January 2012 chemo

A couple of sites for Pre Tied scarves

http://www.coveryourhair.com/pre-tied-bandanas/Page-2.html

http://www.myheadcoverings.com/head-coverings/pc/Pre-tied-Bandanas-c5.htm

Peggy - Thanks for posting those sites!  They are very reasonably priced.  I'll be shopping later today!

Kitchenella  - Those look so pretty.  I will have to order some later.

Gayle 

I have purchased several Beaubeaus (4women.com) and they are worth every single penny I have paid. They are pre-tied and come with matching scrunchies to do them up in all sorts of fashions. The rayon scarves run about $39 each (but you can get lots of sale scarves for far less).  The silk ones can run $59, but some of those are on sale, too.  Every morning I slap one on my head and go out.

You can also get a free headscarf through Good Wishes (goodwishesscarves.org).  Mine took about 8 weeks to get here, and I've worn it a couple of times.  It, too, is pre-tied, but I don't like it nearly as much as my beaubeaus.

My oncology nurse mentioned in passing yesterday that my hair will start growing back once AC has stopped - here I thought I would be bald for the next several months.  I may not need these gorgeous scarves as long as I thought!  Has anyone else heard that?

Jane and Gayle As an Orthodox Jewish married woman I've been covering my hair for years in public.  If your looking for  head cover find a Jew.  LOL

Nancy I went the the Beaubeaus site but couldn't see a good picture of what they look like on the head.  All the pictures seemed to be small.

Diane - Someone posted this link http://www.goodwishesscarves.org/ on this or another board. They will send a free wrap to cancer patients. I just got an email yesterday that mine was on the way. Took about a month to process, but they look like good scarves. There are a lot of other options - if it wasn't on this board, try looking over the December chemo group as well. I'm not as comfortable with scarves as I've become with the turbans (with the little bunched up material in the front). I can get them for $10 at the wig/prosthesis shop a few towns away (though they've thrown them all in for free when I bought a hat and a wig).

Barb - Congrats on finishing your last AC. I can understand why they'd hold off on the T. I really hope they can figure that out - and that it's not another cancer!

Nancy - I'm sorry you were hit with that tidal wave of emotions. We have so much thrown at us, and while we're able to put up the strong front and meet things head on to make sure everything 'goes right,' sometimes we have to step back and realize just how much effort and emotion it all takes. And yes, even after chemo, we're still stuck with all the concerns for the rest of our lives. Sending you {{hugs}} and wishing you minimal SEs.

To everyone else who had tx's yesterday - it was a busy day for us! I hope everything went well.

My #4 was pretty uneventful. I had a different nurse and while she was nice, I wanted my regular one back. I don't think they gave me the usual fluids, but I've been trying to keep up with that on my own. Slept okay and now I'm taking it slow before heading into work. I have just a little bit to finish up and should be okay for a few hours. Then it's the weekend. Hoping to get a walk in as well and metabolize this stuff out of me quickly. 

i ordered a sleep cap and another hat from this place-very quick shipping etc-price wasn't too awful

 www.softhats.com--look at the chemoscarves

also goodwishessscarves.prg  they will give one scarf but it takes a while-wonderful ppl--i did not buy a scarf so i don't know turn around time

just quick ideas-hth

Rachel-- that's an interesting dilemma to cover or not cover your wig.... I can see that as a Seinfeld episode!

I did get a few very nice and reasonably priced hats and sleeping caps from a website called headcovers.com

Kitchenella - as a Jew I should have known where to look for head coverings lol  The site with the beaubeaus has a video which shows it a bit more clearly

Gayle56   Are the Cappelleez just a tube that you tie?  I cant find any decent pictures on their website

DonnaDS  Yes it really is just a tube open on both ends and you just tie one end.  There are no pictures on the site but it was very easy to figure out. 

Gayle

I think I need some perspective, because I'm all about judging myself right now. I'm at Day 11 after my second A/C and feel like I should be kickin' it, able to plan and live normally for at least the few days before #3 next Wednesday. Instead, I'm headachy, incredibly tired, anxious, and overall sick feeling. Why I'm blaming myself for feeling this way instead of the poison that's in my system, I really don't know. Does everyone have those days of grace between A/C treatments and I'm just dogging it?



Annie

Annie ~ They tell us to write it all down, but that hasn't worked for me at all...every session was a little different some new suprizes, a lot of repeats.  I find a good cry in the shower works for me, when I can finally take one.  and yes I do feel sometime it's me not able to get back to myself again, ecpecially days 8,9,10, and I keep reminding myself it's the poison not me, but I'm not listening.  I have to say with all my SE's this has been the hardest thing I have every done.  I read about people going out to eat, working, even working from home and I wish that was me, but the best I can muster up is a guest for coffe on day 8...that's the start of me actually wanting any interaction.  Day 9 I was finally able to leave the house....That getting out makes it better for me, give me some drive and I start mentally turning around.

I hope you find that inner streghnth, something you want to do...go outside...once you start seeing other things beside pill bottles, TV, couches and your bed..you may feel better, it works for me.  ((HUGS))

Barb

I find that week 2 is only a little bit better than week 1 after tx.  The only respite time I get is week 3 when I feel 80% of normal (which I use to clean the house and shop for everything I won't have the energy to do in the following weeks 1 & 2).  I am finally going back to work (50% schedule) next Saturday and am not sure how I will get through it, but I'm going crazy at home -- and I really need the money.

Tx #3 went OK yesterday, although the chemo nurse had a bit of trouble getting the needle inserted.  I was really tired the rest of the day, but similar to the first two times.  Today is much the same.

Hope everyone is hanging in there with their own SEs.

Joyce

annie3310: i think that what you are experiencing must be normal for us-if there IS sucha thing! i am so exasperated with myself, my body, my emotions, my attitudes becuz i cannot plan anything; i have no motivation to DO anything yet i see so much taht i want to do-even just lil teensy things- i have a phone interview for a job this ocming week- i need the income desperately yet i dunno if my body will allow me to work or if the company really will gamble on hiring me right now. i have basically had few SE's after this first tx and i am grateful however i am also waiting for the other shoe to fall after the next few tx...

when we are of a nature to want to be in control of our lives and situations it becomes very hard to face this...

i know that i have not said anything extremely brilliant- i just want you to know that you are not alone nor are you crazy for what you are feeling. people keep telling me that i am allowed to have these feelings so i am rolling with that!