Denied out of network for recon

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Has anyone else had to go through this? I have an HMO,they denied my request to go out of state for bilateral SGAP.They say they have in network doctors who do it and that I can have it done in two separate surgeries.The insurance refuses to tell me what I have to do to appeal,the person assigned to my case is not allowed to talk to me,only to my doctor who has no experience dealing with this sort of thing.I am so sick of us having to deal with insurance companies on top of everything else we go through.Any advice would be appreciated.

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  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited February 2012

    I'm sorry to hear this.  I have an insurance plan (not an HMO) that provides no out-of-network coverage.  Of course my PS is out-of-network.  His insurance person got the denial (which was somewhat expected).  The PS then did a peer-to-peer and I was approved for in-network.  And, I live in a major city with a create medical center (Houston).  They did not make me use an in-network physician.  I'm doing a BMX with immediate DIEP (right side will be prophalactic).  The insruance person at the PS's office did tell me that there were some ins cos that she wouldn't even try to work with.

    A friend (whose husband is a physician) suggested that you also go to your HR person to help you advocate (if your ins is through an employer) because ultimately, you're the consumer but HR is the one with the bargaining power.

     Good luck!

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2012

    pandazankar, there have been several threads here dealing with this, including one with great, insider advice from someone who works in or had worked in this area of insurance.  Depending on what answers you get here, try searching the Discussion Boards for "Kaiser appeal."  In the thread I'm thinking of, it was for out of network recon, initially denied by Kaiser (?) (maybe even twice?), but eventually won.  

    I'm so sorry you have to deal with this.  It's just not fair.  But don't let them bully you.  And you shouldn't be forced to have 2 surgeries vs. one.   That just isn't right!    Deanna

    PS ~ I'm trying to find that old thread for you, but it might take awhile!   

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2012

    Sorry you're going through this but since out-of-network charges can be huge you're wise to deal with this now. In addition to your HR person, you might want to see if there's a consumer health-insurance advocate you can call (there's one in CA; I found it on the *.gov site and the person I spoke to was surprisingly helpful and informative). I agree w/ Deanna. It's not right for them to dictate the terms of your care. That said, I always thought that NY had some of the best cancer docs in the country, so I wonder if there are options to do it in-state with just one procedure???

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    Thank you all so much,it really helps.I have MVP/HMO..it does not cover New York City,where there are doctors who do simultaneous bilateral SGAP..but it does cover New Hampshire.They are referring me to a doctor there plus two here.I called the offices,but the people I talked to were clueless,just wanted me to come for a consult,told me they could not give me info over the phone...???....I will search for that thread.It is my husbands insurance,so don't think HR would help me? I am feeling like my fight is all gone,ready to just give up.

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2012

    pandazankar, I haven't been able to find the specific info' I wanted to find for you, although I'm still looking. In the meantime, you might want to search for posts by BCO member Dutchy.  She had a big hassle with getting a referral to UCLA for DIEP recon, but eventually won her case through a Medical Review Board appeal. 

    I know you feel like you don't have any fight in you at the moment, but all it's going to take is figuring out the proper procedure and steps, and following through.  You don't have to do it today or tomorrow.  Take your time, gather as much info' as you can, and at that point it probably won't be that big a deal to file an appeal.  Hang in there, and don't be discouraged!  These decisions are often determined by clerks or computers in the first go-round, and often get reversed on appeal.    Deanna

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    Thanks again! I am feeling 100 % better.My husband knew as soon as he walked in the door that something was wrong....after I told him  he very calmly said" We will change to a PPO,look it up and see if your doctor is covered." He is!! I am still going to fight this as it may end up helping someone else and we really can't afford the premiums and copays on the PPO(which is why we have the HMO).But I am so glad to have a back up plan and it gives me the strength to take on the insurance company.This was determined by their medical board,it is the second denial,so now I have to go through the appeals process.And I will for sure ask about the peer to peer.I was feeling so alone,none of my friends understand what this is like,I do not know what I would do without this forum.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2012

    This conversation reminded me of a couple things I heard/read:

    1) my DDS's receptionist said that when she went to training for one of the dental insurance companies, one piece of advice they got is that if a claim gets rejected, just submitted again because a different person will open the envelope and process it. Obviously, that doesn't help with BC, but even the insurance companies are acknowledging that the decision varies by the person handling that claim. arg.

    2) one book I read last year (maybe "Planet Cancer") had a chaper titled something like "How I gamed the insurance company.")  Her story, if I remember correctly, was bad because she quit her job and HR didn't properly process the COBRA form and so she had no coverage. Regardless, she had great strategies for working the system. She would call, ask some questions, then call back, get someone else, and use the info she learned to act like she'd already gotten a partial approval (or something). It was a ballsy move but this woman was desperate and it worked. Just an FYI in case this is inspiring.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    I talked to two people today,the first was a woman,she was cold and snotty.The second was a young man and while he could not really "talk " to me, I could tell by his tone of voice that he was wishing he could tell me something different and he gave me more information than the woman did.I thought it was sad that I did not get empathy from another woman.But maybe she has to detach herself,it can't be an easy job.I feel guilty whining about a problem with recon when there are women who are having trouble getting treatment paid for.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    You may also want to reach out to Nordy... she had her surgery in NOLA, where they also do simultaneous SGAP... and I think it was Nordy who had to fight the insurance company... Post this at NOLA in SEPTEMBER thread and I am sure someone will chime in... There was one woman who got her HR person to change her plan to a PPO, even after she had made her elections for the year.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    Thanks bdavis,you are the one who has given me the courage to do flap surgery! I will post on the NOLA thread,but my husband wants me to just change our insurance plan this spring.He says he has seen me go through enough and for once I should take the easy way out and save my energy for surgery.I was not going to have surgery until this fall so I have time to get things in order.It was such a contrast talking to these other doctors offices after dealing with SC and NOLA.They had no one that I could ask questions,just said I would have to come in for a consult if I wanted any information.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    I am sorry you are going through all this... it just shouldn't be this hard... I did see your post on the NOLA thread... and read a post on some other thread... for what its worth, if a doctor's office is unsure if the doctor does the procedure, I would not go there. You want a doctor who does it often. Dr Dellacroce in NOLA does the SGAP all the time... there are lots of us GAP girls... There are only three surgeons there and they team operate. Did you reach out to Nordy?

  • gale1525
    gale1525 Member Posts: 232
    edited February 2012

    I also have an HMO. I was allowed to go out of network to the surgeon I wanted, even though they had an in-network doctor that could do the DIEP. I did not hear great things about that doctor, so I appealed. I believe the only reason it was allowed was because my IPA changed the wording on the referral from my family doctor, which I was told from the person at my insurance is illegal. So I think I got approved on a technicality. It also took about 18 months. And I had a case manager (from my insurance) call me a few weeks ago, and said they could have helped me with the appeals maybe you could try that. Good luck.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    I am not sure what is going on with my insurance.I have talked to three different people.The first was a woman who was so cold and uncaring I hung up crying.She is the one who told me I would have to have two separate surgeries unless I could prove it was "medically necessary to only have one" I asked what that would be and she said"life threatening".....Then I remembered I had read in my handbook(which I of course cannot find) that there had to be a doctor in a certain radius from your home,if there wasn't you could get out of network coverage.So I called again to ask,this time I got a man.He told me this was not true,they could make me go wherever they had a doctor.He also told me I could not have anyone assigned to help me with this.I called yesterday morning to request a new handbook .I got a very helpful young woman.I decided to ask her about the distance thing.She told me if there was not a specialist providing a particular service within 60 miles of my home,I could use an out of network doctor and they would pay for out of network services.I also talked to the doctor's office who is closest to me (still over 60 miles)His nurse went and asked if he did simultaneous bilateral SGAP.He told her no.I explained that insurance was telling me I had to have it done in two operations.She tried to explain to me that it meant I would have my mastectomies and then the SGAP surgery.I finally made it clear to her that I had had my masts and that it was two separate SGAP surgeries the insurance wanted.She was shocked and went back to the doctor who told her no way would he do that.I really think it is going to be easiest to put my recon on hold(it will only be three months later than I planned) and switch insurance.I am going to call my husband's employer Monday for more info and there is always a slim chance they will let us change insurance before November.I am disgusted that women have to put up with this,so I am still going to appeal.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    I too have heard that if the procedure you need is more than a certain mileage, that you can get out of network benefits, but they aren't going to play nice I fear... They would rather you say you will have some other recon... I think the bilat SGAP procedure which is few and far between may be your ticket.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    Well, the insurance wants me to have bilateral SGAP,but they are saying I can have two separate surgeries to do it..which is ridiculous.And I have had TE's which had to be removed.Not enough tummy for DIEP,so....I called about changing insurance,which they will not let me do  until November.But I am concerned because we have coverage with MVP,my husbands employer only offers an HMO with MVP,to get PPO I have to switch to Blue Cross.Will they still cover recon if they were not the ones who covered my mast?

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    It is unrelated.. The law says you are entitled to reconstruction, no matter which insurance covered you for the first portion.. And it is absurd that they want you to go under anesthesia twice.. I would object that it is too dangerous, may cause symmetry issues that would later need more revision and more expense, no docotr who is good will do it that way... you need to appeal that you want a team of doctors and ONE surgery.  What man came up with this rule??

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2012

    I'm not surprised that you can't switch insurance until Nov; the big companies have their rules. But are there any other consumer health insurance advocates who can help w/ your out-of-network issue? i.e. this morning I saw that the LA Times even has one.  In Calif. there is one via the *.gov website.  Is there one for your state? Have you considered contacting the cancer patients' advocacy groups? (I've seen them mentioned here, somewhere...) 

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    I had to call my friend and share Betsy's "man" comment with her.Of course,one thing led to another with lots of suggestions for the man that made this decision!! I was not planning to have my recon until October,this will just push it back to January.Would have liked it sooner,but I have waited this long,three more months won't matter...In the long run ,it will be easier for me with a different insurance..Every single thing has to be pre approved for out of network and I know they will deny me every step of the way.But I have been laughing....first over Betsy's "man" comment and then I just got my denial letter....the reason for denial is"breast reconstruction is available with in plan providers. Member has no out of network benefits".It then says "the requested service is not materially different from a service provided in network" They never mention that I requested bilateral simultaneous SGAP. Yep, breast recon is available..if I want implants or TRAM......Actually,there are doctors who do flaps,but they only do unilateral.Now the insurance is worried about money..do they realize how stupid it sounds for them to think that two surgeries would be cheaper than one??..especially since the chance of complications with a doctor who has done few SGAPs are greater.The weird thing is,this letter was dated after they contacted my doctor and told him to refer me to three in network doctors.There is no mention of these doctors in my letter nor of them saying I could have two separate surgeries..I will still appeal this,just on principle.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    I think you should circulate a petition and have US all sign it... it is absolutely absurd that they find their decisions logical. Perhaps present them with medical abstracts, documenting the dangers of multiple anesthesia for one and all the other reasons... they are sounding a bit like my MO who thinks I could have stayed local and gotten great recon... he simply glosses over the fact that I didn't want Tram or implants, or lat flap... MEN.

  • gale1525
    gale1525 Member Posts: 232
    edited February 2012

    The insurance doesn't like to given into out-of-network because it sets a precedence for other patients  to try to go out-of-network. They figure it will cost them more in the long run. My DIEP did not cost them any more than an in-network doctor, where I went they take my HMO.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited February 2012

    The thing is,the doctor I want to go to has said he will accept whatever the insurance will pay.So I agree,they do not want to set a precedent.I think the first thing I will do is have a consult with the in network doctor who is closest to me..the one who does SGAP,but not bilateral.He is the one who said he would not do it in two separate operations.If I have it in writing from one of their providers,they will have to give in....maybe.....It really helps that you all are giving me ideas.I have 180 days to appeal,so plenty of time to put it all together.THANKS!!!!

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    I agree.. If THEIR doctor won't do it the way they want, then something has to give... I would have him write a letter for you to start with.

  • Jayme33
    Jayme33 Member Posts: 24
    edited March 2012

    I'm in the same boat. I have no out of network just out of pocket. The PS is of course not in network. Can you tell me what peer to peer is? Any advice would be appreciated..

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited May 2012

    Sorry,Jayme33,I just saw your question.Peer to peer would be your doctor talking to a doctor at the insurance company.I have heard it can be very helpful,not sure when in the process it is allowed though.I have been told I have to get written statements from the 5 doctors the insurance company referred me to, stating that they do not do bilateral SGAP.Am I crazy or should the insurance company know which doctors do which procedures?Plus I am not allowed to get these,my doctor has to request them.Has anyone else had to do this? My doctors office has never dealt with trying to get out of network benefits,so they are relying on me to make sure they do it correctly. I had planned to wait until we changed insurance,but my friend who will go with me has the summer off,so no time restrictions for her getting back to work as there would be after she starts her new job.Has anyone talked to their State Consumer Assistance Program? Wondering if it would be worth a call.

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