Is it possible to post negative Alt experience?
Comments
-
Uh-oh! Whoever did the table of quackery dropped the ball.....Oprah's face is missing. (and Dr. Phil and all of her other co-horts)
-
LOL, Gracie1- yes! Along with quite a few others. The table would have to be pretty big if it were all inclusive.
-
Let's go nuts....that annoying as hell Sheryl Crow, Suzanne Somers, that Dr. Love chick......
-
....The Doctors, anything on the OWN channel or the ONE channel, whomever wrote that stupid "What Cancer Can't Do" poem......
-
I'm sorry. I'm just getting bitchy. Too long between seasons of "Breaking Bad".
-
Yup. This year's "quackery" is next year's standard of care.
Remember when Galileo was called a heretic for suggesting the earth revolved the sun?
Remember when the flat earth theory was a religious doctrine?
-
Thanks, Lucy88, for providing a perfect example of what I meant by changing the subject.
ETA - Gracie1, hahahaha! Good ones! And the list goes on.... And on.... And ON!
-
Wasn't it Oprah's pal Maya Angelu who said "When you know better you do better"?
Dismissing things as quackery because you don't agree with the source that introduces them seems narrow-minded. Some wacky things work, and some things that have the backing of big pharma turn out to be a very big mistake.
As Lucy88 pointed out, sometimes we find out that we didn't know as much as we thought we did, and irrefutable truths turn out not to be the truth.
If the only opinions allowed to go unchallenged are those that agree with you, and you find it necessary to insult anyone who has a different approach, perhaps that would explain why people who sometimes think outside the box might be less than welcoming to you on their "home turf".
-
Good Grief! Just having some fun. If you want to follow Oprah and her disciples, all the power to you. I'm not going to "embrace" my cancer. FYI, patmom, I'm currently doing only alternative based on stuff I've read here and researched on my own...so let's not go there. You know nothing about what I believe works or doesn't. I've managed to stay alive three years past my onc's expectancy with alternative help. The only thing you know about me is that I think Oprah's a clown. Since everyone has their right to an opinion, it's simply mine.
Edited to add: Sorry mods, you can delete me....I won't be offended, really.
-
"When you know better you do better. " - I don't know who said it, but I agree.
"Dismissing things as quackery because you don't agree with the source that introduces them seems narrow-minded." I agree. That's why I dismiss things as quackery that have no scientific evidence to support them, and I dismiss as quacks those who continue to promote quackery.
"Some wacky things work, and some things that have the backing of big pharma turn out to be a very big mistake." Yep. That's why we have science.
"sometimes we find out that we didn't know as much as we thought we did, and irrefutable truths turn out not to be the truth." Yep. Again, the scientific process at work.
"If the only opinions allowed to go unchallenged are those that agree with you, and you find it necessary to insult anyone who has a different approach...." That sounds like a classic example of projection to me.
Gracie, I totally agree - Oprah is a clown. A brilliant money-maker, but a clown nevertheless, particularly when she gets involved with health matters.
-
Digger, my apologies for taking your thread off topic. Hopefully, I can keep my mouth shut from here on in.
-
Re:
"Yup. This year's "quackery" is next year's standard of care"
Uh, no it's not. Evidence based medicine is not going to be accepting of this year's quackery(tooth fairy science) next year. Just because you wish it so, dosen't make it so. It's actually childish thinking. Orac has a great post on that today:
"Part of growing up is to realize that, to achieve your thoughts and desires requires more than just thinking and wanting really hard. The Secret bypasses the hard work and leads to regression straight back to the fantasies of childhood. In many ways, so does a lot of CAM. "
"If you believe the woo-meisters, basically thinking something makes it so. As I've pointed out before, this sort of wishful thinking is infantile but it meshes scarily well with a lot of what various alternative medical systems preach"
http://scienceblogs.com/insolence/2012/02/placebo_versus_the_law_of_attraction.php#more
Re:
Remember when Galileo was called a heretic for suggesting the earth revolved the sun?
Yawn. The tired old Galileo gambit is resurrected once again. Galileo was persecuted by the church not his scientist peers. They were rather accepting of his theories. Whenever, I point this out the next argument is, "Well,yea but, they laughed at the Wright Brothers". Yes, this is true but they also laughed at the Marx Brothers and the 3 stooges. That twisted logic is pretty much out the door. Nyuck, nyuck, nyuck.
Re:
"Remember when the flat earth theory was a religious doctrine?
"
Yes, now you are getting it. Many alternative therapies are based on religious dogma.
-
The difference between having fun and making fun of someone or something is that one hurts others.
I saw someone being made fun of for expressing her opinion, and pointed that out. I guess that is not allowed by the thread police.
-
Well in that case, I suppose I should apologize for insulting Oprah and her pals....not gonna happen. I've never insulted any board member for their treatment choices....none of my business. When you get to be where I am in this cancer mess, it's a whole new ball of wax and I don't have time to waste on un-productive people who "love" what cancer has done for them and "embrace" their new life and act like doctors and so on and so on. Speaking only for myself here. If you find a post where I've insulted someone for their treatment choices or their opinion, I'd love to hear it. Maybe I forgot and maybe I should be sorry. I'm more than willing to do that, but insulting celebrities who think they know it all.....nope, no apology coming.
-
Oh, wait a minute, I did insult one lady but she totally had it coming. I do believe the mods removed her thread shortly after she started it.
Going to watch "Breaking Bad" re-runs now.....can't wait any longer for that new season!
-
The Galileo gambit is actually now considered a logical fallacy:
" They made fun of Galileo, and he was right.
They make fun of me, therefore I am right." The Galileo gambit, or Galileo fallacy, is the notion that if you are vilified for your ideas, you must be right. It refers to Galileo Galilei's famous persecution at the hands of the Roman Catholic Church for his defence of heliocentrism in the face of the orthodox Biblical literalism of the day. People use this argument repeatedly in response to serious criticisms that more often than not they just don't understand
The fallacious fallacy
In "reality", taking up the mantle of Galileo requires not just that you are scorned by the establishment but also that you are correct.[1] There is no necessary link between being perceived as wrong and actually being correct; usually if people perceive you to be wrong, you are wrong. However, the selective reporting of cases where people who were persecuted or ostracized for beliefs and ideas that later turned out to be valid has instilled a confidence in woo promoters and pseudoscientists that is difficult to shake. They really do forget the part where they have to prove themselves right in order to be like Galileo.
Cranks who use the gambit to claim persecution by "big science" often fail to see the irony in the comparison - it was the Catholic Church that censored Galileo, not the "scientific establishment
-
thenewme - love your post on the previous page - you totally nailed it.
-
Interesting reading, BlackCat, and some very good points made! I don't remember ever seeing rationalwiki.org before, but ohmigosh! LOVE IT! I got sucked in for a while, but I especially enjoyed The Fine Art of Baloney Detection !
PatMom, I really don't know what or who you're referring to, but the actual topic of this entire thread *IS* about the problem of not being "allowed" to express certain opinions, so ....?
-
Marianna: I've taken Asthaxanthin before and experienced some stomach pain so I stopped immediately. I was taking it because it was supposed to be good for my macular degeneration. I now take MSM with no SE's at all.
-
Thanks, Susieq! It seems to me there's a huge elephant in the room around here, and it gets frustrating, you know?
As for the thing about ".... today's quackery is tomorrows standard of care" or whatever, I keep thinking about so many quack theories that keep coming up in this forum that have been around forever, debunked, and factually incorrect. Yet they keep coming up again and again. Color me cynical, but I just don't see that Rife Therapy or The Baking Soda Cure will *ever* become standard of care, for example. It just makes no sense at all!
-
Lucy, I've just been informed that I insulted you. If anything I said was taken that way, I'm so sorry. You supplied me with so much information and that link you told me about recently and I am so grateful. So sorry it came across that way.
-
thenewme: I've never heard of either one of those therapies, but rest assured if I did, I would research them thoroughly before giving them any consideration. The site provides me with a lot of information and ideas...the final decisions are my own.
What is beginning to make sense in conventional medicine, and will hopefully soon become "standard of care" is the role that diet, supplementation and the immune system plays in prevention of all types of disease. There are studies being done on the various supplements and how they work along with conventional therapy to make it more effective. The premise behind the new cancer vaccine is to target the immune system and boost it to recognize and kill cancer cells.
-
Hi Kaara,
"What is beginning to make sense in conventional medicine, and will hopefully soon become "standard of care" is the role that diet, supplementation and the immune system plays in prevention of all types of disease. There are studies being done on the various supplements and how they work along with conventional therapy to make it more effective. The premise behind the new cancer vaccine is to target the immune system and boost it to recognize and kill cancer cells."
You see, that's the crux of it, though. That is happening because of the scientific process. It's not "alternative."
If I see a post claiming, for example, that Rife Therapy is a great treatment for breast cancer, is it within my rights to refute that claim with evidence-based facts? I'm all for personal choice, and if someone chooses Rife Therapy, I will wish them the best. But to remain silent (or worse yet, IMHO to encourage) while they risk their life on disproven quackery?
-
thenewme: I agree, but for many years diet and supplementation has been ignored by conventional medicine, although many knew and tried to tell the world that it held the key to keeping our immune system strong, so it was "alternative" before it was "scientific". I don't think we can discount all alternative theories as quackery, and not consider them, simply because they don't have a lot of scientific evidence backing them up. I think a little common sense must prevail at all times.
-
I wouldn't say diet and healthy habits were ever ignored by conventional medicine. Under-emphasized, maybe, but not ignored. As for supplementation, the evidence for supplementation in general (in the absence of a frank deficiency) isn't nearly as strong as salespeople want you to believe. Healthy habits, good nutrition, exercise, etc are most definitely NOT alternative concepts.
I never said we should discount ALL alternative theories as quackery. The level of evidence we each require is individual, and what I consider valuable may seem like quackery to you and vice versa. I have no problem with someone doing alternative therapy. I do have a problem with them making factually false claims about what it can and can't do. Heck, if you (general you) want to do coffee enemas, then have at it. But don't make claims about how it cures cancer, without expecting someone to call you out on it and ask for facts. As it should be, and that's not bullying.
I completely agree that common sense must be used, but as the old cliche goes - it's sadly not all that common.
-
I do not consider diet and healthy habits to be alternative either. I was considered to be the "health conscious" one in my family and I still got BC.
-
Speaking of coffee enemas :
http://www.cam-cancer.org/CAM-Summaries/Dietary-approaches/Gerson-therapy/Does-it-work
-
Diet is not alternative medicine. MDs have told me to eat well all my life. Surgery is not alternative medicine. It is medicine. It works so many followers of alternative medicine want to claim it for their own, but surgeons are practitioners of standard evidence based medicine.
-
I guess I have to be really clear when I mention something so as not to create a misunderstanding. When I speak of diet, I mean an anti cancer diet that eliminates those things that cancer thrives on like sugar, and foods that convert easily to sugar, or the need to eat more leafy green veggies that put the body in an alkaline state which would make it difficult for cancer to grow. It isn't spoken of in conventional medicine so it must be alternative.
Not one of my doctors mentioned anything about an anit cancer diet or supplementation to assist with preventing bc recurrence. I can only assume that means they don't know about it or don't believe in it. It would have been really nice if that could have been incorporated into my treatment plan so that I didn't have to go out and see yet another physician to guide me in the area of nutrition and supplementation.
Maybe if I had been overweight and had diabetes or other health problems this would have come up in the discussion, but just because I look healthy doesn't mean I don't need guidance about good nutrition. This should become part of the so called "standard of care" for every individual.
Whatever we want to call it, it is a missing link in the conventional treatment plan for bc patients. If you've read and researched as much as I have and still believe that diet and supplementation play no part in preventing bc or bc recurrence, then you have to be in denial.
-
Rosemary, a doctor telling you to eat well is not the same as telling you which specific foods to include in your diet, and which specific foods to avoid.
I've had a doctor tell me to watch my diet to lower my bad cholesterol level and raise my good cholesterol level, but when I asked what foods would do that, I just got a blank stare.
Diet counseling is not part of conventional medicine, unless someone is seriously overweight. Otherwise, patients are expected to navigate their own way through the diet maze.
That doesn't even begin to take into consideration how many modifications have been made to the basic 4 food groups and food pyramid over the years.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team