Mixed messages-diagnosed yesterday

Others may correct, and I hope they will if I am wrong. Most of us, whatever stage we are assigned to, live with the possibility of reoccurence in one way or another. My understanding is that dcis stage zero is an exception and can really be made to go away forever. If that's so, then the additional tests are to make sure you are indeed stage zero.

Only your dr. can answer as to why he didn't schedule an MRI of the other breast.Pure DCIS only occurs within the milk ducts. It can escape into the surrounding breast tissue. No one can predict when or if it will. Your grade three means that  your cancer cells are the furthest away from a normal cell, as opposed to grade one. That also means it's more aggressive than grade one and possibly more likely to invade other tisses than grade one.

If you don't want to wait, then don't. Your surgeon works for you. If you are ready to do the surgeries, then tell your surgeon you don't want to wait.

DCIS is a very good prognosis for no evidence of disease. My surgeon told me not to worry, that I will not die from it (I was grade one, though).

No one is guaranteed to live a long life, cancer or no cancer. But having DCIS,  you have a very good prognosis not to die of cancer.

There is a lady named Beesie on here. Look up her past posts on DCIS. You will find a lot of good information from her.

Go to "Search" in the upper right corner, then search by Member Name.

When I went for my MRI it said on the paper work that it was for the right breast but they always do both.

I suggest you start a thread in the DCIS forum -- scroll down the Forum Index page or cut and paste this link:  http://community.breastcancer.org/forum/68.  Beesie has several posts there.  I need to bookmark them so I can find them more easily next time.  

I don't want to panic you but the biopsy diagnosis may turn out to be incorrect or incomplete which is another reason to do the surgery -- you must have good information to make good decisions.  

I was told I had DCIS but after the mastectormy the pathology report was .6 mm invasive which calls for a very different treatment protocol than pure DCIS.  

I would insist on an MRI for both breasts -- what possible difference can it make?  There is another poster here named BlairK whose wife was in a similar situation.  They argued for an MRI for both breasts and the results led to a bi-lateral mastectomy.   

It is SO hard when you are so shell shocked and ignorant to stand up for yourself but you have to do it.  Come here and post often -- I cannot imagine how I would have gotten through this without this group.   

Good to look at all the options. I had two biopsies that only showed lcis tissue or nothing. The mri showed some additional calcifications, and the third biopsy finally found the invasive component.