THINK BEFORE YOU PINK
Comments
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As much as I despise the whole pink-washing thing and as much as I think we need to "think before we pink," I can't personally support this particular campaign.
"Think Before You Pink," BC Action, The Canary Party, Rethink the Pink, the "Health Freedom" movement, and lots of other related organizations are thinly-disguised political activist organizations where IMO, breast cancer is NOT the primary focus. They're guilty of using breast cancer and pink ribbons for their own agenda just as much as Komen and the other organizations they claim to be rebelling against.
It's wrong for Komen, and it's wrong for BCAction and all the others to use the "cancer card" to drum up support for a political or personal agenda. IMHO, of course.
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We could use some political action regarding breast cancer. You claim Breast Cancer Action is 'thinly disguised political activist organization'.
IMO political activism is what we need.
The big difference between Susan Komen and the others compared to Breast Cancer Action is that BC Action does not accept money from drug companies.
If you find something about Breast Cancer Action to the contrary, please give your source.
tucker
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Hi Tuckertwo,
I don't know about accepting money from "drug companies," but BCAction definitely has very close ties with a lot of very unscrupulous pseudoscientific quacks like Ralph Moss, NaturalNews / Mike Adams, The Annie Appleseed Project, the American Association of Naturopathic Physicians/AANP, American Holistic Health Association, etc. Do they accept money from these types of organizations?
I see that Breast Cancer Action is sponsored by companies like Aetna, Anchor Brewing Company, Charles Schwab, Chevron Corporation, Gap, Google, Hewlett-Packard, etc. Do these companies have breast cancer first and foremost in their policy decisions? Are all their products/services/facilities completely free of any possible breast cancer connection?
I don't disagree that some breast cancer political activism is a good thing. I just disagree that BCA is the group to do it with our best interests in mind.
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Oh well, what's one person's quack is another person's doctor. Personally I feel comfortable with organizations that have the word 'health' and 'natural' in them opposed to 'chemicals' or 'side effects' i.e. drug companies, but then you already knew that.
I have met my share of quacks with an 'MD' after their names. That doesn't impress me at all.
On the other hand, I have a wonderful naturopathic physician who has done as much clinical time as a regular MD, knows all about Big Pharma drugs, as well as herbal supplements, vitamins and homeopathic meds, has balanced my bad estrogens (checked that as well with my MD family doc) and given me my health back. My regular onc with the MD after his name doesn't have a clue about how to support the immune system after (or before and during) chemo. I think that's a crime.
I can't agree that the companies you listed, the Gap, Chevron, Hewlett Packard, have other motives than helping cure breast cancer. Number one: they don't sell drugs. There is no conflict of interest. Meaning: these companies aren't profiting off of breast cancer as does, say....Pfizer or Eli Lilly or Squibb.
tucker
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Well. Here's my source to back up what I said about BCA:
Unacceptable Corporate Contributions
On the basis of these guiding principles, as well as BCA's mission and operating principles, BCA will not knowingly accept funding from the following categories of corporations. (The following list is not necessarily exhaustive.):
- Pharmaceutical companies
- Chemical manufacturers
- Oil companies
- Tobacco companies
- Health insurance organizations
- Cancer treatment facilities ~~~~~~
- So, newme, where is your source?
- tucker
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Tucker, I didn't say anything about the motives of those companies (Gap, Cheveron, etc). My point was that BCA claims to stand for transparency and accountability and denounces KFC, for example, for the pink-chicken thing (which I completely understand!) for selling a breast-cancer-promoting product, but then it (BCA) accepts sponsorship/funding from other companies that very well could be selling/manufacturing products and services that could be carcinogenic. It seems so hypocritical and UNtransparent.
I know BCA claims not to accept funding from Pharmaceutical companies, Chemical manufacturers, Oil companies, Tobacco companies, Health insurance organizations, and
Cancer treatment facilities. But that seems to contradict my post above where I posted just a few of BCA's contributors/sponsors - Aetna (Health insurance co?), Chevron (chemicals/oil?), Anchor Brewing Co (contraindicated for BC? chemicals? )By the way, my source is Breast Cancer Action's own site www.bcaction.org. Did you think I was making it up?
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Yes, but they DISCLOSED that fact didn't they? That is transparency.
tucker
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seems that BCA disclosed that they've violated their own guidelines by accepting money from the companies thenewme lists. transparency - well, yes, they've been transparent about violating their own funding guidelines...
Just curious - does anyone know any organization which gives more to scientific research than Komen does? Komen gives $70,000,000. a year, according to their website. Just wondering if any organization gives more than that a year?
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And who, may I ask, are breast cancer org sponsors? Here's a blurb from the site:
'Sponsorship messaging is not targeted to individual users but may be placed on the site adjacent to content related to the sponsor's interest. So, for example, a display for a chemotherapy product may be on the page with Breastcancer.org content on chemotherapy options. However, this display or the sponsorship is not related to our content in any way.'
So indirectly, if you can call it that, this website delivers subliminal messages on the threads that you are most interested in. And they are all from Big Pharma.
If breast cancer org is truly interested in helping women with breast cancer why don't they also promote natural and alternative medicines? If you can show me one chemo drug that has CURED cancer, go for it.
Natural and alternative (to chemical poisoning) has a lot of advantages but is suppressed by Big Pharma.
I don't and will not support any organizations that claims to be pro breast cancer because they are ALL about profits.
Where do the profits go for this website? Hmmm?
tucker
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Hi Sunflowers! That's exactly what I thought, and I just find it so very disingenuous and hypocritical of BCA. However, the bigger reason I can't personally support BCA is their pseudoscience and quackery, which I also believe to be hypocritically contrary to their supposed mission. I don't believe junk science ever to be in the best interest of breast cancer patients.
Interesting question.... I don't know of any org that gives more to scientific research than Komen. Despite the recent uproar, I desperately hope that SGK's research funding increases, but I realize it's quite possible to decrease instead, which would be a terrible shame.
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If you want to support the Susan Komen Foundation, there is already a thread for that. I don't believe she has too many followers these days.
tucker
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Click here to get your free Think Before You Pink ToolKit:
https://www3.gotomeeting.com/register/682646062
blessings,
tucker
PS: If you have questions about Breast Cancer Action call 415-243-9301. You'll get an actual person.
or check out their website.
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There are orgs (such as Breast Cancer Research Foundation) that spend a greater percentage of their money on research, but probably none that spend as much money on it as SGK. I chose to support BCRF.
As for Big Pharma not curing cancer, I don't see any alternative cures,either, unfortunately. I personally will use whatever tools I can put in my tool belt, so long as the side effects are bearable and they have solid research behind them. -
Well, if the qualification is a "cure" for cancer, that requirement will not be met for at least another 50 years.
There's no "cure" for cancer. Any kind of cancer. There will never be a "cure" for cancer. Any kind of cancer.
There's management. Which is what is available now and it's of various kinds. None of which "cure" cancer. Or ever will.
And maybe some time in the future there will be some limited kinds of prevention. But there is a whole lot of genetics that has to be understood and proven before getting on the preventive side of cancer will occur.
In the interim, there will be increasingly better means of early detection and more specifically targeted management.
But no one is going to work on a "cure" for a process of cell division and cell aging which occur naturally.
Anyone who thinks a "cure" is coming down the pike in the life time of anyone here is more likely to be disappointed than not.
Which is why, at least to me, the slogan, "For the Cure" is nonsensical.
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Hi Kadia,
re: "As for Big Pharma not curing cancer, I don't see any alternative cures,either, unfortunately. I personally will use whatever tools I can put in my tool belt, so long as the side effects are bearable and they have solid research behind them" My sentiments exactly!
Hi Pompeed,
While I agree with a lot of what you say, I'm hopeful that "For the Cure" could be a realistic goal.
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The more we know about cell biology and genetics, the less likely it will be that there's a "cure" for cancer.
Which is why the "front end" of the equation or to put it simplly, learning how to turn some things "on" and turn some things "off" is really a lot more promising.
The "cure" for cancer is going to be like the "cure" for polio and measles and small pox: target prevention in the first place. Rather than treatment after the fact which somehow targets and effectively shuts down all of the functions which lead to recurrence.
My best friend, who is responsible for new cancer therapeutic development in the bio-tech sector tells me no one is working on a "cure" and everyone is working on "front end" prevention methodologies or better detection or more specifically targeted therapies. Which goes along with the research on "front end" prevention methods.
I really think we do ourselves and those who come after us a disservice by saying that research for a "cure" is where research dollars should be spent.
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I'm still curious to know if there is any organization which gives more than $70,000,000. a year to Scientific Research. I don't agree with a lot of what Komen does, but they do give that amount of money to Scientific Research each year. $70,000,000. is a great deal of money, and I'm grateful for it, and hope there are other organizations giving large amounts to Scientif Research - would love to learn about them.
Heard the Race for the Cure in El Paso has a fantiastic turn out, as many as last year. Glad there are many organizations working on this - tho' like many, I am SO tired of cause related marketing - unless the $$$$$$$ goes to Scientific Research.
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BCRF gives about $30-35 million in research grants annually. Unlike Komen, 90% of money they raise goes to research. Not as much $ as Komen, but not shabby. plus, far more of the $ goes to research into causes and cures, and not into high salaries, overhead, and PR.
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Great to hear, Kadia. Let's hope they can 'cure' this disease this century.
tucker
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BTW, pompeed,
My naturopathic oncologist physician knows a great deal about science and natural remedies being as he was a scientist. He talks about apoptosis and how natural supplements such as green tea EGCG, grapeseed, I3C, quercetin, Co enzyme 10, reishi mushroom extract, milk thistle and many others can be the 'off switch' for the pathway or receptors for many cancers. Are any big companies researching the benefits of many natural supplements for breast cancer?
Since cancer isn't going to be cured why subject ourselves to chemo, which only makes a person weaker and thus allows cancer to recur. I would think supplements that support the immune system and repair DNA damage, as well as repair to the p53 would be what biotech would be working on.
What is your dx, if I may ask?
tucker
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Support for the immune system and nutriticeuticals with some beneficial properties are all fine. Can't hurt.
How much they help, in terms of PREVENTION is the question. And no one knows the answer to that question.
If they did, we would all have been drinking our tea and eating our mushrooms for years. But the fact remains: I've been drinking my tea and eating my mushrooms for years and I got it. Why is that? Probably because I have other risk factors which are far more powerful in the genes than gallons of tea and tons of mushrooms could suppress.
Unless the "beneficials" which are in the substances can be proven to be effective at prevention AND then made in synthetic quanities with sufficient strength to really do the job, standard care says: "We know that certain treatments do work." Which is why most people opt for the standard of care AND very often drink their tea too.
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I always assumed that I would get breast cancer - after all, everyone of my known female relatives on my maternal side had it. I didn't live my life, though, in the pursuit of NOT getting it. If I had it to do over again, in all honesty, I probably wouldn't do anything very different (at least in relation to getting or not getting cancer)
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I ate pretty healthy, didn't over-indulge (at least not too often
), exercised regularly. However, I am somewhat overweight, I am in a high stress job, and I've spent most of my adult life in and around electrical fields. Could I have been "better"? Of course. But I didn't spend my life worrying about the future possibility of cancer, and in all honesty, I do not now spend my life worrying about the future possibility of more (and probably worse) cancer. Everyone is going to die of something, and cancer is just one of the possible "somethings" to die from.
I think it is possible that in the future they will find a "cure" for cancer. Genetic probes and markers will, I feel certain be the future to curing a great many things that appear to be incurable at this point. Prevention is almost undoubtedly a "better" course, but there are still so many unknowns, that preventing cancer by modifying our diet, actions, exposures, etc. seems almost a joke to me. I'm not a big believer in blaming the victim, so I don't think there were too many things I could have done differently and as a result not got this d***ed disease. My life has been tumultuous, exciting, painful, chaotic, and everything that almost everyone elses life has been. I don't really regret a minute of it - and I thank whatever powers that be for as many more minutes of it as I get.
I hope like h*** that a prevention/solution is found before my grand-daughter contracts it (though I think she's probably got more of her mom's genes, so she's probably OK anyway).
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pompeed,
I'm not talking about drinking a few cups of green tea (which doesn't hurt) and eating a few chopped mushrooms once a week or so. The therapeutic doses of green tea are well beyond what is possible by tea consumption. Ditto with mushrooms. The type of mushroom also makes a difference.
The benefits of green tea are cited in many journals - naturopathic as well as conventional. Far too many to list here but I'm sure you can find the sources. As for mushrooms Asian traditional medicine has long used mushrooms as immune tonics. Reishi ganoderma lucidum suppresses cell adhesion and migration, reducing invasiveness in breast cancer and prostate cancer. It is very synergistic with ginseng and coriolous, another type of mushroom. Have you checked out why Japanese cancer hospitals are using AHCC, another type of mushroom?
'Standard of care' cancer therapy is certainly not curing cancer, is it? Chemo makes people sick and does more harm than good. Drug companies are not into prevention. If, as you postulate, cancer 'will never be cured' then why not let people be comfortable and take herbal, natural supplements that may actually help, rather than harsh chemo that destroys the immune system, causes nausea and a host of other unwanted side effects.
Naturopathic physicians ARE into prevention. Most people are ignorant of who naturopaths are or what they do, effective suppression by the all powerful Big Pharma who label them as quacks. Anyone who doesn't prescribe a pill from Big Pharma is a quack.
It would be interesting if you disclosed what type of therapy you had. Or your dx. If, indeed, you are a breast cancer patient and not a roving drug company rep.
tucker
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Hi gardengumby,
You sound like you live life to the fullest and that's great! I enjoy every minute, too. I worry about my daughter as well. As for a 'cure' I think it's possible, if the drug companies will take their chokehold off of researchers who just might be onto a cure. I mean, what the heck is Big Pharmas incentive to cure cancer when they make billions a year off of us? Literally! What if things were reversed and they got billions to find a cure?
I do think what we eat has a lot to do with our overall health. There are a lot of other things in the equation, in addition to genetics. Some people say "I always ate well, or exercised, or didn't smoke, or didn't drink, blah blah blah' and they still got breast cancer. Breast cancer is certainly at epidemic proportions, and younger women are getting dx with it - in their 20's. We have a society with a high glycemic intake. Have you actually read labels on food? Even stuff labelled 'natural' or 'organic' can have sugar. We have an epidemic of diabetes because of this insidious addition of sugar in everything. Sugar is one of the biggest drivers of cancers as well. So, you can think you're eating well, but you're not
Meat and poultry has antibiotics and hormones added, unless it is organic. Fast food is the norm for dinner anymore. Pills are given for every ailment, real or not. We exercise less. Kids are fatter these days because of all these factors.
I'm trying to educate myself as much as possible with all the disinformation on the 'net. I believe if I eat food that is fresh and organic, cut sugar from my diet (which makes eating out hard) eat meat that is grass fed and organic, exercise and destress, and truly thank God for every day, I may not live longer but I'll live better. I don't believe I'm a victim or caused the disease either. I didn't get it because I have a cancer personality. I have known too many different types of women to believe that. I don't believe in little pink ribbons, or Relay for Life, or walk/run for the cure. I'm getting the breast tool kit from the think before you pink people, cause I think the more I know the better off I will be, or maybe I can learn enough to help my daughter so she can avoid this horrible disease.
tucker
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het tuck - yeah, unfortunately (fortunately?) I'm a label reader from waaayyyy back. My hubby can't have sugar - not diabetic - allergic. I can't have wheat - not celeriac, allergic - same with corn. So, we eat very carefully. Still, I got cancer. I'm not willing to spend all my energy into eating what is supposed to help resist cancer. I like wine. I like good healthy food. I like doing things. As my oncologist always says "quality of life is important" - and that's something I'm in total agreement with her on. I certainly hope i don't get cancer again - but as both hubby and I say - we're going to die from something. It may be cancer.
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Gardengumby, I really like your posts here, and your attitude!
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That's exactly right, gardengumby! I enjoy my food, too.
All I know is, nobody is getting out of this place (Earth) alive
& having bc has made me enjoy life even more & cherish every moment. Mark Twain said "Be careful of health books, you may die of a misprint"....
Question: were any of you gals into the pink ribbon stuff before all the hoopla about Komen?
tucker
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Tuckertwo, thank you for starting this thread. I share your feelings and disgust. Let's not forget Yoplait and the damn pink lids. How long did it take for them to agree to finally remove the suspected cancer-causing ingredient from their yogurt?
I've made a personal decision to stop supporting cancer research. Instead, my donations go to breast health outreach for minority and low-income women. For me, it is a much more satisfying way to use my money. And a little goes a long way
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mollydog,
(cute dog, BTW!) what a kind thing to do. It's just that if a woman can't afford to donate, she can still get a ToolKit from BCA that might help with awareness about the damn disease.
PS: I have 2 dogs that are my kids
Emma and Chey.
tucker
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Tuck - I was never into the pink thing. I donated some money to Komen before the recent hooraw, but more to the American Cancer Society, as there are many forms of cancer and I'm just as interested in them finding a cure for leukemia, prostrate, colon, lung, etc cancer as breast cancer. I do differ with you on the idea that it's not in the best interest of pharma to find a cure for cancer. Though it's true that they make billions off of cancer sufferers now - they would make billions as well off the cure (and think of the advertising dollars!!!)
That said, they also make me very angry at their many attempts to stop our access to vitamins and other supplements. I want to have many things available for my defense, not just the letrozole prescribed by my oncologist.. besides, which, the SE's from the letrozole are much more difficult to bear when I don't take my supplements. So, I'm not a big fan of either doctors or drug companies, I think in many cases they do more harm than good, but I don't think it's solely from a "making more money" point of view. Maybe I'm more naive than I'm willing to admit, but I think the problem is more that they have a very narrow world view, and they really think they are not only the best, but the only answer.
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