Can dog ears be avoided?
I don't have my surgery date yet, but it should be within the next week or two.
I've been reading about the possible complications, and dog ears really got my attention. When I had the initial consult with my BS, she mentioned that many women are left with what she called fat pads under their arms. She said that she makes every effort to avoid this, and give a good cosmetic result. Then she told me her office would make an appointment with a PS for me to discuss reconstruction. I told here that I have decided against reconstruction, and she said that she's found that women have a better quality of life if they opt for reconstruction. We had a long discussion, and I ended up saying she could schedule a consult with the PS, basically just to pacify. I'm very impressed with this surgeon, except for this one thing. Having a consult with a PS just to pacify anyone is ridiculous. Waste of time and money. So I talked to her nurse yesterday, and told her I wanted the PS appt canceled. She really pushed hard for me to keep the appt. Said that my BS felt very strongly that I should keep the appt so I would be fully informed. She sounded almost angry. I heard her out, and then told her to cancel the appointment, I've made my decision and am confident about it. I later got an email from my BS, who said that she would prefer that I keep the appt with the PS, but if I wanted to proceed with plans for the surgery, that's what she would do.
I emailed her back, and said that I trust her to give me the smoothest result possible, no dog ears or any amount of tissue left for the purpose of making reconstruction easier at a later time, because that will not happen. She responded, saying that when you have mastectomy (I'm having bilateral) without reconstruction, it can hard to avoid dog ears.
So I'm wondering if this is actually correct. This surgeon is the head of the breast cancer program, we really click when we met, and I've been happy with everything about her other than pushing pretty hard when I said the appt with the PS wouldn't be necessary. It was silly for me to allow her office to make the appt in the first place. Anyhow, I certainly don't want to switch surgeons, because I really like her and am very comfortable with her personality, and more importantly her credentials. She came highly recommended from a couple of other women who had her for a surgeon.
As usual, too many words for a simple question. Is it accurate to say that BMX without reconstruction makes it difficult to avoid dog ears? I thought my initial consult with her indicated that she would pay careful attention to that, and make sure I wouldn't end up with them (although she didn't use the term "dog ears," rather "fat pads").
I have more questions, now that the time is getting near, but this is at the top of my list.
Thanks!
Comments
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No dog ears here. I asked my bs to make sure there were none because I too wouldn't be doing reconstruction. It's absolutely smooth and the way it should be.
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Fascinating - I hate that they thought you'd have "better quality of life" with reconstruction - really? this is YOUR decision. Seems kind of rude to me. . . .am I missing something?
I'm not a good one to answer your question as I did have reconstruction. The one thing that struck me on your post was this - maybe you do want to talk to PS to have him / her help avoid the dog ears / pads? I have a much longer scar on one breast that was created by my PS for just that reason - to avoid, as they called it, a love handle . . . just a thought.
Good luck Denise . . .I love your tenacity!
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That's exactly what I'm hoping for! I read somewhere (I've read SO many things, don't remember where now) that surgeons sometimes leave the extra to make it easier to do reconstruction. I've made it clear that I don't want reconstruction, now or later. I'm REALLY hoping that it's just something she can take care of when she does the BMX. Does the fact that I'm overweight make dog ears more likely? I just want a good, smooth result.
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Thanks, Kelley! I couldn't agree more about the quality of life statment. A woman's desire to have or not have reconstruction is so personal. If I wanted reconstruction and didn't have it, it may effect my quality of life. If I didn't want reconstruction and had it because a surgeon thought I should, it would probably also adversely effect my quality of life. Since I'm so confident of my decision, I think the biggest factor concerning the quality of my remaining years (hopefully 40 or so!) is making sure that I get the results I want, regardless of what anyone else thinks of my decision.
I have heard that avoiding the dog ears can mean a longer scar, and I'm perfectly fine with that. I'll talk to my BS about that. I don't know if that's something that would require a PS, or if it's something she can take care of herself when she does the BMX.
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I had a BMX without reconstruction a year and a half ago. I told my BS I wanted to be as smooth as possible, and am very pleased with the results. No dog ears, and the scars have faded so they are practically invisible. Like you, I was strongly encouraged to meet with a PS, and the appt was made for me. I asked the office nurse to cancel the PS appt. and have not regretted it. It is a very personal decision, and I thought long and hard (and did quite a bit of research), before making my decision. For me, it was right.
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Breast surgeons are general surgeons, and they aren't necessarily trained or skilled in the aesthetic aspects of surgery. Isn't it practical to consult with a PS, assuming your BS won't necessarily be able to produce the cosmetic quality you're looking for in your incisions? I think it may also be realistic to expect a second surgery--a plastic surgery--to correct any cosmetic issues you aren't happy with. If you happen to have a BS who is a decent plastic surgeon, and she can do what you want in one surgery--great. But I don't think it usually happens that way.
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Hi Denise,
I asked my surgeon (the head of the breastcare program at a Harvard teaching hospital in Boston) for the best cosmetic result possible--flat, no excess skin, and neat symmetrical incisions. I had a bilateral mastectomy and my incisions are long. But she did exactly as I asked and I don't have dog ears or any excess fat under my arms. Though long, the incisions are symmetrical and very thin. After five years, they're almost invisible.So, what you want (no dog ears) certainly should be achieveable.
It sounds as if you've chosen a very competent surgeon. However, I'm surprised at her insistence that you investigate reconstruction. I think it's fine for a breast surgeon to give patients the name of a plastic surgeon and even suggest that they see that person and check out their options. But if the patient seems clear about her wishes, I would think the surgeon would be comfortable proceeding and attempt to give the patient exactly what she wants, in your case a mastectomy with no dog ears. When I hear stories like yours, I always wonder whether the (female) surgeon might be projecting her own feelings onto her patient.
I founded and run a non-profit website, BreastFree.org, which offers information, advice, and support for women who are considering not having reconstruction or who have already decided not to have reconstruction. Although I have never suggested something like this on this forum, I'm hoping you'll consider telling your surgeon about my website (and give her a link to it) and also tell her that over 40,000 women a year visit it, many of whom send me messages with stories similar to yours, about surgeons who thought they wouldn't feel whole or happy without reconstruction. My own surgeon and other surgeons at her hospital now refer their patients to BreastFree.org at the same time as they give them a PS referral.
After visiting BreastFree.org, many women express relief at realizing that they're not alone in their wish not to have reconstruction. Far from it. I also think that's true for women who come to this forum. There really is a community of women who simply prefer to not to have what I call "internal prostheses" (i.e. reconstructed "breasts") and would rather wear external prostheses or go flat altogether.
Sorry for going on at such length. I feel very passionate about this. Best of luck with your surgery and recovery.
Barbara
Edited to add that sometimes a plastic surgeon will assist the surgeon in achieving a good cosmetic result for a non-reconstructed breast. And it's also true that some women who wind up with dog ears go back for a "revision" with a plastic surgeon. That's usually a minor procedure, done on an outpatient basis.
A surgeon who specializes in breast surgery is obviously not a plastic surgeon but should be adept at mastectomy surgery and able to achieve a good cosmetic result.
Also, remember that even with a flat chest and no extra skin or dog ears, you could always change your mind and have reconstruction later. It's still totally doable.
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Thanks so much, Barbara! I'll definitely give my surgeon the link to your site. I think that so many of her patients want reconstruction that it totally caught her off guard when I said no reconstruction. She didn't insist that I would change my mind and want reconstruction, but she did say that if I didn't visit the PS, I wouldn't be fully informed. I told her that I've done enough research, and know myself well enough, that I'm totally confident in my decision. I don't believe she needs to have any worry whatsoever that I don't know what I want.
If I do end up with dog ears, I'll definitely see a PS later to have them fixed.
Off to visit your site!
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I, too, don't have dog ears but I do have a long scar on each side. I chose against reconstruction, even though my BS and PS never mentioned the option of BMX no reconstruction. I came to the conclusion after doing research on implants, and my goal to be cancer-free with minimum risk and no more surgeries. I stumbled upon breastfree.org website and was encouraged by all the stories and women who shared my views, I was relieved.
To be fair, I think there's a study somewhere saying that the majority of patients who did not do reconstruction was because they weren't given that option, or because their BS didn't know a PS to recommend. Maybe your BS just wants to make sure you fully understand your options. When I explained to my BS and gave him all my reasons for choosing no reconstruction, he was satisfied and didn't mention reconstruction again. -
I have to side with brcapooh in her defense of breast surgeons who try to refer their BC patients to plastic surgeons for a consult.
My breast surgeon did that, even though I had told her I did not want reconstruction. I was having a left mastectomy, and she asked how sure I was that I did not want reconstruction. I cited a high level of certainty -- maybe "90 - 95%" -- and she said, "If you are not 100% convinced, I'd like to have you meet with a plastic surgeon for a consult. That way, you'll know what the options are." She offered the name of a PS she worked with routinely, and said her nurse could make an appointment if that was something I was willing to do. She emphasized that she did not mean to pressure me -- she just wanted to make sure I had "all the information."
I am an information junkie. Here was a doctor I liked and trusted (and who would be cutting on me in a week or so), offering to provide me with information she knew I might not ever need. The consult was free (my insurance covered it). And, I am really glad I didn't cancel that appointment.
The PS knew at the outset that I was probably not going to have recon -- he said that didn't bother him; he just wanted to be sure I knew what was available. He and his nurse spent the next 2 hours with me and my husband, going over before-and-after photos, recon techniques, pros and cons, and all the risks. He asked me lots of questions, and offered his recommendations. He told me my BS was an "expert" with skin-sparing mastectomy, and he and she worked together "all the time" (which I already knew).
After all that, I told him I was still certain I did not want recon. He grinned and said, "That's okay -- I don't feel bad. I'm satisfied knowing that a patient is well-informed." He gave me his business card and said to call any time if I changed my mind, up to the day before my scheduled surgery.
What I didn't realize until weeks later was that breast surgeons get a bad rap because of the number of mastectomies they do, and because a percentage of those women choose not to have recon. As brcapooh said, "studies" report that patients are not informed of their surgical options and are not aware of the variety of reconstructive techniques available to them. Our breast surgeons are blamed for that information gap because they're the ones who are supposed to make sure we understand all this. "Everybody" (whoever that is) assumes a woman would not willingly give up her breast, and would not decline to have it reconstructed if the option was available. I think that's why some of us felt pressured to have recon or at least to consider it more seriously than we'd liked.
As for dog ears... when my surgeon met with me in the pre-op cubicle, she asked, "What type of surgery are we doing today?". I almost laughed -- she was letting me wait until the very last minute. I told her "mastectomy with no reconstruction. Ever." I said I didn't want a flap of tissue left on my chest "just in case," to make recon easier if I changed my mind later. "No dog ears, then?" she asked. I said, "No dog ears -- I'd like a straight, flat, smooth scar line." She said, "Okay, then. That's what we'll do."
I do have some poochiness under my arm, and I complained about that a couple of times. She checked it out, smiled sympathetically, and said, "I think that's just you." She noted indirectly that I had some poochiness on my good side, too. She explained that, before she finishes the surgery, she has the anesthetized patient raised into a sitting position to see what the incision and chest will look like. She checks for extra tissue, tightness of the incision, "how everything will lie" afterward. She said they try hard to make it all smooth, but sometimes there is a bit of extra, unwanted tissue. In that case, she said, a PS can easily tidy things up later. She offered a referral to the PS if I was still bothered by the poochiness. I declined.
Whew. Long answer to a short question! Yes, conventional dog ears -- the flap of tissue that's sometimes left on the chest to make recon easier -- is avoidable. It's mostly extra skin, and it does not have to be there. But, sometimes there is a pouch of fatty tissue under the arm that's above the incision line and is harder to avoid. I suspect surgeons don't like to remove that healthy fat pad unnecessarily because it could contain lymph nodes.
Sorry this is so long. I haven't had anybody to talk to, today!
otter
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Dog ears are caused because the surgeon has to "end" his incision somewhere. If you have extra weight, they will normally do it under your arms so the transition from surgically flat to your normal tissue thickness is not so noticeable. I've heard of a number of ladies who were left dog ears in the middle of their chest!!
Just recently I had lunch with two bco ladies. I surreptitiously showed them my scar line. I told my surgeon to make it as flat and neat as possible. I used a general surgeon and was very pleased. The two women both told me that MY incision was WAY neater than theirs done by plastic surgeons!!! I am over 3 years out and haven't hesitated for ONE SECOND over my decision. Good luck!!
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Must have felt to get all of that out, Otter! All day without talking? Sometimes I'd love that, but most days it would drive me nuts
Yeah, I don't blame my BS at all for recommending the PS, just believe it would be a waste of time ~ both for me and for the PS. I've looked at pictures after BMX, both with and without reconstruction. But appearance isn't why I don't want reconstruction, and I was already 100% sure about my decision. I do realize she was doing her job. Most women do want reconstruction, and I'm sure that when someone says they don't want it, she wants to make sure that they mean it. I have investigated my options, and my surgeon went over them with me quite thoroughly. Her nurse said that the appointment would be for me to be examined and measured, and then hear how reconstruction or not, would look on me personally. How it looks really doesn't factor into my decision. And while my BS expressed that she thought it would be good for me to see the PS, because she believes women who have recon have a better quality of life, when I told her how much consideration I've given my decision, she was perfectly willing to move forward. It was really only her nurse who sounded upset about canceling the appointment.
I hold no bad feelings for my BS for wanting to refer me. But I'm glad that the appt is canceled and she's moving forward with scheduling the mastectomy. I didn't hear anything today, so hopefully I will tomorrow.
The dog ears ~ I really, really hope I don't have them after my surgery. But I trust my surgeon to give me the best result possible. I researched my options for treatment quite thoroughly, and selected the cancer center that I thought was the best in the area. I love her credentials, her intellect, and I've heard great things from women on whom she's performed surgery. I really want to get the surgery behind me, and get on with the process of healing. Unfortunately, when you select the best surgeon in the area, you're also getting the surgeon with potentially the busiest schedule. She did say it would be scheduled within a week or two of my final decision, so I know I won't be waiting long.
Thanks for all of your input. Having a place to come with questions, and the willingness of women who have been through already, gives me such peace of mind I can't put it into words!
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Yay Barb! Exactly what I want, exactly how I feel! Thank you for the encouraging words.
I am at such total peace with my decision. I feel really fortunate that I didn't have to struggle it with it like so many women do.
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Denise, you will feel a strange sense of relief when those suckers come off. Trust me! I actually feel sexier now than I did before!! I get to feel all the gorgeous fabrics against my bare chest and it is so sensual. I never have to wear a bra again!! I even had to buy a formal gown as two of my kids got married. I had them tuck the boning into my chest area so there is a gentle poof but no cleavage of course. I felt pretty. Now when I see big-breasted women I think "MOO"....hehehehehhe
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Barb, I believe I will feel relief on SO many levels!
I looked at Breastfree.org tonight. I didn't check out the whole site yet, but enough to really like it. Beautifully done. I looked at all the pictures. It's great to see the results at various stages, such as 3 weeks after surgery, a few months after, over a year after. Very encouraging!
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Denise, I guess I see Otter's point but I've also been offended to hear that I would have a better quality of life wtih reconstruction. I (this particular person who is ME) would not. My BS tried to get me to see a PS and did say I might need "scar revision," but did not push when I dug my heels in.
I'm very pleased with the result of my BMX in 7/2010. No dog ears, very smooth scars. My asymmetry is subtle and is because of what was required to get get clear margins. She was able to put my scars pretty close to my infra-mammary folds, so they hide in the shadow of my pecs.
I do know that it can be hard to avoid puckers and protrusions when the incision closed is not the one that is opened. A scar from, for example, a knee replacement should lie flat - it was just one cut that was stretched a bit but then stiched back up. A scar from a mastectomy is like taking a piece of cloth, cutting out a football shape, then trying to stitch the hole closed. It's much more likely to pull and pucker. I'm sure some of your result will depend on your particular anatomy.
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I had minor "dog ears" at 1st. But 10 months out thay have resolved, so maybe I didn't really have dogears. I have 2 neat & tidy diagnonal scars. These scars were hardly visible until I had radiation. They spread a little but are now fading. I finished RADs in August. My scars only extend into my armpits about 1/3 of an inch. My BS seemed to discourage recon for me. All I heard was the extra recovery time, the fact that it wouldn't last forever & would need maintenance & the myth about women finally getting the breasts they've dreamed of, that I wasn't a canidate to do anything with my own tissue because I'm thin..........Still she thought I should talk to a PS. I cancelled my PS appt & called back to schedule my BMX. Don't know if my BS knows I never saw the PS. I've heard that some of the large teaching hospitals require all patients to meet with a PS. I've read about a study that concluded that women who not do recon aren't as happy or pleased with the result & I think it might have gone so far as to say had a poorer quality of life. Well, I guess I'll just be grumpy
Just don't see how having implants of one kind or another will make me anything but uncomfortable.(I'm not really grumpy or unhappy)
Hope you get your surgery scheduled soon & that you have a smooth post-op experience like I did.
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What exactly are dog ears? I've heard them described differently..are they folds of skin or protruding flaps of skin? I have both kinds (go me!). Close to my underarm area, especially on my right side where I had the SNB right at the end of the incision line, my skin folds together for about 1 1/2 inches. I have to separate the fold to wash and dry that area.
In the middle of my chest, again at the end of my incisions I have these little poofs of skin (I call them my lil breasts). Again the right side is larger than the left and they are very sensitive to touch. There is no way that I can wear any sort of bra or foob w/o it hurting.
My BS told me that I have to give my chest area at least a year to heal, smooth out, etc. Then if I'm unhappy with the way it looks, a PS can revise it. I really do not want any additional surgery.
Cats
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I would take some of the studies about reconstruction with a grain of salt. A lot of the studies are small. The most recent study I know of, which discovered that the majority of women still don't get reconstruction, made the presumption that women's quality of life would be better WITH reconstruction and therefore assumed that the problem was information dissemination and lack of PS referrals, i.e. if women were fully informed about reconstruction of course they would choose it. I may be paraphrasing this incorrectly, but at the time the study hit the news (last December), I read all the articles I could find about it and even emailed the lead study author (she never emailed me back).
I totally believe that women facing a mastectomy should be advised that reconstruction is an option and should be offered a referral to a PS (I saw one myself before my BMX), BUT I also believe that at the same time their surgeons should say that NOT reconstructing is also an option. Breast surgeons are (understandably) focused on life-saving breast surgery. As surgeons who work regularly with plastic surgeons, they may also be well-informed about the latest reconstruction options. But they probably aren't keeping up with the latest developments in breast forms (prostheses) and mastectomy bras. They may think that only hot, heavy breast forms and iron maiden bras are available to those who choose not to reconstruct. Things have improved dramatically in that area and I wish women had the opportunity to learn about all their choices before their mastectomies. (I'm aware that going totally flat is probably the most comfortable of all, though not all of us go that route.)
Barbara
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My breast surgeon asked a plastic surgeon to assist him when I had my BMX. I was very, very busty and didn't want to have reconstruction. The plastic surgeon planned the incisions which run from my sternum to my underarms, along my infra-mammary fold (bra-line). In addition, there are two T- scars, that run from where my nipples would have been to the longer scars. No dog ears.I think outfield is correct. When a surgeon is doing a mx, he is dealing with a three d-problem - how to get skin that is one shape to lay flat over your chest.
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I was wholly and totally against reconstruction from the time the decision was made to have surgery. The feeling was valid then and been reinforced over two years.
It is inadequate care not advise a woman who choses no recon an offer to provide a good outcome such as minimal scaring, pouchy flesh, & lumps, bumps. Why in the world would the very doctors who care so much about having you "feel whole" not care about a nice flat chest appearance? Especially if that is the EXPRESSED desire?
It is innately flabbergasting for a physician or anyone else, but most especially a physician, to decide for me what my desires are in respect to choices of QOL. It seems if you are engaged with the medical system longer term, whether it's testing or fixing, that's the path chosen to make you feel "more whole", or "have a better quality of life".
Put the whole menu out there caretakers, and let the individual chose.
Asking how to prevent dog ears is an excellent question preop. Consider asking what can be done to prevent lymphedema surgically and post-op (exercise, use of weights, etc). -
I am *liking* this thread a lot! So many very good questions and informative points-of-view.
otter (see, I can write a short post!)
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I had RMX, no recon. There was a fat globule under my arm at first, soft and not painful. But after almost a year and messaging daily, it smoothed out. My right MX side is now very smooth and flat. I made it very clear I did not want recon after visit with PS. Yikes, no way. I'm comfortable, can sleep on that side, can move my arms around, lift groceries. I can feel my muscle, not painful, but feels like a band-totally fine. Bras (prosthetics) do not hurt.
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Anytime I see a post about dog ears, I try to check it out. This has been a fab read. And RIANNE, I gotta tell you, you made my day. This is because I have a dog ear under my arm, and at least I know could be if I keep massaging it, just like you did, perhaps it will smooth out.
My dog ear under my arm is probably more properly called what another post said as a fat pad. I had one breast removed, modified radical mastectomy, I chose not to have reconstruction. When I first saw my scar situation, I noticed that fat pad, looked like a third mini-boob under my arm. So, I stared at my other still-regular side and saw that the same extra fattiness was over there, but did not look strange because a boob was attached to it. But if time and lotion and massage doesn't make it go down, I will have to have it removed, because I find it annoying to sleep on, and my underarm gets chaffed by it, and it really looks like a third boob!
I will go ahead and share my other stuff. There were other dog ears on my scar, too, completely different from the fat pad dog ear under my arm. These others were where the the skin simply puckered from more skin to fit in from top of incision than was at bottom of incision, leaving large puckers. Now, a plastic surgeon would know how to make it fit neat, just as he will know how to get my fat pad dog ear off there.
But anyway, my other dog ears were two. There was the bubble dog ear of squeezed-in skin that showed up in the middle of my chest, at the beginning of the incision. It was maybe the size of the end of my thumb... but other women report them as being much larger, too, and they really have a problem visually and comfort-wise. Then, a little further in, I had a couple fold dog ears, which were folds that were longish bulges vertical to the scar, which I've described to others as looking like a three-year-old's effort to make a bed with hospital corners, by diagnoally tucking in wads of sheet as good as she might. So, I guess you could call those fold dog ears.
Here is how they healed. The bubble dog ear at the beginning of incision, amazingly enough disappeared as my skin settled down from being swollen and inflammed, and also I presume from daily applications of lotion and RIANNE's massage method. Now, the fold dog ears, they settled down similarly, for the same reasons. But I WILL say this, when I run my hand along my incision, I can still slightly feel where the bubble dog ear was and also where the fold dog ears were, as indentations. But a man riding by on a fast horse wouldn't notice anything. Smile.
I want to say something else, too, about some of the info that came up in this thread about how docs insist on getting reconstruction to ensure quality of life. This is a perfect example of people being blind to what the original purpose of a law was. You know how the Bible was removed from the hallways of that county courthouse in some town in Texas, I believe? It was because some atheists jumped in and said "separation of church and state" meant the Bible couldn't be in a gov building. Now, I'm not a die-hard Bible-thumping evangelist. But I AM deeply religious, I mention the Good Shepherd often, and Christ's words weave through all parts of my life.
So, when all that happened, I made a study of how in the world could the Constitution be so twisted and deranged by people with no imagination today, a Constitution that was written by some really God-fearing men in the 1700s who demanded religious freedom, since in England, religions other than those of the Crown were not permitted. I found by reading some of Jefferson's papers that moving that Bible in Texas happened because judges misinterpreted the Constitution because they forgot the original reason for articles pertaining to church and state, which was the state could not limit our religious freedom, but would be NOTHING wrong with George Washington's Bible sitting on his own Presidential work desk! But next thing you know, they'll take out all mentions of God in the Consitution itself, even tho they were written with pen and ink by the very makers of said document.
Sooooooo, if you can follow that, then this is exactly what has happened with breast reconstruction. Originally, in our grandmothers' times, they had no choice for reconstruction... zip, no, nada. So, in our last century, the era of women's rights, race rights, and war protestor rights, breast cancer survivors got together and petitioned our government to make it LAW that women have the right to not only get reconstruction, but to have it paid for by insurance. And part of the plea was not only did a radical mastectomy ruin a woman's appearance, but it also ruined her quality of life, among other things.
But like the Bible in Texas, once the right was given, by golly medical providers and insurers, trying to abide by the law, managed to turn it upside down and exactly the opposite of what it was meant to be, it made it so we apparently at times have no right to reject reconstruction! But in our grandmothers' times, just like us now, some women could care less about it, they didn't want more painful time-consuming surgeries, and thus the "reconstructionists" were those who DO want it and with good reason. But what happens now is, in order to stay within the law "or else," the most assuredly twisted reasoning given to patients for reconstruction is it will give us better quality of life!
And so the Bible gets moved in Texas and we must have reconstruction. I hope you all have enjoyed my philosophical discourse in Logic 101 about how people can turn a perfectly sensible situation into taking the stripes off a zebra and giving it cow patches so starving Africans will have milk to drink. Ha!
Love to all my sisters, GG
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"And so the Bible gets moved in Texas and we must have reconstruction."
Um, I think that's a radical interpretation of what's going on. Doctors are just trying to make sure someone is informed about all reconstruction options, and because they aren't plastic surgeons they are strongly suggesting their patients talk to a plastic surgeon who can accurately inform them. Admittedly, it is a bit paternalistic. But in some states they're legally obligated to give that information, or point their patients to someone who can give it.
No one is being forced to have surgery they don't want.
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(1) My intention was to have BMX - no recon - and I told that to my BS many times. He still wanted me to see PS ... "just talk to him - see what he has to say". I went for the appt - I still didn't want the recon. *IMO* the BSs want you to consult w PS for two reasons - (a) I believe they think it should be 'standard of care' (b) > I think that if after your MX you are not happy w result ..... that the BS will not be blamed ... but that the PS would! I listened to what the PS had to offer ... declined.
(2) fyi - I am very overweight - ok? Before my BMX I was 44D .... Surgery was 12/20 - NOW I have 'dog ears' in the MIDDLE of my chest - flap looks like a 2" wide nipple! Also I have gone from D breasts to A's on each side of me under my armpits! THESE are 2 things I discussed/pleaded with my BS to not happen ... and to do EVERYthing he could to avoid!
I have been debating/delaying posting my pics on the picture board ... but will soon .... mostly because so many wonder What do dog ears look like? .. and What is the 'fluffiness' that some speak of.
I know I know ... I can address these with a PS at a later date ... but I'm afraid Insurance will say it's Plastic Surgery for asthetics and cost me more ... than to call it scar revision ... not to mention it's another surgery when I don't think I could have made my wishes known any clearer to my BS!
I do know .. and I will Never forget though ..... I am Cancer Free!! (I'm #5 in my family with BC)
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Wow ~ you guys have such great, practical information! I can't thank you enough. You've answered questions, and explained things I hadn't thought yet to ask.
I'm very encouraged, and feel much more informed about what to expect post-surgery. I have discussed these things with my BS, but the perspective of women who have actually had the surgery is different from that of the surgeon who performs the surgery and then goes home. My surgeon is very caring, and is so highly regarded. I don't doubt her skills for a second. But she hasn't lived with the results of BMX, and while her medical knowledge is certainly outstanding, I love hearing the practical, day to day thoughts of those of you who are living with the results of surgery.
Every bit of information and wisdom that is shared, empowers me. Thank you!
BTW, I have a date now. My BMX will be next Wednesday, 02/29, at 8:30 a.m. I love that I'm her first surgery of the day. No eating after midnight, arrive at hospital at 6:30, surgery at 8:30, should be home the next day, ready to begin recovery.
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Hi again! I just came here to correct something I said. In my long post, in the paragraph before the one where I said Soooooooooo, I said soon they'll be taking out all mentioned of "God" in the Constitution. However, recently I found that there are only a very few mentions, and none actually say, "God." In the Declaration of Independence, "Creator" was mentioned twice, and I forget whether it's the Dec or the Con, but someone signed, "...in the year of our Lord... ," and then in the Articles to the Constitution where the discussion came from about separation of church and state, the word "religion" is mentioned, that its expression was not to be limited (or words to that effect). This is perhaps a minor point when considering I was making an even more obscure point on how come people take laws and petitions for laws and turn original intent into some sort of new form that can be used against the very thing it was trying to convey. All I wanted to do was show that this sort of thing goes on all the time, as in the case with the woman being pressured when incorrectly told her quality of life was at stake, since it also happens with the Constitution, when expression of freedom is actually compromised by misuse of the Articles themselves. ANYWAY, I want to leave this topic forever, as I REALLY shoudn't have overstepped my bounds quite so far to begin with in my previous post, but thought it was amusing and striking enough that I could get away with it. But apparently my detractors did not appreciate the explanation of why nurses might get it wrong and then unfortunately push a woman into doing something she didn't want to. EVERYBODY has their reasons for doing the wrong thing, and I just wanted to make some statement that everybody gets confused sometimes. And I'm also leaving this note here just in case someone does get what I was saying, but that I did make an error by saying that God was in the Constitution, which basically he is not because our forefathers didn't want to discriminate. GG
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Jstunme: I cannot say you will not encounter resistance, but it is my understanding under federal law,
http://www.dol.gov/ebsa/pdf/whcra.pdf
and in many cases with additional state laws, that if your insurance covers mastectomy, then they MUST cover recon under the exact same basis. Recon meaning "all" stages of recon. It is just that some of us only need/needed one stage, the part where they clean up the mess from the original surgery. With that in mind, embrace the concept that what you need is "recon". It is a semantics issue, so lose the words scar revision and concentrate on recon. Some PS seem to think it is beneath their artistic talent to give you the chest of a young boy, so be prepared you may have to look around a little harder. Also, be prepared to stand your ground and absolutely do not accept No as an answer.
Barbara
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