Calling all TNs

CS - I'm with Mags, I think it just means it went to the nodes.  Someone will no for certain post an answer for you soon,

Cocer Spaniel:  Get the BRCA genetic test.  Sounds as though you have some type of genetic thing going on.  It doesn't have to be a death sentence, although it sure feels like it at the time.  One of my two daughters tested positive for BRCA2.  She already has a ventricular septel defect (hole in the heart).  It is so hard at her young age of 20 to have to think about when she is going to have bilateral mx, but I tell you this much, at least we have a heads up about it.  Genetic predispositions have been around forever.  Now, knowing that she has it ahead of time, we can fight this beast before it has a chance to bite.  I'm glad we now know, even if it is hard for her.  I don't think I could live if something happened to one of my kids and I found out it was "my" fault, but I've also learned it's not "my" fault... it is what it is... no one's fault... and maybe there are positives to being BRCA that they are still finding out about.  We all have something genetically incorrect, but most of us will never know what it is because we simply aren't that scietifically advanced yet.

Is there any other TNBC that developed leukemia after chemo and radiation out there?

Ladies once again you have made me feel better.  I am going through the BRAC test, I had a letter about it the other day.  So maybe that will shed some light for me.

Thank you all for the info about the metastatis.  I feel a lot better and will talk to my oncologist on the 2nd March.  I am not sure is the PET scan you talk about is the same as the CT which I am going to have on Tuesday which will show, chest, tummy and pelvis.  

I have two daughters. My eldest girl we adopted (hate that word cause she is mine! and I adore her). But my diagnosis will not affect her only my youngest girl who I gave birth to.  

Everyone of you has helped to make me feel a lot better so thank you all.

Laurajane - thank you for sharing the worst time of your life but I am so glad you pulled through. I hope you enjoy your evening.

Paintingmyway thru - your painting of the Kiwi was gorgeous.  One of my daughters and I make cakes and decorate them. I don't know how to get a picture of one on here but it is a good distraction from all of this.

To get through the day I went and cleaned all the windows but only felt worn out, not better, cause I got a lot of windows.  

They say laughter is the best medicine so I thought I would share this with you.  My daughter sent it to me.

Inner Peace.

I'm passing this on because it worked for me today.

A Dr on TV said to have inner peace we should always finish things we have started and we could all use more calm in our lives.

I looked around my house to find things I'd started and hadn't finished. So I finished off a bottle of Merlot, a bottle of chardonnay, a bodle of wum, tha mainder of valiuminum prscrptuns, and a box o chocletz.

Yu haf no idr how fablus I feel rite now.

Sned this to all who need inner piss and telum u luvum.

Hope you fabulous ladies get as much laughter out of this as I did. Annie 

Niciopp-do u have leukemia? I have heard that some chemos can cause it.

Niciop:

I know I was told and read on the forms I had to sign prior to chemo that Leukemia is a rare but, unfortunately, a possible side effect, of chemo.  I had AC & T.  She did tell me that if it happens, it is something that occurs years after chemo.  I do not think it is related to radiation as a side effect, just the chemo, as my radiologist never discussed, whereas my onc definitely did bring it to my attention.  I have been on several BC boards since my diagnose, and have never read of one case such as yours, so it must be a rare side effect.  May I ask how far out from treatment you were when this was diagnosed? 

I wish you all the best and am so very sorry that you are faced with this on top of bc. 

Linda

Niciopp-do, I was told by my Onco. that 1 in 1000 get leukemia from the chemo.  I did AC and Taxol (not taxotere).  Do you know someone or is it you who has been diagnosed with leukemia.  I am so sorry.  I think about this often as it has been my worst nightmare.  1 in 1000 is not that far fetched.

Popping up to wave hello to everyone! MBJ, it is so good to "see" you, even though I am so very sorry about your recurrence.



Even though I do have mets to the liver, they are not really giving me any problems. It is my lungs that are the issue. I know the liver is a very resilient organ and can function even under the direst of circumstances. I also know there are varied treatments - regular chemo, chemo straight to the organ, radiation, and in very rare circumstances resection. I just know, don't read the stats on the Internet, they are very outdated! The women on the Stage IV board can offer you so much more hope.



I've officially started Hospice, and the nurses are just wonderful. I have my hospital bed set up, an aide every other day to help me get cleaned up, and plenty of morphine lol. I won't be doing any more chemo - my goal is to be as comfortable and pain free as possible so that I can enjoy my family.



My kids are holding up very well, they are resilient as kids are. My best moments these days are cuddling in bed with them, watching cooking shows.



Hope everyone is well. I'll try and say hi when I'm feeling up to it .

Hi Susan. Glad to here that you are comfortable and well taken care of. So good to hear your children are holding up too. Big hugs to you and your kids. xx

Hi Susan!  Glad you stopped in to say hello and I'm glad you are happy with the care you are receiving.  Sending you love and support to you and your family.

MBJ, Tif has great advice - I think Coolbreeze would have good information for you, too.  I have read several of her posts and she is very knowledgeable.

Susan:

So good to hear from you.  Cuddling with the kiddies - doesn't get any better than that!  Thinking of you as always, and sending love and gentle hugs,

Linda

Hi susan. Glad you signed on....and so glad to hear your children are doing well. They are amazing aren't they!

Worrying some today about pains in my breast and back but I think they are more aches than deep pains,,,gosh I hate this gift that keeps on giving.

Laura so nice you had a girls night last night.

I really want to talk with my md about Metaformin..any advice on what articles to use...

Cake making...yummy...

Speaking of cake, I am up to my eyeballs in it. I bake and decorate cakes. Today I am making a stacked cake with double 16" and 12" layers as well as 120 cupcakes for a company's anniversary party tomorrow evening. After I do these big events, I don't even want to see cake for a long while!!

The kids are anxious for the first cake to come out of the oven. I level off the top of the cake and the kids (and me too) get to eat warm cake!!

Happy Sunday all!!

MBJ - my fingers are crossed for walking and talking in the near future for you, too.

Suze - so glad to hear from you. I also love cooking shows..and snuggling with my girl and doggy!

Speaking of cooking....TifJ your cake decorating inspired me but I'm a bit embarrased to say I'm on my way out the door now to buy a cake (wish you lived nearby). It's my niece's birthday party tonight and I was "voluntold" to bring a cake for the family get together. I got back late last night from a girls weekend with my DD, my GF and her DD and am too tired to bake anything today but I must get groceries.

Take care everyone and enjoy the Oscars tonight! 

Sugar- it's okay to "cheat" and buy a cake once in a while!

Suze- I am a cooking show junkie too! My kids likes to watch with me and help in the kitchen.

Titan- why are our doctors denying us something that may really work! Shouldn't we at least be able to try it? Sometimes doctors just suck!!

MBJ-wishing you strength and sending healing vibes!!