could not remember, I was trying to work. Example isss I typppee like this allll the time sinceccannot movefinfers riight, and (stopping now) this IS my work, the writing, storytelling webpages, design, correspondence with clients, etc. Today I contracted a $200 simple website and started research to write it, my arm is killing me, neck, head, side, thumb, fingers.  Thinking it is not going to go well at all.

    Also have stage 2 emphysema, you know not a big deal compared to cancer, unless it is cancer and they haven't figured that out - changes showed on two xrays - due to exposure to neighbor's outside wood boiler for the last year.  Get pneumonia and chronic bronchitis often.

    Because of the wood boiler, due to health issues and survival, and no agency will help us stop it, we are desperate to move away, so finally after consulting health dept, IDEM, EPA, HEC, attorneys, real estate agents and auctioneers, realized we just had the choice to foreclose though we had never been late on any payments, and to leave, so we filed bankruptcy and foreclosed on this place in November too, right after surgery.  We have been using all our money for treatments for me, though we have insurance, it does not pay for the alternatives or supplements that got me thus far. 

    That is the reason I want to collect, so we can afford to keep getting my treatments when we begin to pay a house payment again.  Right now we are down to nubbins from this, even with good insurance, esp w me not working because I was really good at creating cash flow.

    Questions are -

    • Can I collect SSDI if I do not have enough credits?
    • If not, then, since my husband has paid into the system for all these years, could I collect under him.....  like the person told me, he said his wife is (heart attack and anxiety issues) and she did not have enough credits. 
    • Does it even seem I have a case for collecting?

    Thank you for considering.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    Essa, until Stephen responds, you may find some answers here:



    http://www.ssa.gov/dibplan/dqualify.htm



    Sorry I can't make it clickable from this iPad.

  • CharlotteMe
    CharlotteMe Member Posts: 42
    edited March 2012

     First, thank you from the bottom of my heart for the compassionate and caring information posted by Steven and others. It has been read, re-read, and has provided much needed help in gaining some understanding of the Social Security Disability system.

     Well, after much soul searching, I applied for SSDI in December of 2011.

     In Jan of 2010 I had a bilateral mastectomy. Next followed 29 weekly chemo treatments of Adrimyacin, Cytoxan and Taxol from Feb or March 2010 ending in late Sept 2010. Finally I had six weeks of radiation. Because my cancer was Stage III, with 4 positive lymph nodes and Grade 3 my treatment was aggressive.

    I have not one complaint regarding my treatment. I am grateful for how aggressively my cancer was treated and humbly thankful to be disease free at this time.

    BUT, I experienced just about every side effect and complication of chemotherapy possible! The most severe involved heart damage, hand and foot syndrome (skin blisters and loss of nails/skin), fevers, neuropathy in feet and hands, and significant chemo related memory problems and trouble with verbal recall. I was found to have lung scarring following radiation. Then months later I was diagnosed with Trigeninal Neuralgia, a very painful neurological condition treated with anti-seizure medication. Some of these complications remain and I often feel like a full-time patient seeing doctor after doctor.

     Well this past week I received a denial letter from Social Security. It stated that "we did not find you to be disabled at any time during this period" and went on to explain that they thought I was able to perform my past work as a graphic designer, apparently throughout my treatment.

     I am so very upset by the denial! It has really thrown me into an emotional depression. I can't stop crying, which is not typical for me. It's as if someone looked at my medical records and did not find my condition to be all that bad. I am not one to complain but I was too weak to do most anything, and had to have blood transfusions. I could have understood if they said I have recovered enough and now I can work, although I disagree, but to say I did not have any time where I should not have worked is just so discouraging when others are awarded for seeminly lesser conditions.

    Sorry for the long message. I simply needed to tell someone who would understand what we have been through. Thanks for listening.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    Charlotte, if I were you I would definitely check out a law firm that specializes in SS denials. If your SE's are still debilitating it may just need a lawyers articulate explanation to break through.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2012

    Charlotte, I agree you need to get an attorney to appeal this.  I think Soc Sec, all insurance companies, and most anyone who is supposed to help those who need it have a "knee-jerk" response of saying "no" and then if you are persistent enough, you can get what you need.  It's OK to cry in frustration - cry until you can't cry anymore, rest a bit, then make a phone call or two to get some help. 

  • sandyv
    sandyv Member Posts: 29
    edited March 2012

    Steven,

    can you draw umemployment and disability at same time? I ahave applied for disability and drawing built up vacation days at present but boss is starting to talk about laying me off soon? Company is going downhill,

    Praying for you and your family that you can find a treatment that slows or stops this cancer beast!

    thanks Sandy

    Thank You for all the great info you have given to so many of us Stage IV

  • BlueCowgirl
    BlueCowgirl Member Posts: 667
    edited March 2012

    Dear Steven,

    Thank you for helping so many women here! And now I have a question for you.

    I was diagnosed at Stage 3 with positive nodes, so like Charlotte, I received very aggressive treatment which prevented me from performing my very physical job as a self-employed horse trainer/farm manager. Then, I had a stroke, which was even more disabling and my doctors have told me it is impossible for me to perform my job at this time, not sure what the future holds. 

    HOWEVER, my farm, although it is 3K miles away from where I am getting treatment, is still bringing in a very small gross income. I was just told by SS that this income exceeds the amount ($1,100 gross/month) under which I would be eligible for disability. The net income on the farm is currently negative. Do I have any hope of being approved, or would it make more sense to shut down the farm so there is no gross income coming from that?

    Thank you again!

  • munnybunni
    munnybunni Member Posts: 156
    edited March 2012

    does anyone know if medicare pays for neulasta shots

  • Mzmerz
    Mzmerz Member Posts: 1,054
    edited January 2015

    Hello.  I was just diagnosed with a bone met.  Just the one.  I understand that makes me a Stage IV.  I currently work full time - and actually more than full time.  I have STD for 6 mos, and LTD until I am 67, if I am reading the plan benefits correctly.  Honestly, I would love to stop working. I am tired.  All the time. I can never catch up.  Maybe that's why my cancer came back, I'm not sure.  My job is pure stress, though.  Could be another factor.  I am unsure of what I need to do.  Just keep working until I can't work anymore and then apply for benefits?  I understand there is a 5 month waiting period.  I am not even sure if they will consider my one little bone met enough of a reason to consider me disabled.  Plus the thought of having my income greatly reduced (LTD pays 66 1/3%) is a little scary.  I also don't want to miss any window I may have for applying for any benefits.  So basically, I'm plain confused as to what I should be doing.  Any advice is appreciated.

    Amy 

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    Its not the bone met that matters as much as the Stage IV diagnosis and the ability to clearly communicate how the cancer and the treatment SE's are contributing to your inability to continue working. The check typically does not arrive until the 6th month after your date of disability(last day of work typically). Medicare starts 2 years after that.



    I didn't do too bad at first but then the SE's really took me down so I'm glad I applied when I did. I didnt have LTD so there is probably some coordination there that needs understanding.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited March 2012

    Steve hoping things are stable in your world. We miss you.

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