MIDDLE-AGED WOMEN 40-60ish

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    Did you go out of state for your surgery? I am really nervous about the choices I have to make. I have an appointment with a bs on Monday who is in York.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited February 2012

    Welcome LisaMarie and all other newbies!  Sorry if I forget your names so it is easier to just greet you andd and give you a HUGE welcome to the forum.  As you struggle through the many different stages of cancer, you will find a lot of love, support, and great advice here.

    I just came back from seeing my RO.  So confusing.  He is not convinced I have Truncal LE.  Rather he suspects that the pain and redness are neuropathic in nature.  He saiys I need to remain on the Trenatl for at least 3-4 months.  Also he increased my Gabapentin from 300 mg. 3X a day to 600 3x a day.  He did a very thorough breast exam and said all the swelling and tenderness are at both surgical sites.  I told him I had an appointment for next week to begin LE therapy.  He said to please cancel it.  He said the pain from the deep massage would be far too painful to endure.  So I am to continue wearing sports bras and take that additional Gabapentin.  I go back to see him in one month.  He said no PT before I come back.

    Sherry, the babies are just beautiful! 

    I have been sick with a cold and have not been around much.  I think of you always!

    Hugs to everyone,

    Janis

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012
    Hi everyone I figure I would share a picture of myself and my beautiful granddaughter Brianna .. the reason I want to continue living ... again u ladies are so wonderful , I am glad I decided to finally post here and found true friends ....xoxoxojpeg image
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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    I tried to upload a profile pic and pic of my granddaughter and I but I cant seem to figure it out .. wont let me   :( 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    I tried today too and couldn't figure it out either.

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  • Paula66
    Paula66 Member Posts: 1,728
    edited February 2012

    Dianarose and lisamarie68  its real easy to do.  After you type your text, hit the enter button, then  go to the tree next to the smiley face and click on it.  In the box that says Image URL put the code in there.  When you see the code numbers, just hit insert and that should do it.  Good Luck

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2012

    DianaRose--I has recon done at Beth Isreal Deaconess by Dr. Adam Tobias.    Had lumpectomy in Bangor.  Had rads in Waterville.  Had mastectomy in Bangor (becuase of rads complications).  See a Med Onc in Lewiston (the local ones 'lost' my records after I refused chemo).  I had PS consults with Dr. Tobias, 2 in Maine and one in New Orleans before I made my choices.  DIEP was best for me, and the docs in Maine said I wasn't a candidate due to rads and obesity.  Truth is that DIEP is better for post rad and obese women.  Docs in Maine give limited info, and not all of it up todate.  I know it's scary, but you do have time to research and make the best choices.  Don't let the local docs rush you. 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    Lisa & Diana,  You have to put your own personal photos onto a web hosting site like Photobucket or Flicker first.  Then, use the "share" procedures from those sites. 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    NativeMainer-I called my insurance company tonight and they said that my primary doctor would have to do a referral saying that I couldn't get the proper treatment in Maine in order for them to pay. I think she would do that for me. My brother said he would take me into Boston if I wanted to go there. I can't think straight today. I want to get a copy of all my lab reports so that I can figure out how aggressive this cancer is to see if I have time. The insurance company said it could take up to 30 days for an approval. Gosh, you had to go everywhere. I feel bad for you. It's stressful trying to line up appointments and bring stuff with you each time.

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited February 2012

    Kay, kitty, and madp- hooray for good news!



    sherry- such beautiful babies. Thanks for sharing.



    Janis- so sorry that you've had a cold. Lots of folks at my work having colds. My fingers are crossed that it will pass me by. Hope that you feel better really soon.



    Dianarose and lisamarie- welcome. This is a great place for inspiration and information. Feel free to post often with questions, concerns, or just to rant a little. Hugs.

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited February 2012

    A quick question ladies- What would you consider to be a good WBC on a blood test?

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  • Momine
    Momine Member Posts: 7,859
    edited February 2012

    During chemo my WBC ranged from 4.4 to 7.5 or so (not counting abnormally high counts caused by neulasta shots). My onc was always content with my blood counts.

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited February 2012

    Mine were good during chemo too, probably because of Nuelasta.  Then I had surgery and radiation and they dropped.  Was only about 2 all during rads and the MO never said anything about it.  I finished rads Nov. 11, and last WBC two weeks ago was 3.5.  First time the NP mentioned it, and she said it was coming up and wasn't quite normal, but was okay.  She said sometimes they see low counts on Herceptin, but that number wasn't low enough to make me much more susceptible to infections.  Ironically, last week, I got sick for the first time in over a year.  Stayed healthy of germs at least all through chemo, radiation and surgery.  Last week got a stomach virus.  She told me my RBC was normal for the first time since starting chemo back in March though.  I don't think that ever dropped below 10 though, so that never got too bad either.  It does amaze me how these side effects linger on for months and months.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2012

    Janis ALERT!!! LE therapy does NOT include "deep tissue massage"!!! See, your doc does NOT know enough about LE!!!!! In fact, you use "kitten strokes" to work the lymph and deep tissue or ANY kind of massage is prohibitive!!! Personally, I'd keep my appointment and air your docs concerns. They may only measure you for your first appointment anyway. Also, even if you had a seroma building up, the gentle tecniques could help it break up and move on.

    For pictures, you can also post VERY easily from Facebook!!

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    barbe .. how do u post from facebook ? I tried that as well . I guess i will never figure this out ..lol

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012
    ahhh here is my daughter and my granddaughter and myself ... lol I just figured it out .. sorry so big the girls
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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited February 2012

    Momine and Kay- Thanks for the info. Have a great weekend!

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2012

    lisamarie, with FB pics you just copy and paste into the body of your post. GREAT picture!!!

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    I got my pathology report and dont understand .. of course it states LCIS,extensive,with pagetoid extension into the ducts, Atypical proliferative fibrocystic change with Atypical ductal Hyperplasia and flay epithelial atypia focal, extensive columnar cell hyperplasia and pappillary hyperplaysia, usual duct cell hyperplaysia focally florid ... ugh .. who knows 

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited February 2012

    Lisamarie, someone will come along who can help soon.  I can tell you that LCIS is lobular cancer in situ.  That means it is not in the ducts and has no chance to spread any where.  That is good.  That would be considered stage 0.  Beyond that, what the rest of it means, I don't know.  Sorry.  I think it's typical pathology language though.  I'm just not sure if it means any of the cancer actually was invasive or  not.  Even if it was though, it sounds like it only just happened and was caught very early.  Still all very good news.  (((((hugs)))))

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    Thanks Kay , I knowI had the Lcis before my excisional , these are my excisional reports .. this is all sooo confusing ... :(  thanks again 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012
    lisamarie68,  Overall, it is describing that you had cells growing where they should not grow and looking how they should not look.  These sttrange cell formations were found in the lobe, and were spreading along the interior of the duct passageways, but the good news is nothing is saying that they had broken throught the wall of the duct, becoming invasive.  Sometimes LCIS will never mutate to the point of becoming cancer, but I think you were probably lucky to have cought this early.  I say this because of the word "extensive," in that they found quite a bit of it and the cells were showing mutations of several different varieties.  Good riddance to those freaky misshapen cells!
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  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2012

    Eli - Sorry to say this but that picture at the top is really creepy!  Yikes.  That's just my opinion.

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    Thank you ELI... woah i can now breathe and possibly sleep .. I thought the ADH turned in DCIS and I guess I was freaking .... oh HUGS to u xoxoox

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    lisamarie68, I would also ask your BS to go over all those terms with you, at your next follow-up.  I'm sure it can be explained much better than my attempt. 

    jo, You are so right, those middle two ladies with their candy neclaces. That IS a little weird

    Yawn, I'm sleepy.  Had to watch Gone With The Wind for the 27th time.  He STILL didn't give a damn.

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  • reesie
    reesie Member Posts: 2,078
    edited February 2012

    Love the pic lisamarie.



    Sorry I've kind of been awol. My Nook isn't working right and it's a pain to type on my phone so I've mostly been lurking.



    Welcome to all the newbus (although it sucks that you have to be here). You'll get answers to all your questions here orr just get the chance to vent and know that we all have BTDT. And we have the occasional pocket party where we don't gain any weight on all the wonderful snacks and drinks.



    I have only 3 more boosts to go. My skin just started to get red and peel (and sting). My RO is thrilled because she expected this weeks ago. She said we could stop for a couple of days or - if I'm game plow through. I said let's get it done.

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  • Meece
    Meece Member Posts: 19,483
    edited February 2012

    Love your pic at the header, Eli~

    Here is my Sister in Law and I at her wedding reception.  She had green icing leaves on her cake!

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  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited February 2012

    Cute pic, Meese!

    Yay Reesie! The end is in sight!

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2012

    God for you for plowing through, Reesie!

    LOVE your new avatar Meece!!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    reesie,  We haven't heard much from you, but you were quietly sailing thru' those rads.  That is great that you are almost finished and have about average skin burn.  Everybody gets something, but if you are lucky enough to avoid blistering, you did pretty good.

    Meece, You and I go on the Memories thread and wax lips comes up about every 15 pages.  That's what made me post them here.  Your green lips are more alien looking (so, of course, make a great wedding pic.  Forget those traditional cake cutting ones, or holding some flowers...if you get a green frosting-lips pic, then you've really got something!)   Like your new avatar pic too.

    lisamarie68, Cute pic of three generations clowning around.  Smile

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