February 2012 MX
Comments
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Wren44, hoping all is well. Deborah, smooth healing to you. I'm amazed at how you can keep your writing straight with the comments to people. Thanks for being a cheering section!
Smooth healing to those recovering and for those waiting may your time be as worry free as possible.
Sally
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KP - I'm glad you are done and starting to heal. Each day it will get better and better.
My mx was preventive for both breasts. Ha. I had every test known to man at least twice and nothing was ever seen. That is why they did not take any nodes. All they ever found was ALH and ADH. Tell everyone you know that nothing - not even MRI's can see things in very dense tissue. -
FarmerLucyDaisy... so sorry for your news! The important thing to remember is somehow you were led to do this surgery NOW! And it was relatively small... I bet they will want to check your nodes and decide what to do from there. You are very lucky!!
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Thanks Susanes. I do so appreciate your support. Jill
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Farmerlucydaisy - I have to agree that the timing was great for your mx. Nasty surprise, but much better than finding it later and larger.
It's day 3 and I'm feeling pretty good. My book club is going to drop by for a visit and I'm really looking forward to it. DD came by yesterday with every current gardening magazine. Really a good diversion for me. Still too early to plant, but fun to dream.
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Sorry to hear your news farmerlucydaisy
But i am glad it worked out in this strange way for you to find it before it grew and spread. Good luck to you that your nodes are clear. My prayers are with you.
update-I sill have 3 drains and no shower - i am sure to win the grunge award at this rate. The drains are still at about 30-60 a day. I finally see my surgeon on wed feb.29th i am hoping to hear good surgery results i am keeping my fingers and toes crossed. She said the tumor looked to measure at 9cm or more and many,many enlarged nodes so hopefully getting the BMX and all nodes out on cancer side wiped everything out. It was hard to hear after surgery that she was not sure how things are going to go or that we need to hope the chemo gets rid of everything. It would suck to find out i did all this for nothing. Sorry i am feeling a bit uneasy,worried and depressed this week need to grumble abit. I have had a huge fear of dying all of a sudden. I guess the cancer diagnosis is finally sinking in over a month later.
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Congrats to all the drain removals...hang in there others. I am hoping to get mine out on Mon,they dont really bother me but are time consuming to clean and empty and record,plus when I put them in my cami pockets,the store mgrs cant figure out how I am shoplifting...hmmmm. Maybe cuz I am NOT shoplifting,maybe those are bandages from surgery or maybe I have a bad case of love handles...LOL. Yep farmerlucy its normal to be nervous, I was a wreck til I got my final paths back after surg which took about a wk or less.
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Hi ladies!
Im BACK! 2 days post uni MX!!!
Janice, are you back yet? (she went on the same day as me)
Compared to the 2 1/2 mos hellish wait for operation, it was a breeze!!!!! My PS was awesome!!!! And, I opted for a saline implant and I actually still have cleavage!!!!! I can't believe it! She also was able to save some aerola tissue too! I am THRILLED!!! My drains aren't hardly leaking at all!!!! And, no lymph node involvement at all!!!! My PS also didnt use stiches...she used skin glue. I'm soooooooo happy, I could sing at the top of my lungs!
Now, that being said, I am on meds, which is probaably also why Im so happy, but who cares? I REALLY, REALLY thought that this would be more difficult and harder emotionally than it was! I think I was sooooo prepared for it to be much worse, I'm just happy....
(now, of course, ask me how I feel later when I've come down off of this medicine high....
and the pain sets in....geesh.....
Hugs to all,
Debbie
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Hi All,
I just want to say again what great group of courageous women we all are!!! Kudos to all of you and if I could send you all box of Chocolates and a bottle of champagne I would. So just imagine you're enjoying that glass of bubbly and your favorite chocolate!!!
So who is winning the grunge award right now? Is it you Beth? I know there are at least a few of us who went 3 weeks, anyone stepping up to claim it? The big question is, do you get to shower before accepting the reward?
For all of you who are struggling right now, hang tough, we're here for you
Have a wonderful weekend!!!
Carolyn
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Vicky - My dog Lucy is a lab-mix.....we got her five years ago at the local Animal Friends, best dog ever!! I have three beautiful children who I love with all my heart, but I have my dog as my avatar! Go figure! She's been such a nice companion since my diagnosis six months ago!
Beth65 - I am so sorry you are feeling bummed. Too often I allow myself to go to that "dark place".....I hope when you see your doc this week some sort of treatment plan will be discussed and you will forge ahead......I will pray for you!
Daisy - What a shock that must have been for you....I am sorry that you now have to deal with this....it's not easy, but you are in good company here on these boards and we will help answer any concerns or questions you might have.....
I am now counting down to the big day.....4 more days. It's unbelievable. I've never had a stitch nor a broken bone.......time to put my big girl panties on!! I hope I'm not a big baby!!!! I have no ideal what real pain is!
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Wild et al - 4 days out I feel great from mx. My DD/ nurse changes my dressings twice a day and just removed the pain ball which was pretty cool.
Yeah the nasty surprise stinks, but at least it is gone. I'm going crazy because I did not remotely anticipate it due to all the screening I had. I have to wrap my head around it and move forward. Can anyone take a guess at my treatment? All I know is IDC 1.1 cm grade 2.
Thank you all! -
Hello Ladies! I am back from unimastectomy. I feel pretty good, stayed overnight got sprung at noon today. I am only on tylenol right now, I thought they were putting drugs in my iv, but they weren't, so it was like placebo effect at the hospital! Was so hard to sleep because I shared a room with a woman who had sleep apnea, so three times last night the alarms went off because she stopped breathing! The nursing staff would rush in to get her settled back and breathing. then, this morning she kept saying the hospital staff tried to kill her! No, they were trying to save her.
I have a percoset prescription, think I might need it to sleep tonight.... tried to nap, my bed is so flat, I was worried about drains and drainage not being able to drain due to me being flat....
I tried to peak at the incision, a little bit scared
so I only looked down to about where the gauze was stuck. I take packing out tomorrow, hopefully a visiting nurse will be coming. I have been able to empty 2 drains with my hubby's help.
I had SNB done, the nuclear medicine injection was not too bad, like a bee sting, but the feeling goes away after no more than a minute. BS says the node looked okay, he will be letting me know results of all pathology in about a week... I am keeping my fingers crossed that I don't get upgraded and it stays DCIS diagnosis.
So happy to hear from everyone else, sorry for the news you got farmerlucydaisy. Prayers for you and everyone else!
Steph
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Farmer Lucy - Your treatment plan will be determined according to your tumor markings. For instance, if the tumor is ER/PR+ and you have no lymph node involvement, or just a few involved, your oncologist should order an oncotype test done on your tumor. Take some time to read about it as its very interesting and has saved thousands of women from having to undergo needless chemotherapy the last several years. Basically, it is a gene assay and depending on your score, it will determine whether you are at high risk of having a recurrence in the next 10 years and whether or not chemotherapy would be of benefit to you. If you have more than two nodes involved, your doc will probably suggest chemotherapy, depending on your age. Try not to worry about that right now though.....get that final path report back! I know its easier said than done though
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farmerlucydaisy, I also had IDC in left breast. Originally said .7 but turned out to be 1.5 cm and at the time of MX (2/6/12) surgeon said my nodes looked good and only took four but one turned out to have cancer so I just had surgery on 2/21/12 to remove more nodes and got the report yesterday that they were all negative so I don't know my treatment plan yet either. I'll let you know when I find out what is next. Hang in there! Hope everyone gets a good nights sleep!
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Hi gals.
I'm amazed at you BMX'ers... I had a Uni and this is all I can handle pain-wise.
HUGS to all.
Debbie.
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Deborah2012,
This latest tumor was found just as the first one was.....by regular mammogram. Weird how this one wasn't seen the year before and grew to the size it was (3.2cm). Anyway, nothing was done after my first trip down cancer lane with the exception of yearly mammograms and cancer tumor markers done by oncologist. I have absolutely no history of BC so if you do they may be more vigilant with you. But as I have learned no one will take care of you - you MUST be your own advocate! If you feel that you need more tests on a yearly basis then push for them. Don't take no for an answer.
Maybe I could have changed my lifestyle after last time and the beast MAY not have come back.....but who really knows?
10 days post op and will see PS tomorrow. Hopefully will get these drains out! I have come to loathe them! Wishing you all the best! Namaste'.
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Yes I am back, I tried to find time to join in yesterday, but had too much company.
I left the surgery center after a one night stay, I was the only one there so I had the nurses all to myself.
Not much pain just itchiness (I think from the percocet). Since I had Tylenol with codeine I switched to that. I am not really in alot of pain but kind of like a tightness & pinching from the tape and camisole that is holding it all together. The PS came in 1st thing in the morning and said it couldn't look any better, lets hope he is not just saying that.
My daughter has been here being my nurse, stripping & emptying the drains (I have two). They are still draining so I don't know if I will be lucky enough to have them removed on Tues.
I have area under my arm pit that feels swollen and numb. They did not remove any lymph nodes so I don't know if this is typical. It looks like of like a dent in some areas, but maybe that is due to the TE and the swelling. I hope it improves with each day.
I've been sleeping in the recliner and that seems to be working out OK. Sometimes I wish I had a long handled back scratcher, you just can't seem to reach some of those places.
Hope all Feb girls are getting stronger with each day. Let me know of anything else I might expect .
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Janice - Ditto about the back scratcher! Glad you are healing well. Me too. Walked this a.m. and went to church and lunch with fam. Switched to tylenol now. Time for a nap!
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Slept in my bed for the first time last night and ALL night too! Granted, I was propped by many pillows and wasn't any more reclined than if I'd been in the recliner but... LOL
For some reason, the area right below the mammary fold and between the breasts gets itchy. What's up with that?
Good thoughts to all!
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Glad youre back, janice. and its great having your daughter help you.
unfortunately, i have been unable to tolerate the pain meds without vomiting, so this is difficult for me.
and, galsal....i have the same spot...but instead of itching, its swollen to another boob size (im exaggerating here, but it looks like a mini boob!
gotta go and lay down....hopefully tomorrow i will feel better....and the same goes for everyone-
Deb
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Back scratcher is a MUST :-)
My BMX was 2/2. Does anyone else feel like they are wearing a bra that 2 sizes too small ALL the time. Geesh Louise!! I'm sure i never noticed before because I was too busy complaining about the drains...haha.
Galsal -- how far out are you? I'm still in the recliner off and on....I can only do about 3 or 4 hours in the bed then I'm back to the recliner. Of course, I've always slept on my left side and I can NOT get comfortable to sleep on my left side. It's so frustrating. I can sleep on the right side in the bed okay but when it's time to roll over or get up for the bathroom, I just get back in the recliner.
Percocet gives me the itchy nose too :-)
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No TE's but still have the feeling that I am either in a corset, a bra that's two sizes too small or an ace bandage. My BMX was on 2/6. I am so ready to get over the tightness in the chest and arms!
I have had very dry skin right below the mammary folds, but no itching. I am wondering if it's a reaction to the Betadine or whatever anti-bacterial they used on the skin. I found that I was pretty much covered in Betadine. My sister took baby wipes and rubbed a lot of it off of me, and I spent the first couple of showers trying to get rid of it. -
Hi All,
Wildrumara, FarmerLucy and Beth- you are in my thoughts, hope all goes reasonably uneventfully this week, with good news all the way around
DebbieOS, glad you are home and feeling well,
I go for my post op on Monday AM. The area of the MX is still sore and swollen, but given all, I am OK with that. I tried to put on a regular camisolie this AM with one of the fake puffy pillow foobs they give you with the camisoles for the drains. After half an hour it had moved to the middle of my chest. Not a good look. Took it out and went lopsided for the remainder of the day, but with a sweater over my shirt. I had bought bras that snap in the front, but did not size up and given the tenderness and swollen area they are very uncomfortable. Thank goodness it is winter here in the NE, it gives me some time to figure this out. Best to laugh at this I believe.
Gentle night to all
Nel
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Mary625....ditto on the dry skin. I've never had dry and skin and I am dried out all over it seems.
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Good evening my Fekb. MX and BMXers,
Welcome back wren44, wrsmith2x, Katie1388and Janiceg415! So relieved we have heard from each of you. Doesn't it feel great to be on the other side of the surgery? Whew!
Vicky3blum(MX) is up tomorrow for her big day. We will all be thinking of you and marking your progress. Wishing you a fast recovery and good meds.!
wrsmith2x I can't thank you enough for the tip. Here's what I learned form your experience of being diagnosed with BC twice within four years. I didn't even know my onc might be employing something called a "tumor marker". Since that proved ineffective in your case- I hear a game show buzzer going off for the wrong answer for "tumor marker". I've got your garden variety, ubiquitous ER+PR+ Her- I wonder what follow-up for Stage1a they'll have in mind for me?
Breast/Foob/TE smashing son-of-a-gun compression sports bras! Can't stand them! My normal boob, sags out the bottom and feels like the "sympathetic" husband gaining weight when I was pregnant. And the "fluffy"- don;'t get me started. Like I need increased pressure on top of my TE. I have rippend that thing out of my bra in a vehicle in public. Augh!
The TE in my "cleavage wanna-be" area (if my existing 55 yr. boob cooperates someday)- is like a 90 degree angle of a cardboard box under my skin.
The grunge match continues( Beth1965). You're on! Still no complete shower for me. I am hopeful however that this is my week.
Stamina. I concur with others. It's not anything like I used to have. It surprises me.and muscle atrophy to boot. Pre MX, exercise gave me energy and stamina. My PS won't let me until the blasted drain is removed. I am pooped after not much activity.
We're down to our last week! Yay!.
Deborah2012
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DebbieOs,
I was so surprised to see you post so soon after your surgery. Congratulations on all the positive surgical outcomes. You went directly to squishies! Both you and Katie1388 are the areola flagship gals for us.
I am sorry you are nauseous from meds. I've only had mild nausea with the anti-biotic pill I take twice a day for naturally- the blasted drain infection prevention project (it is working). My PS lets me take the anti-biotic with food now. Problem solved. Perhaps that might be an option for you?
I like you am amazed at how some of our sisters undergo a BMX.
Deborah2012
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My BMX was 2/1 and Yes, I have that tight banding feeling around my chest area...very annoying...but from what I can see here...it is not just me that feels that way so I guess it is normal. I now have a terrible cold and the coughing isn't helping any....Ugg!!!!
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How many of us are awake at 3 a.m. and reading these posts. Hmmm This has been one hell of a month. I'm not sure why life has to be so hard, but I hope to get out of the emotional valley soon. Thank you all for being there. Jill
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Oh yes I have been here many times at 3 in the morning...stay strong and think positive...thinking positive is half the battle!!!
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Dixie, mine was 2/10. Unfortunately, it got where I couldn't sleep more than an hour or two in the recliner. Which is why I decided to try the bed. You're trying to sleep on your side? Haven't even tried that. Sleeping flat on my back.
Bought one of the Amoena camisoles. Wish I'd had it from day one of returning home though. At least there would have been some where to attach and hide the drains when I did go out in public (ie, only to the post-op appts though). I don't see that the accompanying fluffly light foobs can be worn right now though, seems like things would be far too tender to have anything much up against it.
Quite difficult at this time of clothing season to find camisoles with shelf bras, even for Fla. Instead, I'm wearing a sports bra. Have two different ones....Carol Wior with a zip up front and either FOTL or Hanes with snaps up the front. That gives some support to the floppy bits left from the skin-sparing surgery.
I'm not feeling very brave today though. Returning to work this week on a part-time daily basis. Don't know how I'll hold up to the looks from others and the people wanting to be kind but aren't as much as they think. I bought several different colors of tank tops to wear under blouses for the white ones. On the plus side, have many blouses that wouldn't button before the surgery. DOH
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