January 2012 rads

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  • rjbaby69
    rjbaby69 Member Posts: 349
    edited February 2012

    Hi ladies.  I see all of us are tolerating this stuff pretty well.  I do my last boost tomorrow!  Yeah!  I will be done.  I will be thinking about all of you and checking back in.  Have lots going on in my life right now so don't know how often I'll get to "talk" to you.  But everyone please hang in there!  It will get better.  My skin is burnt and underneath the breast the skin is peeling away.  After the last boost tomorrow I will be able to slather the silverdene and all my other lotions all over my breast without worrying about all the markings!  I am so ready!

    Hope you all have a great day tomorrow!

    HUGS!

  • mags20487
    mags20487 Member Posts: 1,591
    edited February 2012

    today the coin turned over.  I now have 17 left and have finished 18!  Feels good to be on the down side of this mountain. 

    Maggie

  • chef127
    chef127 Member Posts: 891
    edited February 2012

    Good Morning,

    I had my first boost today and it was sooo quick and easy. I got home at 3:00, had a bite to eat and took a nap.........zzzzzzzz........ got up at around 10 feeling like some one or thing kicked the s--t out of me. I was exhausted and had stomach cramps. Sick?? Rad Boost?? I finally got up at 5 am and I feel OK. Thats a 12 hour nap. Anyone else have this happen? I know if I ask the nurse or techs at the center they'll never blame the tx on that or anything else. Except for the burns. 

    RockyM, Congrats for escaping your treatment unscaved. Amazing. One more milestone. 

    ANAbanana, You are cute, but you need to slow down....LOL

    Well, the count down begins for the rest of us. Hang in and hang tough.

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited February 2012

    Just wanted to drop by to say that a week after stopping treatment, the reddness is finally turning into a one-sided winter tan (lol), and the worst of the pains have eased up a lot.  So there is light at the end of the tunnel!! 

  • Ossa
    Ossa Member Posts: 919
    edited February 2012

    Was told yesterday I am not getting boosts.. I thought I had 25 whole breast then 3 boosts, but no I am having 28 whole breast, the last three are only doing the breast not the clavicle or underarm, I asked why most get boosts and I do not, was told it depends on where tumor was,  size, type etc.

    Itchy this morning... sitting here doing saline soak before I go for my treatment. Two weeks from today will be the first day I will not have to drive to treatment oh my what will I do with my dayWink. Look forward to getting back to work and will as soon as skin has healed enough not to hurt under arm, Going back part time to start, then working up to full..

    Have a fantastic day ladies

  • anafoefana
    anafoefana Member Posts: 164
    edited February 2012

    AthabascanWarriorPrincess ask your RO to give you samples of aquaphor or other creams.  You really need to treat your skin in order to prevent the serious burns.  Talk to the nurses and I am sure they will help you out.  

    Hang in there.  You are going to have more treatments than most of us.  You can buy an aloe vera plant and harvest it to use.  You are better off using 100% aloe.  I cut my leaves up and carry a container with me.  It is very soothing.  It is sticky but you can fan it dry. The plants are not very expensive.  Some grocery stores carry big leaves also. (Whole foods and Wegmans). 

    You will get through this just as you did other parts of treatment.  I know there are horror stories, but that is not the case for everyone.  

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited February 2012

    Hello ladies!  I am officially done!  Yippee!  Now it's back to work without having to drive back and forth to the big city.  So looking forward to it!  Skin is really red and peeling but now I can put all my lotions and stuff all over my breast without worrying about where I'm putting it!  Don't have to worry about the markings anymore.  Yeah!  Today when I came out of the radiation room, they sounded a bell and presented me with a diploma that stated that I had finished the prescribed treatment.  Had my name on it and the date and everything.  I wasn't expecting that but really but a nice touch on everything!

    Hope you all do well.

    Hugs!

  • Ossa
    Ossa Member Posts: 919
    edited February 2012
    YAY rjbaby doing happy dance for you.. You go girlCool
  • Ralsper
    Ralsper Member Posts: 352
    edited February 2012

    #23 of 25 done.The color of my skin is a dark chestnut, but amazingly it doesn't hurt and is not peeling. I think I am doing great, but it looks awful tho'! I am naked most of the day and keep applying aloe vera. Aquaphore and emu oil make my skin hotter and red (??????) My armpit however is a mess, it looks something like the Gran Canyon, it has all kind of deep open sores where the skin has peel away, it hurts all the time. You can see the expose red meat of my armpit, even the techs said "ow ow ow ow" when I have to lift my arm . I am applying lycodine and I began to take pain killers as well. I am keeping my arm elevated with a fan circulating air and it's helping, the problem is when I get the armpit wet while showering the wounds open up again.This is going to be a loooooong weekend!

  • chef127
    chef127 Member Posts: 891
    edited February 2012

    CONGRATS rjbaby,

    Dancing with ossa for you. 

    Ralston, 

    Only 2 to go. ow. When I told the nurse I was using the emu oil she said NO oils only lotion or aloe. But the emu oil is sooooo nice. Hang in and on.

    8 more boosts to go for me.......................

  • Justina
    Justina Member Posts: 53
    edited February 2012

    Have two more boosts to go, then I'm done (after lumpectomy, 5 months of chemo and 35 days of radiation).  Has the nipple on anyone else's radiated breast enlarged with radiation?  While my breast is only slightly swollen and darkened, my nipple is HUGE now - not swollen or puffy, just HUGE - like three or four times bigger).  Everyone at hospital seems to put me off when I ask them.  Thanks for any input.

  • chef127
    chef127 Member Posts: 891
    edited February 2012

    Justina,

    Why do the professionals deny or ignore the reactions we get from rads. The only thing they concur with is the burning. I have pink and fairly flat nipples and now my nipple is BIG, dark and hard as a rock. I hope it is a temporary reaction and it will lighten and soften w time. Its not too painful  but I now have a one sided "headlight".

  • Justina
    Justina Member Posts: 53
    edited February 2012

    Thanks for responding.  I guess it's true that misery loves company.  As long as it's nothing out of the ordinary, I can live with it.  It's just like you said, other than my skin breaking down at one point during rads, they pretty much ignored everything else.  Well, except for scolding me when my marks wore off.  It's not like I scrubbed them off, but the one lady was SO annoyed with me.  I felt like a kid in the principal's office. 

  • Kayce234
    Kayce234 Member Posts: 249
    edited February 2012

    Justina - my nipple is HUGE and dark brown but not swollen.  Although since I switched to the boost the brown is flaking away - I start back on regular rads on tuesday and have 8 of those left and am a bit nervous how my nipple will be after that.

    Can't believe we are all winding down - seems like we all just started!

  • bojo
    bojo Member Posts: 74
    edited February 2012

    Chef127, Justina, Kayce234.

    The nipple will go back to normal. well at least my left side did 6 years ago.  I am doing rads on my right side right now.  7 Boosts left.  My skin reacted the same way this time as last. Horrible blisters and swollen EVERYTHING!, and those awful ZING pains as i call them,  If they lasted for more than a few seconds i think i would die, they hurt so much!  But it does all go back to normal.  I can't remember how long it took though.  Hang in there everyone, we can do it!

    7 more 7 more 7 more. thats all i keep telling myself.

    Jo

  • AnnAlive
    AnnAlive Member Posts: 450
    edited February 2012

    All done with the big field radiation -- yippee! Next week, the 5 boosts. I'm quite red, but not blistered or peeling. I have some pain in the ribs next to my sternum; told my RO about it but got no particular response.

    Have a good weekend, all, praying our rads are working well and that we can heal with the break.

  • chef127
    chef127 Member Posts: 891
    edited February 2012

    bojo,

    Thanx for the ressurance. I'm going to wait to see a PS to have my right boob reduced.  I really can't tell if there is swelling on the rad side or not.

    I get the zing pains like you said they are short and stabbing. After todays tx I'll b at Luckey 7 as well.

    AnnAlive, The worst is over????? The boosts are short and quick and the rest of the breast can heal.  We seem to all be doing well. 

  • msmouse
    msmouse Member Posts: 60
    edited February 2012

    28 whole breast done as of yesterday. 1st boost today. there a cone on the machine that comes close to the skin but doesn't touch. They spent a lot of time with their purple sharpie tracing around the tumor bed (mine goes from the underside of the areola to the upper inner chest area (as big around as a large filet mignon!) & around the entire areola (my incision area) I am supposed to TRY to keep the marks intact but they made a template from a piece of film tracing the shape on it so im not going to stress over it. will also try to remember to wear the grungy tees I saved just for this occasion! 4 more to go; last day March 1.  am pink but not blistered. Some minor peeling (like when your tan starts to go in the late summer) No real pain or discomfort. Using aloe gel & cera ve cream. Not as messy as the aquaphor. Have a healing and postive weekend! I

    Debbie

  • NWArtLady
    NWArtLady Member Posts: 360
    edited February 2012

    Hang in there everyone!!  We're almost there.

    I, too, have the zings.  It's rough when they come on while I am helping a student out at the reference desk... But I just tell them I had bc and am now doing daily radiation and they understand (I work at an academic library with college students).  I think they are busy being bedazzled by my blue wig... Tongue out

  • Ossa
    Ossa Member Posts: 919
    edited February 2012

    Was told by RO today that they will not use my bolus anymore, got very red overnight, good thing is that it is a tissue expander so I have no feeling in my foob.. But for cosmetic reasons she decided to not longer use bolus.. My chest is starting to blister and is so itchy. Was told to continue saline soaks and hydrocortizone,, if small blisters open to use polysporin.. Alo got Rx for burncream, but was told not to fill it unless the blisters becomes bad over the weekend.. 6 left. woohoo.. Three to whole area then three to breast only.. no boosts Oh did I mention 6 left Surprised

    Have a great weekend ladies.., Hang in there we are almost done .. I can see the light at the end of the tunnel and it is not a trainCool

  • Ralsper
    Ralsper Member Posts: 352
    edited February 2012

    Ossa - I also have TE and also RO removed the bolus after 20 rads. I "drained" my blisters. There were 3 tiny ones, I sterilized a needle and the area, I made a tiny whole, removed the liquid, and applied silvadene. I  didn't want the blisters to open by themselves and have an open wound on my breast. My foob is really dark and itchy. Monday is my last one. Have a wonderful weekend!

  • Momine
    Momine Member Posts: 7,859
    edited February 2012

    I had blisters that opened and bled. I didn't realize, just noticed the pain. Now the whole thing has gone dark purple which looks really scary. Anyone else?

  • anafoefana
    anafoefana Member Posts: 164
    edited February 2012

    As I teach my students to say "All done.. finished!"  Glad this is over, but has not been the worst part of my year. 

    The area where the boosters were is pretty red, but it is not as bad as the spot on my neck.  That one is healing, starting to peel now.  I was finally prescribed silvedene and that helps.  But aloe vera is the most soothing. I have been walking around with a little container of aloe chunks. It is sticky, but it dries quickly.

    Chef, it is interesting how cream recommendations differ.  My RO was totally for Emu Oil and aquaphor. She just told me to make sure not to put it on before I came in for treatment.  She said the skin needed to be clean. 

    I was told that the skin dryness may be permanent.  They said to expect symptoms for 4 to 6 weeks.  Fatiguen never became an issue for me, just off and on. 

    Hang in there everyone who is almost done. Time goes really fast in the end! 

  • bgirl
    bgirl Member Posts: 538
    edited February 2012

    Momine - A week ago I was dark purple especially in lymph nodes.  Hit the height of post treatment for that area. It blistered and peeled this week.  Nice pink skin underneath. Boost area hitting max now, but not as purple as whole breast/nodes.  All I can tell you is I ended up going to walk in clinic last weekend, got a great cream which helped and within a couple of days it calmed down to a nice pink. Just keep an eye out for infection if you have blisters.

  • Momine
    Momine Member Posts: 7,859
    edited February 2012

    Bgirl, thanks for the info. It is a long weekend here, but I may drop in on my rad doc come Tuesday if it is still bad.

  • Ossa
    Ossa Member Posts: 919
    edited February 2012

    anafo.. Happy dance for you woohoo another one done.. So happy for all of you that are done,, the rest of us will be done soon

    Ralston.. Your foob is itchy? Guess you are lucky you have some feeling there.. Mine is an angry red with some darker spots,, but have no feeling in my foob so keeping a cloe eye on it. Looking for blistering etc. Think I was sunburned like this a couple of times in my early teeange years.. Imagine a redhead suntanning by the ocean without suntan lotion.. yaa, I know stupid... This was back in the 70's so there wasn't as much knowledge (or maybe I didn't have much knowledge

  • anafoefana
    anafoefana Member Posts: 164
    edited February 2012

    Thanks Ossa. You all will be done before you know it and then it just healing time!

      I did my share of suntanning in the 70's .  I used to mix coke with baby oil to get a better tan. I think it would have been better to not use anything!   The last time I used that I ended up with blisters on my face and a sunburn so bad it put me in the hospital.  Talk about no knowledge!  

  • Carrye
    Carrye Member Posts: 43
    edited February 2012

    The oncotype dx test looks at a number of genes to determine whether you are ar risk for recurrence. Tumor size is irrelevant. Anyone with a node negative , hormone postive, hers neg profile can use the oncotype score to help determine whether she will benefit from chemotherapy. Studies have shown quite conclusively that people with scores below 18 do not benefit from chemo. My score was 15 and my concologist and i decided against chemo because the risk outweighed the benefits.

  • Carrye
    Carrye Member Posts: 43
    edited February 2012

    6 more then 5 boosts. My breast looked completely normal until about three weeks into the rads. Now the tumor bed area is very dark, the breast is very tanned, the hair follicles have darkened and stand out, and the crease under my 36 dd boob is itchy, dark and sensitive. I was prepped for boosts yesterday and have a circle of blue marker now around the scar/tumor bed. I am using aquaphor and 99% aloe vera. I hope i dont blister!

  • Carrye
    Carrye Member Posts: 43
    edited February 2012

    6 more then 5 boosts. My breast looked completely normal until about three weeks into the rads. Now the tumor bed area is very dark, the breast is very tanned, the hair follicles have darkened and stand out, and the crease under my 36 dd boob is itchy, dark and sensitive. I was prepped for boosts yesterday and have a circle of blue marker now around the scar/tumor bed. I am using aquaphor and 99% aloe vera. I hope i dont blister!

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