How was your BC found? By doctor or you?

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  • teelag
    teelag Member Posts: 12
    edited February 2012

    Yay for routine mammograms!

    My BC was found on my routine yearly mammogram that I get every Feb. (starting at 40). I'm now 42. Nothing palpable through my BSE or my OB/GYNs routine exam a couple months ago.

    Found two clusters of microcalcifications on rt breast....lead to sterotactic biopsy and dx.

  • mybee333
    mybee333 Member Posts: 1,189
    edited February 2012

    I found mine by myself, soaping up in the shower.  I had yearly mammmos.  My last one prior to dianosis was normal/clear and had been done 9 mos. previously. There were two other areas that they 'saw' but thought were just cysts.  No, they were not.  I had two more cancerous areas.  I also had Pagets disease, essentially, cancer of the nippple.  There were a lot of things that were missed in diagnostic testing.

  • 1openheart
    1openheart Member Posts: 765
    edited February 2012

    I don't know if you want us DCIS girls to answer this poll, but found mine on my annual mammogram.  I had extensive, grade 3, lots of comedonecrosis, multi focal and multi centric DCIS that was not evident on the previous year's mammogram.  The area of DCIS in the inner  upper quadrant did not show up on the mammos, nor did the area of ADH in the lower inner quadrant. Only the two areas in the upper outer quadrant were evident on the mammograms.   

    Trying to get insurance to pay for my first MRI at one year out from dx on remaining breast.  Have not heard back from them yet.  Hopefully it will not be a fight. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    I am IDC - I found mass onn own in shower.  Mammo showed it was cancer because of all the claws from it. 95% viable.  Seems multi focal since the margin was positive after surgery. I had not had a mammo for 8 yrs maybe, always checked and this was sudden and invasive.

    I want to answer for SIL - she found her mass on own less than a yr after her last clear mammo, it was IDC and very aggressive.  She was quite healthy, did rads, chemo, mx and almost died 5 x in 3 mo from treatments. 

    Daughter is 28, at same time I found my mass, she found one on her own, but it went away, think it was her immune system healing her, it was broad and gushy and not a cyst.  She has never had a mammo and I want her to do so.

  • tenaj
    tenaj Member Posts: 1,052
    edited February 2012

    I found a lump 2 weeks before my annual mammo. My gyn missed it 7 months before at that annual exam. I had been getting mammo & ultra sounds yearly for dense breasts.

  • Layla2525
    Layla2525 Member Posts: 827
    edited February 2012

    Mammo good to go,LCIS since 2002,they said no change,wait a minute when they did the ultrasound,whats that...shhhh,go get the head US girl,shhhhh,go get the dr,WTF is that? shhhhhh.go get the dr....Ma'am you have an abnormality showing here on the US probably nothing but it should be biopsied. Me: Ok.,lets do this thing now.  Biopsies several,about a wk,later sorry ma'am we think its IDC,we wanna do an MRi to be sure. Yep its IDC,you wanna lumpectomy or something?

  • ktmimi2
    ktmimi2 Member Posts: 46
    edited February 2012

    Mine was found at yearly exam via Ultrasound. Did not show on Mammogram. Biopsy confirmed...lumpectomy...radiation.....5 year estrogen blocker post radiation. On third year of meds...lot of SE for me...bummer ! Could be worse.

  • mybee333
    mybee333 Member Posts: 1,189
    edited February 2012

    Just started Arimidex last week.  Feeling increase in anxiety.  Could be life. Woke up 3 times last night.  Again.....could be life.................

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited February 2012

    Mammogram didn't pick it up, neither did the ultrasound.

    My nurse practitioner and I had our doubts.  We went and requested a digital mammogram- that pick up "something".  Later the biopsy confirmed it, of course

  • JulieLynn
    JulieLynn Member Posts: 144
    edited February 2012

    Normal mamm in March '11.....had been getting these since about age 30.  Felt a thickening the end of June/early July 2011, saw my GYN the very end of July, and was diagnosed in early August on my 42nd b-day with DCIS and IDC.  The repeat mamm, ultrasound, and MRI all showed the tumor to be smaller than it was.  Originally told less than 1 cm, MRI said less than 2 cm, and ended up being 3.2 cm IDC and 5 cm DCIS.

  • mybee333
    mybee333 Member Posts: 1,189
    edited February 2012

    Soounds like a very aggressive cancer, as was mine. The situation just kept getting worse and worse.  I ended up with a mastectomy after lumpectomy, 3 re-excisions.

  • JulieLynn
    JulieLynn Member Posts: 144
    edited February 2012

    mybee - It seemed like every time I turned around, it was worse.  When I first started with my MO, she didn't understand why I was so anxious about every little thing - Once I explained the story from the beginning, then she got it.  I ended up with US guided biopsy, lumpectomy - which they were going to go back in for the margins originally but then after the path report, we decided on a BMX and I'm so happy I went with that!  I think I would have ended up there anyways....just cut out the extra excisions in-between.  I shouldn't complain - Things could be so much worse.  Hope you are doing well now!! 

  • mybee333
    mybee333 Member Posts: 1,189
    edited February 2012

    Julie - I hope you are doiing well now too. Sometimes I wonder if I should've had a BMX as well - I have a lot of microcalcifications in the remaining breast - but we shall take it as it goes.  It was tho' just one thing after another, but I think that is how it is for many people. 

    Yesterday I had to have an xray of my shoulder.  I must have asked 10 questions before I would proceed.  It all makes me a little nervous now!

  • JulieLynn
    JulieLynn Member Posts: 144
    edited February 2012

    mybee - It's so hard to make the decision about what surgery to go with - It seemed like there was so much information coming in way too fast.  Right now I'm happy with my decision....hopefully when everything is all said and done, I will still be but everyone has a different road to go to get to their own decisions.  How did your x-ray turn out - Did you get the results yet?  I just finished my chemo Monday but will still continue to get herceptin - I'm nervous about not getting chemo...strange...but I feel like there's some comfort knowing that something is actively being done.  I'm sure I'm going to be paranoid about every little thing for a while.  Wishing you well!!!

  • Hils
    Hils Member Posts: 328
    edited February 2012
    I found a lump in right breast - mamogram one year before had shown nothing. Mamogram x 2, ultrasound x 1 could not find anything even though there was a palpable lump. Second ultrasound finally found ???a cyst. Core biopsy done and it was found to be DICS high grade with IDC. Pathology after partial mastectomy showed something different. Now awaiting UMX as MRI showed more DCIS and a hot spot. So as clear as mud Wink
  • Ossa
    Ossa Member Posts: 919
    edited February 2012

    Found mine myself. Ten months past normal mammogram

  • diamondslayer
    diamondslayer Member Posts: 19
    edited March 2012

    I found mine about Jan 1, 2012. I'll swear it wasn't there 2 months before. Felt the size of a walnut to me! Called gyno Jan 12. Women's Breast Center for diagnostic mamo Jan 13. Biopsy Jan 20. results over the phone Jan23. IDC! Breast surgeon on Jan 27. Feb 1, failed MRI due to clostrophobia/panic attack. Rescheduled MRI for Feb 7. Successful as they knocked me out! Feb 8 Radiology Oncologist consult. We talked lumpectomy with 2 nodes & rad or mastectomy with SN & possible rad and/or chemo.  Surgeon caught us in hospital lobby right after RO and took us in a room. Results of MRI showed more areas of cancer tumors in same breast but over on the inner side towards the other breast. Best course of action... BMX with immediate reconstruction.Good thing I had the MRI otherwise it would have been a surprise when dr did my sugery the next day (Feb 9 surgery sched & now cancelled). New direction... Plastic surgeon Feb 13. Surgery Feb 20.

    So from beginning to end it was 38 days! Surgeon said it was the best decision I could have made to save my life.

  • SheChirple
    SheChirple Member Posts: 954
    edited March 2012

    Has anyone factored into this survey the GRADE of the cancer?  

    If you had a clear mammo and several months later felt something, I would expect GRADE 2-3.

    It is why it is so important to do both self exams AND mammograms.  One may find what the other misses.  Faster growing cancer might be missed on one and found on the other very close in time, due to rapid growth.

    My very very young receptionist at my dentist office asked me "what should I be doing to check for BC, since so many of our patients have been diagnosed recently?".  What could I tell this 20 y/o girl?  Breast self exams, annual OB/GYN exams with PAP and breast exam.  Isn't that really all we have?

  • mybee333
    mybee333 Member Posts: 1,189
    edited March 2012

    diamond slayer - Isn't it amazing how quickly it can go. It is so overwhelming. And so many decisions to make.I would really advise women, like that young woman, to do self-exams. I never realized how important they were.  Nor did I realize that mammograms could miss so much.

    Julie- My xray was for my shoulder.  The pain is unrelated and is a touch of arthritis with bursitis.  Thank you for asking!! 

  • diamondslayer
    diamondslayer Member Posts: 19
    edited March 2012

    Mybee333, Yes, for me it did move quite quickly. I guess my question is if some just had a mamo recently, then found a lump while waiting for the next yearly mamo and its already stage 2 or 3, and also if the mamo misses quite a few  times as I am reading here, then maybe we need a new way of diagnosing bc? I'm sure it finds more than it doesn't but I really feel for those who, like me, had a clear mamo and then get the surprise!

    I have 2 girls, one 36 who just had a baby 10 mos ago, and one 23 who is a CMA. The 36 yr old has had issues with dysplasia in the past 6 years so I told her to get an early baseline. My 23 yr old has already had 3 abnormal paps and a colposcopy. So I told her to talk to her dr and get her baseline early too! This is nothing to mess around with! I will have the BRCA testing done since I have already had cancer now. That way it doesn't have to go against them. Plus I am waiting for my Oncotype DX test results to come back. A little anxious to know if I need rad, chemo, or HT. I see my oncologist on the 13th.

  • sandik
    sandik Member Posts: 482
    edited March 2012

    The prescription ran out for my thyroid pills, so I had to go in for a checkup. Did the bloodwork to make sure it was all good. She also told me that since I'm 40, I should get a mammogram. They scheduled it for me. Thank God, because I probably would have put it off! I went in for my mammogram and there it was, a big white blob! They took me directly back for an ultrasound, then brought me back a week later for a biopsy. I met last week with the surgeon and go in March 13 for my surgery. 

  • dropjohn
    dropjohn Member Posts: 48
    edited March 2012

    I found the lump on self exam.

    Was about due for mammogram, had had a clear one within 2 years. 

  • diamondslayer
    diamondslayer Member Posts: 19
    edited March 2012

    Sandik, yes i think its a good thing she mentioned the baseline. Especially in light of what was found. Hang in there kiddo, it goes fast and do all the research you can before then if you can. I wish I had found this forum before I had my bmx. Have you and your dr decided what type of surgery you are having? Keep us posted and you'll be in my thoughts and prayers.

  • 30yomamma
    30yomamma Member Posts: 6
    edited March 2012

    I found mine. I Am 30 years old and just finished breast feeding my daughter. Felt a lump, noticed my nipple inverting, dimpling of the skin, put the pieces together! Mammogram showed nothing cuz I'm young and my tissue is dense. Ultrasound saw lump and found another lump. CT scan found yet another 7.5 cm of DCIS. sucks ass

  • sandik
    sandik Member Posts: 482
    edited March 2012

    Diamond,

    I'm scheduled for a lumpectomy March 13.



    30,

    Sucks ass is right!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2012

    I had a mammogram that showed 2 spots that they said should be biopsied. The radiologist really sucked and after 2 hours of tugging and pulling and not being able to figure out what was what to do the markings the day before the scheduled biopsy Doc sent me for an MRI. Thank the Lord he did. Those 2 areas did not show up on the MRI at all, but a new spot that was very deep close to my breast bone did. That one turned out to be IDC. I did have the other biopsied and B9. Even now that one does not show up on the mammogram, just the marker does. Lumpectomy on the 15th and begone with that bugger.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited March 2012

    I had a mammo in May, which was negative.  Around September/October, I found a lump.  Waited about a month before I went to see my PCP (denial).  He couldn't feel the lump, but he's proactive and sent me for an US.  The US tech called in the radiologist, who said she wanted me back for a core needle biopsy that same afternoon.  Got the call two days later that it was cancer.  I never really did self-exams - just a fluke that I felt this thing!

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited March 2012

    I had a mammogram 10 months earlier (when I was 33), and that was negative, but showed a lot of cysts. I was lying in bed while reading with my husband and our kitten was playing between us and her tail made me itch. I reached into my tank top with my left hand and scratched my right breast and felt a lump at 5:00. Went to my PCP the next day and she thought it was a cyst, but sent for a mammogram and ultrasound the following day. The radiologist said it was "probably benign" and told me to come back in 6 months. I decided I wanted it out and was referred to a "breast cancer surgeon" who him-hawed around with it for weeks because he said it was a fibroadenoma. I jumped through his ridiculous hoops and then demanded it be taken out. He complied and took it out under general anesthesia. Afterward, he told my husband it was a fibradenoma and we had nothing to worry about. When we went back to him for the post-op check-up and the official pathology results, he left us waiting so long, that I figured out I had breast cancer just before he came in the room to tell me that not only was it malignant, but highly aggressive as well. He contacted an oncologist (who has yet to call us back to this day). I decided to go to a comprehensive cancer treatment center. While gathering my info for the first visit, I read for myself in the pathology report that my surgeon had on the day of my diagnosis that I was Triple Negative. This "breast cancer surgeon" had never heard of that type of cancer. 

    I did a BSE 10 days before finding my lump and it wasn't palpable. Within days of discovering it, it was big enough to be noticeable in the bathroom mirror. I shudder to think if it had been deeper in the breast, or if I had actually listened to the radiologist and waited 6 months, or if I'd listened to the surgeon and not demanded that he take it out. We really are our best advocates. Listen to that inner whisper; there's a reason it's talking to you.

  • mybee333
    mybee333 Member Posts: 1,189
    edited March 2012

    I agree completely.  We are definitely the cornerstone and most instrumental in finding and treating our breast cancer.  Wholeheartedly!!

  • Muscles
    Muscles Member Posts: 16
    edited March 2012

    I literally had a "good" mammo 3 months ago. And found a painful lump - nasty suckers grew to 3 cm in such a short time! Mammo's stink for those with dense breast tissue!

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